I knew I'd caught something on Friday when we went out I was struggling with a sore throat and on Saturday I'd made sure I was using throat tablets to stop me coughing and wheezing. It all came out on Sunday morning and so I was sat in my chair sleeping mainly.
I'm a lot better today but have a husky voice and dry cough to contend with. Hopefully all will be better tomorrow - it hasn't stopped me working today but is just a nuisance. I haven't had a cold for some while so it is quite an inconvenience - you forget so quickly.
Other than that I'm plodding away at my research work and trying to sort out this week's work load and telephone calls together with visits out and about. It is going to be another sad week with my friend's dad's funeral on Thursday - I hope that I don't get a cold off of them like I got from the last one.
It's 1:35 in the morning - I've just got back and someone managed to whack the wing mirror off of the cab on the narrow lane near here. Not good. Cabbie was mightily pissed off but he was driving after all is said an done.
A great evening and November back up to Scotland beckons. It is a shame that the club closed so early as we were just getting into the swing when the taxi arrived. Our comic sketch about Nelson and Hardy which (apparently) went down a storm last year was asked to be repeated. We were about to do that when the taxi arrived!
Interesting times in our locale. The problem? Politics, greasy pole and all that nonsense. It would be nice to have a level playing field - where everyone knows what is expected etc. If that isn't given then everyone makes it up of their own account! Unhealthy stuff.
Anyway - it was nice to hear that we were appreciated at the meeting in Scotland and have been invited back this year.
All this anger comes from somewhere and I realise that as much as I like to think I'm in control of things, I'm not really. Sure I can do many things to help myself but life has a way of reminding you what could happen at any time to any one of us.
In addition, I find that the things I think of when I am at my most cynical and when my mind goes off and analyses things actually appear to be coming true. I was sceptical about whether the whole team was behind us and I find that they are getting on with their own lives and they aren't really helping me and my business partner to the extent that we figured that they would. We also find that there is a general lack of feedback and support which is a shame really.
I suppose that I'm acting all hurt and surprised and upset about something that I knew, deep down inside myself, would probably happen. That is why there is anger boiling just under the surface. I really wanted everyone to come along and share in the journey but other people's lives are lived in their way not the way the big words said they would be. Suddenly reality bites and we are there on our own. After a long journey and a lot of work there just appears to be nothing there at all. The odd comment perhaps and the sound of a snippet stolen from a book half read on the subject of business start ups but, in reality, nothing is going to happen and we are left to do this on our own.
I've said this before and I guess after a week of real heavy slog I'm beginning to feel that I'm producing work that no one even reads. Sure the investors will read them but it would have been nice to have a pat on the back and a congratulatory email at least. What did I get? Zip - nada, nowt!
Oh well, tomorrow will be a nice day - the Scots are down and we are in for a fabulous meeting and a Burns Night to remember.
The Mousetrap and the lovely little theatre. Seated with some Canadians (like Americans but even nicer!) :-) and some Swedish guys over for the weekend to watch a football match on Sunday (Premiership Soccer) not the Super Bowl one...
It was lovely, good old fashioned fun and a real Agatha Christie who dunnit. Great fun and a really enjoyable night out courtesy of the girls.
Well it is one of those days today - we are just about to depart and go up to London for the Mousetrap - I will enjoy that - I hope. I think I'm under control at the moment! I have to say that this last week has seen me getting a little wound up over nothing but that said, I think a lot was to do with the funeral and also the doctor's yesterday was just stupid.
I tend to attract stupid people and get dragged down to their level. At least I gave up before I exploded yesterday. I managed to complete the analysis of the customer survey today. That being just the plain analysis not anything clever like cutting the data into demographics and all that fun stuff. You know that bit when you did something for a reason and someone took it out for a reason and then you realise that taking out a specific question from the survey could have given me the pivot to start to use the data intelligently and to do some serious filtering of the data. Damn I wished I'd stuck to my guns on that.
Everyone is cramming down food at the moment as we are about to go out and so I'd better wrap this up shortly. I'm out tomorrow - the lads from Scotland are down again for their yearly visit en masse and so it will be quite a day tomorrow - I doubt I'll be home until 2 am if then! It will be my second Burns night of the season and I'm looking forward to it as I don't have to drive on this one and we can just relax and have a good time and get a taxi home afterwards. Cool.
I was in a real rage this morning but have kind of calmed down a bit now. I do find some things really ball achingly annoying. Doctors are now top of my list for talking a load of old tosh. Say what it is please, in English, I have no idea what you are talking about or what you expect me to do about it. I have got past the stage of doing it because you say so if you don't explain it to me, it ain't going to get done - period.
So having got that out of my system, I can finally start calming down from yesterday's funeral. Not my thing at all. So on to other things of some amusement, I totally forgot that we are off to the Theatre tomorrow evening. Looking forward to it as it is the Mousetrap - everyone should go see it apparently and finally we get the chance to go as a family - should be nice.
Work is driving me bonkers - I want 36 hours in a day at least so I can finish what I am doing. With interrupts this week I've not been able to complete half of what I wanted to and being out Friday evening and most of Saturday will just wipe me out this weekend. Next week I guess we can get some traction again. It's tough when there are 2 of you doing about 4 people's work.
I cannot believe how angry my telephone call got me this morning. GPs can be so bloody obtuse sometimes. I phoned up as I got my prescription with a blood test form - well I've just recently had one. I love the bit where they talk to you as if you are a Doctor about what's needed. What does it all mean - it isn't for me to work out what these technical terms are.
So they want a repeat of part of the test because the results weren't what they expected. So were they high or low or what and what did it mean - after listening to a 30 second burst of which I understood one or two of the words at most I just got so the Doc wants you to do it again. As I didn't actually get an answer and was about to fly off the handle and I'm not sure why I got quite so angry quite so quickly I decided to query the crap form once again and ask if it was fasting to which she replied does it say so? well no it didn't but I don't want to sit around for 2 hours to only be told when I finally get to be seen that it should have been.
Anyway - they can sing for it as I'm disinclined to go as they can't tell me why, didn't even send an explanation, can't even tell me what it is on the phone or anything else. I'm certainly not inclined to do the hours of waiting and all so a Doctor can work out if a slight variance is repeated. I told them a long time ago I was pissed off with being used like a sodding pin cushion and don't have the sheer luxury of taking loads of days off so they can plot it out on Excel.
I can't believe how angry I am about this. I guess it just pisses me off these days I get pissed off with all this nonsense these days. I've gone past the bit of "because I said so" - maybe that's it - there is this complete lack of information and courtesy, no explanation - I seriously have no idea following the phone call what on earth the problem is but actually if it is bad they can call me and we can discuss it. At the moment - it can wait until I'm in a better humour or until I get some sort of explanation around the necessity of it.
I must re-examine this anger bit though - maybe I'm still raw from yesterday's funeral. Whatever it is I found myself really up for a fight with the GP's receptionist but she's only doing her job so I backed out but I see it more and more these days. It's systemic and if only everyone went to work and treated their customers the way that they would like to be treated it would be fine.
Luckily Flocky Bicep popped in bearing gifts of coffee and croissants we were rattling through some Lodge business. As a bit of fun we have now lent out names to some friend's pets! Guinea Pigs - how funny is that? :-) We had to laugh
Said goodbye to my old friend and met his wife again - only met her once before in 1994! It was a very nice service but RC High Church with Requiem Mass and it was a good 1 1/2 to 2 hours I'm guessing of real tear jerking stuff. Lots of children and all sorts just kept prolonging the whole thing. I just told Mrs. F. 20 minutes maximum, pull the curtains, get out and go and have a drink... Don't hang around, it is difficult enough without all of this padding.
As it was, it wasn't as bad as I guess it could have been and I didn't go and see the burial itself - I'd had my emotions stretched extensively by then and whilst I also had a few "moments" of claustrophobia - the church was rammed full hardly any more space left - I was also able to control that as I knew how to get out and it was a big area in terms of clearance.
Bless him, Flocky Bicep has given me a call to see if I'm OK. I go back to my Uncle's funeral when the priest said that tragic and young death will mean that loved ones never see the deceased old or frail and in this case, it might even be that this will be something for the future to ease the pain but I sort of doubt it as well. It's just too tragic that at 54 this accident has robbed us of someone unique - an absolute powerhouse of a man - it was evident that he was well loved, respected and was a fantastic family man. Just tragic that the 4 children have lost him but, like us all we only share the fondest of memories and wonder at his energy levels and antics.
I;m sitting here having a brandy and just getting over the day - it takes so much out of me.
Why does it take so much out of me? Because every time I go to one of these I imagine that it may well have been me at this sort of time in my life had it not been for all the treatment I've had! We all have to go at some time of course but it brings it home to me how easily things for me could have panned out. You see it's me lying there in some of these circumstances and I'm just grateful that it isn't.
That probably doesn't make sense to anyone but me. :-)
I'll get up early and get around the London orbital motorway to my friends for some breakfast and then we will head on up for our sad pilgrimage to our friend's funeral which will be a burial - I really, really dislike these I have to tell you. Crematorium I can just about live with it is all over when the curtains go around and that's it. Tomorrow starts at 12, carries on at 2:30 and then the celebration of life at 4:30 and so I can imagine that it's going to be a long day. It's set to rain and be windy and I'll just have to grit through and bear it.
Next week it will be my friends dads funeral - that is expected to be a very big affair - we may not even get into the chapel on that one so many people are expected to turn up. We will just have to see on that. I hope it isn't crowded knowing what I'm like.
Had a good day today and really got some of the business stuff sorted out, it is really begining to look accomplished now. However this Video came from a friend and I defy anyone to watch it without feeling a little queasy or feel an attack of Vertigo. It is absolutely terrifying.
So - I'd better get off to bed and get some shut eye - I'll be up early in the morning and get off for a long and sad day.
Ssshhhhh - but it is 5 years this July since I was diagnosed, I keep thinking about that and just how well I feel now. It was great meeting up with my old colleague last week who saw me when I was ill and boy did I look it. I'm not sure if you look grey and drawn because of the worry or the treatment or indeed a combination of them both but rest assured once you got past that, moved on a bit and the BCG has grabbed you and thrown you about a bit and totally exhausted you it gets better. Suddenly you have other "stuff" to worry about and other things to do.
I realised that I would never have gone off and done this new business venture before - it wouldn't have fitted my plan of my life and how I envisaged things. Now, there is purpose and belief and commitment where I did feel at one time that I couldn't look that far into the future.
I think I was very much tomorrow, tomorrow when I was ill. You know, get through today, tomorrow will be better and each day will be better. Generally it was and life is pretty much up and down a lot for me not because I am a sort of up and down person but I am trying to alter to my new life and because - in reality - everything has changed. I don't think I have one relationship that hasn't changed in some way or other. My relationship with myself (if you can have one) has changed. I still regularly turn in on myself and get really angry that I am like I am or that I cannot relate to certain people, situations and other life stuff like I used to. The trouble is, that's the cards I'm dealt and that is what I've got to get on with - like it or not.
But does it make you any better a person? Surviving this far in - yes it does but you will probably never ever be the person you were before you got on the roller coaster. A little less brash, a little more human. Mind you there are things that I've said before about this - the emotional side, watching films and plays and other sad things really does it for me - I'm still a wreck when I see these things. I'm not certain how I will get on during Wednesday as it is my friend's funeral. I'm going with friends and it will be church, burial and then back to a local Hotel afterwards. I've tried to avoid funerals although I have been to a few, the terrible one with my friend's child and my other friend's dad. This will be awful - he had 4 children and I can only imagine how rough I'm going to feel about that. I remember my friend for all the right reasons and what great fun we had, what a great bloke he was etc. I can imagine that he was a brilliant dad - you just knew he would have to be - that was what he would have been.
Tragic stuff. Next week it is my friend's dad's funeral and that will be just as bad, he died suddenly and tragically too. I'm not sure what it is - I think it goes way back to when I was a kid and got a little traumatised in a graveyard in Rye, Sussex - it was pretty eerie as a huge storm flooded the graveyard and one of the stones was bubbling away and later a year or so later I remember my mum getting hit by a falling gravestone - either that or I'm just a woos!! :-)
Anyway - I was sat here today bashing away at my work when it dawned on me that I might be starting to lead a life away from bladder cancer and all the stuff that went on at that time.
What's surviving like? It's bloody marvellous - I just forget to celebrate that fact every day like I should. All the changes and all the things I've been through - they're fading memories now and things to be parked if possible to allow them not to cloud my future. Change is as inevitable as taxes and death I guess. I'll live with the first and hope the other two are a long way off.
Another friend called today - how are you? Well........
How about this poor chap - Colon Cancer, they're about to operate but find low platelet and cell count so they sort that out and get him in to do the operation they cut out the cancer but he gets a chest infection and things start to get bad, but he gets to go home, get back 4 days later with a worse chest infection - 4 weeks later he gets out but so weak and platelets and cell count so low they wont start chemo and now they taken some bone marrow to biopsy.
So we chatted about the ups and down the good days and the bad days and he said he wouldn't see me in February like planned but hoped that he'd see us in April when he was fit enough to get into the car!!!
Talking of cars daughter No. 2 L has just passed her driving test and so was very pleased about that and drove herself home last night. I don't drive the 2nd car leaving it for Mrs. F and A but now there are three of them for car No. 2 and I allow Mrs. F to drive the Jag. I'm not sure that I dare let a 17 and a 20 year old loose on my car. We will have to have a car rota up on the wall :-)
Just seen some of A's pictures of NY - impressed, I must go some time maybe when we get the business sorted out (or not).
So THAT'S what a Hershey's Bar tastes like :-) they were lucky to get back as it snowed and I understand there was 18" of snow and quite a few planes were cancelled. So A arrived back mid morning after a night on the red eye.
She had a great time in NY although her Aunt seriously impeded her progress in getting around so certain things she wanted to do were missed and she will just have to get over there again.
I've been pounding away at a piece of work I thought I'd finished. I completed a document and just wanted to check that I had covered everything and got some research done which proved that I'd not covered off many of the areas. It is a good thing of course that I checked but the document has gone from 90 to 127 pages and is still growing. It's been one of those things I've just had to do and something I've just had to complete - with a bit of luck I may see the end of it tomorrow and finalise it and get it out for review.
It was a draining experience last night going through the traumatic details with my friend but I was pleased that I did and I hope that it helped out.
Went up to town today and met a few people I haven't seen for years and years. Talk about chalk and cheese one was really extrovert and charged and the other was very staid and didn't really react a lot. Funny - I was expecting a slightly different reaction.
Anyway - there was a nice surprise awaiting me on my return with the delivery of some research work that looks like it will help me complete my document earlier than planned.
Today was quite good, once again, we found that our ideas are going down really well and that we are going in the right direction. Let's see if it converts to money or not before we count any chickens.
Well I met my friend who's Dad died last Thursday morning. We met up at our usual location at the pub and it was as useful for him as it probably was for me. We Brits don't do emotion much but we had a bit this evening - necessarily so, his father was a very well known person in the news industry and there are a lot of people as baffled and as perplexed as us about his sudden death. He had a stroke but it was located on his brain stem and it was unfortunately one of those things you don't recover from. I've spent an evening listening to stuff that, only if you've experienced it, you can truly understand.
I say it was unexpected because this is a man that had life written all over him, he was one of those characters you come across who you were, as a child, a little frightened of. He was a funny man and so his humour didn't always translate when we were young but we grew to love him because he was such a lovely guy and we always had a lot of fun when we were around him. I'll put a link to him in here when it is published in the papers but tonight was about easing out some pain, letting my friend tell me ALL about it and I'm just beginning to feel the fall out of that now that I've got home. Fall out? What I mean is that I've listened and provided the environment to off load things that perhaps can't be said to family but can be said to your friends and some things I wasn't absolutely ready to hear but I could, thankfully, relate to from my own experiences. So there is an upside to cancer as the emotions that I went through early on, prepared me to rationalise and explain why it was better for such a quick resolution to the initial stroke and why it was all mercilessly quick.
What was poignant to me was that whilst there was life that person lived but when seen when they have passed away it isn't the person you knew at all - it is a shell. We both got pretty messed up around this time but I was able to just reflect on the fact that he had said goodbye and that his last words - which were very characteristic of his character and humour were "this is another fine mess I've gotten you into!"
Bless his heart - he had continued to be his cheery and happy self until the end and my friend - I hope - will remember that - this is how he always was and why everyone liked him so much and why he was held in such high esteem. We will have difficulty at the funeral because there will not be room for all of those who want to say goodbye to him and support the family.
It was good to have my other friend turn up a little later who had been through all of this with his father as he was able to take up the baton as I was beginning to fade fast after 2 or more hours of friends supporting each other.
There were lots of positives and many fine memories to reflect on too. It is one of those tragic things that happen that someone who appeared very healthy and in good spirits should succumb this way, this quickly. In a way, that's a blessing because if he had of survived he would have been trapped inside his body and that would have been awful for a man so full of life and energy.
I sincerely hope that when my turn comes that it is swift as this. I would hate for it to be a drain on other people or my family.
These events inevitably lead to the dark side of my own experience - these things leave me drained and physically and mentally empty.
1:20 in the morning - I'm wide awake - could do another 8 hours straight the way I'm tuned in at the moment and yet I know I ought to go to bed. My mind is just crackling at the moment the synapses are firing off lightning bolts and I'm really charged mentally although I am keeping a reasonable air of calm about me.
I managed to finish a great chunk of work today - really important - hard graft - unbelievably hard graft and it just kept growing and growing as a task the more I looked into it and then as abruptly as it can possibly be - I found that I had run out of research I was beginning to go around in circles and suddenly that task was done. I was pleased about that because it was seemingly open ended. I was able to fire off a request to an organisation that I am a member of to do some final checks for me. That should assist me to ensure that I've covered all the right ground and that I've included all the right organisations.
I can then get on with another piece of work that will pull together all my industry and customer research into one document too.
However, I have to switch my brain off and it just wont do that - it's getting exciting and it's "real" now - right there in front of us. We still need huge scepticism and reality checks and not getting carried away with ourselves. Now that I've gotten over the fact that it really is just the two of us pushing this, I feel that I can now step up to that challenge properly. The Elephant in the room is being addressed and it's one of those awkward moments - the ones where you suddenly realise that it's all down to you to make this happen (or try your best and not quite make it).
I need to re-programme myself so that I don't burn out.
I wasn't trying to be late on Friday night but whatever I did seemed to lead to me staying up quite late and then when I dragged myself to bed, I had just fallen off when my phone went around 12:30 or so. It was my daughter texting me from New York. Nothing bad in that except we are in the UK and so what for her was early evening was early morning for us. She needed some information which I had to search for and text back and then - I was awake - could I get back to sleep? None of it and when I finally came to on Saturday it was far too late to get up to London for the family history event.
So - I missed that and ended up working on the business for the rest of the day and then we went to friends for a Burns Supper at which I did, in my faux Scottish accent the address to the Haggis - luckily only the first 3 verses - I think no ones ears could have taken more than that. It was a lovely evening and one of those weird and wonderful things happened. I was thanked for donating my old laptop to the charity that my friend and one of their other guests are volunteers for. We got chatting as you do and worked out that this ladies granddaughter was our daughters best friend. These people don't live locally to us and we have never met them before. My friend would be likely to have met them through the Samaritans and so with 60,000,0000 people in the country it just so happens that we are connected to this person in two ways. What's the chances of that happening?
Today I've taken it easy and just lazed around as I recognise that I'm not actually taking too many rest periods away from work - even so I keep a jotter nearby to add notes. We are getting to that really intense part of the business and it is sort of make or break time - it is hard graft and it is particularly so now that, in effect, only two of us are actually doing all the work.
Anyway - another interesting week awaits. I hope it isn't as tragic as the week I've just had. There will be two funerals to attend to at some time in the next few weeks so I will just have to see if I am up to going to them. I've had a few issues with that since I had bladder cancer and whilst I've managed a few - I find that it plays on my mind a bit and I struggle with it. Need to face up to these ones although my friend's one is just awful and so tragic.
Tomorrow - I suppose I had better go and find the details and get myself sorted out on that - like train times and where we are meeting. It should be interesting as I haven't been to Stratford in East London for years and of course that is where (or near) the Olympic Village and all that will be for 2012.
I'll be looking to get there early and find a nice café to grab some breakfast. I may not stay too long as we are out on Saturday evening and I don't fancy hanging around in London too long and I'm not sure that I'll stay for the AGM - these things drive me barmy whenever I go to them and as there is no Family History Fair there this year - there wont be much to do so I'll make my excuses and dive off early.
Flocky came over earlier laden with coffee and pastries so that started the day off well. It has been hard work again slogging through some of my research work but I'm getting there.
Now a note from my friend that I've known from school, his dad died early this morning after a suffering a stroke last night. That's just so sad as his mum isn't at all well either. Very quick and of course traumatic as it wasn't expected. Managed to do the sorting out and get his mum looked after but can only imagine the trauma all that has caused as his wife lost her job after years of service because the new guy just wanted to change everything (arsehole spreadsheet manager!) so their year is pretty grim.
It's a pretty shitty start to 2011 already and we aren't out of January yet. At least Flocky is coming around tomorrow so that will cheer me up a bit.
Not that I am massively down. Glad to hear that A has arrived in the Big Apple and will be doing the tourist bit and off to Vermont tomorrow for some skiing. Good on her.
I'm "eating the frog" and ploughing through a really gutty piece of work that is just mind bendingly boring as I document all my research.
I am cheering myself up with the fact that I am going to the family history AGM on Saturday and will meet some of my far flung family and catch up with some of the latest news. We are also going to friends for a Burns night supper which will be a bit tempered by the news that their friend (and mine) was killed yesterday.
I've known better weeks folks...
I had a disturbed night - I expected that even after a couple of brandies. What an awful thing to happen and I'm still very withdrawn at the moment about it. I hardly know his wife and 4 children but my mind travels over to them every so often and it just makes me terribly sad to think about what they must be going through.
I'm able to start to remember the good times we had and some of my anecdotes about him - that will repair me I suppose. It's a bit like the shock of losing our friend over 30 years ago, in his early 20s he had a wife, another school friend, 2 daughters who were very young and a 3rd on the way and went to play Squash and no one knew he had a congenital heart problem. He collapsed and died. I was away, I didn't know until I came home and found out some weeks later. It was the most shocking thing, the circumstances and the timing (we were all getting married around this time) and I remember suddenly being aware of my mortality and taking the news pretty badly. The children are grown up now but when you see their faces, you still see him. That's always a strange moment coming face to face with someone who looks so much like him.
Anyway - a sad day and I'm feeling reflective and a little sad and a little morose. Not unexpectedly.
