It's Great News - But Why So Flat

It must be the strangest reaction you'd ever expect.  I feel happy that I am now clear of this episode of my life which has taken a quarter of my life up so far.  And yet...... something is missing.

I do not feel massively triumphal or deliriously happy or in fact any of the things you see on TV or Films.  I feel relieved I'd say and perhaps like a load has lifted from my shoulders and yet the reaction I thought I'd have is not bursting out.  I suppose as an INTJ I look at this as a matter of "it is what it is" and there can be no other way of looking at it really.

I met with an old friend for breakfast this morning and we had a good old natter especially as he had similar problems and he had the nuclear option to start with and so was "cured" quicker than I but he probably had more damaging after effects!

Anyway, here we are, at the end of this road and the start of something new.  Life without Cancer (or the after-effects of Cancer) and onwards we go.  The spectre of it coming back - or new cancer, however, hovers over me like a cloud.  14 years is a long time to be free of this all and I truly hope that really is it behind me.  We live in hope and travel on for the moment in the present, in the now for the past is over and the future is yet to be.

Well That's All Folks!

 14 Years, 2 months and 26 days later I have had my last flexible cystoscopy and I have been discharged from the care of the Hospital.  Strangely enough, it was the quickest scope I've ever known, I wonder if they have new equipment it seemed to be over quickly, I didn't feel that much either.

How reassuring it was to hear that all was clear and OK and that I was now officially discharged from the care of the Hospital.

I imagine you'd expect there to be a yell of celebration or some such but, I felt quite strangely a little numb and not sure what I felt.  Even now a few days later, I'm not celebrating or getting excited.  I think I should, maybe after it has all sunk in I suppose.  It's now time for a little reflection.  I lost a number of friends to their own battles in those years and right now - I need to just let it all sink in, wash over me and I think I'll be happy in a week or two.  I'm smiling as I write this though which is progress.

For anyone about to commence on this journey or perhaps is already on the road, it gets better and it is survivable.  Keep faith or focus or both and keep going on even though sometimes it gets you down.

It changed my life, turned my family's lives upside down and taught me many life lessons on the way.  I will, I am sure, be happy about this soon, for now, after 14 years, I'm still blinking in the sunshine.

Best wishes to you all

No Apology

 You have to laugh at the Omnishambles that is going on at the moment.  The reaction to the COVID-19 virus is laughable and surely anyone who can apply some logic and critical thinking to the "makes it up as we go along" politicians of the day can see that you can drive a bus through their stupid rules which can have little if any basis in scientific fact.  Rules can change on certain dates and times and the virus, which you can't see unless you have an electron microscope) knows exactly what time and place to start infecting people whether you have a mask on or not.

Out of all of this nonsense, I guess my exploding bomb of a letter that I sent to the local Hospital and followed up with a small bomb to my GP must have done something.  No apology (who did I think I was kidding that I'd get one) but an Appointment with three working days notice for Monday.  There was still no advice about wearing a face nappy or muzzle so I won't bother turning up with one.  It totally wrecks what I was going to do but, sod it, I will turn up, have the scope and hopefully, they can say the magic words and I can be discharged from this 14 years of Bladder Cancer - well Bladder Cancer recovery perhaps is more like it.  They got rid of the Cancer finally in October 2006 when they did a seconf TURBT.

So I am glad that they put me back onto the program as it was their own processes that hung them.  They still haven't followed those processes even this time (what was I expecting).

Anyway, the good news is that I will go despite this stupid muzzle edict and hopefully they will see me and that can be that.

I feel extermely sorry for the other Cancer sufferers at the moment for whom the NHS and the Government of the day have let down so disgustingly.  With 450 to 500 people a day dying from Cancer they are sacrificing and doubling down on them for the sake of a few a day now.  Bilions spent on COVID and some sort of Vacinne for disease that 99.95% of people will survive.  That money would be better spent on Cancer and the other primary causes of death.  COVID is way down the list now and as all virus pandemics will fade away but still be a threat ongoing just like seasonal flu is every year.

NHS? A Bit of a Joke

 I am most surprised given the huge number of administrators that the NHS hasn't got back to me about my complaint.

I think that this alleged Covid problem didn't actually materialise and nobody is actually doing anything constructive to make the NHS learn and restructure from this utter omnishambles.  With a handful of deaths a day now and what is it 1.25 or 1.5 Million employees of the NHS they were hardly overwhelmed.  Now the "Second Wave" hasn't actually materialised (although they are still worried it will) and if they are worried why the hell shut down all the Nightingale Hospitals.  God knows you'll need them soon for all the Cancer patients and all the poor sods who's operations and treatments have been postponed. 

But it is still OK to Make Tik Tok videos guys and show us how twerking with equipment and PPE is keeping up morale.

It's total bollocks and everyone needs to shake out of this nonsense and get on with life.  As for me, well I guess I am miraculously OK because a clerk has said so not my Consultant!  Utter bollocks and a shabby end to an otherwise successful diagnosis and treatment! 

The End Of The Journey (Or Is It?)

 What a strange thing.  Sending me to the wrong Hospital on the right day.  Not informing me that I needed a Mask.  Not following their own procedures (7 day and 48-hour phone call confirmations) and then another appointment arrives which I request a postponement from until this stupid face nappy edict from the Government (you won't find a health professional worth their salt who thinks a scarf will stop a virus) is eased.  If you've ever had a Flexible Cystoscopy you'll know the last thing you need is something wrapped around your face restricting your breathing let alone having to wear one throughout the visit.

The NHS, true to recent form said that their first mistake was a cancelled appointment and that me asking to postpone was also a cancelled appointment so without reference to my Consultant I'm discharged from care.  So do you think that's to make the number up?  I'm sure it is, they've been found out - most of the Nightingale Hospitals never had a patient.  I've a feeling that my appointments people weren't paying attention to my nicely worded letter and were too busy making up TikTok routines to be bothered with patients.

So this is how the journey ends - some jumped up clerk or perhaps a computer (for the letter came with appointment information etc) just used a spreadsheet and bang - that's me off the list after 14 years and if you've been with me you'll know that I've had quite a journey of cancelled appointments and I think something like 6 or 7 this year alone by the NHS themselves.  

They saved my life 14 years ago and I'm sure that the surgeons and nurses are fine but the management and administration staff - well I wouldn't trust them to sit the right way up on a toilet!

I've written a very strongly worded letter to them and my GP and followed that up with another to my GP.  I will write to my Consultant and express my dissatisfaction with the Hospital.  I feel some more heavy serious letter writing may go on beyond that as I have been treated appallingly by someone or something that cannot determine an outpatient appointment from a procedure and a request from a cancellation.

Sod them all.  I'm lucky as I've never had to cancel an operation or an appointment unless the NHS has done it to me sometimes just before surgery!  So I feel vindicated in launching a tirade of complaints to them.  I certainly hope they are ready for me.

I only had this one check left and I would have been discharged anyway so I'm not that worried about it.

You Didn't Tell Me That

Yes, once again the procedure (if that was what it was) was rescheduled.   I was to have two phone calls to confirm and neither happened and so guessing that I ought to go, went there to find that they hadn't told me to have a face mask!!!  So turned around and came home.

World Class NHS?  Sometimes I wonder about them and this recent crisis.  Everyone appears to have wet their pants and the normal procedures that they want you to go through are, like many non Covid Patients - thrown under a bus!

I despair that they cannot keep appointments and change these at the last moment. That they don't actually tell you what you are being seen for and that they are unable to follow their own instructions about them contacting you 7 days and 48 hours ahead worse than that, they totally neglect to tell you that you need to find a surgical mask to actually go into a Hospital!

I'm waiting to see if they will even contact me now - I kind of doubt it as they probably haven't even worked out that I wasn't there!  

Not Unexpectedly - Appointment delayed

Well, it wasn't unexpected but a letter arrived today delaying my appointment from 21st April to 30th June.  That's of course fine by me, I was happy to go in anyway as there probably wouldn't be too many people around and it isn't as if I'm a priority or anything though I'd just like t get this scope out of the way and be discharged and that's it.

It will be almost 14 years to the day that I presented the symptoms (2nd July 2006) and so for those of you wondering, yes, you do get through it and things will get better and suddenly there's light at the end of the tunnel.

Keep well everyone. 

Delay No Doubt

Well with the Corona-virus doing the rounds and the various advice by the Government I'm not holding my breath that my appointment for a flexible cystoscopy will go ahead in April.  

Certainly we are all just being careful and many events that we were going to are being postponed or cancelled just in case.  I'm off to a meeting tomorrow but I seriously doubt that we will be holding any in the rest of March, April or May the way things are progressing at the moment. 

Hopefully, things will improve for the better but for now it is best to hunker down and see what happens.  I kind of remember this with some other recent pandemics but this one definitely appears to be causing a high level of worry for people.  Let's hope it isn't as bad as it seems.

I'm pretty certain that this would be the last cystoscopy I will ever require but if I have to wait a further 6 months or so, so that others can get treated then that's OK.  I'm sure it will be fine.