Sunday, July 18, 2010

I was all set to

Burst into tears - I was close to it, I admit. I was so utterly frustrated at the pace things were going at a stupid pace and then a pretty serious set back in my recovery which basically meant I fainted or passed out late this morning got me quite rattled with the doctor who wanted me to stay in. After "a few words" I got my way and managed to get home but the trouble is, after all my saying about "things will take their own time" and "what will be will be" you can hardly expect as it passed 48 hours after the time of my operation that I still actually wanted to be pleading to go home. However, I can be pretty persistent and pretty persuasive when I want to be.

Well I am off to bed and will have to sort myself out tomorrow for a weigh in. A quick look tonight shows 232 pounds, but I'm weighed down with a good few pints of water in my system to get me irrigated and so seeing how little I actually ate these past few days I'd think there is some loss but I have to wait and see.

For someone who likes to be in control and let's face it, I've had 8 of these Cystoscopies, not one of them has been the same as the other. There is no pattern, little logic or rhyme and reason behind them. The leaflet is straightforward and states a series of facts and not one of them is correct for this particular visit. The problem comes when you set yourself up for the obvious answer to facts and factoids (I love that word) presented to you and you make a "logical" assumption only to find that you are WAY wide of the mark. I woke and found myself cursing the fact I had a Cathether stuck in me but worse that that two huge saline irrigation bags alongside my plasma bag and I really thought that they'd found a tumour and TURBT'd me. What else could it possibly be - the only experience I have ever had of that sort of set up was the original TURBT and the first Cystoscopy that turned in a Re-TURBT (Scar Wars II - has many of these traits too). How wrong was that? Way off beam, no tumours at all, no funny things that looked like tumours. So how come I ended up with all the gear? Biopsies in the neck of the bladder and as they were there they re-did the areas from last time and another lot as well, in fact they just went to town and used my bladder lining as an open cast mining town!

Anyway - bed - I must get some sleep. However, fear not, there was also plenty of humour along the way....

I have just re-read this post - this is why you should not sign legal documents, drive a car or do other things (like write a blog) after a general aneasthetic. I will leave it as it is to serve me right in the future :-)

Sunday Afternoon???

Yes Sunday afternoon and I finally got back from my Cystoscopy. Wait until you read Scar Wars IX for absolute details - let's just say "It's been emotional!"

The good news out of all this utter turmoil is that it looks clear and my Consultant said "It looked OK, a little pink where we operated last time" (3 months ago) and "I would be surprised if the lab results show anything different"

The comedy of errors and the sheer amount of work they did mean that Scar Wars IX overran Scar Wars I and Scar Wars II by more than 4 hours!!! So this is the longest of any of the procedures to date and it was just a check up :-(

More later - I'm OK that's important. I'm pretty sore, very p1ssed off and quite emotional but other than that - fine :-)

Friday, July 16, 2010

You've been here before

I certainly have been here before. I am now plugged into my MP3 player, listening to Supertramp as it happens. Just doing some odds and ends, updating Facebook, updating here, getting myself into the zone as far as I can and just preparing myself for the rest of the day.

I'm pretty much neutral on outcome - by that I mean I haven't prejudged it this time. I wait to hear what they say and I hope for the best but may have to accept second best. I really hope that they can just get on with it and get me out as soon as possible. I just want to be on the other side as soon as possible.

I need to do a trawl around the house and check everything and then wander up to the Hospital. Scar Wars IX here we go.

That's a little better

Crashed into the exercise regime and did a 30 minute burn. Took my mind off what is going on later, brought my blood pressure down and with a bit of luck will allow me to potter about until 11 when I need to head off to the Hospital. In fact I might go 10 minutes later to arrive just after the time they want me there. This will save waiting in that awful waiting room I hope and let me get straight to my curtained off area to get ready and into my zone.

Floods of Dreams

They are strange things dreams, my Dad was in a few last night, chatting away to this chap who is actually seen on TV and we were in some old fashioned shop chatting away about some cycling down to the coast or some such thing. A fitful night, as you'd expect and a nervy feel this morning. I can feel my heart thumping away and my Blood Pressure reading is reassuringly high, so high that I am not going to record it on my chart until after I've done some exercise. I've made a decision to do that this morning - more as a distraction than anything else with the possibility it may just get my breathing and Blood Pressure under some sort of control.

Light breakfast has been had and I am now on water only until 11 and nothing after that until after the operation. My MP3 player is charged up and ready to go but I'm not packed yet - I will do that in a minute or two once Mrs. F. and L go off to work and school. I then have the place to myself and can sort myself out accordingly.

As I often say to myself, it will all be over this time tomorrow. I hope that is the case. More importantly, it is whether there are any recurrences and if there are, what grade and stage they are at and what to do about them. If things are clear, that will be good. I feel pretty good although I have sympathetic pains in and around by bladder and the back of my hand - strange sensations both.

I feel pretty good - albeit I know I'm a bit stressed. I'll see how a bit of exercise and a shower and shave make me feel. Hopefully that will burn away some of the hours.

Thursday, July 15, 2010

And so to bed

Well I will do once I've sorted myself out for tomorrow. I need to be up early for a light breakfast and then I can do some checking before taking myself off to the Hospital. I'm charging my MP3 player and have spare batteries for the other one. This time I am taking ordinary music - not particularly soothing classical like normal to see if I react any differently to some rock, progressive, pop and general music.

I didn't do any exercise this afternoon - I really just couldn't be bothered and the golf was on and I spoke to my business partner around about 3 pm and realised that I wasn't concentrating on doing my work and I was going "into the zone". By that I mean going through my rituals and beginning to go into a shell like existence where I'm in myself - I'm sort of safe there and lost in my own little world that protects me from myself and builds up this shield when I have to go to the Hospital. The roller coaster will start tomorrow and I have little or no control over where it stops and how things will work out. Ideally I'd like for it all to be over in 5 minutes and then to be home in an hour after going in but that isn't going to happen.

Experience has told me the best thing to do is to just let it roll and go with the flow, it will happen in its own good time and it is no use getting all het up about it, what will be will be and that's all there is to it.

What they find will be what they find and I can't do anything about that either and so it isn't worth the worry and when I think about the past I begin to realise that this is the way of it from now on. I am being well looked after and monitored closely - I'm young and so they want to make sure. That sounds a bit callous but I think that is what I read between the lines.

I hope that I'll manage to get some sleep tonight just in case I am kept in overnight tomorrow again. I hate that - really hate it and so I will hope to "challenge" my Consultant to get me out on the same day like last time. If I have any wish at all it would be that - there is nothing worse than trying to sleep in a busy Hospital ward!

I had to laugh a minute ago though when I saw Steve K's Blog - he and I are having a friendly weight loss competition - what made me laugh was the thought that maybe I was only going in for biopsies to lose more weight. It only hurts when I laugh - or will do for two or three days anyway. Well at least that brought a smile to my otherwise serious face this evening - thanks Steve :-)

Well I had better be off and get my bag packed ready for tomorrow.

Here it comes

It is difficult to describe the feeling to you. it is a heavy feeling, clawing and at the same time it also has a distinct taste to it and it is stress and a bit of fear all rolled into one. It has just gripped me and the reason is that in about 24 hours I'll be wheeled down to theatre for another set of biopsies and whilst I'm uncertain of the outcome - I do know what to expect throughout the day.

It is strange this feeling, breathing is a little more laboured and suddenly no real interest in or ability to do much in the way of work. It is just as if a switch has been thrown and I just feel down although in reality I keep my upbeat thoughts - my body refuses to be as cheerful as I think it should be.

Oh well - here we go again, much as before I just have to get myself into the zone and go with the flow. It is going to happen at their speed not mine and I just need to remember that I'm not in control tomorrow, much as I'd like to be. It is however Friday so maybe they'll push things through a bit quicker so they can get home.

Wednesday, July 14, 2010

Exercise - the upside

I guess you have to grasp on to anything if you have to do exercise. So here's my upside. My blood pressure is way down and still going down which is just great - so there's the upside. I also do feel much better and a lot fitter plus my weight is coming down gradually which is great too.

Breaking the habit of regular exercise in the next week because of my operation will be hard I think but perhaps I can do some light walking so as not to disturb the scabs that will be in my bladder. We will see I guess.


Run in to Friday

Well - here we go - it's half way through the week and just a few days away from my operation. I'm struggling to keep focussed on my day job at the moment as there is just so much to do. The need for a schedule is pretty key and that is down to me to refine and complete. I hope to spend time after the operation doing that as I won't be mobile and can sit down and just crack on with that.

So much research and work to do it is mind mending stuff. I hope that I can spend my recuperation time in getting some more of that cracked too.

I've some DVDs arriving in the next few days to keep me occupied as well - I'm looking forward to getting my hands on those as it can be pretty boring hanging around doing nothing for hours at a time and whilst I'd like to think I can do some work - I won't be able to sit at my desk for long periods of time for a few days at least.

Run Down to Friday

I am on the run in to Friday and I was out with my friends tonight. It suddenly dawned on me that my friend's father died around this time 4 year ago and I was unable to attend the funeral mainly because of my need to visit the toilet around every 20 or 30 minutes.

I wrote a letter to him and his mother and I remember the guilty feeling I had that I got cancer just as his father - who was such a lovely guy and massive friend to me - was losing his battle with Colon Cancer. It was about this time 4 years ago. I have to admit to being quite upset that I caused even more upset to my friend at that time. He lost his father and I remember calling up to see how things were going and to explain my situation and then realising that my situation could only add to my friend's problems. Suddenly I felt guilty for having contracted my cancer at the same time such a close friend's dad had died of his.


Tuesday, July 13, 2010

Compliment

My business partner turned up today and took a step back and said "Blimey, you look really well" which is a nice thing to hear. I haven't seen him for 2 weeks and I suppose Ii must be looking a bit tanned after the weekend away and I must be 4 or 5 lbs lighter. It is funny how, all of a sudden, you look slimmer - my stomach is just a belly now not a near full term pregnancy!!!

I went back to exercising tonight and my blood pressure is now way down on even a few weeks ago at 120 over 75 for goodness sake. I used to have 125 as a lower reading (well almost - only kidding). However, it is staggering to see how much it has dropped down in just about 5 weeks or so. I am hoping to continue to slowly drop weight and to get back down to a reasonable weight and I hope that I can achieve really good results by September or October.

Work continues apace and we were bashing out more plans and bits today. It is hard grind and can be quite boring too so it is good when we get together and share out some of the work and see how far we each have got.

I am out tonight with my old school chums. At least I wont be getting any rubbish off of them like I got last week. We shall be enjoying a few beers and I'll be wishing my friend well as he goes off on his Baltic Cruise and follows - roughly - what we did last year.

Monday, July 12, 2010

That was nice

I haven't been to G's Lodge since the day he was initiated and that's a combination of things including my own Lodge of Instruction meets on Monday and I'm relatively senior and have to be there. My treatments, when I had them, happened on a Monday and I was generally in no fit state to go and a million and one other reasons. However, I made it at last. A little early but that was good. Very good as I had to travel by tube in this hot and muggy weather.

As regular readers know I happen to suffer from a couple of worrying character traits and phobias. The phobia that is the worst is claustrophobia and so as you can imagine - a trip on an Underground train is right up there on my list along with drilling a hole in my own head, plunging my body into boiling water and a few other things I could think of. But as I got away from work early I was able to catch the train early and so spend a nice quiet few minutes in a pub in Tufnel Park drinking a rather cheeky Red Beer from Cornwall - Mmmm. It was boiling at the meeting and I managed to get a job to do which I did enjoy. A vegetarian meal was provided and so that also made for an interesting evening. One of G's mates drove me most of the way home which was great he dropped me at a railway station and after 2 minutes wait I caught a train to my local station and a further 2 or 3 minutes later the bus turned up so I was home by 10:30!! which is great. A good result all around.

Pleased that I didn't have any travel issues on the Underground at all - not even shortness of breath so pretty impressed. i did though notice my behaviour about where I sat and how I get on and off these trains, how near I sit to doors and windows etc.

Sunday, July 11, 2010

That's strange

My ears are getting longer, my nose has started to twitch a lot and I've taken a rather strange like to carrots. Time to move into the Hutch....

Out all day tomorrow - time to face the wrath of my co-workers for not turning up on Friday after the crazy afternoon of credit card cancelling and all that jazz! What a day Friday was. This Friday coming will also be one of those days too. Scar Wars IX breaks the horizon and I'm trying not to get all emotional about it. In a way, it frightens me that I got a recurrence last time and perhaps there will be something worse there this time. That's why they've brought it forward 3 months so they can check that out. I hope for the best but this time I need to be a little less optimistic about the results so that if it is worse than the results I want, it doesn't come to me as big a shock as it did last time.

Diet will be blown off the rails tomorrow as I am back in the office and they are providing lunch for our meeting and then I am off to a meeting in London, which will be great as I haven't been there for a long time. I just hope they finish at a decent time so I can get home OK. Last time some nice chap gave me a lift back as I was in danger of missing my last train. As I recall - I got a really late bus home - almost the last one!! I have been assured that this time it will not be a late one. Fingers Crossed.

Weight

16 Stones and 3 lbs - which in real money is 227 lbs.  I suppose I shouldn't be surprised about that as the Hospital measured me lower than that on Wednesday and this week I have actually noticed things like my trousers being really loose, my jackets are no longer tight especially around my stomach.  Even my thighs look thinner - if that can possibly be :-)

I'm very pleased - I reckon the weather must also have a lot to do with it - I've been eating (except last night's barbecue) rabbit food all week and just a little fish or meat.  Generally, I eat salads with some sort of fish or have baked potatoes with baked beans and Tuna and some low fat cheese.  I'm still thwacking back cottage cheese and taking my pro-biotic yoghurt drink every morning.  I'm eating lots of fruit and also have dried fruits too.  I have no sugar or sweet things, no crisps, no cakes or anything like that - if I want a snack I go and get a piece of fruit or a stick of celery or some such.  It is slightly more than my target 2lbs a week but I'm sure there are anomalies with the measuring equipment and some sort of plus / minus thing that goes on.

I will have to be careful after I come out of Hospital as I tend to "boredom eat" if Ii am just sat or lying around all day recovering.  If you've not had a Rigid Cystoscopy the main thing is that they insert a large tube up your urethra  which leaves you pretty sore for 24 to 36 hours and uncomfortable for about a week I suppose.  Because they normally take out 6 biopsies from your bladder to examine, and these are cauterised wounds, they scab up and you must be careful to let them heal and they tend to take a few weeks to clear up completely.  Unfortunately you do tend to pee a bit of blood and the odd clot for a few days afterwards and then perhaps up to 2 weeks later can pass some bits.  It isn't painful just unnatural and therefore disturbing.  So as you can imagine, leaping around, doing exercises or any other over exuberent activity is seriously frowned on.  I did some and set myself back - this was probably in early 2007 and I was told just to take it easy.  Things like driving especially a heavy old clutched manual car like mine are also not advisable for the first week or so.

Well, I am pleased with my progress to date and I am pleased that I've changed my eating habits enough to continue to lose weight with the help of my exercises.  I am not expecting too much in the way of loss in the next 3 weeks though.  


Thing are a little cooler

The weather has broken down a bit and with a bit of luck we can spend a day in warm but not humid conditions. Yesterday was almost getting to unbearable and doing anything was difficult. Exercise was right out and so that meant 2 days without doing any. I am out all day tomorrow and so it may not be until Tuesday that I can get back to doing any and then only up until Friday and my operation. I might even consider doing some exercise before going in to hospital - at least my Blood Pressure will be low :-)

I need to go and check out my weight etc in a short while and publish that. I'm hot expecting great things this week especially with a few days missed through the heat.

Saturday, July 10, 2010

Too hot to exercise

Saturday was so warm today that it was difficult to do anything but hang around indoors with fans blowing air around. It is too hot to do anything and there was no way Ii was going to tackle any exercise today in case I overdid things.

Feeling OK, a little p1ssed off with yesterday's nonsense with the on-line fraud stuff. An me after all my years in the business too.

Other than that - an easy day just everyone is boiling hot.

Friday, July 09, 2010

So that blew my Exercise and going to London

I spent half the afternoon sorting this out and doing the usual changing passwords and all that good stuff. What a nightmare.

It is boiling tonight and the fans will be working overtime in our rooms to keep us cool. The humidity is through the roof - we just aren't used to it. Hopefully we will get some sleep but it will be difficult.

Come to think of it - doing exercise in this would have been pretty meaningless I cannot imagine it would have been comfortable or constructive.

Roll on the weekend. I need to just enjoy it after the annoyance of today and the brain work I've done and - of course - getting ready for Scar Wars IX next Friday. At least by this time next week it will all be over. I hope it isn't as hot as it is today....

Bugger

Identity theft - what a dumb ass. A long day, it's very warm and I fell for it. At least I knew as soon as I hit the button what it was and blow me - at least we were able to call it in and stop the credit cards straight away. Clever - really clever and I even did some looking around first to see what it was all about. They've been very clever by using a system that points people to their site.

Dear Lord please give me one minute on my own with one of these low life good for nothing waste of oxygen wasters - oh yes - I need a baseball bat - and I can so something about it. Ripping them a new rectum seems somewhat appropriate. So I didn't get to go up to town and have a few drinks with my work colleagues I have gone through all my email accounts and everything else on-line and changed the passwords.

So, let us hope that something very nasty happens to them and they get caught and locked up with the big boys in prison.

One Week Away

This time next week I will be going into shut down mode ready to wander off to the Hospital to have the next procedure. Nine times in 4 years I'll have to set out a chart one day to see the pattern of these visits. I hope my Consultant is there and can get me out on the same day again like last time. It made a big difference to my general well-being. If I can get home on the day I feel 100 times better and can sleep in my own bed rather than in a noisy Hospital Ward.

I hope that this time they bring my bag to me quicker so I can listen to my music if I have to hand around. There is nothing worse than having no book to read or nothing to take your mind off the clicking of the clock on the ward.

Suddenly I feel a bit melancholic about things and I just let out a huge sigh. The thing I have to keep saying is that there was only a pin-prick of a tumour in the bladder which they took out - it was low grade and everywhere else was clear, no cancer, nothing else, just clear. So a minor setback is all it is, being called back in 3 months is a precautionary thing. If they find nothing this time then we move on, if suddenly we have more of a recurrence then another course of action will be needed. Quite what that is has yet to be determined and until something is found isn't necessary.

I expect my mood to get slightly worse over the next week as it draws nearer. Let's hope that it all goes well.

Happier things before then of course, the F1 Grand Prix is at Silverstone this weekend, the World Cup plays its last two games, the Tour de France is under way - only another 2 weeks to go on that. The Open can't be far away either. L has her provisional License ready to tackle driving once her 17th (yes 17th) comes around in August. A is getting ready to go on her 3rd holiday of the summer (poor students) and she is planning on taking us somewhere, not that anyone has actually told me when they are available.

Being a control freak really does have its problems. Talking of which I found this trawling around the Internet which I thought summed it up pretty well:



Thursday, July 08, 2010

Makes your blood boil

I can't believe the utter mess this guys has made of a document I spent at least 20 hours making nice after the last time he tackled it. Now he's split it into three documents - 3 - what is he playing at?

I've just delivered the bad news like - if you want my time you really ought to book it and let's face it, he cancelled a whole day of my time last week (or was it the week before). So I didn't get paid for a day that was booked and now I'm doing MY work he wants me to drop that and help him out.

So I've fired off a late email with the news but honestly, we have people needing to review and comment on it by Monday and it may not even be published until late tomorrow night if I can squeeze in trying to repair all the damage done to my original.

Hopefully he will realise that I can't just dangle around waiting for his every whim?

Thrashed on with exercise tonight and got rid of much of the anger that this incident had caused. I hope that I can report a loss of weight on Sunday but A is angling for a barbecue as it is going to be a hot weekend and she bought me 4 beers which are chilling in the fridge. That would utterly kill my diet which again has been mainly rabbit food. I do like though mixing up the salad with fruit and nuts and dried fruit too. Today we had peas in their pods to shell. So lunch was a can of vegetable soup (yes even in this hot weather) a small bowl of peas followed off a little later with a really nice ripe Green Fig. I even had a few cups of tea today - which is very rare for me. I'm a bit of a coffee nut but today it just made a change. With salad this evening with some Mackerel and a few shredded crab sticks, I reckon that I've probably only eaten 1,000 calories at the most maybe less that that. I'm certainly much better with intake of food now and a salad takes me 15 minutes to prepare and I can take at least that long to slowly eat it. It's all about not snacking and filling you face too quickly and eating the right things etc.

I'm still seeing improvements in my Blood Pressure readings and I did jump on the scales tonight to be disappointed that they don't appear to have moved much since Sunday but they didn't read what the Hospital ones did. Maybe I ought to invest in a more accurate weighing device :-) Anyway, I try to only look at my weight on Sunday when I record that, along with my measurements - waist, chest and hips which I enter into a BMI calculation. It shows a gradual decrease in weight but not much discernible in the other measurements excepting that my waist must be getting smaller as my trousers are noticeably looser and my belt is one notch tighter.

I'm feeling a lot better in myself and that's also a good sign I reckon. If you feel good about yourself then your self esteem is up and you start to feel that much better.

I have to sort out tomorrow morning whether to go and sort out this set of documents or not. If I do I set a precedent (which I also do if I don't do them I suppose). He will just have to learn that I am not a resource which you can throw a switch and I'm there.

So let me get this straight

I send you the document I've worked up into great shape 3 weeks ago and you've destroyed it and cut it in half. Then you've damaged all the functionality and the sections and the headers and footers, destroyed all the page numbers, the indexing and we now have two documents because you "think" that is the right thing to do?

We have a meeting on Monday and you really expected me to put it all back together by this evening so it can be issued to the team? Oh and you want to send me the 2nd half of the document to tidy that up too. Of the 120 odd pages that need to be reviewed by the team prior to Monday (and It's Thursday late afternoon now) you felt it was then fair and reasonable that they'd get the document tomorrow some time? Yea right your having a Giraffe (that's laugh in your language).

I have my own business to run and so I may deem to answer this at about 10 tonight and ask why? I was meant to issue the document not spend all my time repairing it tonight. I won't budge either, I've got my stubborn head on as I have been working all day on researching where we can get funds from. It is hard work mapping out all the people you know and where you can get introduced to go and get some finance. The trouble is that we need a lot of money invested in a controlled manner. We have specific requirements and reading some of the hoops you need to go through it makes you wonder how anything actually gets off the ground. The personal costs involved in agreeing terms seem to amount to the actual cost of doing 6 months work - again, they're having a Giraffe too in my estimation.

Right - I've done enough work for now - off to do some exercising and get ready for a relaxing evening.

Wednesday, July 07, 2010

Friends the good, the bad and the ugly

I like to consider the one great thing about Freemasonry, beyond the moral and charitable foundations is that it is about brotherhood or brotherly love. these 21st Century days those 17th century words probably don't mean what they actually meant when they were first coined and can be twisted somehow and maybe those words need to change a bit. I't isn't love in the way you'd expect it to be described since the 1960s for example.

What it means, of course, is comradeship if you like. What - perhaps it feels like to be on the same side, team spirit, brothers in arms maybe. So tonight's great vibes were when they read out that I was in next week for a small "set back" in my progress and the 9th operation in 4 years. My Almoner, C, has been great and kept his eye on me ever since I've been ill. He reads this blog so knows some of the ups and downs. He is great and I know that he does lots of other visiting things that he never tells anyone about. Such is the mark of the man. So C reported to the Lodge what was going on and the well wishes were and still are quite over whelming. I have to bat these back saying it will be OK, it is only a minor thing, it is no "big Deal" it is the sort of reality that is bladder cancer. I always, and maybe I shouldn't, enjoy explaining how they actually get into my bladder to do this work. "Is it key hole?" they ask. "well - they go in through your penis" kind of kills off the conversation. If you haven't go the wincing by then - well you're just no good at it :-)

The other one is "how did you find out?" - so you say "I went to the toilet and pissed blood all the time" also has about the same squirming effect. I don't actually do the "beat around the bush" stuff for long as people really need to know. They need to be aware and also in some ways to understand the facts that it isn't a death sentence.

So where is this blog going? It is rambling a bit and the reason is that one of my friends, who I have known for a long time, and I've whined about before on this blog, is still driving me bloody nuts. I've known him all my Masonic life and it is because of him I am so involved and yet, when he is in the sh1t and needs our help he doesn't see that we are trying to help. But the reaction is so bad and bitter and everything is wrong about the guy that I can't get near, help or anything. the reason? It appears that it is something to do with I've got things sorted out and I'm OK and somehow it is wrong.

That still doesn't translate well! Let me try this then - You can tell I find it difficult to tackle this because it is a long term friendship but he's just p1ssed everyone off and try as you might, he isn't going to accept your help as he is now in full denial that there is anything wrong. I can't get past the protective shell he has put up and that shell is nasty, aggressive and spiteful and hurtful to his friends. I have to keep trying even though it hurts me I suppose.

So tonight I suggest that I had to take a course of action as I wasn't sure whether he was going to turn up and he rounds on me as if I have done it to hurt him. I have to do these things to get them done and meet targets. He is Mr. Unreliable incarnate and suddenly, because I have had to be pragmatic (and I don't really need to involve him) it is my fault. I'm easing him out. I'm doing something to him. I didn't even need to mention it.

How long do you keep trying for? He is a friend after all but for the last 18 months he has done everything in his power to destroy that and make me the villain and I'm (hopefully) not. He has made so many enemies recently. The girls in my office don't like him and he's upset most of the people I've introduced him to. He just can't help himself. He's even p1ssed off Mrs. F. and that, I can tell you, takes some doing.

So - there you go - love/hate relationship and it's all looking bad and the chap is becoming a self-fulfilling prophecy - he's going down and despite all his friends rallying around, he's turned his back on them too and going to the depths all by himself. I was thinking of a phrase that summed this up and this one does that:

"I’m trying to see things from your point of view, but I can’t get my head that far up your ass!!!"

So back to the blog - the ugly and bad is done. The good are all those who wished me well, looked worried, didn't quite understand that it isn't that serious but they thought it was. The ones who thought I was being brave and yet it's "just the way the cookie crumbles guys" and all that stuff. I sort of spent the time rationalising it the way I rationalise it:

  1. It was a tiny, minute tumour
  2. the remaining 99.9% of my bladder was clear of cancer and has been for 3+ years
  3. You can't treat a tiny, weeny little tumour like that - it was cut-out and is NO LONGER THERE
  4. It was low grade, low threat, less than CIS or any other tumour I've had before
  5. Decreasing the time between biopsies is best in class behaviour and the right thing to do
  6. If they find anything now - they can scrape it out. If they don't we revert back to the original 6 month reviews
  7. In 3 months not a lot can happen to a bladder that was left cancer free
  8. BC grows slowly and can be controlled
Now I know this - and Steve K in the USA knows this as do many pragmatic sufferers. We live with odds and facts and binary decisions. We also live with "other stuff" that may or may not assist but we rationalise and we decide and we move on from there. We know that this is what happens, that BC is no death sentence to us as we were "caught early". We are constantly monitored and subject to the best western Medicine available.

Of course, our friends don't know this. They think we are "brave", that we are "warriors" and yet we are no different to them. When you get this you decide to live or to die. It is your choice. If you wish to live then you have to undergo many things. Believe me, some of the things I want to live for are very important for me - perhaps see my daughters down the aisle - see them graduate or maybe - though I'm not sure of this - to become a grandparent. I don't know but to me, life is worth all the fighting, the Hospitals, the treatments and all that. What does it mean if you just roll over and "take it up the ........." you fill in whatever blank feels appropriate.

I'm not brave - I do however believe I am an Advocate or Ambassador and show people that Cancer is survivable, something that you tackle with dignity and good humour. That surviving matters, that doing the right thing is the way forward, that you need to have a respect for these things but that you don't fall over cheaply and that you play your part in defeating this scourge to society. Cancer ruins so many lives. It never fails to make me feel humble that I've survived, that I can still fight it, that - compared to many others - I am so lucky to have something that is treatable. My family are older, imagine a younger child or family dealing with this and I do get upset by it.

Now I'm arguing the point I made above about these wonderful people, who aren't directly affected by cancer being worried about me and there is me, worrying about them when, in reality I find seeing anyone else in distress especially young people and young families equally upsetting. The balance is that I've had quite a bit of life and they haven't. It would leave a dent here but my children are older and I hope more resilient.

I like my friends, the good the bad and the ugly I just wish the one person I had so much time for - for over 25 years - can just switch back to being the person I admired and loved so much. Today, I find it so very hard to enjoy his company or to try and have any sort of discussion with. I feel that my energy just drains away and that all attempts to get close are met with a virtual stab in the heart with an ice hardened dagger. It is so sad but what I'm getting to eventually is this nagging in the back of my head and it says:

Look after yourself. Only your survival is important, be selfish for once in your life, do the right thing for yourself and your family. Enjoy your own life and do your own thing. I've not lived by those rules ever. I was brought up to help people and yet the nag nag nag in the back of my head says these things. Look after yourself and your own, sod everyone else. Survival is all.

I fight against this selfish view, rightly I think. But maybe, just maybe there is something here that means - just concentrate on getting yourself right first. You can't help other people if you aren't well enough to do that. You can't keep getting emotionally involved, whipped, beaten up without their being further toll on your health. Be Utterly Selfish and get yourself well. Sod the rest.

That is what my head says and is wrestling with. Sometimes I really hate the way my brain works - it has these arguments and moral battles and no one actually wins out.

Time for bed said Zebedee

All Systems Go for Scar Wars IX

Yep - clean bill of health, amused my regular nurse with a full readout from my Blood Pressure monitor but actually 160 over 90 was pretty good for me at the Hospital :-) Blood taken, Heart Monitored - Questions Answered and ECG and general prodding around is done so it looks as if all systems are go.

I feel like a regular there now, had all my MRSA tests done as well and so things are set for Friday week. It was interesting as we got onto the weight loss discussion and I measured 102.5 Kilo today. When I was first in Hospital I weighed 92.5 Kilo so a 10 Kilo or 22 lbs difference. That gives me a good idea for the sort of weight loss I am contemplating and I still felt I was overweight then although, having said that, I have been lower.

So 102.5 Kilos is 225 Pounds (16.14 Stones). What is interesting about this is that it is much less than I think I weigh which I think is closer to 230 - there is always some sort of variance I guess and I was weighed first thing in the morning with little in the way of intake so perhaps that may be it. I scaled 92.5 Kilos in 2006 which is 205 Pounds (14.64 Stones).

So there is my target weight to get me to my pre cancer weight. I reckon that it needs to go below that a bit further for my 5 foot 11 and 3/4" - I'd be 6 foot if I had any hair :-) We will just have to see. I can't imagine that me eating a bag of sweets (my reward for having my blood taken) will overly impact my weight but I have a slap up meal tonight which may well affect things :-)

It is amazing how quickly you can put on weight but how slowly it tends to come off. I know that it should come off in a controlled manner and no more than a few pounds a week. It is pretty depressing to think that it could take me 10 weeks or more to lose anything like the weight I need to but at least if I can maintain that it will mean that for September and October I will be able to fit nicely into my suits again.

Tuesday, July 06, 2010

Early Morning

I will wander up to the Hospital and have my pre-assessment done. I must remember to drink plenty of water as they need a sample when I get there and I need to take the 2nd pee of the day in a sample jar with me too.

I'm getting an old hand at this now and I am going to take my Blood Pressure readings of the last month along just to prove a point about my white coat syndrome. Even though I've been through all of this before I still find it particularly stressful especially blood tests and everything else. I've only ever been ill when I've been in Hospital - that statement may not make sense - but what I mean is, it has always been, operation this, course of treatment that, stitches, injections, operation, nasty tests and so on. I suppose you don't go there otherwise but to me, it just has no "nice" feel to it at all. I associate it with having stuff I don't want to have done, being done to me.

At the end of the day though, they are helping me and I am a lot better than I was 4 years ago without doubt. If they didn't operate then and do the treatment etc., well..... maybe I wouldn't be here now to complain about it :-)

This will have been the 9th Operation in 4 years. It is eclipsed by my time when I was a child of having 11 operations albeit over a 9 year period and some of those were close together. These were on my ear which I managed to have a series of Polyps removed and then a blown ear drum, a reconstruction, some clever removal of the hearing bones and re-insertion sometime later and then a mastoidectomy which I remember being pretty strange as I had a tendency to fall over through dizzy spells for some time after and had migraines for about a year afterwards. Glad I never got those headaches again they were wicked things as I recall.

To add to that I had one hell of a scare after getting off a flight and ended up for 4 or 5 days with a suspected heart attack that was eventually explained away as a feint - possibly to do with the plane being cramped?? Mmm. So there you go - Hospitals are not my favourite places.

I did have my friend come and do some hypnotism on me and that has helped me a lot. I can take myself to and from hospital. I can even have blood tests and that without needing anyone nearby so a massive improvement in the way I approach having to attend and go through all these things. Once tomorrow is out of the way I will be able to take it relatively easy as I won't go in until the 16th July and so a week and a half should help me to get prepared for Scar Wars IX. Let's hope that it turns out better than Scar Wars VIII.

Nothing quite as boring

As pouring over legal term sheets and agreements. I could feel my interest levels dropping off this afternoon. What a load of words :-) All necessary I'm sure but it takes a long time to read through and digest what they mean and then come to terms with the - well - terms :-)

I feel relatively upbeat but have to attend Hospital tomorrow for my pre assessment and I do feel a bit worried about what they are going to find in at the end of next week. I suppose I should just accept what will be will be but in fairness, it does play on your mind - it's bound to. I know that they wont whip my bladder out next week but you know in the back of your mind that it is a possibility if the recurrence carries on. I imagine that they may well have to BCG again if that is the case. My friend is on the "old" regime and has been on BCG for more years than he cares to remember too. He recently had a "red area" recurrence so back to the beginning again for him.

The one thing I know is that I trust my Consultant to let me know what to do for the best for me so I suppose I just have to wait and see what the results are. Tomorrow is the 4th Anniversary of me going to see my General Practitioner and being informed that he thought it was most probably Cancer - he has a way with words....

Oh well - it is almost exercise time again - I'd better go and get on with that and get it out of the way :-)

Monday, July 05, 2010

Well that wasn't so bad

I did 30 minutes on my cross trainer and racked up the furthest I've travelled before so that was pretty good.  I am getting closer to the 8kM mark in 30 minutes and like Steve K in the USA, I think that exercise is the spawn of the Devil but it appears we must do some to assist with all the other things we do to fight off further attacks of Bladder Cancer.  Still 7.4 kilometres is about 4.6 miles and 8 would let me hit the 5 miles in 30 minutes target.

Unlike Steve I do feel a benefit and can actually feel it is doing me some good.  For distraction I stick my MP3 player on quite loud and just pound away for 30 minutes.  I do a few minutes recovery and then do some light dumbbell work for about 3 or 4 minutes and that does me.  After cooling down I check my blood pressure which is always reassuringly low and on a downward slope (which also gives me some satisfaction) and then I have a shower and have something to eat.

I was a bit worried that I'd feel tired or not up to the exercise today but in fact I'm obviously getting stronger and getting further along each time.  I wonder when I'll get to the magic 8kM?

A Flocky Compliment

He must be ill :-) He actually noticed that I had lost some weight but then I haven't seen him since the beginning of June and I'm at least 8 Lbs lighter if not more than when I last met him.

Today has been a really difficult one for me to get motivated and sorted out. I really need a kick up the backside but that probably wont help. I am tackling about 20 documents - not all at once but each impacts the other so you do one, then that may alter 2 others. When you bring them up to date you then realise that another document is in need of updating and so on.

I need to remember to go and do my exercises a little later. I'll see how good my weekend walk was at increasing my stamina and fitness overall.

Sunday, July 04, 2010

Interesting Weekend

So let's look at my weight. Not always a good thing to do on a Sunday night but for what it's worth I checked and then double checked as I couldn't believe that I scaled 16 stone 6 lbs. or 230 pounds. I know that my jeans and trousers are beginning to get slack as I kept having to hoist them up and the belt has gone in a notch. I can definitely feel my stomach is tighter and I feel a lot fitter.

We had a great weekend and despite my terrible night on Thursday (could I have burnt nervous and emotional energy?) I have managed to exercise every day. On Saturday Mrs. F. and I must have walked 10 miles. We walked from Hythe to Dymchurch but not along the coast road - no we followed the Canal (built as a redoubt against Napoleon) and then cut in across country walking around some large lakes of a disused quarry and we really knew we had been on a route march. We are suitably tanned too after al those hours in the sun.

I enjoyed the weekend and as it was my birthday had a slap up meal on Friday and Saturday night and full breakfasts on 2 days but considering that we had nothing for lunch and did a lot of walks I can see that it is possible that I would not have put weight on given I have been crunching away all week and have eaten like a rabbit. It was nice being near the sea as on Saturday I had Dressed Crab followed by Moules Mariniere washed down with a nice Pinot Grigio Blush Rose. Mrs. F. had fresh Tuna which she said was the nicest she has ever tasted.

I'm impressed that some of my birthday presents include dried fruits of various types - nice one...

My Nephew has recovered - just about - from Thursday night's shenanigans. Strewth - I never want to go through that again. It makes me shudder now just thinking about it. They got paramedics out to him and it was a combination of not eating, drinking and the heat that did for him. At least he is OK and - hopefully - learnt his lesson. For me - I need to work on my "coping" skills - in the old days I would have been OK but I found myself foundering and unable to really cope. I was stuck in a small enclosed space too and for a long time and it was emotionally draining. Discussing this with my friend I've found that this is something to do with the way we are post cancer as he has the same. You find that dealing with other people's emotions and problems far more draining than you did before. It saps your energy and it doesn't take long before you have nothing left in your tank to give. It's not that I don't care it is just that my ability to do so has been greatly diminished and I find that it upsets me too - I can no longer stay impartial and the great arbiter I used to be. I still find it inexplicable that something can still pull such strong reactions and emotions out of me or that they can drain me so quickly.

I am set for a hard week of grinding out business documents. I hope it coos down a bit in the house too. On Wednesday I have my pre-assessment and in the evening the last Lodge meeting of the season. We pack up and have a few months of for the summer. On Friday week I have my operation (my 9th in 4 years) and hope to find the results shortly after that. I will have to work out what alternatives to exercise I can have. Some years ago now I exercised too early and started bleeding - I was told to take it easy (obviously) and I imagine I will have to think of about 2 weeks break. In that time I may try and do some walking I think.

Friday, July 02, 2010

4th Anniversary and a Frightening Moment

Last night I was out and met my Nephew.  I'd never really understood what it was like for people on the other side of my illness and he was very good and told me about everyone's fears and concerns.  We discussed loads of things and then suddenly he started acting - well - a bit strangely.  I ordered some food in case he hadn't eaten before he turned up to the wine bar but shortly after that it all kicked off.

I'll not go into too much detail but I managed to get him to the toilets where he stayed for a good 1 to 1 1/2 hours as I got water in and out and tried to work out what to do with him as he was coming in and out of conciousness and so I was keeping him awake and sticking water down his throat which promptly didn't stay there for long.

I grabbed his phone and managed to call his girlfriend and get their address in London.  I spoke to my wife to get her to do a bit pf phoning and then the really frightening thing happened.  I lost it, all of a sudden I just burst into tears on the phone and Mrs. F. said something soothing like "you're not going to help him like that" and it was over, I snapped back and said "NO, I've got this under control, I'm going to sort it out".  I was the only person who was interested or helping and so it was down to me.  I eventually got is address, half stabilised him, got a taxi driver and stuck him in a cab and let his girlfriend know.  

I went back to the wine bar, drank my wine, tipped the wine waiter who did help me get a taxi and gave me a bottle of water to give to the taxi driver to give to him if he was ill further or needed it.  I then got a very late train home and walked back here.  I was close to tears all the way, I can't exactly work out whether it was shock - it all happened so quickly and was actually quite frightening - or just the way I am these days - I would never have been like this before BC or something else at play.  I just found it all really distressing, really frightening and I'm emotionally drained this morning.

Today happens to be the 4th Anniversary of the first real signs that there was something wrong with me.   I'd driven to Yorkshire and on arriving went to the toilet only to emit a stream of red urine.  It really is stuff from a horror movie when you see it and it totally freaks you out.  Maybe it was that yesterday (as we discussed it) or maybe it was also that I realised that it wasn't just me who was petrified by what I had, everyone else around me had to deal with it too.

On a lighter note.  My business partner's cancer is also 4 years ago in a couple of weeks.  He and I had no idea about the other's condition until later in the July of that year.  After that we started to meet up and compare notes and feelings.  I have to say that 4 years ago, I would never have dreamt that he and I would be attempting to start a new business enterprise.  We are both really happy we have got to 4 years post diagnosis.  His magic number is 5 so this time next year he should be able to say it is beaten for him.  For me?  Well Bladder Cancer is different - controllable but it does like to come back every now and then.  Let's hope that isn't the case in a few weeks time.

As for my Nephew - it appears that he got home and was still in and out so the paramedics checked him over.  He had just drank too much.  I have to say - I didn't see him or appear that he was drinking too much but there you go - very hot weather we are having and if he didn't eat anything or maybe it was just his light frame but anyway - let's hope he just has the hangover from hell today.........  And never does it again.


Wednesday, June 30, 2010

No Pressure Then?

well - very little. My Blood Pressure readings have crashed these past few weeks. I'm amazed at the improvement - today I'm down to 127 over 74 which is a huge crash down from 155 over 110 just 3 weeks ago when I did my baseline measure.

This exercise malarkey is good for you - even though it sucks. I've seen a daily improvement and the graph looks like the slope on a championship skiing downhill!! Brilliant.

I'm laying off the exercise for tomorrow as I am going up to town and so won't have time. Friday Mrs. F. is taking me away for the weekend and there should be plenty of sea and sun and walking involved.

Life's good and my business partner was over earlier today as we were going through some of our plans. It seems to be going great so far. long may everything continue like that.

One week today is my pre-assessment. Two weeks on Friday is my operation. As I write that my left hand starts to twinge knowing it will get a cannula shoved up it and the bruising that causes. Oh well, it is all in a good cause I suppose.

I'm off for a shower now having completed my exercises and then will prepare yet another salad and perhaps fish tonight - maybe Pilchards. Flocky Bicep is horrified and things I may have "turned" :-) I'm surprised how good I can make a salad taste with all the ingredients I can bring to bear.

Tuesday, June 29, 2010

Blimey

That burst work I was doing over the last couple of days and today's exercise surprised the life out of me.  I knew today I was burning up a lot faster than normal and did an extra kM in 30 minutes - not bad considering the resistance of the thing.  Measure my BP and it was way down, probably the lowest I've ever seen it.  I waited 10 minutes in case it was an anomaly but no there it was. way below my usual so I'm pretty pleased with that.  If I can keep that going it will be good.  

L has given me some hand dumbbells to use and I did 5 minutes with those after my 30 minutes on the machine.  They made my arms wobble I can tell you especially holding out my arms away from my body.

Anyway, exercise really does appear to work - now to see if I can actually burn off some weight too.

Monday, June 28, 2010

The British and Their Weather

I know - no one else on earth understands this preoccupation we have with the weather but take today, about 28 Degrees C but humid too.  Tomorrow is expected 28 Degrees with 70 percent relative humidity.  We just aren't used to it.   Years of evolution and we still find it too hot or too cold it is never quite right :-)

That's the trouble though living here, you wither get one thing or the other and can easily have 4 seasons in a day.  We apparently have more Tornados and thunder storms than any country of our size more than USA so they say.  I wonder who came up with that stat?  Whoever it was, it seems surprising although we have seen quite a few Tornados of late even one in a London suburb!

But I digress what I was rattling on about was just how uncomfortable the weather is at the moment.  I did my exercises today but was pretty worn out afterwards.  I expected to be as I was sprinting and had another programme set which starts at high resistance and drops to a low plateau to do the crunch bit and then winds back up to the top resistance in the last ten minutes - that's the bit that grabs your attention.  I have a fan running in my office.  I have one in the bedroom too and it just feels so draining this weather.  Perhaps we ought to get air conditioning or I'll work in my Jag all day tomorrow - that will mess up the global warming figures if I do that!

We will have to see what tomorrow brings - a nice juicy thunder storm would be good to clear the air but I doubt we will get one.  Hopefully we can sleep tonight.

Hot work

Exercising in this weather is hot work and I have a fan blowing on me all the time - it sort of helps.  I've been doing 30 minutes a day around about 5 pm every day it finishes off my work day, let's me have a bit of chill out time and vent if I need to.  I tackle my workout using a pre programmed range on the Cross Trainer and I've also been doing these little short exhausting bursts of effort three or four times each session.  It absolutely puffs me out but that is exactly what it is meant to do.  apparently that burst sets off all sorts of good thing in your body.  I have no idea about that I just feel absolutely knackered and it makes the sweat pour off me.  No bad thing either.

I have ordered some sweat bands from eBay which I hope will arrive a little later this week - some cheap and cheerful ones that can be throw away when they invariably get tatty.

It was good to that Steve K in the USA has managed to lose a further pound this week.  I didn't move but was a bit worried I'd put it all back on again.  That may happen this week with Hotel food to look forward to.

Mrs. F. returned from a shopping trip today to say how easy it is to feed me these days.  Here was my bag of fruit, my bag of salad, my sardines, mackerel and pilchards, cottage cheese and crisp bread and soup.   The fruit includes figs and also some dried figs (I love these and no one else in the house does).  I've got walnuts for my salad and low calorie mayonnaise and salad cream (again only I like that).  I have tomato juice - yes you've guessed it only I like that too.  I caught myself needing a snack the other day - a stick of celery.  Suddenly it doesn't seem so bad eating all this stuff that was unappealing only a few weeks ago.  I enjoy the time it takes to prepare a salad and the time it takes to eat one.  The amount of fruit I eat these days is also far more than I ever did.  I can really feel the difference especially things like the exhaustion I used to get.  I still get tired but not anywhere like before, I feel good, my skin feels good and my blood pressure is down and all of this through investing about an hour a day in warming up and cooling down and of course exercising in between plus eating a lot healthier than I've ever eaten before.

Well I'm off for a shower now having cooled down sufficiently, taken and recorded my blood pressure and written this little missive. 

It's Hot Again

Phew - there's a lot to be said for air conditioned offices.  Unfortunately my office can only appear cool through the use of reciprocating fans (air blowers).  I'm stuck in my office and wondering if I'm going to last out for the remainder of the morning or go and work downstairs which is surprisingly cool.  The Front Room has always been so much cooler than anywhere else in the house.  It is north facing and shaded by the massive tree out front.  With wooden flooring it is just a few degrees cooler than anywhere else.

I'll see how I get on.  I was pleased that I didn't put on any weight last week - I reckon it may have been close but I've lost all the drop off weight you tend to get immediately and am into the slow burn it off process.  A little every week is good.   It looks as Mrs. F. has managed to book us a Hotel for my birthday which will be a nice change.   I think because the Goodwood Festival is on we couldn't get anywhere along the Sussex coast.  Instead we are staying relatively local and going down to the Cinque Port of Hythe.  I've not been there since I was a kid and did things like drive down there on a Saturday night with my mates for a beer and a game of darts!!!  Crazy - but then petrol was cheap in those days.

It is quite near Romney and Dungeness so we can get out and explore a bit - it should be fun.  My birthday isn't until the Sunday but that isn't a problem - it will be nice to chill out a bit.  At the moment I am working all the time.  By that I mean my brain is working overtime and all it does is think about this new business and so it can sometimes mean that in the middle of the night I can wake up with an idea and have to get up and do something about it. 

I've been doing myself with my age too - I'll be 53 on  Sunday - I've been saying I was 53 for ages - on Sunday I'll be right!  Apparently where we are going has an excellent fish restaurant with locally caught fare so that will be interesting too.  I'm looking forward to a few days off - the way things are going I don't see us getting away unless the girls get their acts tocgether.


Sunday, June 27, 2010

Was that on or behind the line

I have to say that - it was really, really close and after a look in slow motion I can confirm that I'm still not absolutely sure.  My scales look as if I've lost a couple of pounds but the needle is that thick and the line that thin that it is difficult to say so I think that I ought to call it as no loss this week.  Still 232 Pounds.  I've managed to exercise every day this week and with the temperature reaching 30 Degrees C today it was a bit of a struggle.  

England are out of the World Cup - a pretty average showing and some schoolboy errors in their game.  If they played like they play their Premier League games here then perhaps things may have been different - a disallowed goal that was clearly in didn't help the medicine go down but, there you have it, once more we are disappointed but will we never learn?  

This week I have another one of those lunch time appointments but I've ordered a half decent meal - I just need to ensure that I don't drink too many beers either side of the lunch!

Feeling quite good about things at the moment, that will probably change this time next week as I start to stare down the gun that is my next operation on the 16th July with the pre-assessment on the 7th July.  At least I might get away for my birthday next weekend.  It will be curious actually going to a Hotel on the 2nd July given that 4 years ago, on the 2nd of July, I went to a Hotel and all of this kicked off.  Oh yes, and England lost in the World Cup that day too.  How can I forget :-)

Adieu

Saturday, June 26, 2010

Saturday not as bad as it could have been

I picked up A from the station last night and packed L off to camp this morning, managed to clean up the kitchen changing it from war zone to habitable just to see it turned back by ravenous young adults at breakfast time.  A is getting ready to go to her friends and then fly off to Zante (one of the Greek Islands) tomorrow, L will be back and then I need to get her to and from work tomorrow.  In between times there are 2 games in the World Cup, Wimbledon, Moto GP, Formula One and GP2 to fit into a tight weekend.

I'm actually trying to work in between times too which is funny.  We are at the stage in the new venture where we need to have a name and a way of defining and differentiating our service from others - but there aren't any others.  So the quandary is that it is so different from modern computing that you can't refer to modern computing and there is the problem we are having.  we might as well call it cheese or tarmac or something like that because it really is so far away and needs to be off the wall.  So I am sitting in the front room with my flip chart doing word association exercises.  Things are so bad that I was actually dreaming about it two nights ago and every time I woke up I would have to go and write down what I'd dreamt.

The air fair is in full swing and a huge refuelling aircraft has just flown overheard.  The day is punctuated by the roars of jets and the thump of WW2 propeller crafts but they are just out of sight.  All day people have been walking past with collapsible chairs and bags going up to the heights past the Church to watch for free.

The USA play today and we play tomorrow in the World Cup.  Steve K and I are a couple of weeks into our trying to be fit and losing weight regimes.  I definitely feel like I've put weight on this week through two nights out and having a few beers on Tuesday lunchtime as well.   I'll check tomorrow evening and see what the score is.  I am really pleased though with my blood pressure which has tumbled down after doing 30 minutes a day on my cross trainer.  That is excellent and together with a few tips I picked up about doing some short burn out sessions during the exercises I hope to get a little more out of that in the long run.  

There is a long way to go and I need to drop a couple of stone - 28lbs at least to make me feel anywhere near where I was a couple of years ago.  If I can go lower than that I will be delighted.  I've now managed to get into a routine especially with food and how and what I eat and when.  I just have to continue eating the way I am and exercising and the weight will come off but gradually, no crash dieting - it doesn't work.  The first loss must be down to the introduction of a new diet and that initial loss of weight you always get on a diet and with exercise.  From now on I expect slow, steady progress. 

I also need to remember that I am in Hospital in a few weeks which will mess up my routine.  Last time I exercised after biopsies I managed to make myself bleed badly so I will probably have to take it easy for a week or two afterwards.

Friday, June 25, 2010

Funny Experience

I was doing my exercise which as readers of Steve K's blog know "Really Sucks!" and believe me it does.  Then I heard myself muttering as I was getting to the last bit of the three hills programme I tend to use and really giving it some effort, sweating like you wouldn't believe I heard myself saying things like "take that cancer", "you're not beating me" "I can keep this going" and so on.

Suddenly I realise I've got more than one reason to put myself through these agonies every day - losing weight is definitely on the cards but beating cancer is even more important too.  Diet, exercise, taking away carcinogens as much as possible and just fighting back make you feel good about this.  

I'm quite surprised that I was putting quite so much aggression into the exercises but there you go let's hope it does the trick.  It has already brought my blood pressure crashing down into reasonable territory so perhaps it will benefit me in many other ways too.  Here's hoping because no matter what, exercise really does suck :-) 

End of the week

I haven't accomplished as much as I wanted to this week.  I had two nice evenings out.  The curry was good last night and in the BBC news today Bromley, a few miles from here, was named as the Curry Capital in the UK and we were at my local curry house and as usual they did a fine job and the food was excellent.  

Exercise, every day so far and made certain that I did 30 minutes each time even on the days when I was out.  Mrs. F. is away this weekend, A returns from Scotland and then flies off to Zante, L goes to camp tomorrow where Mrs. F. is helping the 100 year celebration of the local Guides.  Just to keep me on my toes, it is the Biggin Hill Air fair. That means we will be virtually blocked in here in the village as they make things one way for the traffic management.  The trouble with that is that I have to get out just as they fair ends to collect L from work.  Maybe I will leave early and just wander around and wait for her.

I'm feeling good and relatively fit.  My stomach has grown a lot slimmer but I'm not sure that I've lost any weight though.  With two evenings out I doubt that all the good stuff I have eaten here at home, may all be to keep me standing still.

Wednesday, June 23, 2010

Big Day for England and the USA

And the for the football teams too.  I'm off to London to meet up with the old work crew.  My day meeting got cancelled so it is just a social.  Heaven knows what that will do to my weight as we will be having a few to drink.  I've been exercising each day, doing 30 minutes with a three peaks setting on my XTrainer.  It is getting back into a routine that is important and I've managed to sort that out.  Today I will probably try and exercise straight after lunch and then get showered and head on up to London.  

The match is on mid afternoon and no doubt there will be fans milling around at all the pubs in London.  Not my favourite but let's see how bad they can get between 3 in the afternoon and going home time.  Unfortunately for me I also have a Curry evening booked for tomorrow and so I think my diet is right out the window this week.

I hope for further victories for the USA and England - and let's hope that our teams will also follow our lead!


Sunday, June 20, 2010

And at the Weigh In tonight the contender scaled

16 stone and 8lbs which is Llbs = 232 pounds which I was surprised at I expected no change or a slight increase.

I can only put it down to the stepping up of my exercise and the way I am eating at the moment.   I'm really pleased and my stomach is visibly smaller and I feel "tightened up" if there can be such a thing.  My trousers are beginning to feel lose so I can tell something is happening and as I said yesterday my skin feels better I guess because of increased circulation.   My blood pressure is dropping too - so all is going the right way and it is encouragement for me to see it and to record it.  My word though 129 over 81 is brilliant for me....  Cool.

I'm off for a shower now and some R&R as it is Sunday.  Tomorrow I have a full on day as I record all the stuff we did last week at Boot Camp.  Fun, fun fun. 

Friday, June 18, 2010

Strangely

I have felt a lot better these past few weeks and my skin feels totally different and I can feel weight coming off and muscles tightening up as I continue to exercise and my diet takes on a habit rather than being a novelty.  I tend to have a lot of salads now and I'm enjoying them as I make them with some little twists to the recipe.  I'm doing 30 minutes of exercise a day and hit the 7kM mark on the XTrainer today.  I'm exercising late in the afternoon after having done a days work which means that I am actually stopping myself being slouched over my desk and I get on and do a good 30 minute work out.  I've been doing three peaks in 30 minutes which is pretty strenuous.

In the world cup today the USA did brilliantly to come back from a 2:0 score to even the match.  England were utterly dire and had no zing or anything else going about them.  Perhaps a stick of dynamite up their backsides may have made them wake up.  It was utter rubbish and so I headed over to the DVD player and watched a film.

I fear thought that the England and USA performances may reflect on this week's tally of how Steve K and I are doing in our "gentleman's bet" on weight loss over the next 6 months or so.  Last week I did manage a flying start to the campaign but I think that is similar in every start of eating properly and exercising - I managed to lose 4 lbs which wasn't bad.  After 3 days in a Hotel this week, despite being a good boy and choosing proper food, I have to admit to having a few beers and tomorrow we are off to a barbecue.  I feel that the USA may indeed make a fighting come back this week.  We will find out on Monday. 

Health is one of those things that we just take for granted.  In a few weeks time it will be 4 years - YES - 4 years since I first realised that something was very wrong indeed.  About this time, 4 years ago, there had been one surprised moment when a small amount of blood came out when I urinated (I thought I had strained myself carrying a very heavy sanding machine up and down the stairs).  There were a couple of odd spots that appeared but nothing that made me ready for the sight that befell my eyes on the 2nd of July 2006.   The world cup was on then as it is now and David Beckham was captain of England.  We were playing Portugal and Wayne Rooney got sent off and we lost the game.  I was in a bit of a mess.  I arrived at my Hotel as the game started and went to the toilet.  I had been in the car for a good 4 hours I guess.  I had a full stream of blood coloured urine.  It was the most unearthly thing I had ever seen.  

I went to the shops and bought some cigars - I'd given up for a long time but needed something to calm me down.   I bought lots of different bottled drinks and water and tried in vain to drink them to stop the bleeding.  I went to the restaurant, had more drinks but nothing helped.  I remember ringing my wife in quite a state and explaining what had happened.  I had to do three days work and planned coming home on the Thursday and so an Appointment was made for me to see the doctor on Friday.  The rest is history (see beginning of this blog).  So the world cup means a different thing to me as it will always coincide with my finding out that I had bladder cancer, something that wasn't fully diagnosed until the 21st July almost three weeks later.

My how things move on.  I'm still here - Hurrah!!!!  I intend to be here in another 4 years too and in 4 years after that.  I wont push my maker with any more than that - I'm sure I've pushed my favours in that respect as far as the envelope will go.  I reflect and know that I'm still happy with my lot and privileged to be here. 

Thursday, June 17, 2010

Back to exercises

30 minutes worth this evening which went OK - I've ramped up another 10 minutes and it seemed to go fine.  Based on this I reckon I could do 40 minutes if needed but I'll see how I get on.  I managed to eat very little today which I was quite pleased with too.  I hope that I'll see some further improvement over time in weight and in my shape.

I've just spent another 30 minutes messing around with network problems and router issues.  Conflicting IP addresses and a wire which had fallen out all make for an annoying end to the day.  I need to go and get into bed and calm down.  It makes me really angry that everyone has had issues all night but no one has told me until I found out for myself.  When I start doing something everyone says its been like that for hours!!!  I'm at a loss as to why no one tells me these things in the first place.  I could have cured it straight off if Ii'd had the facts in the first place.

Just another thing that is sent to try me..

Technology makes

My life slower.  The internet is running like a dog this morning - the router is intermittent, the major PC of the house is on a go slow and I'm beginning to lose patience with the whole thing.  It is beautiful and sunny outside and perhaps I might just take a walk out if the situation doesn't improve.

I certainly need to do some exercise.  Whilst I probably burnt off lots of calories in nervous energy I put most of that back on with the couple of beers I had and the food I ate, even if I was concious of what I was eating.

We have a lot of work to do in the next 6 months and I'm taking in just how much of that is on my shoulders as the operational "expert".  We have a good team but one that isn't full time or one that cannot actually spend more than the odd day here or there.  We are going to find it hard going I think unless I can find an interim financier.  But that is the excitement of the whole enterprise and part of the reason for doing it. 

I need to keep focussed on being well and fit as I will need to be that to put this much effort in over the 6 month run.  I like it that people think we are "brave" to give up our day jobs to try this out but if we didn't take this journey then we will never know if we could have achieved it or not.  Both of us are cancer survivors and have a different view about the life we now have bequeathed to us.  That too makes the journey important.

Wednesday, June 16, 2010

I am Shattered

Having battled with the M25 (London orbital motorway) or as we know it locally - "the Car Park" I arrived on Monday to a lovely hotel in the Surrey countryside and we have just finished three days of the most intensive sort of work - we called it "boot Camp" and it feels like it.  I am going to retire after a not too bad journey home.  

I#ve been pretty good with my eating but we have mostly sat around this week and so Ii don't expect that I've lost any weight - in fact I expect to have put a bit on.  A barbecue beckons on Saturday which I may try and escape from if Ii can....

My head is definitely spinning away so I need to get some shut eye and I've agreed not to do any of this work until the weekend just so we can "come down" from the intensive workshops we have been doing giving us all a chance to calm down..  It is all good stuff but amazingly challenging and at the same time really exciting.  


Sunday, June 13, 2010

Well here I go

Off for a few days now to get cracking on some business ideas at our "Boot Camp".  We have a Hotel for 3 days to thrash out our business plans and to try and focus on what we need to do in the next 6 months.

I'm quite excited by the prospect and this should get us charged up and ready to go for sure.  The odd bit of work I am doing for the charity is a bit - well - distracting and so I hope this will give me the direction and the focus I require.

I might get to blog whilst I am away - if not - I'll be back on Wednesday evening and will add something then.


Weight

Just broke off from the Germany Australia game to measure myself and I'm surprised that I weigh 16 stone and 10 pounds.  Which is a lot less than I expected.  So that's 234 pounds.  I say I'm surprised because I've been out a couple of times this week.  However, I have been very good on eating and exercise so perhaps that accounts for it.


Saturday, June 12, 2010

That's the end of an era

Last meeting as Secretary - had many plaudits and was made a fuss over.  Mind you it wasn't helped by a very nice guy reporting on my health but not getting it quite right.  He made it sound like the tumour was still in me and that they were waiting for it to grow to whip it out in July.  Which of course is wrong and what is actually happening is that it is already gone and they are taking a peek and some more tests.

England versus US at Soccer today.  Mmmm 1 : 1 not great and we always make it difficult for ourselves. Of course it was England playing on 2nd July 2006 when I found out that things weren't right with me.  It is coming up to my 4th anniversary with that and suddenly it seems a distant memory.

Life is funny and it throws some strange stuff at you.  I have no idea what will happen to me in the next few months.  The new business venture, relationships with work colleagues at the place I've left and so many other things are happening I can hardly believe it.

Oh well - I'm sure they will all come out in the wash.  I must remember to publish my weight tomorrow.  It has taken a bit of a pounding this week and will next week as I am in a Hotel for 3 days!!

Friday, June 11, 2010

A bit slow today

Poor old chap I am.  Yesterday was full on and I managed to do about 12 hours work.  then I went to the wine bar!  That was OK apart from many raised eyebrows from people I knew - why?  Well I was sitting with one of my female colleagues and so everyone added 2 plus 2 and got to 7 or more for their answer!

Anyway, it was funny a little later on when someone bought us a bottle of wine (a whole bottle).  I told him that we were very grateful and that we would name our fist born child after him :-)  Well I thought it was funny anyway.  The trouble was that I really didn't want to drink that much wine and we were about to go home so it just caused me to drink more than I wanted and to get home late.  I do feel a little slow today consequently.

I see Microsoft is doing its usual trick and loading updates and getting me to reboot my machines it's all very well but I've hardly got anything done whilst I wait for one or other of them to settle down.

I need to get some exercise today too so perhaps I'll have a go at that before dinner.  I'm out tomorrow and I am preparing for that but it just seems to be taking for ever to get the PC to boot up again and to finish the work I started about 2 hours ago.  In the time taken to write this blog the PC has rebooted but none of the programmes are actually working at the moment - sometimes PCs are rubbish.

Wednesday, June 09, 2010

Got the exercise in

So I managed to get 20 minutes in tonight too. I'm walking a lot tomorrow so that will be my exercise for Thursday. I'm up to my eyeballs in work on Friday and over the weekend and then I'll be off for the three day new business workshop. I've finished off my actions and mailed them out. now I re-read them I see there are some typos in there but hey - that is Microsoft for you, this new office suite is horror and it reverts to different languages and changes things on the fly all the time. Worst days work I ever did was upgrading and in upgrading it has lost its speech to text dictation capability which I used to use. GGGgrrrrrr.

Off to bed early as I have a very long day tomorrow.

I'm feeling good but isn't it strange I can still feel the ache in the back of my hand where they stick the cannula every time I have an operation. Not long to wait now - a month today I have my pre assessment and in just 5 weeks my next operation....

Day 3

I did well today - kept to diet and I didn't go silly last night so was fine getting up this morning.  I feel a lot better than I normally do - I am guessing that the exercise has done that.  I missed out tonight on that but will have a chance to do some in a short while as I have finished my work for now.  It is amazing how much work you can clatter through when you are motivated.  Also though - I was out this morning - which slowed up progress.

Into London tomorrow for a big all day meeting where they want me to work late.  I can't believe it yet they have used loads of my time this last few days but I will bill them for it.

I feel like I have lost a bit of weight already which is good.  I can certainly feel it around my middle.

The major work starts next week on the business front.  I am really looking forward to getting going on Monday when we will thrash out the detailed plans. 

Tuesday, June 08, 2010

Day 2

Well - so far it has gone quite well. I'm out tonight for a few beers but managed to control myself at lunch time and breakfast these days consists of fruit and not much else. I bought myself a little fresh parmesan so I can flake it onto my salad with some sun dried tomatoes to go with it.

Another 20 minutes hard exercise using the 3 hills in 20 minutes not climb a mountain programme as I did yesterday. It has the desired effect of getting a sweat up and I actually felt quite good after it.

The truth being known I felt quite good this morning too which was great. I actually noticed that my skin felt different and I think this is one of those early signs that the blood is beginning to flow around a bit. I'm hoping to make sure that I try and exercise each day where I'm not getting out and about. If I can do this every day I reckon that will make me lose weight a lot quicker and feel better too.

The new venture stepped up a pace today yet again as my business partner and I thrashed out some more details. This time next week I imagine we will be very tired but really charged up about the business as we will be just over half way through our kick off workshops. There is a long way to go yet but the excitement mounts. At the moment we are both poised to get going but we let the brakes off next week :-)

Things are good at the moment.

Monday, June 07, 2010

Lifelites Promotional Film

This is Lifelites promotional video. It shows the work they do in children's hospices in the UK. For the past 2 years I've been lucky enough to work alongside the team at Lifelites and their work is fantastic - just watch this to see what they do.  

Exercise Sucks

Which is why you should wash your mouth out with chocolate!

I cannot remember where I saw that but it amused me. I've had a full on day and as the title may give away, I have just come off my Cross-Trainer after a 20 minute work out - somehow I chose the one which simulates going up a mountain but hey ho I still managed it but crawled for the last 2 minutes of the routine. I'm just cooling down now before hitting the shower.

This seems to be a reasonable way of setting my day up. I can get up early and get cracking for work and then at the end of the day can do a half an hour session and get ready for some dinner.

I've been really good today and eaten primarily fruit and salads with some oily fish slung on top of that. Tonight will again be a salad - and in the summer I don't mind those - with perhaps a little home cooked ham.

I'm out tomorrow at lunch and in the evening but I will just try and be sensible if I can. Beer and alcohol are high in carbs and if I can miss those out then I have a fighting chance of losing this weight. Mrs. F. says I look slimmer already around the waist which is where most of the excess weight is doing the opposite of hiding :-)

Oh well, Exercise Sucks but if it means I can fit back into my suits and clothes in a few months I will be pleased. Better still if I have to buy new :-)

The New Dawn

Well today I start the new job in anger.  Unlike many jobs though, I actually know what I am doing as I am my own boss.  I have a good head start.  All change, so work and I turn a corner today.  I really hope that I can lose weight and run this venture as well as maintaining a good balance between everything.

Exciting times!

Sunday, June 06, 2010

Weight

Well here we go:

Tonight my weight is 238 pounds or 17 stones exactly.  That's dressed and in cotton socks :-)

I've decided to measure this weekly and see how I am getting along.  Steve in the US will also be tagging along too.  It isn't England versus the US - that happens later in South Africa at the World Cup - Soccer.  

I am also taking other measurements and my blood pressure to see if I can correlate the new diet with my exercises and relate that to general health and well being.

I also realise that next week will be a bit more of a challenge as I will be staying at a Hotel for 3 days!

Anyway, it all starts tomorrow - I hope to get off to a flying start with the new business and just hope the guys at the charity will not be asking me too many questions or asking too much of me.

Saturday, June 05, 2010

Tired few days

I've been making sure everything goes smoothly this week and handed over my job to my successor.  Unfortunately there was more work to do and I ended up doing that Friday morning but I can bill that of course.  It just meant that I was pretty tired and just had so many things to do.

The village has a festival of music this weekend so we are going to that.  It is beautifully amateurish as they haven't even produced a flyer letting us know what is going on yet.  Doh!  It starts in a few hours so we will just wander up there and see what is to do.

Mrs. F. reckons that I've lost a couple of handles off of my waist these past few weeks.  I'm getting ready for the transatlantic weight loss challenge.  I will be regularly updating the blog on how I am doing.  I'm being pretty good about the food I eat and have managed to change over and not get too upset over not eating the quantities or types of food I used to have.  I am also going to have to watch out for beer drinking - I tend to enjoy a beer or two with my friends and I have 2 or 3 more meetings coming up that will seriously set back my weight loss plan.  After that though I imagine it will be a little easier to not drink as there aren't too many meetings happening again until September.

It should be fun I reckon.

Wednesday, June 02, 2010

New Venture Gets Ever Nearer

The excitement mounts as we spent today arranging the hotel and meeting room and the agenda and all its elements.   We had a productive day looking back at the work we have already done and were pretty satisfied that we have picked up quite a lot of the elements already undertaken.

The hotel is booked and as of next Monday I am on this almost full-time.  I have a bucket-load of work to do and just hope that I can get a good run at it to start things off with.   It is inevitable that there will be a few minor distractions but as long as I remain disciplined it should be OK.

What is amazing is just how much work there is to do still - we are talking many man months and we've already been at this a couple of years...  

Tuesday, June 01, 2010

Relief

Well it was as if Thursday night had never happened.  Thank goodness for that.  I managed to find a couple of occasions where we would be alone to chat if that was needed and nothing at all so I think I got away with it and it was just the wine talking.   That also makes sense over something else that was said too so all that brain work was for nothing but, it may have been different - you shoud always prepare and, as my colleague reminds me, you should always be living in the "now" as the past and future are not the place to be.

Deep stuff he comes out with - it messes with your head!!

Still home alone so happy enough.  A day of work tomorrow on the new venture and see how my replacement has managed when I get in Thursday.