I've got back onto the cross trainer and this time did my three peaks routine but only for 20 minutes not my normal 30. I did well though covering 5 kM in 20 minutes including 3 pretty stiff simulated climbs is fine.
I can feel how weak my middle is now - it never ceases to amaze me quite how they must pull you about in Hospital to leave you feeling like this.
I'm sweating up nicely which means I did actually do some work and I've even given my weights a few minutes too (I know I said I wouldn't but I have gone easy).
It is a shame that Steve K in the US has had to call off our weight loss competition but Steve has stayed about the same whilst I have to admit I'm dropping weight quite readily. I'm guessing that I'm just getting back to the weight I was prior to living it up too much last year on the Cruise and just over eating.
Just on diet - I am still keeping away from bread entirely and have one large meal a week on Sunday - some sort of roast meat and potatoes etc. During the week I eat crisp breads and rice cakes with a variety of fish or curd/cottage cheese a little low fat hard cheese. I have soup quite a bit and salads. I also have the odd jacket potato with Tuna or Baked Beans and tonight I will have some pasta with seafood of some sort in it, probably crayfish tails and squid. I have some dried fruit and nuts every day now, apricots, prunes, figs, Brazil, hazel. almond and walnuts. A daily pro-biotic yoghurt and that's about it really. I'm really good with portions of food too these days and hardly ever over eat.
Tuesday, August 10, 2010
The way it works out
Finally no children around until Thursday late afternoon and where is Mrs. F?? Working - she signed up for that a month or so ago (normally she has summer off as a nursery school teacher) and so I'm Macaulay Culkin, Home Alone.
Not that I mind that but it would have been nice to have spent some time sans kids. They look to be enjoying themselves at Edinburgh Fringe Festival.
At least I can get on with work I suppose and can listen to whatever music I like - hey - it isn't so bad after all :-)
Not that I mind that but it would have been nice to have spent some time sans kids. They look to be enjoying themselves at Edinburgh Fringe Festival.
At least I can get on with work I suppose and can listen to whatever music I like - hey - it isn't so bad after all :-)
Monday, August 09, 2010
No Kids
hardly kids. L has arrived in Edinburgh and her sister has sent photos of them feeding her in case we were worried!
I'm getting ready to blitz my work for the next 4 days now today is out of the way. I might try and get back to exercise tomorrow if I can but maybe take it even easier than the last time. I'll give my weights a miss for sure.
I'm getting ready to blitz my work for the next 4 days now today is out of the way. I might try and get back to exercise tomorrow if I can but maybe take it even easier than the last time. I'll give my weights a miss for sure.
After Work Drinks?
Nope - got jilted. No one remembered to let me know that they couldn't make it. At least I left work early and got home in reasonable time too so nothing too bad came of it.
Next trip up there is next Month but picked up a fair bit of work to do in the meantime which will help fund what I am doing on my own stuff.
It was strange going back up to London and seeing the same old faces on the train and on the walk to the station.
Next trip up there is next Month but picked up a fair bit of work to do in the meantime which will help fund what I am doing on my own stuff.
It was strange going back up to London and seeing the same old faces on the train and on the walk to the station.
Troubled Night's Sleep
Not sure why that was - I was awake every 30 minutes or so, strange half dreams, bizarre things going on in my head. I'm at the office now - got the early train and needed to run off some documents so thought "why not?"
I'll test the lie of the land for slowly exiting from here too as it appears my replacement has picked up the gauntlet and run with it and the boss appears impressed too which is great. It is always nice to have chosen the right replacement, one who should be better and can build on my early work.
I said 2 and a bit years ago that I really wanted to make a difference. I think I can say that I did. I can see the work I am doing now fading down as the guy who owns it wants to be in the limelight and he can't do that if my finger prints are all over it can he? :-)
I am hopeful that I may get some sort of Trustee arrangement with the Charity in future years as I'd be able to deliver something extra that way.
It will be a long day today - pouring over a major framework document that I initially spent a long time editing only for the owner to destroy and chop into bits. Once he and his team have finished today, no doubt, I will be asked to stitch it back together, put back all the indexing and all the cross referencing, colour code and interlink the headers and put back all the fancy stuff they originally wanted and wondered why it had disappeared when he chopped the document to pieces! It's a funny old world sometimes.
My body appears to be functioning normally this morning - thank goodness. I still take a bit of a deep breath and hold it when I go to the toilet just in case though :-) Nothing quite like bits dropping out of your body to keep your attention.
Free sandwiches at lunchtime and drinks with my work mates tonight. Let's hope the meeting isn't boring.
I'll test the lie of the land for slowly exiting from here too as it appears my replacement has picked up the gauntlet and run with it and the boss appears impressed too which is great. It is always nice to have chosen the right replacement, one who should be better and can build on my early work.
I said 2 and a bit years ago that I really wanted to make a difference. I think I can say that I did. I can see the work I am doing now fading down as the guy who owns it wants to be in the limelight and he can't do that if my finger prints are all over it can he? :-)
I am hopeful that I may get some sort of Trustee arrangement with the Charity in future years as I'd be able to deliver something extra that way.
It will be a long day today - pouring over a major framework document that I initially spent a long time editing only for the owner to destroy and chop into bits. Once he and his team have finished today, no doubt, I will be asked to stitch it back together, put back all the indexing and all the cross referencing, colour code and interlink the headers and put back all the fancy stuff they originally wanted and wondered why it had disappeared when he chopped the document to pieces! It's a funny old world sometimes.
My body appears to be functioning normally this morning - thank goodness. I still take a bit of a deep breath and hold it when I go to the toilet just in case though :-) Nothing quite like bits dropping out of your body to keep your attention.
Free sandwiches at lunchtime and drinks with my work mates tonight. Let's hope the meeting isn't boring.
Sunday, August 08, 2010
Rather unfortunately it appears
That I've still a little more debris to remove from my system some 3 weeks and 2 days after my operation! I could hardly believe it as two smallish clots made their way out. Luckily it was just before I was about to do some exercise so I killed that idea off for the present. I think I will miss out tomorrow - I'm pretty much enforced to anyway as I have to go into London. I will start again on Tuesday and monitor the situation.
It is a fine balance but I want to get back to some regular exercise to complement all the other stuff I am doing.
I'm in the office tomorrow - must be the first time for a month I guess which will be nice. They are providing the food so that will be good too. I'm off in the evening for a few after work drinks with my colleagues which again I look forward to.
Weight - How do I call it this time?
I shall have to say no loss but the little red needle is below the 16 stone mark but not down by a whole pound. So I think that I should call it that it stays the same....
224 Pounds.
Getting back to exercise will I hope start to improve things a little. Not sure the celebration poached eggs, mushrooms and bacon will have improved things this morning but I'm allowed a little off piste eating every now and then, I'm not a Hermit after all!
224 Pounds.
Getting back to exercise will I hope start to improve things a little. Not sure the celebration poached eggs, mushrooms and bacon will have improved things this morning but I'm allowed a little off piste eating every now and then, I'm not a Hermit after all!
Saturday, August 07, 2010
Exercise
Well that went a little better than expected.
I dialled in level 3 (the starting level for many of the exercise routines) but didn't choose a programme to run. I then put in 5 km (about 3 miles) and 30 minutes. I can normally do between 6 and 7.4 km in 30 minutes. I was surprised to finish 5 km in 20 minutes considering I haven't been on the machine in 3 weeks!
My blood pressure reading is a tiny but higher than I was expecting but give the exercise a few more days and I'm sure it will dip down once again.
I feel reasonable after this so that's OK. I'll slowly lift the bar over the next few days to get back to my 30 minutes and three peaks exercise.
I dialled in level 3 (the starting level for many of the exercise routines) but didn't choose a programme to run. I then put in 5 km (about 3 miles) and 30 minutes. I can normally do between 6 and 7.4 km in 30 minutes. I was surprised to finish 5 km in 20 minutes considering I haven't been on the machine in 3 weeks!
My blood pressure reading is a tiny but higher than I was expecting but give the exercise a few more days and I'm sure it will dip down once again.
I feel reasonable after this so that's OK. I'll slowly lift the bar over the next few days to get back to my 30 minutes and three peaks exercise.
A clearing out of my clutter
I had no idea that I had accumulated so much clutter. We have a thing called Freecycle (it runs locally on Yahoo Groups) and it allows you to dispose (free of charge) of stuff you no longer want but that may be useful to other people. So I have hundreds of CDs and DVDs of software that I no longer need or want and the associated magazine that can go to a new home. Also some records that were lying around and some other bits of software that I've no more use for.
My shelves in my office look pretty bare now but that's OK - all it was doing was gathering dust.
Interestingly A got an old Kitchen Chair from Freecycle that she is painting up as a summer project. She is still up in Edinburgh at the moment attending the Fringe and L is going up at her sister's expense on Monday and returning Thursday as part of her birthday present. She is 17 on Friday!!! Unbelievable - she will start driving lessons soon and I'm just amazed how quick time has gone by.
I'm still feeling great - really upbeat - really happy - really light and bouncy. I know that I probably haven't beaten Bladder Cancer yet but what I do know is that I'm making every effort to stay clear. I feel the need to get back on to my exercise regime this afternoon as I haven't had any bits drop out of my body since Wednesday so I should be all right to get slowly back - not go mad at it just slowly return to peak.
Losing a stone has made a big difference and I intend to keep on losing weight until it gets back to normal levels and my blood pressure and everything else settles to where it should be.
My shelves in my office look pretty bare now but that's OK - all it was doing was gathering dust.
Interestingly A got an old Kitchen Chair from Freecycle that she is painting up as a summer project. She is still up in Edinburgh at the moment attending the Fringe and L is going up at her sister's expense on Monday and returning Thursday as part of her birthday present. She is 17 on Friday!!! Unbelievable - she will start driving lessons soon and I'm just amazed how quick time has gone by.
I'm still feeling great - really upbeat - really happy - really light and bouncy. I know that I probably haven't beaten Bladder Cancer yet but what I do know is that I'm making every effort to stay clear. I feel the need to get back on to my exercise regime this afternoon as I haven't had any bits drop out of my body since Wednesday so I should be all right to get slowly back - not go mad at it just slowly return to peak.
Losing a stone has made a big difference and I intend to keep on losing weight until it gets back to normal levels and my blood pressure and everything else settles to where it should be.
Early morning or late evening
for me - I've just got back from our Curry night - 17 of us out for a few beers and then at a Curry house for a really good evening meal.
Camaraderie is probably a good view of what it was all about and one guy is staying locally in a hotel having travelled about 80 miles to be with us. We are are ranged in age from 30 to 85 and so a good mix and not a bunch of trouble makers - so Flocky Bicep (who is often seen contributing to this blog or being the recipient of my scorn) was the guy that organised it and it is just a great fun evening. We had a good laugh in the pub, great food and fun at the restaurant and we left feeling we had a good evening and both the pub and restaurant profited too :-)
At the moment life is good, my life is in "re-build" mode and perhaps I can re-build my life with my family and with my friends because now - I am normal again. I'm no longer someone different with cancer, being treated, suffering from and different to them. I'm back where I was 4 years ago and I'm socially acceptable again. It sounds harsh but it is reality and I don't bear any malice in that statement - it is the way it is - I'm sure it would be if it was someone else. My friend KL was saying that his wife is now 10 years clear of Breast Cancer and ready to be signed off. In my world she was clear 12 months after we knew she had it following her treatment. I have altered my view since then but if I wasn't a (I wanted to use victim which is the wrong word) co-sufferer I would have a totally different view.
Camaraderie is probably a good view of what it was all about and one guy is staying locally in a hotel having travelled about 80 miles to be with us. We are are ranged in age from 30 to 85 and so a good mix and not a bunch of trouble makers - so Flocky Bicep (who is often seen contributing to this blog or being the recipient of my scorn) was the guy that organised it and it is just a great fun evening. We had a good laugh in the pub, great food and fun at the restaurant and we left feeling we had a good evening and both the pub and restaurant profited too :-)
At the moment life is good, my life is in "re-build" mode and perhaps I can re-build my life with my family and with my friends because now - I am normal again. I'm no longer someone different with cancer, being treated, suffering from and different to them. I'm back where I was 4 years ago and I'm socially acceptable again. It sounds harsh but it is reality and I don't bear any malice in that statement - it is the way it is - I'm sure it would be if it was someone else. My friend KL was saying that his wife is now 10 years clear of Breast Cancer and ready to be signed off. In my world she was clear 12 months after we knew she had it following her treatment. I have altered my view since then but if I wasn't a (I wanted to use victim which is the wrong word) co-sufferer I would have a totally different view.
Friday, August 06, 2010
BCAN Awareness Day
Big shame there is nothing like this in the UK yet. However, kudos to these guys in the US raising awareness etc. I support them with the Orange Wristbands - I must get some more soon I'm running out after distributing them amongst friends.
Bob Schieffer on Bladder Cancer
This is perhaps one for the US audience who will know this gentleman. The graphics are excellent.
Bang and my brain explodes
What a good week it has been. Not only has Tuesday and the good news lifted a weight of my back (whether I knew it was there or not), it has also been a good week for releasing creativity especially after yesterday's meeting when suddenly it all started to fall into place about how we could run this business successfully - then the scary bit kicks in about how many £Ms of finance we need to see this through.
Suddenly it isn't just about the doing and the technology and the business setting up. It is also about raising the capital and making sure that it is available and drawn down at the right times and used properly. Suddenly all of that clicked into place too. It's stuff you know about deep down inside but you need the reality of a serious business conversation to flip the adrenaline switch....
Exciting times as suddenly the most difficult part of the business starts to come together. For 3 years we have struggled to express what we are doing in a simple and straightforward manner. The reasons are that we are solving not one but several issues all at once and describing that in simple language is too difficult. If we reflect what it may look like we start to draw comparisions which is unhelpful.
So after many hard weeks and many iterations we are boiling things down to a point where we can actually call it something other than its working title. I'm firing away on corporate planning, financial forecasts and all that good stuff. I just need to get into it and cut loose. There are too many distractions at the moment. The incentive is that this is our own money we are burning and we wont have customers for quite a long time so the longer we spend on it the more it costs us. Also part of the rush is the reality that we have no income to speak of and need the investment to come in in around 6 months.
How on earth I get all this stuff out of my head and onto paper I don't know - I just cannot type fast enough....
It is fab to get my life back again and have something really exciting, complex and challenging to do.
Suddenly it isn't just about the doing and the technology and the business setting up. It is also about raising the capital and making sure that it is available and drawn down at the right times and used properly. Suddenly all of that clicked into place too. It's stuff you know about deep down inside but you need the reality of a serious business conversation to flip the adrenaline switch....
Exciting times as suddenly the most difficult part of the business starts to come together. For 3 years we have struggled to express what we are doing in a simple and straightforward manner. The reasons are that we are solving not one but several issues all at once and describing that in simple language is too difficult. If we reflect what it may look like we start to draw comparisions which is unhelpful.
So after many hard weeks and many iterations we are boiling things down to a point where we can actually call it something other than its working title. I'm firing away on corporate planning, financial forecasts and all that good stuff. I just need to get into it and cut loose. There are too many distractions at the moment. The incentive is that this is our own money we are burning and we wont have customers for quite a long time so the longer we spend on it the more it costs us. Also part of the rush is the reality that we have no income to speak of and need the investment to come in in around 6 months.
How on earth I get all this stuff out of my head and onto paper I don't know - I just cannot type fast enough....
It is fab to get my life back again and have something really exciting, complex and challenging to do.
Thursday, August 05, 2010
Something to make your head buzz
Phew - meeting went well - fantastic buzz afterwards as my head went off in to full explode mode. The more we get into the depths of our business the greater the challenge. I thought that our scale and ambition has always been set high and today we started to realise just how high. What came across and perhaps surprised us is the availability of finance options.
I don't appear to have any more bit dropping out of my body today. I think if nothing has happened by Sunday I will get back into light training on my cross trainer. It will three weeks tomorrow and I should be somewhere near the zone.
I certainly don't want to lost the habit or lose the benefits that it appears to have brought so far.
It's a curry night tomorrow which with 17 of us going along should be a great evening.
I don't appear to have any more bit dropping out of my body today. I think if nothing has happened by Sunday I will get back into light training on my cross trainer. It will three weeks tomorrow and I should be somewhere near the zone.
I certainly don't want to lost the habit or lose the benefits that it appears to have brought so far.
It's a curry night tomorrow which with 17 of us going along should be a great evening.
Blog before Breakfast
Then off to London to meet the new potential financial guy. Jazz was good except when I went to the toilet and passed another huge scab. Obviously not ready to get back onto the exercise bike today. I managed to get soaked as a rogue shower emptied its contents on me. Even with a huge golfing umbrella I was soaked up beyond my knees and my shoes were just about to give up when I got into the hall.
It looks a great day - it will be interesting to see quite what it brings :-)
It looks a great day - it will be interesting to see quite what it brings :-)
Wednesday, August 04, 2010
Jazz
I cannot fault going out the the Jazz evening as I really enjoy a bit of live music a a few pints of Old Speckled Hen to wash it all down with.
I need to wind down a bit as today was full on with the new business and tomorrow we actually get to start meeting and greeting people and perhaps welcome another member to our team.
Today it dawned on us just how big our task actually is and in many respects how far we had already come along the way. It is pretty impressive to see the quantity and the quality of the work done so far.
I need to wind down a bit as today was full on with the new business and tomorrow we actually get to start meeting and greeting people and perhaps welcome another member to our team.
Today it dawned on us just how big our task actually is and in many respects how far we had already come along the way. It is pretty impressive to see the quantity and the quality of the work done so far.
Get off Monkey
What a huge difference I notice in myself today - the Monkey on my Shoulder's gone and I feel light (the weight has gone) I feel bright and cheerful and ecstatic and all because I don't have to have an operation in 6 months.
That and to again have found no cancer inside of me too. If I could exhale for a minute or longer I would do PPPPPPPPppppppphhhhhhhhheeeeeewwwwww :-)
I can't tell you how huge a difference it has made to me - I'm somehow really upbeat, optimistic and cheerful all at the same time. My business partner is here today and I'm looking forward to getting stuck in to an uninterrupted 6 months of work. Tomorrow we go and meet the guy who is - potentially - going to be our Financial man. Tonight I'm off for a nigh at the Trad Jazz evening.
That and to again have found no cancer inside of me too. If I could exhale for a minute or longer I would do PPPPPPPPppppppphhhhhhhhheeeeeewwwwww :-)
I can't tell you how huge a difference it has made to me - I'm somehow really upbeat, optimistic and cheerful all at the same time. My business partner is here today and I'm looking forward to getting stuck in to an uninterrupted 6 months of work. Tomorrow we go and meet the guy who is - potentially - going to be our Financial man. Tonight I'm off for a nigh at the Trad Jazz evening.
Tuesday, August 03, 2010
The guy that encouraged me to write this blog
Was the chap I met tonight whose dad died last night. They had just moved back in to the village here and just a few weeks later it was all over and his dad died. The new next door neighbours came over to complain that the lights were left on last night.
"That would be on account of the nurse coming over due to "a serious and sudden deterioration of his condition" my friend suggested. Well - "my wife found it hard to sleep and I hope it doesn't happen again?" "I doubt it" my friend said "he died 10 minutes ago, you should get some sleep tonight!"
He and I like my "I'm Not Dead Yet" Tee-Shirt I wear occasionally. Everyone - listen to me - stop being such annal retentive dick-heads and "GET A LIFE"
How dare they come over and complain that a light was left on when at that actual time a human life was going out??? Sometimes, when I see the world's sufferings and man's inhumanity to man graphically displayed on the news and then you get some self centred NMBY (Not In My Back Yard) on - don't you just want to go and drill them? I know I do - but then I'm getting old and far more right wing than I ever was.
I had a little cuddle with my mate as he arrived at the pub. We don't do that sort of thing normally, we are British and that's not the way we greet each other - you should shake hands and all that but my friend just lost his Dad and after all, an arm round your shoulder says a thousand words because - not only don't we like touching each other, we are also very bad at saying the right thing either!!! It's tough being British as our stiff upper lips get in the way of our feelings and we aren't very good at expressing ourselves. I don't think I've ever given him a "cuddle" but I just felt it was necessary and saved me the embarrassment of having to express my sentiments at his father's demise.
I have to say though that KP - he knows who he is - is massively responsible for this blog and so I do hope that he reads it and realises the major part he has played in getting this diatribe out into to the wide world and the benefit for me - if for no one else?
Respect KP - you've played such a major part in my recovery - I just can't express how important it has been to have this outlet available and your support during that time.
"That would be on account of the nurse coming over due to "a serious and sudden deterioration of his condition" my friend suggested. Well - "my wife found it hard to sleep and I hope it doesn't happen again?" "I doubt it" my friend said "he died 10 minutes ago, you should get some sleep tonight!"
He and I like my "I'm Not Dead Yet" Tee-Shirt I wear occasionally. Everyone - listen to me - stop being such annal retentive dick-heads and "GET A LIFE"
How dare they come over and complain that a light was left on when at that actual time a human life was going out??? Sometimes, when I see the world's sufferings and man's inhumanity to man graphically displayed on the news and then you get some self centred NMBY (Not In My Back Yard) on - don't you just want to go and drill them? I know I do - but then I'm getting old and far more right wing than I ever was.
I had a little cuddle with my mate as he arrived at the pub. We don't do that sort of thing normally, we are British and that's not the way we greet each other - you should shake hands and all that but my friend just lost his Dad and after all, an arm round your shoulder says a thousand words because - not only don't we like touching each other, we are also very bad at saying the right thing either!!! It's tough being British as our stiff upper lips get in the way of our feelings and we aren't very good at expressing ourselves. I don't think I've ever given him a "cuddle" but I just felt it was necessary and saved me the embarrassment of having to express my sentiments at his father's demise.
I have to say though that KP - he knows who he is - is massively responsible for this blog and so I do hope that he reads it and realises the major part he has played in getting this diatribe out into to the wide world and the benefit for me - if for no one else?
Respect KP - you've played such a major part in my recovery - I just can't express how important it has been to have this outlet available and your support during that time.
Oh Happy Day!!!
Yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes, yes!
OK - I waited 30 minutes to see the Consultant (Doctor), Jo, my Urology Nurse, picked me up from reception and we walked through. "Have you got your stress balls?" she asked. "I hope I don't need them!" I said as we walked into the office. It was smiles all round and my consultant, obvioulsy not in on the joke looked at me. I explained that I was surprised Jo "recognised me with my clothes on" and that when I have the BCG treatment, I carry in a pair or Stress balls. Having sorted that out - we exchanged pleasantries (as you do) and she just said that the results were clear.
"Great" I said. Then the even better news - "we can now go to a check by flexible cystoscopy"
I have to tell you that this is such good news for me, 4 years, 9 operations and an explanation that the reason they had gone for lots more biopsies, especially around the neck of the bladder (where the original tumour was close to) was to allow them to be able to take this decision.
Relief? You're not kidding. I am so pleased that I'm smiling writing this yet I have a tiny tear of emotion in my eyes too. I was hoping so much to move on and this really has let me do that. I can't even begin to tell you what a relief it is. I had a small whinge about the treatment I had received and also asked for the fainting fit to be stuck on the notes so that people knew not to back pressure my bladder next time (if there is one). I'd certainly say something but thought the notes should too!
As I say that, I find that one of my friends from school I am meeting tonight (we meet every month) just dropped me a note with 2 messages. His brother - who I haven't seen for 35 years will be coming over tonight but that their father died last night, of cancer. The other friend who will be there is the one whose dad died just as I was diagnosed causing all sorts of anguish I can tell you. The one who cannot make it tonight, his father-in-law - who I knew quite well died of Bladder Cancer just last year after many years fighting it. I intend that we will celebrate life and to help the cause Ii have already had three pints of Spitfire on my way home. Mrs. F. and L accompanied me at the pub to celebrate :-)
What a strange and fateful day for me. I like the fact that we will celebrate my friend's dad's life - I have no doubt that is what he would want us to do. I only met him a few times but he was a lovely man.
I am so pleased with the outcome - it was the best news I could have had especially after all that trauma of the past few weeks.
OK - I waited 30 minutes to see the Consultant (Doctor), Jo, my Urology Nurse, picked me up from reception and we walked through. "Have you got your stress balls?" she asked. "I hope I don't need them!" I said as we walked into the office. It was smiles all round and my consultant, obvioulsy not in on the joke looked at me. I explained that I was surprised Jo "recognised me with my clothes on" and that when I have the BCG treatment, I carry in a pair or Stress balls. Having sorted that out - we exchanged pleasantries (as you do) and she just said that the results were clear.
"Great" I said. Then the even better news - "we can now go to a check by flexible cystoscopy"
I have to tell you that this is such good news for me, 4 years, 9 operations and an explanation that the reason they had gone for lots more biopsies, especially around the neck of the bladder (where the original tumour was close to) was to allow them to be able to take this decision.
Relief? You're not kidding. I am so pleased that I'm smiling writing this yet I have a tiny tear of emotion in my eyes too. I was hoping so much to move on and this really has let me do that. I can't even begin to tell you what a relief it is. I had a small whinge about the treatment I had received and also asked for the fainting fit to be stuck on the notes so that people knew not to back pressure my bladder next time (if there is one). I'd certainly say something but thought the notes should too!
As I say that, I find that one of my friends from school I am meeting tonight (we meet every month) just dropped me a note with 2 messages. His brother - who I haven't seen for 35 years will be coming over tonight but that their father died last night, of cancer. The other friend who will be there is the one whose dad died just as I was diagnosed causing all sorts of anguish I can tell you. The one who cannot make it tonight, his father-in-law - who I knew quite well died of Bladder Cancer just last year after many years fighting it. I intend that we will celebrate life and to help the cause Ii have already had three pints of Spitfire on my way home. Mrs. F. and L accompanied me at the pub to celebrate :-)
What a strange and fateful day for me. I like the fact that we will celebrate my friend's dad's life - I have no doubt that is what he would want us to do. I only met him a few times but he was a lovely man.
I am so pleased with the outcome - it was the best news I could have had especially after all that trauma of the past few weeks.
Monday, August 02, 2010
WAMU: The Diane Rehm Show Podcast : NPR Podcasts
WAMU: The Diane Rehm Show Podcast : NPR Podcasts
Also HERE
2nd August 2010 - Bladder Cancer. This is a podcast and is about an hour long. It is very interesting stuff and highlights one of the key things about bladder cancer - that is the sheer cost of treatment and its recurrence rates. Some very interesting points here for the US audience and here in Europe too.
I have been trying to explain how different bladder cancer is to people for a long time, about the long term follow up work and the high levels of recurrence but with the frequency of follow up and the slow growing nature - they are able to give us BC survivors a good prognosis. There are still further treatments and things they can do in the future should I get another recurrence. More treatment, surgery and even more radical things can be done to prolong my life.
It was also interesting to hear that as this is the 5th most prevalent cancer in the US and the 4th here in the UK how little attention or funding it gets. Is this because it is a "below the belt" cancer?? Given how much it costs the NHS here in the UK (paid for by our national insurance scheme) and individual's insurance in the US you would have thought there were some long term financial gains to be made by advancing the research into Bladder Cancer.
One of the panellists has been checked for 30 years (she is only 50) and it could be much much longer of course. Imagine if you will what sort of costs that is for a theatre, all the laundry, personnel, doctor, heating, lighting etc and all the drugs and stuff - then multiply that by 30 and you can see quite how expensive it is.
Interesting stuff I think you'll find.
Also HERE
2nd August 2010 - Bladder Cancer. This is a podcast and is about an hour long. It is very interesting stuff and highlights one of the key things about bladder cancer - that is the sheer cost of treatment and its recurrence rates. Some very interesting points here for the US audience and here in Europe too.
I have been trying to explain how different bladder cancer is to people for a long time, about the long term follow up work and the high levels of recurrence but with the frequency of follow up and the slow growing nature - they are able to give us BC survivors a good prognosis. There are still further treatments and things they can do in the future should I get another recurrence. More treatment, surgery and even more radical things can be done to prolong my life.
It was also interesting to hear that as this is the 5th most prevalent cancer in the US and the 4th here in the UK how little attention or funding it gets. Is this because it is a "below the belt" cancer?? Given how much it costs the NHS here in the UK (paid for by our national insurance scheme) and individual's insurance in the US you would have thought there were some long term financial gains to be made by advancing the research into Bladder Cancer.
One of the panellists has been checked for 30 years (she is only 50) and it could be much much longer of course. Imagine if you will what sort of costs that is for a theatre, all the laundry, personnel, doctor, heating, lighting etc and all the drugs and stuff - then multiply that by 30 and you can see quite how expensive it is.
Interesting stuff I think you'll find.
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