My friends told me I should post up some of the e-mails I sent out to them to keep them up to date with my Bladder Cancer diagnosis, treatment and (let's hope) recovery :-)
I haven't been ill for 30 years before this happened so it was all a "bit of a shock" and it is quite worrying and depressing but I hope I can share some of the ups and downs as well as some of my particular humour with you.
Talking of which, whilst I have has some pretty bad days, having a laugh with my mates (even one who sent me through a near the knuckle Prostate test animation) was some of the best medicine you can get
I'm so glad you posted maybe you can help me. It looks like you might be in the UK and I am in the lovely us of a. Near the end of November I was diagnosed with acute renal failure. Since then spending a month in the hospital being intubated, extubated, intubated again you name it tests. Nephrostomy tubes and more than I care to talk about. Bottom line I have Bladder Cancer and its not in the transitional stage but the squamous stage. I have to wait till the 11th to see the head oncologist. Well I see my primary care today and is she going to get a load of how I feel. Right now I'm suffering from frequent urination. Meaning I go in the middle of the night and don't know I have. Thank god I have a very understanding. Like now I had to go and I couldn't hold it it just came out. So off to the docs I go I will let you know what happens but I feel since I'm on state aid i'm put on the back burner and I'm disabled do to MS any suggestions....thank you for your time Robint62@comcast.net
ReplyDeleteHi there and thanks for posting. The very best place I found for support and information was the bladder cancer web cafe
ReplyDeletehttp://www.blcwebcafe.org/ there is a very good forum of people on there who have had and still have bladder cancer and there are articles about every stage - I don't know a lot about your particular squamous variant but I checked on the site and there is some useful information there.
A lot of people on there are in the USA - you are right I am in the UK so lucky in some ways to have our National Health Service and I don't understand the US system at all. Again the folks at Bladder Cancer Web Cafe will know more than I do.
I'd encourage you to get on to the online forum and have a look at what people have found and how they have got on. You can post your own questions or contribute from your experience. I have provided a number of responses where I knew the answers or had suffered the symptoms etc.
I wish you well for your meeting with your oncologist today and hope that you get a way forward. I found that once I got a plan what to do I wasn't so worried about things and at least I knew we were making progress.
Give the Bladder Cancer web Cafe a try. My very best wishes to you.
I had bladder cancer in 2005 ..Yes it was guite a shock,I am a surviver now..I am out from chemo 3 years this may 11-My advice is do what the doctors say. talk alot about it,and the days do get better, I AM LIVING PROOF.fEMALE AGE 62 And living is my friend.
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