I was fine until yesterday morning when an Appointment Letter arrived from the Hospital for my CT Scan which I know I was going to have but it had a very unexpected result.
I actually almost cried and went into a series of hellish flashbacks right back to the early days of having the diagnosis and so on. It put me into a tail spin and I felt terrible all day and I don't feel a lot better today although I've got rid of the tearful and shaking me that I was yesterday. I forget how bad things were and in some ways I was in a different head space altogether then (some 13 years ago). I was tackling things head on, had the family around and so on. Now, given the time and some sort of trigger like this, I can flash back and truly remember how frightened I actually was inside the hard shell of it all. Perhaps I'm more frightened now than I was then? What I mean is that I know have the time to reflect on it more, can oversee the whole thing rather than the moment I was in and so it affects me more somehow.
I should be happy about all of this really. For if this is clear and the next camera scope is clear, my bloods are alright and the Consultant is happy with everything, that's it, I'll be discharged from the last 13 years and I can (I suppose) get on with my life knowing that it is all behind me.
His words that it was more likely that any Cancer would be new rather than a recurrence should be some comfort but once you've had it, you do tend to live in the fear that everything that is wrong with you has the potential to be cancer!
I'm trying very hard to get on and block my mind about the past and just get on with the future. In 15 days I'll have had my CT Scan and I really hope that all that needs to happen then is a final Cystocopy and we can draw a big line under this episode.
The CT Scan is sort of OK, they inject dye into you and you need to have a full bladder which is sot of OK but it feels like you are urinating when they automatically whack the dye into you. Again, hopefully that's the last Cannula I'm going to see - I've seen plenty I can tell you!
I must get on with living and shake this day off - it's like being hit with the Flu or some such thing - it's completely debilitating and stops me doing things. I just want to go and sit in the corner and feel sorry for myself at the moment which I haven't done for a long time. I know it is counter-intuitive because it should be the thing that proves there's been no spreading (highly unlikely) and that there isn't too much damage to my system. Certainly I do not appear to have suffered any Kidney damage either through the cancer or the drugs I am on.
So, be on your guard, I felt like I felt 6 years ago and it's not a nice place to be at all. Make sure you catch yourself if you can or at the least realise that every now and then you get a set back, a flash back or something else that takes you off gurad.
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