So how does that work then?

I arranged by email for my appointment to be at 10:30 on the 24th May - I didn't want the 20th as I was due out the next day and was being a bit risk averse. So I got the letter yesterday for an appointment at 09:15 on the 17th May - next Tuesday! It doesn't worry me that much and at least it will be out of the way quicker this way. I dropped them a note acknowledging the change and letting them know about my sample - normally they want 2 weeks clear to sort that out!

So this time next week I'll know the results. Cool. I'm not as worried about things as I used to be but I guess that is because I don't need to be put out for an operation to take biopsies. I'm also, in a way quite glad that they pronounce their opinion there and then rather than having to wait weeks to find out what is going on like before, you tend to get told straight away what is happening and that means no waiting and worrying. I've also got to a stage now where - it will be what it will be - there's nothing I can do at the moment (other than the usual no smoking, diet and all that good stuff) I can do about it and if it is clear it will be great - if not - well - it will be disappointing but they can do something about it.

Head Freeze

Wow - I've been doing some figure work today and my head is about to stop working :-) Loads and loads of figures to do with the population in the UK distributed by postcode and then working out market opportunity by postcode and then knocking out commission tables and all sorts of other stats. That was this afternoon - in the morning I worked on centralising the statistics for the business into a "single version of the truth".

It's all happening like crazy at the moment which I suppose is good - I need to be in about three places at once but that's not such a bad thing :-)

Off for a beer with my old school chums tonight so looking forward to that.

A quieter week

Thank goodness for a quieter week this week. Sometimes you get weeks like the last one - there were only 4 working days and I felt as if I had been going for a fortnight, got that rotten cold but mercifully it all but disappeared on Saturday. I slept it off I think. Went to see A's exhibition which was OK but I get some modern art but some of the other things you see don't make any sense whatsoever. Mind you, I have a high regard for creative people - I am creative in a way but these guys get some amazing ideas - massive lateral thinking and then they execute on that.

Our designers are just great as they can take an idea and turn it into images and words that I'd not think about for ages.

My business partner is due over this morning and we can set our week up as we need to press on and make some serious progress.

I note I'm not concentrating much on the blog or much else these days but - that's just the way it has to be with so much going on. I did manage to get my cytology urine sample into the Hospital on Saturday rather than the due date tomorrow and so Judgement Day is 15 days away now.

Getting better

Thank goodness - I had a good night's sleep and then this morning felt a lot better. Did my Urine Cytology test and dropped that off to the Hospital, watched qualifying for F1 and then had a long sleep in the afternoon and that appears to have done me good apart from it's 00:45 and I really should be in bed!

I watched a few DVDs tonight - a couple of favourites, Fearless (Jet Li) and Memento. Both are really interesting films. Memento really screws with your head - just how I like my films.

I'm sneezing away still but at least the blocked nose is now gone.

I had a bit of a flash back to a chat I had with an old friend a few years back when we were reminiscing about how long we'd known each other and I'm guessing it was pretty soon after I was first diagnosed. I reckoned that all the grand ideas I had about changing the world were probably unfulfilled - I sort of felt like that back then - and she said that there was still time to make your mark and to change the world and that it was never too late. I recollect those words now because it's really interesting that someone mentioned to me that what we were doing was game changing, scene changing, something completely new. I hope that others too think that this is true and will come on the journey with us because if we do get it right, it will change the world but I'm aiming at making just one or two people's lives better first. It is better to light one candle than to curse the darkness as the saying goes..

I hate having a cold

I really do - and I'm all blocked up and heady and now need my bed but am just so uncomfortable lying down with all this congestion. I read Jeanne's blog again tonight about her decision to stop taking treatment. That's pretty brave - she isn't commenting too much about it at the moment but to me, in a way, I can see the logic of it quite plainly. Having had a series of treatments I can only say that if I were to get them again, which is likely, I'd do it because I'm still fit and pretty healthy and whilst they shook me to my core and tested my mettle, I knew that they were highly likely to do the trick and sort me out. They did, it wasn't pleasant but if you know that it's working then you can tolerate it.

I imagine when you aren't feeling the benefit or the treatment is worse than having the disease itself you will think differently about such things. I'm certain that must be the case.

I'd better toddle off to bed and see how I am in the morning, I've already split my lip with the sneezing and made my nose bleed so goodness knows what I'll be like tomorrow. The Turkish Grand Prix is on so I will be happy to see that - we are expecting a small heatwave but also with that major storms in isolated areas so the weekend looks like it could be fun.

The country has voted to keep the status quo and the old voting system - the same one as returned Bush to the US even though he had less of the overall vote. We could have changed that but somehow the willingness wasn't there. Badly marketed if you ask me - but you didn't :-)

Business seemed to get a real kick in the pants this week - I hope to be up for doing some work this weekend to record all the things I managed to do this week.

Make of it what you will

A post from Jeanne HERE starts my morning off thinking about what it takes to make this sort of decision. I have no problem with the decision made. I've heard about it and thought about it but wondered how I'd make that decision.

You can understand it if you were always having treatment and always having stuff stuck into you and forever in and out of hospital and always having some sort of trouble. After a while there has to be a point when you want to stop the world spinning as you want to get off.

As I said, it isn't a matter of debate, it's a matter of fact and a brave thing to do but also, you can see a point where you come to that decision. I imagine as you arrive there is a double edged sword, you feel suddenly at peace and at the same time it allows a level of closure, composure and order to be brought into what is left of your life.

Is it a cold?

I feel like poo - have felt bad since late last night and couldn't work out what it is - I bet someone gave me this cold on the train or tube! Bugger it, I'm sneezing away and have a sore throat and had to carry much of that through the meeting today! It was a pleasant affair but where did the rain come from? We were meant to have another sunny day and when I got to London it was tipping it down!

It is A's Exhibition - starting tomorrow and she has also just launched her web site which looks quite good so far. She is beginning to put some of her work on there as an online portfolio. She has her Exhibition work up there already. I can see that she will be busy building her brand and making it a good portfolio site. Her exhibition runs for the next three days so we plan to go along on Sunday to see it and lend our support. She tells me that she should be OK to pass to year 3 of her course as she hasn't had any bad news about this project and exhibition so that probably means that things are on course to be good for her.

L goes off tomorrow to Cambridge to see a Uni there and have a look around. Bless her, she cannot get into teaching, they have thousands of candidates for very few places but it appears that her favourites subject being maths there are courses that can combine her business and maths. Whilst she is up there she will be seeing her boyfriend too - interesting!

I can get back to doing some work tomorrow - I seem to have been out every day this week but not to have achieved a great deal!

May the Force

Be with you or as it is May the 4th, May the 4th be with you.......

OK a cheap shot but you deserve it :-)

So Awareness day - great here it is http://www.bcan.org/take-action/awareness/ and great it is a US thing. Well actually - as I told them years ago - Bladder Cancer doesn't just thwack US citizens - it's world wide! Yep, it is!

So just maybe one day we'll work out that the bigger picture is the one to look at.

I still like the Tee-Shirt "F**k Advocacy - find a cure!!!"

Anyway - every little helps I suppose.

Judgement Day is now

24th May at 10:30 which is good - gets it out of the way - I was going to go for the 20th but I have a meeting the next day and wanted to make sure I could go just in case something happened.

They are pretty good at getting back to me and giving me flexibility of dates. Will have to see how it goes this time and let's hope that it is a clear and lets me move to a six month routine...

Glad it is sorted though - I should have had it done by now.

So - What a Day

What a long old day that was - home at 09:30 pm thanks to Mrs. F. who came and picked me up.

Missed out on lunch so ended up grabbing a burger at the Hotel - which was pricey but I needed something. I walked from Charing Cross to Holborn and then from Holborn to Baker Street and did a little circuit around Marylebone where I used to work. Then we had a good couple of hours meeting and I wound my way home - very good meeting and another early tomorrow. This week is going to be full on in terms of work and play being out again all day Wednesday and most of Thursday.

I'm feeling OK about that and I also need to get back to working on my weight again which with this sedentary lifestyle has started to come on again. Not sure how far I walked today but I'd guess around 5 miles including the walk to the station at this end. It was a lovely day though and walking through London and around some of the back streets of the the West End is a very pleasant way to spend the day.

I've just dropped a reminder off to the Hospital to see when they want to see me for a peek and a poke. It's strange - I don't look forward to it but at the same time - getting the reassurance or not as the case maybe is also important as I tend to think any ailment I have these days is potentially cancer. That's a bit of the territory I guess.

I'm feeling charged though right now - really exciting times, people are talking to us now about what we are doing and we are getting some impetus and some traction. We have a team being built which is good and we need to move things on a bit in the next few weeks. I feel a blitz like state coming on for a month or two to get us shifting along.

Emotions

I have often mentioned that the one highly notable result of having had cancer is this propensity to have highly emotional reactions to a number of situations. I find myself keeping in check a lot. For an example, I've cited the Bambi moment before as bringing me close to breaking down and stupid things seem to do this to me but here are two moments, quite far apart where I had to try hard to control myself.

The film "The Passion of the Christ" I watched for the first time last week - it was the most devastating portrayal of the Passion I have ever seen and stirred huge emotions. If you've seen it, then you probably felt the same? The scourging was absolutely awful and for once - and I don't know how he did it, it felt like you were not watching but you were sharing the pain. It was late a night I was on my own, I was moved and I was in bits. Films do this to me if I am into them and I think it was very much the shock of this film. However, I can be like this with Amelie, Schindler's List and many other films. So what you may say?

Then there's stuff like the Royal Wedding. I didn't watch it as I found myself moved by that too. It wasn't just the ceremony it was the people who were out in force and it was because they were engaged in something special, it was a moving time for them and special.

And here's the problem - it's about the experience, the moment and the enjoyment, its about the tragedy and the moment, and the time and the humanity of it and its about something I no longer have but have great empathy with. I came so close to losing it all that seeing others less fortunate than myself or losing upsets me, seeing a recurrence is also a set back, seeing people enjoy themselves and enjoy a moment, share an experience is also important as what is survival all about if not that.

Then there's the potential that surviving isn't all about what you thought it might be but life being precious is.

I'll stop there - I need to as it isn't making logic or sense but then, I've found out that this the way of it, it's the way it is and I have to live with it for now.

Work Work Work

All day today - still cracking on at 8 pm but have decided to put it down now as I've been doing it for 10 hours now and that's enough for today.

I'm hoping that the next few weeks will see us getting very close to going to talk to investors. We could certainly do with having those sorts of conversations soon as we are coming up for 1 year's work already - it hardly seems possible but a year it is in early June.

Royal Wedding

And I watched a little of it - we do this stuff well in the UK I always think. I've tried to do some work today but feel quite tired - it's been one of those heavy weeks without actually knowing it. We are accelerating the business and I have meetings all over the place next week. We don't stop until Friday and then we can draw breath and move on to greater things. That's the plan.

The pace that things have begun to move at shouldn't be surprising because now we are getting to a point of real momentum and additionally word is getting around about what we are doing and people are beginning to come to talk to us rather than the other way around.

A friend has undergone a procedure on his throat for the removal of a tumour. He has already gone through radiation therapy some years ago - he now has to wait for a couple of weeks to see if it is malignant or benign. It brings back my own fears - which reminds me that I've not heard from the Hospital as of yet. He is pretty stoic and has had to revert to writing so he can rest his voice and throat.

As he said, you are more susceptible to getting cancer if you've already had it. I didn't particularly want to hear that though, I was hoping that the increased immune system I now have may have given me some sort of super powers :-)

It is very strange having all this time off with bank holidays for Easter and now for the Royal Wedding today followed by May Day on Monday. I'll make a mental note to rest for at least one if not two days - I really want to work through the whole weekend but I'm not sure that's such a good idea...

A Few Days

Since I last blogged - that's how busy it is this week - absolutely crazy week - good but crazy and tiring and exciting and amazing already. Why? Well, it looks as if we have started to generate buzz about our business. As people realise what it is and understand it they want to get involved and take us places. So that took some time up and then we have been just working and getting stuff finished and pulled together - the financial spreadsheets are pretty awesome beasts and I'm fascinated by their complexity and elegance. They near completion as do my plans and we have also spoken to a design agent and a potential partner organisation. They have a potential outlet for what we want to do. Not only that they have been thinking about where we can go with them. They already have global reach and we need that ourselves too.

So that's the upside. the downside is that I lie awake thinking about various scenarios because my brain is absolutely flying with all the possibilities there are. It's pretty much exciting times at last - we've worked our way through the drudgery of completing some of our work but now we are really beginning to see the value - especially in the depth of knowledge we have about our subject. Great stuff....

The End Game Starts

The business end game that is - we are in the 3rd quarter or whatever analogy you want to make. Tomorrow we meet potential design/graphic business I know - they may be able to do something for us and we also have an appointment to see my old colleague who raised about £4M last year and chat to him about raising some money and getting a partnering agreement between our organisations.

I worked for most of the afternoon on some due diligence work on various forms of capital and then on a new document to capture all the statistics we know about to help build our case, I printed off the slide set for tomorrow and got it into my A4 portfolio.

I'm just about set now to get going and looking forward to a day out to kick start things. We are getting very close but tying up all the loose ends is taking a while and we still have more to do and I have very little time coming up with all sorts of interruptions!

Beautiful Weather for a change

The whole weekend has been very good, sunshine, very warm for April and it's been nice to see it. We went out on Sunday and had a few beers and a barbecue with friends. He celebrated staying off beer for lent. I fell off my chair and we had a bag of laughs wandering home at about 11 last night.

Today - I'm back on the PC, working away as we have a couple of interesting meetings to attend to with the business which really is ramping up now - so much so that I've spent a little longer over the weekend working on that than I perhaps should have.

I saw an amusing cancer Tee Shirt the other day in a picture it said "F*ck awareness, find a cure" well it amused me :-)

I'm still pondering over why my GP would put a not on my repeat prescription, that I'm not going to read until the next time I get a prescription to come and see them no later than the 22nd January 2011? It's a bit bizarre if you ask me. I'll give them a call before I get the repeat prescription to see what it is all about and ask why they don't just email, SMS or telephone me? It's hardly proactive.

More stories of appalling customer service - one by our ISP who screwed up the company emails making us look like a bunch of dorks and another where the customer service people seeded fear and doubt until the Supply of Goods and Services Act was appropriately dropped into the conversation when miracle of miracles things got sorted. We intend never to have a business like that - it cannot be beyond the realms of possibility that you can run a business AND look after your customers.

Oh well - back to work and back to looking out on this beautiful day.

Dashed in

Out of the rain - a passing thunderstorm brought on by the ferociously hot weather. We held the Easter Egg Hunt this morning and it went really well - we had a good number of children (about 26 or maybe 28 - I can't quite work out my handwriting).

We had plenty of eggs for all and we had a Fancy Dress Parade - we perhaps should have done something a bit more on the marketing side - but then that's down to sh1t for brains "mr jobsworth" in the office who wouldn't send out our email. I think I might work on something a little more dynamic next year. Anyway, the residents loved it, we had to screen the eggs. We had face painting and good fun and the adults were as excited as the kids :-)

Hopefully this rain will pass - it has at least cooled us down.

Just found a note on my prescription to get in to see my GP before 22nd January 2011!!!!! That's a little bit well hidden as this is my latest prescription! It sort of looks urgent but if it was you'd have thought that they'd have rung me? Why stick it on a repeat prescription - I never look at those until I need more pills!

It's a great Bank Holiday for once

I was saying to someone the other day that it has been 21 years since we had a nice warm Easter like this and it was when A was born - I suppose you associate things like the first born with something or things. This weekend is set fair and it has been beautiful today and I - well I have been sat at my computer working. I know I can only imagine what you are saying!

I had some accounts to do and a few letters to write and other stuff to get done. Tomorrow is the Easter Egg Hunt - the 4th since I had cancer and about the 15th I think in terms of how long I've been involved. It could be the last - it depends on what we find tomorrow when we get there. At least we will be outside - we have for the past two years been indoors. 3 years ago I wasn't allowed to do anything as I'd just had the first lot of biopsies and wasn't in great shape :-)

I realised that all the time I've had BC I've carried on with all the usual things, I think that's not a bad thing but sometimes I wonder why I bother at all. If no one turns up tomorrow because they wouldn't advertise it, then I will kick it into touch I think.

Now to stop sitting indoors and get out and have a beer and kick off the barbecue and start to enjoy the weekend.

It's Turning Out to be a BAD Year Already!

Another death which surprised me greatly - as I wasn't expecting this one. I'd had a bit of a "to do" with him last year and was quite surprised about the way he treated me and it was all over nothing as far as I was concerned but just a bizarre incident where he owed some money to the Lodge and was a bit put out that I asked for it. So we had a few letters cross in the post and a few chats - but I was very concerned as it wasn't like him and I voiced concerns about his behaviour last year thinking that he was "losing it".

It appears that he probably found out, about that time that he had Lung Cancer and that's possibly why I got an ear full from him at the time and if you are going to lash out then the nearest person will do.

This is the second death in the Lodge this week and the third in 3 weeks. Added to the other stuff that has gone on with deaths in families and all-sorts it has made for a pretty bad start to 2011. I suppose we will get to hear some more at the meeting tomorrow. As Treasurer it answers some questions around what's been going on as it appears that the person I informed was sworn to secrecy and so couldn't tell me what was going on.

Ewwwwww Yuk

Having a slow old day today, hard to get going and the work I am doing is gutty and repetitive and I have to alter three documents at once so they all reflect the changes :-)

I just can't get enthused about it at all and so time is dragging and I'm getting easily distracted - like writing this blog entry!

It doesn't help that my tinnitus is very bad at the moment - I have a lot of noise in my ears that I cannot get rid of. Using loud music isn't helping as I'm losing concentration.

Oh well - it isn't going to get done without me struggling on through :-(