So Why Did I Survive?

Now here is an interesting problem that I get - not sure if everyone else does though so don't take this as a common occurrence it may be just a few of us...

You can look at this particular question a number of ways and you can rationalise it different ways too.

When I've done all the basic rationalisation I came to the conclusion that I did it for myself. Yes I did it for me. Why me? Well because frankly the way other people treat me now, there is no way I would have done it for them. By that I mean that I had a sort of idealogical, rose tinted view of survival and what it would be like. You see, it would be like starting all over again, with a clean sheet of paper. Things that weren't great beforehand would be better, I'd make the word a better place (OK I might still do that! :-)), I'd be treated with a bit of respect, that relationships would somehow magically mend and become closer as they had drifted apart.

I felt that adversity would indeed build a lasting bond and produce this much better life because I had survived and because I saw life as precious and it meant something. What I went through (and am still going through) must have mattered, it was character building stuff, it changed me a lot, it made me more sensitive, more caring, more tolerant (yes it did!!!) and it gave me a whole new outlook on life.

And yet, as I've said before, only I changed, it's still the same old, same old. OK - I've heard from a very drunken source just how frightened everyone was for me but no one has ever said that to me sober. No one has ever admitted, just a little, that they were worried about what was going to happen to me and its as if it never happened. That's what has surprised me the most. No one gives a flying **** about me really apart from me - sure my parents but that's different and my mum I know has taken it the hardest but we have always gotten along just great and I know that it wounded her more than just about anyone else.

I survived (accepting all the medical stuff of course and good fortune and early diagnosis etc) because I wanted to, more than anything I'd realised that it was important to fight this and those who don't inevitably lower their chances (that's what I believe anyway). It wasn't pleasant, it wasn't heroic, it wasn't some huge battle it was as it was, tough going, stoic stuff. I did it because I truly felt things would be different afterwards. Tonight I feel robbed of that - nothing has changed, things are still the same, attitudes linger and I get treated the way I always did and get taken for granted. That's life and what you deal with - I'm sure everyone deals with that sort of stuff day in and day out and that's fine, why should I be any different?

Well - I should be different because that's what I thought would happen and it hasn't (well it hasn't yet). I'm not particularly bitter about it, it just is what it is really, nothing has changed which in my opinion means that perhaps the only person who gets to learn from the whole experience was me. It seems a waste that no one else took away the messages and positives of the journey really. Just me then :-) As normal.

Banging Around in My Head All Afternoon

Portrait (He Knew) by Kansas

He had a thousand ideas, you might have heard his name
He lived alone with his vision
Not looking for fortune or fame
Never said too much to speak of
He was off on another plane
The words that he said were a mystery
Nobody's sure he was sane

But he knew, he knew more than me or you
No one could see his view, Oh where was he going to

He was in search of an answer
The nature of what we are
He was trying to do it a new way
He was bright as a star
But nobody understood him
"His numbers are not the way"
He's lost in the deepest enigma
Which no one's unravelled today

But he knew, he knew more than me or you
No one could see his view, Oh where was he going to
And he tried, but before he could tell us he died
When he left us the people cried,
Oh where was he going to?

He had a different idea
A glimpse of the master plan
He could see into the future
A true visionary man
But there's something he never told us
It died when he went away
If only he could have been with us
No telling what he might say

But he knew, he knew more than me or you
No one could see his view
Oh, where was he going to
But he knew, you could tell by the picture he drew
It was totally something new,
Oh where was he going to?


They don't write them like that any more -good I hear you say :-)

I had forgotten how much I like Kansas - the trouble is that it is some 30 years ago....

Anyway - I just liked the lyrics on this one.

Numbness - when does the pain begin

The pain is always when you get the bill, £280 which was 4 fillings - I wasn't expecting 4 I was expecting 2 today so that was "different".

I got to the Dentists about 10 minutes early and he was late anyway and so that wasn't too bad, I was remarkably relaxed and even now I'm not overly stressed about things. What is quite amazing these days is that after all the stuff they stick in you, especially for us bladder cancer patients, and where they stick it. Getting an injection in your gum hardly seems a problem at all :-)

So it proved but he did stick in a number of jabs and I was a little uncomfortable with that but hey it needed to be done and the 4 filings were pretty major, two white ones and two amalgam. I was a tiny bit uncomfortable with trying to breath and told him I was having a little difficulty but that was about all. There was a bit of time at the end that was off putting only because it took much longer than I expected.

Anyway, I have a completely numb face as a result at the moment and an appointment to get the two fillings on my left hand side done in ju ... (at this point my PC crashed and then restarted and then did it again. If I can't get my new venture to do better than that I don't deserve to be in business. Apparently it was doing an upgrade in the background and decided that it didn't matter what I was doing, it was going to screw up my work) st under two weeks time. After that it is a case of a bit of root canal work on one tooth and a potential extraction on another. Ho hum.

My mouth is still numb after 2 hours - hopefully it will go and I can actually eat something and do a bit more than sipping coffee later.

Dentist in the morning

First trip to get some work done. I'm pretty much resigned to getting there and getting it over and done with. I need to have a chat with him tomorrow to see what the plan of work is and I need to make sure that I take my diary to set up some time for the next batch of treatment. Hopefully it won't be too soon but it took 2 weeks to get this first appointment so I may just have to take what I am given.

Not looking forward to the numb lips on the way home. I could however do with the walk over to the dentist and back by way of exercise although I did a fair amount of walking around London yesterday I haven't managed to get to do any exercise this week down to the sheer volume of work I've been doing.

Next week will be fun as I have to go up to London on Thursday for the annual Festival Forum. I am looking forward to going out for a few beers afterwards with the girls from the office. I've realised too that next week is just full on as we have a Lodge meeting on Saturday morning followed by a Ladies Night that evening (two meals in one day - eeek). I've been invited to a meeting on the following Monday too which I'd totally forgotten about - I need to check I can still make it. I've taken to working downstairs and so miss my other PC where a lot of my stuff is also kept.

I'm feeling well, quite up following yesterday's meeting. I hope that we will see some real progress early next week - we need to or things will stall. I also need to spend some time sorting out accounts this week ready to go and sort those out as I know run 3 lots of accounts and 2 of them need tidying up - one I can complete for this year and complete the balance sheet, the other needs to be picked up and for me to make some sense out of it. That's the weekend gone by the looks of it!

Come on come on

I am getting impatient to get our web site together and get our branding and all our hard work seen but, as I know by now, I must follow the process and eat my own dog food. For years I had advised businesses about making business change about how to build websites and on-line banks, about software development, bidding and running work, due diligence, process, operational and management techniques and guess what? All that stuff I've been peddling for year and years..... actually works :-) It did for my customers and does for us now. How on earth could I desert the process that I put in place.

But like anyone who is waiting for a long time for their baby to be born, the wait has been many years and it isn't over yet. Our baby is already 6 months overdue but none of us was in a position to start earlier. Now we are right into the work it is a little frustrating to see it just out of reach still but it is coming along - just not as fast as we wanted.

My business partner and I had a chat last night and both of us have "friends" that are being like millstones and Harry Potter death-eaters to us. The sort of person who burdens you with their problems and drains you of your energy and loads up your system with their stress and makes you feel bad. They, on the other hand walk away with their burden lightened leaving you a positive wreck. Such is the nature of the cancer survivor's lot that whilst they are pretty tough on the outside and have been through stuff you don't really want to know about, inside they are little frailer and weaker than they will admit to you. I'm wracked with guilt sometimes about not being a friend to people and yet I'd probably not be that much use to them.

Other than that - I've been amazingly busy this week and work has been all consuming and very interesting learning about advertising, tag lines, SEO, web placement and all that good stuff. All good fun.

Around Midnight

With due deference to Thelonious Monk - it is actually the time now and I have arrived home. Today started at 7 am and we had a full on day until 4 when we went off and caught a train to London and started a meeting with a Lawyer at 6 in a noisy Soho pub. We eventually went on to a nice French Restaurant where we could at last hear ourselves talk.

Had a good day we decided - it was full on and we were "challenged" on a number of our assertions about the business but, generally came through them with good answers - we had done our homework which I knew we would....

Two days in one almost and a really useful 16 or so hours today! I shall give myself an extra 30 minutes in bed tomorrow - I've deserved it...

In my dreams

I was having an interesting talk this evening and I realised that no one understands a word about what I say about my new business - it is so "off the wall" that explaining it must be like explaining radio or TV or Morse code or Steam Engines for the first time. Such is the problem that our little band of pioneers have taken on. How did Baird decide to call it "Television" or Marconi "Radio" or Edison "Phonograph" - gee I hope that was right :-)

See what I mean - how would you come up with stuff that was just - way out there - far left field - so different you;d think we were on hallucinogenic drugs! (I can't believe how difficult it was to spell that - you'd have to be on drugs to do that!).

We are working on something that is so different to anything out there but isn't impossible to deliver now - it is all existing technology. It just comes at it from such a different way that to explain it to people is almost impossible. We have a meeting in the morning to rectify that - but it is just so revolutionary and so simple you wonder why no one thought of it before? They may have done but there is no common language (yet) to release it to the public.

Things are really exciting as I described my plans to my mother today as being as close to engendering positive social change as I could manage. I suggested that the journey in itself was going to be the thing that changed my life and made survival important - in fact that this current journey I am on would be something that would define the remainder of my life (however long that may prove to be). By that I mean that the process of this current journey will not only deliver something that is truly beneficial to society but that getting to that point will be such a journey that we will find out so much more about ourselves and will test us to the extreme. I feel that there are a series of temptations in the way not least of which is bailing out early, before our work is seen through as it is the alternative and easy way out. It means we take the cash but don't see the vision through to its conclusion. So many interesting things in a highly commercial venture which actually has life changing possibilities and altruistic guiding principles at its heart.

My business partner and I had similar traumas at around the same time and our relationship - whilst going back many years prior to this - has blossomed and we used to meet to discuss how we were feeling and coping with our issues and as time went on this idea (not mine but his) grew and grew to the point now where it has taken over a huge part op our lives. It is almost like something you have to go through to get on further - if that makes sense? We have to go down this route.

Tomorrow we see if we can settle the real selling words and actually determine some new language about what we stand for and what we will do. So far, it is our biggest sticking point. Later on we will meet the person who may become our Lawyer (wish I was clever enough to be one) who will be chatting about protecting our arses in the future.

Suddenly, I feel divorced from my non-business friends who see but don't get the risks and who really don't get business at all. We may well fail - so many young fledgling businesses do but, we will have given it our all and will have filled in the gaps and repaired the holes in our self-esteem that cancer will have given us. I think it may be interesting if anyone works for us though - how on earth are they going to "get us" if they haven't had the trauma and experiences we have had in getting where we wanted to go?

Having Struggled With My Own Problems

Having to struggle with other people's is draining my energy again. I'd forgotten how much one of my 'friends' is having his own struggle but is incapable of letting his friends help him, pride is not a good thing when you are sinking like a stone. The Kubler Ross Cycle can look like this graph and at the moment my man is somewhere between denial and anger and has a fair old way to go to sort through the problems he is encountering.


The trouble is that the anger is targeted at me and his friends and the more you try and help the greater the depth of denial and antagonism. If you don't help or let him get on with it then you're wrong again then too - you can't win when they are like that. I did give him a bit of a bark back but also now let him think that he is right if that satisfies his "I'm the victim" stance. I'm not sure how long I will last out before I explain the facts of life - I've already told him straight a couple of times but there's no telling some folk.....

Enough - I'm just depressing myself now .... :-)

Paranoia

Not my paranoia - my friend - who is stretching that description. You may, or may not recall, that I bumped into said friend when I was going for a couple of appointments a few weeks back, one to introduce my business partner to some very old friends of mine and secondly to meet a potential team member whom, now met, I would parade before anyone who would listen to demonstrate what a lack of social skills and a head up arse attitude will make you end up like.

So, you may recall out of nowhere, this guy appears and takes up my space on the train (this is my friend) and we proceed on a journey up to London, I don't tell him I am meeting the other two as - he has little or no money and we are going to spend a bit for lunch and after all, what does he need to know for? It ends up that he finds out and tags along which completely stymies my meeting to do the introductions and gets his problems off his chest. I am talking to these guys about getting £1M of funding - not how I've squandered all my chances and am pissing off my firends by not reading the in between lines stuff.

Tonight he tells me that I didn't want him to be there. So I said that's right, it was a business meeting even if he does know them - if I'd have invited him he could have come along. The guy can't read the signs at all. He obviously got that I was pissed off with him though as he mentioned it tonight. As I said to him, it was an introductory meeting, to meet my old work colleagues to do some networking, to get some connections and was not a beer fest to which he wasn't invited - it was serendipity that brought him to the same train as me not because I didn't invite him. Did he understand it? No of course not, it just grieves me that this guy is slowly going down the whirlpool and as he's getting faster and faster going under he is just alienating any attempt at logical discussion and giving me a load of grief about it. I'm a little too soft to tell him where I think he should shove his opinions. But you probably guess that it is pretty dark there.

I am seeing him tomorrow perhaps I will explain it one more time that it is business and not personal. If I had wanted him to be there and I didn't I would have asked him. I would certainly not have invited myself along and then dug him out for getting the hump. As it is I need to reconvene the meeting to discuss the points that I couldn't with him being around. Talking £Ms in front of a guy with bad prospects to actually get a job at the moment isn't going to help his self-esteem in that situation.

Things that make me feel a little queasy

I had the most horrible set of flash backs over night. Back to them sticking things into me and my own personal horrors. I know that perhaps you shouldn't say that things are horrible but they are and probably more so now than they were then. A bit more about this later.

A friend tweeted this earlier today and I went and read it and got that sick feeling in the pit of my stomach and the slight ache of stress in my chest kicks in. It isn't that it is inaccurate - far from it, neither is it anything other than what it is. It doesn't mention one thing in my humble opinion and that is what it does to your head. I think that it must do something if you've got the news that it is - or it may be - terminal - you need to deal with that. They don't say all the ways it messes with your mind. Your perception of self and your self-esteem, your morals, your faith, your friends and family, your relationship with the world and your interaction with your environment. Reality becomes somehow different, things move from extreme to extreme - logic somehow gets thrust to one side and your whole mind and body goes out of equilibrium throwing you a huge curve ball and knocking you off balance. You can choose many ways to behave and many ways to combat it but that whole section seemed to me to be missing as it is in the Consultant's room too. We treat the physical manifestation of the disease and we rarely, if ever, in my opinion and experience, treat the massive impact it has on your psychological well being.

Remembering what I used to be like and I'm not entirely changed so I'm told, I am now far more of a comedian than I was before - I was funny before now I am more so, more sarcastic, quick witted and many other things but I can go too far and don't know when to stop (until I know when to stop which may have been too late). I am confident but also much less pushy and (know it all is probably too harsh) assertive, unless I really want to be. Nowadays I really don't do fools and jobs-worths at all - they really take a bashing. However, I fall apart really Quickly, I get terrible guilt trips and find silly things to reproach myself for even if I could in no way have influenced them or done anything about them, I find many things make me emotional. Anything to do with my children can reduce me to a wreck - just silly stuff this is, remembering them bringing me something back from school can turn me into some sort of weepy film scenario. I'm not sure what that is exactly but it's all connected and this isn't just family this is anything that is sweet or sad - I think it has to do with innocence and starting out that way and then all the stuff that come afterwards. It is one of the many injustices that exist in this world that cancer makes you aware of.

I looked at myself in the mirror earlier and said something about "sorting yourself out" it isn't that I am probably any different to anyone else - I mean what/who have I got to compare my feelings with anyway? Perhaps that's it - I have a few friends who I have discussed it with but I certainly don't tend to talk about to anybody much apart from this blog which - bless its heart - gets the full ire and angst to deal with, it gets the lot doesn't it :-)

So back to the flash backs and these are intermingled with the kids - they are mainly happy memories but these make me sad (perhaps something lost - me working hard when they were little and not being there enough?). I feel bad about just about anything to do with my pre-cancer life. I'm sure they don't feel like that but I just happen to. Then the hospital flash backs - which were just not nice at all. I don't know why but maybe again it is the brain processing stuff and just reminding me that it isn't all over yet and as much as I think I'm walking away from this, it is part of my life and always will be for better or worse, it happened and it isn't finished yet.

At least the race was on

After he disappointment of yesterday, at least the race was on today and I watched that at 7am and followed that up with the MotoGP race straight afterwards.

I decided to take it really easy and have had a couple of hour long snoozes in my favourite chair today mainly to catch up with the lack of sleep from last night - my goodness did I have some strange dreams and two early mornings and the whole week of work.

Last week was a strange old week and an emotional roller coaster - I found myself really troubled and emotionally drained come Tuesday evening and yet once I had got that off my chest the remainder of the week seemed to go better. I'm absolutely flying at work at the moment. After much research and planning at last things are coming together but in a far more uncontrolled way than I wished for. Both of us (my co-founder and I) remind ourselves that at the moment we are treading a lonely road and we produce just about everything for the business. For the 2nd week I have worked in the dining room rather than in my office as I find I can better discipline my working day. For another week I have managed just one serious bit of exercise despite the fact I have done walking and some heavy lifting down the week.

This week gets interesting indeed as we ramp up the work and meet someone who will potentially be our lawyer or will be our legal advisor. We should also, I hope, be in a position to move the description forward and I am aiming for the web site to be completed later this month. It is hard work to make it all happen but no one said it would be easy.

I still feel the best I have felt for years and years. I think because I am getting stuff sorted out. The trip to the dentist this Friday will also help me to commence getting my teeth back under control and I am also hoping to get even more progress on sorting myself out a bit. Last week there were a few occasions where I was out of control, by that I mean that I was unable to control my emotions, my time keeping and my logic and level headedness just disappeared. Very unlike me to get quite so excitable really. I hope that this week I can keep a lid on it.

The dreams are just amazing things - the one last night (featuring Michael Caine of all people) was all about secrecy and keeping what we are doing a bit of an enigma for a little longer. These things are playing on my mind and are manifesting themselves in the most bizarre ways. Last week was definitely not one I want to repeat and I certainly don't want my head to explode into a huge guilt trip again, I don't need to beat myself up, cancer already did that. I just need to take it a little easy and to use my excess energy in positive ways.

I suppose finding yet another person who I know - on top of the lad with Appendix Cancer who now has Lung Cancer just puts the mockers on things, a number of others aren't doing well either. I can't work out why I feel so bad about it, I have no idea if they felt bad about what I had. I don't suppose they did but I see no reason not to feel empathy for them and their relatives.

Let's see - the funny side is?

That I got up early to watch the F1 qualifying from Japan. Like really early and got downstairs, did some pottering about, got a coffee, had my keep alive pills and sat down. Turned on the TV and there was.........

The News? OK exciting news they were just about to get to the Miners in Chile but where was the qualifying? There was nothing there and not wanting to know who was on pole etc. I trawelled around the buttons making sure I hadn't missed it, no it was scheduled to be on but wasn't. So I guess they must have published it later than it actually was and knowing it was going to be on later I contented myself with reading the paper from 5 in the morning rather than watching any more news or sports program until it came on at 1 pm.

I worked away keeping away from radio, internet and TV and at 1 pm the programme opened with a woman standing in torrential tropical rain saying that qualifying had been cancelled and it would take place before the race! Like 2 am our time Sunday and the race would be at 7am. They then re-scheduled all the programmes for the afternoon and that was that. Oh great! Just my luck :-)

As for everything else - its all looking good and work is great - I made myself stop this afternoon and I'm off to bed shortly so I can get up at the crack of sparrows to watch the race. I know I could record it but that really isn't the spirit and anyway, straight afterwards the MotoGP will be on as well so I might as well have a morning full of sport!

Super Nova

My energy levels are just massive at the moment - I could happily carry on working for days and not need sleep - I don't get tired and I'm not getting bored, everything is new and wow and (oh go on I'll say it even though I shouldn't and only for you - awesome). I just don't know where all this has come from. The trouble is it is destructive and constructive all at the same time. I doing some of my best work and some of my worst. I am being self destructive and yet it is all leading some place, I can feel it. It is climactic but not yet - it is just growing and growing and I'm just a bag of energy and I'm holding myself back.

It's like a creative explosion is happening which has fractured my normal logical way of doing things and led me to a point of huge surges in adrenalin rushed effort that may or equally may not end up in me doing something useful.

I've just had a lovely night out with CD and his friend. Last year we were a little tightly packed into the Guildhall. This time we were nicely spaced out. It was a thoroughly enjoyable evening yet again.

Here is something that I hadn't thought about. The chap next door to me had been at the Guildhall for a big charity function the night before. He said that he gets to dine here and at Butchers' Hall and a few others down the year. the Guildhall at least 5 times a year and the Mansion House once or twice a year. He then said, and this made me think.... A radio and TV host (Richard Madeley) had been on the radio saying that he had dined once at the Guildhall and how "special" it was. He dined there many time and I tend to go once a year. I hadn't realised quite how privileged I am to be able to do this. It's one of the most historical places in London. The Guilds and the whole history of London, it's Lord Mayor etc. is all wrapped up in this building and there we were meeting and dining in high style in the Crypt of the Guildhall.

Sometimes, I don't realise how lucky and how fortunate I am - I doubt any of my family have ever dined there and as I've been there a number of times, I was annoyed that I perhaps had "taken it for granted". London is an amazing place in terms of its tradition and history. I keep thinking about joining a Guild and I keep holding myself back. I've got the forms for becoming a Freeman of the City of London on my desk too. I just haven't completely convinced myself it is the right thing to do - much as I'd like to - I'm not convinced the Memsahib would be entirely convinced.

Just Chill

I am absolutely buzzing and flying at the moment - someone's emptied a gallon of go-go juice into me and I feel like I've been on too many Double Espressos. I haven't felt this well in years but it's as if the flood gates have been opened and I'm just going off in all directions, doing stuff, working long hours, thinking too much, doing too much and then for some reason taking to beating myself up for not helping people and being self-centred. It is a real big bang sort of thing going on. I don't quite get it. Where has all this energy come from - you should have seen me striding down to the Jazz last night - big bold fast steps, I felt fit and healthy - I was glad to be alive and then, I rounded on myself, all the "regrets" of the past - all the things I perhaps should have done and how guilty I feel about this concentrating on myself.

The reality is somewhat different than this space I'm currently inhabiting but this is disturbing me now. I feel the best I've felt for years, I have some physical strength back and I am building a business and being creative and that is building self esteem and confidence. The issue really is to stop my head and my emotions ripping me apart here. The survivor syndrome, the regrets for being very inward facing and full of my own self importance, concentrating on getting myself better etc. I doubt many people would blame me for being like that, for reacting in the way I did. But, I'm not many people, I'm me and I've not forgiven myself for it yet.

I am going to have to try and keep this in check, it is destructive to me and its self inflicted. You learn a lot about yourself whether going through a serious illness or like I am at the moment building a business. It's about the journey - it should be done without regrets. Give it your best shot. I wonder if I have set myself some really high ideals and somehow - now - I feel I am not meeting them? Whatever it is I have to stop giving myself such a hard time, my head is trying to undermine everything, make me guilty and is telling me that I've let people down. How stupid is that? I have enough problems combating what life threw at me I shouldn't have to deal with being given a hard time by myself when it probably isn't justified or particularly well argued.

Superman - Ermm I don't think so...

I am not superman, I do not have hidden powers, I am not able to right all the world's wrongs, I cannot stop wars, I cannot stop people dying, I cannot reverse diagnosis, I cannot do all the things my guilt and my mind is telling me to do.

There's some sort of diametric force compelling me to be some sort of evangelist and to spread the great news of my survival to cure all ills, to repair everything to find jobs for the unemployed to go spread the word and, as I found out last night, I'm just beating myself up for all the right / wrong* reasons (* delete as applicable). I want to do the right things for everyone, I want to sort out everything I need to repay society, the people that cured me and so on......

There is something manic about this. Suddenly I have so much energy. I haven't had this much get up and go, pizazz, karma, electricity etc. for years and years. Suddenly, I've turned the corner and I'm free of hospital treatments, pre-assessments, blood tests and all that tedious sh1t that upsets you and gets you down and reminds you constantly that you are ill.

Now I want to get out there and help everyone and tonight as I walked to the Jazz night I realised that I can't do it. I'm "just me" that's all there is. There is only so much of me to go around and I have responsibilities of my own that I've ignored (or not been able to) for these past 4 or more years. Father, Husband, Bread Winner, Home Maker, Mediator, Referee and Umpire, Head of United Nations, Trusted Advisor to Presidents and Prime Ministers, Chore Owner, Epicentre of Humour, Comedian, Actor, Playwright, Entrepreneur, Political Critic, Poet, Bon Viveur, all round good egg!

There's a self-destructive element at play - suddenly I need to do reparations for my previous life - for putting everyone through the misery that the last 4 years has been (to them - maybe not to me). How I've worked at making it light, humour filled, approachable for my friends (not everyone could cope with that though) and all that work to wrapper cancer in an acceptable package, that everyone else was comfortable with and to weave the myth and legend around yourself for that time and now, it appears to me to need to be demolished and the facade taken down as all of that "nasty" stuff has gone, all the "is he going to die?" stuff is behind us and now, now we are left with the fallout.

Now I feel (rightly or wrongly) that I have to apologise for my behaviour not only during the episode but for all the possible wrongs I did to people before then. Smoking in pubs with your friends around who didn't - it's a crime right? All these things that may have contributed to my illness are now somehow manifesting themselves in me as things I should be sorry for, should apologies for, need to make amends for and so on.

I'm going to say that if you haven't had a life threatening disease or some sort of heavy depression or trauma you may not feel like this. I just feel responsible for everything at the moment and I don't want anyone to have had the mental anguish and wretchedness that I had, I see many friends having hard times and I feel completely inadequate to help them - then if I try I just Horlicks it anyway! I suddenly understand what a horrible time I've been through, I've now (finally heard) what an impact it had on my immediate family and also that my frankness didn't help them (helped me though) get through it. Everyone thought I was going to die. Join the club so did I. No one was more surprised than me that I didn't.

So now, when I should be all up and happy and yay-hay look at me, I've survived - I'm actually feeling massive guilt that I can't use that experience to help anyone.

I haven't balanced the fact that they really couldn't help me much either at the time I needed it - for some reason best known to itself, my brain refuses to take that into account. That we are all frail creatures and that we are generally quite inadequately equipped to deal with serious illness, death, pain and everything else you could associate with Cancer and Serous Illness etc.

I am having a real problem realising that I'm mortal, that I can't actually do much in terms of "good", that I haven't got the time or the money behind me to be Mother Teresa and that this is what life is like all the time. I feel desperate that I can't find jobs for my mates, point them in the right direction, ease their pain, repair their problems and yet, they don't come over here and fix mine. It's a bizarre thing, it has to do with survival, it has to do with paying back and feeling philanthropic but the wish to do these things hasn't fought out the logic and down to earth pragmatism of the situation. "You can't do anything more than you already do and that you would "normally" do!" I just need to get it through my thick head that I have all these great ideas, all this fantastic "do good" thoughts but that is all they could ever be, there isn't enough time in the day, money, social network and other stuff to make repairs of this magnitude on your own - it just isn't going to happen.

I feel bad because I can't change the world, I can't right the wrongs and I'm pretty much powerless to do anything that what I am doing now.

I need to eat a huge slice of "realism pie" at the moment my head is in the clouds for the right reasons but my head and my heart need to go and have a chat to set things back onto an even keel.

I once said that I never felt I could change the world and got soundly rounded on by a friend for that - she reckoned we could all change the world and that we all did, some of us changed it a little and some of us changed it a lot but that we should never lose sight of the dream of making the world a better place. Isn't she lovely? :-) When I stop having these wild swings in temperament perhaps I will be able to change the world a little - I hope so. I'm just trying to deal with these massive swings again. I had them some time ago when under treatment, maybe this is things switching back.

I don't feel as if I have any mental problems as such but I can see how you could have given the huge swings in emotions I get on a daily basis at the moment. It's learning to cope and be normal again (I'm sure of it) but, of course, how CAN you be normal after all this has gone off?

Leave you with it for now....

Jazz Night

See if the young lad is there and if he is, how he is with his Appendix Cancer. A few beers, live music and perhaps a little time to chill out. I was really wound up last night and beat myself up a lot. You may wonder about that but it is a strange thing to hear from someone how I had changed in their eyes. It was nice to hear that I listen more and that I take into account other people's points of view. Being a Project Manager makes you self assured but, by the sounds of it, a little too self assured and confident. Well that's a good change.

I beat myself up for a lot of reasons these days. I beat myself up because sometimes I don't think enough about other people. I've heard myself answering a how are you and then impolitely forget to ask them how they are. I am doing too many things at high speed, whether to make up for the past 4 years, whether through the buzz of what I'm doing or perhaps some other thing. I'm getting excitable and I need to just tone that back a bit.

So tonight an enjoyable and relaxing evening I hope. At least I'll get some exercise which I didn't yesterday or today as I was still firing off documents as 6 pm.

That wasn't nice

What a horrible dream - must have been triggered by something in the news yesterday I'm guessing. Was stuck in London and heard a large noise and looked up to see an large passenger aircraft with wings broken off about half way down spiralling into the ground somewhere near St. Paul's Cathedral. Was then, somehow up in North London at a building site (don't ask me Iijust dream this stuff) chatting to a guy about rebuilding a small hospital when a nurse runs up and says they need to use the facilities there as there has been a major incident. Then they realise that there is nothing there - it's just a building site. As we say that a bright coloured aircraft rushes past and arcs into a huge building about a mile away. Shades of 9/11 but amazing colours and explosions etc. A little while later I go and grab some chap at a coffee shop and apologise for that but need to know if my daughter is all right as she works for him? He assures me all is OK and I make my way back through the streets and then wake up.

Strange stuff for a Wednesday morning, very strange indeed.

Out with my friends and I am reminded ...

That about 4 years ago my friend KP suggested that I write this blog. I only hope that he is reading this now as I miss him a lot and understand the he is going through hard times himself. At the moment, I also realise that I can't help, I'm not wanted and that I have to keep my distance. Or maybe I'm wrong - here's the open note to say - can I help you? You've been a rock to me, even if you don't know or don't admit it.

I understand these things because that's what I was like when you spoke to me 4 years ago - it wasn't quite "I am your Father Luke" but it was near enough. Oh yes and I didn't know the difference between Prostate and Prostrate Cancer - DOH :-)

That's the way it is, that's how you feel at the time but - you know - we're you're mates, we're your friends and if you can't confide and let us just listen, then maybe you've not remembered what it was like when I was really ill, when I was down to my lowest ebb, when I thought I was going to die and when I'd reached the bottom and was preparing to dig down further and you said to me that - "it wasn't as bad as that". "Why not write a blog and tell everyone what it is really like". When you base-lined what was happening to me, it made it seem real and made it all make sense and a reason for me to start this blog. you did that fella - it was YOUR suggestion.

Fella, I did it because you told me it would help me and that it would help other people, because it was a way out of my cul-de-sac, because we are great friends and go back to when we were nutty teenagers together - for all close scrapes we got into, for all of those larks, those explosions, those precious moments, those laughs and the drunken evenings and the great gigs and the girls and all that. What times we had - how cool those times were how we still laugh at them - "Who me sir?!"

Don't leave me know (Supertramp). For everything you did for me for the past 4 years - for making me write this blog and for being there when I needed it the most - don't leave me know, don't sit alone and wonder, don't sit there and brood, don't blame yourself, don't wonder "what if", don't think I (or we) don't care. You've been there for me for these past 4 years, you really have, you've been kind and cruel (in only a way that a true friend can be) we've shared the grim reaper jokes, the Monty Python Tee-Shirt (goodness you were in on that as much as I was) and you've got me through what can only be described as the lowest point in my existence. I'm coming out of that now - 4 years of darkness, depression and all that stuff - it was you my friend that helped me do that. Yes you did!

Please, please, let me be there for you now, whatever it is, whatever ails you, I would never have been brave enough to bear my soul on this blog as I have without you - this record both good, bad, ugly, bigoted, right wing, left wing, commie, rubbish, true, half true, helpful and unhelpful is all because of that wonderful time when you spoke as a real true friend to me and suggested a blog could be the cathartic way forward for someone, like me, to share the emotional and physical issues I was about to have.

Think about what you did for me? At a time when life was just a matter of weeks or months survival (as I thought then - who was to know), when it was black and beyond the colour of pitch, when I was at my absolute lowest you gave me something to work towards and lean on and base my future on. Giving, at the very least, hope or consolation - or perhaps a realistic view of what cancer was like to others as a legacy (for that is initially what I thought it was) about the way to approach living with the disease.

Tonight, at the pub, I sat there and wondered where you were? You were really down the month before last (of course you would be) and unfortunately I cannot make next Tuesday (unless you can?? - I will cancel to meet you). Please note.

I want you to know how much you mean to me. I want you to realise how important you are to my survival. I want you to understand that if by your actions and my following them we made a difference to one person in this world suffering from cancer - what a good job we have done and I want you to realise that this blog - that I started because you suggested it to me, has been a real life line in my 4 years and 3 months (but whose counting) battle against this disease.

Understand you've helped me work my problems out (sure I've done them in public) and shared those with many other people who also now realise that to get angry, be tired, get frustrated, find stuff funny or find stuff sad is just part of the journey we are all on with this disease they call Cancer.

Whatever it is, let's talk, let's meet, let's sort it out. After all that you've done for me, it seems that this is the very, very least I can do for you.

I can't always sort out the problem but I can at least listen. I owe you so much but you want so little from me. You are a true friend indeed KP.

Oh No - Why?

Why indeed. I mean, I can accept getting Cancer myself and I can blame myself - my lifestyle and all that sort of thing, I've hung myself out to dry and argued the case here on the blog for getting on 4 years soon. What I cannot understand is those who've already been dealt a bad set of cards getting it even worse. It seems to me to be a very cruel world sometimes.

Here's the deal, a young man of my acquaintance - I've known him since he was born and he has Cerebral Palsy - he was a lovely child and an equally lovely young man and I see him three or four times a year sometimes more, he was involved with the local church and so we saw him a lot, I knew his sister well and I also remember his father dying when he was only a young lad. A tragedy and what is stranger still is that I then found out through my family history research that his family are related to my family about 3 generations back so - we're almost family so to speak. I know his Uncle and he is a great friend and we all meet up, when we can, at the monthly Jazz night.

I saw his Uncle tonight and he tells me that he may be a bit tired and not quite up to it if I do meet him as this young lad - and he is only about mid or early thirties has Appendix Cancer. It's pretty rare apparently and he has to go to a remote Hospital to get it sorted. I'm just stunned. I mean what more does life need to throw at this poor lad. He has struggled on, worked hard and held a job down for years (he is still going in but is tired at the end of the day). What on earth did he do to deserve that? That is the faith testing question I have. The problem is I don't "get it" I don't see why there is this lottery of people who just get one disability (perhaps that is too strong a word - how about a challenge for the PC people) and then, when he struggles through all the prejudices and the levels of hardship to get on with his life and is a happy, lovely and thoroughly nice guy (you'd enjoy his company as he has old fashioned manners and charm) - why then does he get Cancer? He doesn't smoke, he has a lemonade shandy once a month at the Jazz night - what did he ever do to upset someone and afflict him all over again??

I felt that my faith (such a little faith as it is these days) was tested with me but I think that I accepted getting cancer I wasn't sure after having got it, why surviving was difficult to understand, in a way I still don't quite "get it" but I find giving this "innocent" young guy cancer as being cruel in the extreme. I still don't get why "he deserves it?"

Maybe I'm just hung up over it but it does seem to me to be unjust in his case, if it can ever be "just" in anyone's case. I wouldn't wish this on anyone but I don't know, it just doesn't seem fair to me that young people are struck down with such diseases. I suppose it's a bit like the expectations that these days you can wage war and not have any casualties.

It is a massively rare cancer and the figures are misleading and the quick and dirty internet searches I have just conducted are as helpful to me now as my first searches were when I showed the symptoms of Bladder Cancer. At least I can be some sort of help as he knows I've survived and he knows a fair bit about what I went through as we have discussed it.

I might be a bit of a wreck on Thursday morning after going out with him on Wednesday night so prepare for blog hell after I've spent time with him. I'm gutted and annoyed and displaying all the signs of a Kubler Ross episode - at the moment - I'm dong denial - I doubt I'll be in that zone come Thursday.

Life can be so unfair sometimes - you just wonder why the hell that should be?


PS: None of us deserve it BTW....

Exercise again

I couldn't believe it has been a whole week since I exercised but then I worked myself to a frazzle last week and didn't have time. the tale of the scale was I am down by about another pound so around 222 but nearer 221 by the thickness of a needle. So that's good - slowly going down but it isn't going to happen without exercise. Again this week is interupted by work and I can't moan I suppose but I will anyway. It would be nice to concentrate just on my health but I'm eating the right stuff, not overdoing it and if only I can fit in a bit more exercise it would be perfect.

A big meeting is mucked up tomorrow as one of the most important guys (the bloke writing our 30 and 60 second drills) wont be around and cancelled late this afternoon. Nuts! I hope that he gets his act together fast as he needs to come through on this element so we can move on.

So that's annoyed me as I guessed that was going to happen - you get a hunch when someone lines up the messages during three or four emails before. I'm feeling great still and finally begining to feel so much better about myself and just generally feeling well - well :-)

That hit the nail on the head

The Kindle is rather good - I have it set to deliver some newspapers and one of the joys of a Sunday used to be getting a couple of Sunday Papers and then spending the rest of the week reading them. Having them delivered electronically is a bit bizarre I know but there was an article in the Observer HERE that caught my eye. Bill Oddie, who may not be known outside of the UK was a mainstay of my younger life when he starred in the Goodies a quite surreal (at times) and often slapstick weekly series that has (sadly) never been repeated - these guys were pretty much superstars in their day. They all went on to other things and are still writing and in radio shows etc. Bill Oddie became a TV naturalist and whilst things like Springwatch and Autumnwatch may have their place in light entertainment - I actually wasn't convinced that Oddie and his co-presenter actually got on well together especially as if you doubled Kate's brain cell count it would have made 10. Bill disappeared a while ago suffering from Depression.

What on earth has this got to do with me and this blog you may rightly ask??

Well it was because this leapt off the page at me "It would be silly to pretend my mind is at rest. Last year was the worst of my life. It destroyed my confidence and identity."

That really stuck with me. I was talking to my Mum earlier today and saying that for the first time in years I actually feel really well, I'm getting things back into some sort of order, I'm getting myself fixed up and doing all those things that for 4 years (at least) I haven't done. Things just got put on hold, stuff I should have done hasn't been. When I look back and beyond the 4 years (you may recall that in hindsight I felt I had been ailing for a while before) I see that I just switched down all activities other than what was immediately important. A bit like the words with the dentist earlier in the week - it hasn't been on my list of things to get done until now. Suddenly life is more back on track and this week has been full on and productive and, dare I say it, optimistic.

A new optimism and a new outlook and I am absolutely certain that whilst I always portrayed things in a positive light, was able to see the funny side and be quite brutally honest (most of the time) that in reality, I was far more depressed and certainly, like Bill Oddie, had lost my identity and a fair amount of my confidence too. I know these are different illnesses but this is why that leapt of the page at me. Denial (not a river in Egypt btw) is perhaps too much of a word for it but certainly how about deflection and illusion maybe?

What I realised as I read this was that it suddenly answered some of those questions and here I am being so much more upbeat than I have been for ages. Actually tackling things that I left 4 years ago - head on - like these accounts Ii haven't completed (and it is only a few hours job). The will wasn't there, the belief wasn't there and neither was the energy or the confidence to tackle them. Along with many other things I'd rather not do something than do it. I'd rather talk about doing it but then not do it. My University thing was part of that - I needed it to prove I could do it and it was easier to not complete it (even given how ill I was) than to try and catch up. Now I could have knuckled down and have done that - then - I didn't have the drive, certainly not the energy and, as strange a sit may seem, my brain would not have coped with it. Now I feel I can work with all my brain, most of the physical energy I have and things like concentration and stamina are really good. I don't have the tired spells any more and feel what I guess is about 80% fit but certainly much much much better than I have for 6 or 7 years I think.

I feel for Bill Oddie and the results of his illness just resounded with the sort of stuff that now I look back at, realise I have been through.

I'm actually pleased, in an strange way, that I have been through these things, these "tests" if you will, that I've had a bit of a stare at the dark side and that I've had to work my way out of the abyss that was requesting the pleasure of my company. Why? I think that the experience and the lessons I've learnt can only help to serve me (and others perhaps) better for the future. Age and experience - that's what I've got now and if I can call on the experiences properly it can only make me stronger.

That's enough for a Sunday - back to the papers - or the eReader should I say.

Accounts and Stuff

What a week that was - chaos and I don't normally like chaos but it was caused through needing to get involved in logos and design work, web design, copy-writing and other such stuff. My Kindle feels like it is weeks old and yet I've only had it 4 days. What a great little asset that is. At the moment I am using one of the experimental features - an MP3 player which is running in the background whilst I work. I've worked downstairs all this week to give myself a break from the Office and that appears to have worked as I have also been distraction free but the downside? I've worked every night into the early hours apart from last night where I consciously took the laptop in to the lounge, and watched a couple of movies. I'm listening to Yann Tierson and music from Goodnight Lenin and Amelie as well as Ennio Moricone and the film score to the Legend of 1900 - a great film.

Yesterday I went to see the Dentist. My jaw is a little aching today through one of my teeth being in not particularly good shape - but I knew that. The plan is pretty extensive and in two weeks time I'll go and get a couple of fillings and I need to make up my mind about some root canal work on one tooth and an extraction on another. I have a couple of others to be sorted out as well but at least I will finally get around to sorting this lot out. "How long since you were last here?" "4 years and 3 months". "That's pretty precise", "Well as you can see that is about a month before I got Bladder Cancer". "I wasn't sure if having great teeth would be much use if I was pushing up daisies!" "I can see that"

He was very nice and went through all the things that were needed and described what was going to happen pretty well and so I got the plan and now all I need to do is go and sort out that sort of money - pretty expensive stuff.

I'm finishing off a series of accounts, again mainly held up due to a series of unfortunate incidents which I can trace back to being ill. Like having to take over as Treasurer from someone who was leaving and then wondering after 2 or so years where the Statements from the bank were and having to sort out the "fact" that despite accepting my signature and me going in and out of the bank paying stuff in etc - they didn't have me down as the owner of the account!!! Great - so now I have that sorted and have enough statements (and an on-line account) I can go back and check and reconcile my records with the bank statements which allows me to present the accounts to the Auditors. What a nightmare - anyway - glad to see my record keeping was pretty good and it all appears to balance.

So finishing that off at the moment and then see what else I need to sort out as next week is busy as you like. My Dad's 80th Birthday on Thursday too.

Wow where did the week go to?

I have been setting a blistering pace this week but getting to bed in the wee hours of the morning will take their toll if I keep that up. The trouble is once I get "into" something I have to keep at it. Today I did 10 hours straight on our business architecture and set-up. Additionally I had a number of conversations about our business cards which look great, our Letterhead which looks a lot whiter than I thought it would :-) and other design stuff.

Tomorrow I have the dubious pleasure of visiting the Dentist. My least favourite job of all time and yet, you know, I reckon that it is nothing much after what I've been through these past 4 1/4 years. I mean its not as if he is about to ram something up my nether regions - well I hope not. I've specified a check up as after 4 1/4 years we need to catch up on my medication and my situation and then he needs to see the recent damage. It isn't going to be a one off visit and will need some planning I guess. Anyway - will see what he recommends and then have to go and get some cash moved to pay for it all I guess :-)

I also realised that I wrote the Web Site specification last night too. Blimey I've been busy. We have now got to that point where almost everything is coming together. The research is mainly done, deliverables from 3rd parties are due this next week or so and the planning and background work has been worth it as we can get a proper move on towards finalising business plans and financial forecasts. All exciting stuff but tempered with caution with some of the rumblings on the economy... Let's hope that it isn't as bad as some say it is.

Well I had better finish off this, convert some more books for my Kindle - which surprises every day - I had a newspaper delivered on it this morning. As I turned it on, so the Newspaper arrived ready for me to read over my morning coffee. How cool is that?

Better steer clear of Garlic and Onions - I don't want to give the Dentist a hard time - hopefully he won't give me one then :-)

Kindle Day

My Kindle arrived around 9 am which was great as I could get it booted up and charged, connected to my WiFi and downloading my first batch of books. I've been busy for days converting my existing books so they can go on and that was pretty painless.

The Kindle itself is great, brilliant technology and it sure helps not being backlit and makes it easy on my eyes. I'm just having it read to me whilst I do this - neat.

The business will take a big step forward tomorrow as we should settle the Logo and fonts to be used. Next week we hope that we will actually get to the delivery of the 60 second drill from our sales and marketing guy. He said it was hard - blimey - I could have told him that - I've been at it for 18 months or more :-) and 3 or 4 months now full time.

well this time I need to get to bed - leaving the converter running on a 50Mb conversion job. Some of my books are that large and a couple of thousand pages - it takes a fair amount of processing power to convert them.

Feeling a little jaded after hitting the exercise bike today and recording what for me are very low blood pressure readings. I did feel somewhat light headed as I finished and at 105 over 70 I was not surprised. I've started to lose weight again, just a pound down this week but my trousers are falling off my waist and I've noticed that some of the bulk around waist and neck have gone. I'm hoping to get back to a more regular regime but working the hours I do I am sure I am burning up calories just doing that.

To Tweet or to Twitter or whatever

Well I signed up for a Twitter Account today - mainly for the new business but suddenly got engrossed in the buzz that is Twitter. The business logos were flying around everywhere today and it got really amazing as we got more excited and animated about our logo, our mission statement and all that. Added to that - I managed to finish off 5 years accounts all in one day, get everything filed and sorted and lord knows, I can get that lot verified and sorted out. Here's the rub - I should have done them in June 2006 to start with which was just before I got diagnosed with "Der Big C". That can now be sorted - I knew I'd kept the record properly and once I sorted the paperwork out, verified it was correct and filled in the right columns the whole thing just clicked into place (balance sheets do just what the name suggests). I then ran that on and 5 years accounts were sorted.

I was frightened to hear how much unemployment is out there at the moment. A number of my friends are close to closing their businesses as a direct result of the spending freeze by the new Government. This moratorium is killing all the little businesses that actually prop up the bigger companies and it is really hitting home. Schools and Hospitals that were planned are stopped, no money for them. The arguments about the contracts etc., will go on for years but an industry looks to be lying in ruins from what I heard tonight. The trouble is, it is the people who voted for this Government that appear to have taken a pounding. I hope it isn't as bad as it was painted tonight but my friend, who I've know for getting on 37 years or so now is in trouble as well as his market has faded away. It is all the more worrying as he is one of the top in his field. Also saw my other friend who is hoping that his training next week leads to some decent employment. It appears to me to be the experienced people who are now deemed too old and to expensive are getting hit. I don't want to go there with that argument here but it is a spreadsheet manager's decision. I used to surround myself with older more experienced people because they'd protect me and give me sound advice and I'd get more out of them for less effort and I'd get less trouble on my jobs with an old hand doing it.

I'm glad I am out of that construction area business and in the IT world. Even that is seeing a change in dynamics but, I like to think that an old dog, such as I, can chart a way through all of that.

Do you know what? I feel like I am really getting back to my fit and healthy self at last. Having worked through those accounts and been quite busy with the other business stuff, I felt really good and massively confident and suddenly back on my game. I began to believe in myself again today.

Tomorrow is special (oooooppppps - later today it is late again!) as I get my hands on my Kindle from Amazon - I am really quite excited about the prospect as at last I will have something designed to let me read these technical books and journals without being connected to my laptop which being back lit and wide screen really isn't conducive to achieving that.

Long Post

Yesterday's was a long post - just a load of ramblings but it was a bit of a mind dump and probably needed to get it out of my head and onto - well - paper - albeit electronic paper.

Speaking of electronic paper I finally got my despatch notice for my Kindle which should be with me on Tuesday. Here's hoping that it actually does. It's an e-reading device and I am hoping that it is going to help me to read some of my existing ebooks - it is meant to be easier on the eye as it uses a display called e-ink which is completely different to backlit displays. It can be read out in the open. All of my technical books may then at last be viewable to me and easy on my eyes.

I've been quite good today and although I've been on my PC I have steered clear of work itself.

I have been looking at some of the accounts I need to get settled in the next few weeks. I'm pretty pleased that they are in good order but I need a little longer to sort them out for auditing. Hopefully they will come together as good as they look now. I've kept the records really well but it is ensuring that the balance sheets actually show the right figures when I bring them in.

The biggest change

Is that what's important to me these days isn't important to my friends and family. Not that it should be of course, everyone has their life to live. I'm still not quite up to the bit where I want to do the world cruise or do some outrageous things. What will be will be and in the interim I am pursing my particular dream and seeing if this project will deliver a living for say the next 5 years which will kind of do me. If I can turn a few bucks, sick some of that away I have plenty of things Ii want to do and that will keep me amused for quite a while I hope - if I'm spared that time of course.

Now this all sounds a bit strange you may say? I was out with Flocky for a mid day curry - we were the only ones in the restaurant and the food was excellent and the service was of course exemplary. Now we are both, more or less, in the situation where our high flying crazy, work all hours, burn yourself out culture of work has resulted in the two of us taking a different view on life, work and all that. Whilst I may have come out of over 2 years in the Charity, I would never have lasted there because I come from corporate life where it's all about economies, smart ways of working, change and having really good productive people. So I've opted for something that at the moment is intellectually challenging and if we get finance will be physically challenging too. However, my choice and it could never be like the way I used to work years ago.

So trying to get back on track here. I find that so many people are getting stressed out working and taking it all so seriously (OK the market is bad, the economy is rubbish and the way work is these days is stressful enough). However, getting ill really does stop you and make you ask the question of whether or not you are enjoying this thing that takes so much of your time. Ask you why there are all the petty little things that go along with and all that. Is it all worth it? Are yo doing the right thing? Can you stop or alter your life and actually go and live a little.

I've been mulling just that - I'd like to go do something else, I'd like to spend some time with my family and friends but everyone is so busy that they really can't afford that time. It seems that the attitude that it isn't that important, that nobody died, that I tend to have is not the way non-cancer, non serious illness sufferers look at things. A bit like the terminally ill lung cancer patient continuing to smoke - sort of what's the point of giving up? Indeed! But there is the other view, a very personal one. The euphoria of surviving it - like me I know the years and months and almost the days and hours if I thought about it from first symptoms to here I am. The joy of living is suddenly a different thing. I suppose nothing, not even a close family member or friend dying actually prepares you for your ultimate destination? I mean it isn't something the average person thinks much about.

One of the guys in the Lodge, 62, wandering along the High Street, heart attack and was dead before he hit the pavement (side walk). That's it, there's no second chance, no goodbye, nothing. Walked out of the door, down the road and no one saw him alive again. I bet people were saying, I didn't get to say "so and so" to him blah, blah, blah. It is the nature of these things. They describe it as tragic. Everyone regrets something about a tragedy.

I feel the need to be doing things today so that if anything happens in the future there won't be regrets or what ifs but only me - no one else gets it (well probably not true - some people I know will get it - guess what we've got in common?).

A life lived. I doubt I could claim to have that but everyone makes a difference one way or the other. Sometimes you hear of these lives where people have done amazing things and I'm not interested in that either. I just want the remaining time I have left of which I don't know how much that may be to have some sort of meaning or celebration or experience to it. Given the circumstances behind my bladder cancer I'm not ruling out some other such occurrence before I turn my toes up. All I want to do is to spend some time doing enjoyable things but most of these are met by a reason it can't be achieved. A weekend away, a holiday or short break, a trip out somewhere. Something to do, somewhere to spend some time together. Oh well, maybe the answer is to go do it myself or find someone who fancies joining me on some of these things.

Well that all looks a bit jumbled up, I think it means the same as some of my earlier postings. You change, no one else does and you can't expect them to. They just need to get over it. Either that or I'm just changed so much that I'm not the person they knew before I had the experience. Whatever it is, it kind of shows that cancer does more than getting a broken leg or a heavy cold. I've come out of it changed in so many ways that I tend to forget how difficult it is for others to deal with my view of the world. It changes the dynamics of your relationships, your family life changes quite a bit, I know now that everyone was sh1t scared but they never told me - I suppose you wouldn't do that.

It has made me a much nicer person (some people would have difficulty remembering how I was before this all blew up) I'm not sure I liked myself very much in those days and yet I do feel that I was coming down with something for a few years leading up to diagnosis. I lost the job I'd always desired but that doesn't matter either now - it's all experience, stuff I bring to bear these days for helping people and whilst I still have a major problem with fools and idiots (I have a very low threshold for people who are stupid. Stupid and Ignorant really gets me going!) I get on with people a lot better and generally feel I've come a long way now to being a more patient, all around good guy.

I think it is difficult to articulate this without it sounding wrong but let me see if I can try it. A friend of mine told me that he didn't want to live on his own as he didn't want to die alone. How sad is that statement? I'm seriously considering whether that would worry me or not? I'm an INTJ I can go for days without needing to say anything to anyone if I want to. My public face and who I am are completely different and so I think it would work OK. if I need to see anyone there are coffee shops, pubs and all sorts of distractions. I think what I'm saying is that I just want to please myself and be selfish, do what I want to do, when I want to do it and not be held back by external forces and limitations that are not of my doing, not in my control and that, perhaps, may finally settle where I want to go and what I want to do. I'm as tired of my home life as I was of working at the charity. Like the place is full of nice people but the word dynamic just got cut out of the dictionary when they joined. Not all of them there are a couple of good ones there as there is here. I feel I should be doing more with my life than routine and imprisonment by factors outside of my control. By imprisonment it means that I naturally wish to involve people in my plans. I will, I notice, not do things myself if they cannot join in. Perhaps, I take control and just go and do them myself it may clear my head and my conscience too.

Thrash Thrash, Bish, Bash, Bosh

I am going to have some "ME" time today. I cannot believe the amount of work I've put in this week. Not all of that work has been productive (thanks to some flaky software).

I spoke to the dentist who can see me next Friday. I expect a damning report and multiple visits to be the outcome as to be fair, I've neglected a number of things as they just never made it to my list of things to get done.

I should be going to a large meeting this morning but to tell the truth - I just can't be bothered to go. I actually need to walk up the road and get some stuff for this cut tongue caused by a tiny sharp edge on my tooth! This meting, when it is down at Margate is good fun as we go for the weekend. Last year we came back from South Wales on the Friday Night and drove down to Margate the next morning. We had a good nigh out on the Saturday too. However, I can't say Bromley has the same draw for me and for the first time in I guess 10 years I haven't gone. Mind you none of my mates could make it and I'd be hanging around on my Jack Jones pretending to be Bill Nomates.

Flocky is at school this morning and so he and I may go out and have a curry at lunch time or perhaps something else. We haven't decided yet.

I still need to spend some time this weekend working as I have some accounts to resolve and get straight for Monday night. As usual time has caught up with me. It is almost the end of September - suddenly everything re-starts and I'm back to sorting out these accounts. If I spend some time doing them this weekend perhaps I can ensure that they are under tighter control this coming year. Finally we managed to move our classes of instruction tooa more reasonably priced venue and so the problems I've had balancing the books should go away this year. It is more the issue of negative balance sheets that are plaguing me actually making a loss for two years just messes the books up horribly. Everything comes back together this year so that will be a major improvement.

Oh No

I've done it again - it's Friday morning already and I'm sat here thrashing away at work and other stuff. I managed to find the bug in the software - it took hours and I wasn't best pleased when I found out it was another "feature" in Word 2007 that crashes my application or doesn't allow me to save properly when background saving (which is a default setting) is turned on. I like many users of MS products often use CTRL S every few minutes to save out work out of bitter (and twisted) experience.

My business partner just got back from a short break and he and I caught up a number of times today on the company business, logos, business plans and all that stuff. The problem then arose that I also had some other calls to make and so I made those, then Mrs. F. arrived and asked me whether I'd seen the letters that needed posting on the table? Ermmm - no - but I would have posted them if she'd have asked. Then she gave me the copies of the logo designs that her colleagues had critiqued - great. Then she asked me whether I'd rung the dentist. No I'd do it now - unfortunately they are shut - it was 6 pm and I'd been at it all day apart from a few coffees and some soup at lunch time!!!

Tomorrow - well later today actually I need to sort it out. The days are just blurring and I'm beginning to get back into 14 to 16 hour days - its good stuff as I'm just working on getting stuff out of my head and onto paper. It's incredibly exciting (to me) as things and ideas are crystallising and all the work we have done in the past three years is paying dividends. When I look back at the documents we produced before we actually incorporated the company - you can see that all that effort has paid off in spades.

The trouble is - it is like a Tsunami and the ideas just keep coming and my fingers aren't typing as fast as my mind is working and worse than that - it is coming out in sections but not a single document at a time - no not me - what did you expect? I am parallel working on the business plan, the finances, the marketing and sales plan and the competitive analysis. Well they are all linked but it just shows that things are hotting up and to add to that I've had to drop a line to the Tax man and deal with the Logo and arrange some meetings next week the whole day feels like a blur.

Right - off to bed.... Or Else :-)

Ouch

Sharp edged broken tooth - sore tongue, difficult to eat or drink and what a wally I am, I didn't ring the dentist - when I remembered it was out of hours. Such has been my day that its just been phone calls, emails, all sorts of things happening. I got a fair bit done but had the usual PC woes, downloads that faltered half way through, programme updates that didn't - update that is and caused major fault on my PC requiring a re-boot. I must call the dentist tomorrow...

Mind you, it is pretty impressive that I've been bashing away despite all of this. I managed to go do some exercise after I realised what the time was.

Crazy days - damn technology - if the truth be know I ought to get a new PC sorted out at some point in time as this one is really struggling with the latest software. Ho hum...

Stormed through the day but

Ooops - I need to get to see my dentist. I haven't been for ages and I've cracked a tooth and I know what that means so - best get an appointment for that.

Mixed reactions to the logos for the company - not unexpectedly really as there are so many to choose from and having an international audience throws a lot of spanners in the works as logos really are different to different cultures. Mrs. F. is taking them in for the Nursery School teachers to have a look at tomorrow. Both daughters chose similar logos but even they differed over their favourite. Luckily I have a foot in both camps as I like both of their favourites.

The web site design too got some admiring glances and we really are pleased with it so far.

I'm thrashing through the Business Plan and the Sales and Marketing Plan. I've had to switch away from MS Word as it keeps crashing (even though it assures me it isn't its fault and has repaired itself). I'm using Open Office which does what I want it to do and probably just as well if the truth be known. How anyone can put Office 2007 out in the wild and lose my ability to dictate to it I'll never know - apparently a 'feature' where do they get their ideas from - after having trianed my system to know my voice and to be happily dictating and then to upgrade so they can take that away??? Who thinks this stuff out - they walk amongst us and probably procreate too! Is there any chance for Planet Earth I ask myself?

I missed exercise tonight but for a nice reason. I have changed my Skype Handle to say "So you see, the best way to be happy, is to make the other person happy." — Dalai Lama

An old colleague and friend - we worked together 13 years ago on this huge Global Project that took me off around Europe for about 6 months or more, fired off a text and we exchanged pleasantries. He is a lovely guy, French Canadian and is now living in Paris (where he used to love) via Zurich. His boys are both 2 years older than my girls and have gone back to Montreal to University. He has the brain the size of a planet and was always very rude about my French :-) He said I spoke very slowly and deliberately and therefore sounded a "bit slow" by that I think he meant of low intelligence. It was very funny though when he realised that I understood French far more than I ever let on. Having both English and French as his language he absolutely adored Monty Python especially "Holy Grail" and it was funny to hear him mimic John Cleese "Your farther was an 'amster and your mother smelt of elderberries!" Brilliant such wonderful memories I learnt SO MUCH on that job, having to deal with people from all over the world. Happy days. Although they are much happier looking back.

The funniest thing was that they wanted a "Hard, tough, scarred Project Manager who knew his way around and would get things done!" Everyone wants one of those until you start ripping people new ar*eholes and then suddenly they don't like it. Mind you we got the job done, on time, on budget and the best specifications and designs they had ever seen, everyone learnt something good. Nearly everyone has gone on to bigger and better things too.

Exercise Nailed

Yes - finally I gave myself some time today to get back to the exercise regime and pounded out 5kM as an opener. I'm really struggling to keep my trousers on as well much to everyone's merriment I look like one of those kids with their underpants showing above their jeans belt.

Hopefully my new belt will arrive tomorrow as I broke my old one which I must have had for 20 years - good old trusty belt that was too!! There is a good 2" gap now around my trousers and jeans which is really encouraging me to greater exertion and a renewed vigour to get my weight right down.

We did have Sunflower Seeds in the larder (not pine nuts) along with Pumpkin seeds and now I've added mixed nuts, Brazils included which adds to my dried prunes, figs and apricots. For a treat I got some yoghurt covered raisins too - MMmmmm.

So things continue apace and the logos are in for the company and all is excitement as we work our way through them. There are insufficient hours in the day and I have lots of reading to do. I was completely daunted at one of the reports I need to work through as it is heaving it at over 125 pages. I've an electronic shelf full of these to get through all of which are market reports both of the UK, Europe, US and World markets. Additionally, all the Government papers and lobbying stuff about Digital Inclusion. It has to be done to back up the work we are doing.

I just need to find the 48 hour day that's all :-) I'm pretty good about things though, now I have my strength sort of back although nowhere near pre cancer days it has to be said, I am able to work quite hard at this but I do know my limitations and can tell when I've had enough and need to rest.

I'll be doing another hour and then calling it a day today as there are some things I need to clear up and as my PC was misbehaving I need to set some background tasks to work overnight whilst I am asleep.

Exercise still sucks but it least I am back on the case again. I just need to make sure that I get back into the habit!

Frustrating Technology Day

Again, I find that the technology just lets me down when I need it the most it is just a pain and I have been trying to do some research today and get to grips with the huge amount of data available. I need to convert this to read on my Kindle when that arrives and I have a PC Kindle reader so that I can get stuck into some of the technology reading I have to do. The converter seized up and needed a reboot but that took out the whole PC, then Firefox did something bizarre and I had to reboot once again. It is just such a nuisance that I can't just get on and get things done.

the stuff I am working on will actually cure that. Great excitement today as the first graphics have hit the email system - they all look great and our web site design looks pretty good too. Now to decide what we like and what we want to do. It's all great stuff and great fun. The journey is beginning to get really exciting now as we get identity and then we can really crack on with getting ourselves in front of people and releasing what we are about. All we need is a few £ Million, so if you have a bit of spare cash send it over :-) I've probably broken every rule in the book saying that so ignore it :-)

I'm having a bit more fun trying to get my 36 years experience into two sentences :-) A bit difficult I have to say - but it will happen, like so many things that we do, we just make it happen.

I'm wondering whether to have a 5 year survival party next year. Just go out and do something to record and celebrate the 5 year statistic. They measure this sort of thing when you look at survival rates so 5 years is a nice milestone to achieve and to celebrate.

I need to share this with you

Oh dear, I nearly wet myself laughing at this post from Steve in the US. Those of you who know me understand my sense of humour (humor) can be black, surreal and downright silly, well Steve's post managed to tickle the funny bone and had me laughing until I cried.

It might be a Cancer survivors thing, we are allowed to laugh amongst ourselves and you can join the club if you've had cancer because you know that your doing it for the right reasons. I saw someone try and do it who had no link whatsoever and frankly it fell flat and wasn't funny. I don't suppose their audience actually got it either - you have to "do it right". Anyway, Steve hit the nail on the head with this post and whilst it sounds strange that something as bizarre as having BCG shoved into your bladder may appear funny. To those of us that have had it done, you have to take every opportunity to "joke your way through".

Consider my episodes and a few of the one-liners that happened. I take a pair of stress balls into the room so that I can concentrate on squeezing the hell out of those and keeping my arms and body still whilst they stick a catheter into me. Of course, your exposed from the waist down to do this and "David, you may want to give your balls a squeeze now!" wasn't quite what I thought she meant :-) How we laughed, her longer than I as I had a catheter and treatment going on whilst trying not to laugh too much. I remember explaining to one of the Urology Nurses that I felt certain that she had probably seen and handled my "wedding equipment" more times than my wife - well I'd find that a funny thing to say!

However, as I said, you probably need to be in the situation to get the joke. I managed to wear my "I'm Not Dead Yet!" T-Shirt last week as I found it again after it had got its way to the far end of the wardrobe... Not everyone gets it of course.

That's two weeks (or is it three)

Without exercise and I need to do something about that now. I've done nothing but work and so I've kept weight down through burning off through my own single mindedness here at the PC.

I need to do something about that - I've not put on any weight but neither have I lost any either. I want to lose some more and I'm only going to do that by burning off the excess. I still run my diet pretty much as it has been going and fruit, low fat foods and lots of fish etc are my main diet along with soup and no bread. Maintaining the weight is OK but I need to push to get back on track.

I'm the same weight as I was last week and for the past 3 weeks 223 Lbs.

Saturday - Work Day

I know - I said I wouldn't but we needed to do some tidying up, needed to knock out some eBay stuff, tidy my room, try and sort out if anyone wants this stuff on Freecycle and do some Lodge Treasurer's business too.

The day has shot by and now I'm getting my Kindle in a couple of weeks I have started to arrange my eBooks into some sort of order. I know where everything is but I've never catalogued them so I've been trying to do that and watching my PC crash with alarming regularity today. The worst day's work I ever did was upgrading to Office 2007 - it just seems to be unstable all the time and do what it wants not what I ask. I ran some diagnostics and repairs late this afternoon so fingers crossed it will be OK.

My business partner has just sent over the rushes for our new web site - they are great. Really impressed with his work - as always - he has a very good grasp of technology and can really bring things together. It was really exciting seeing it for the first time.

I need to do some resting tomorrow. It is MotoGP in Spain so that will give me a reason to sit on my backside after lunch and spend an hour or two just relaxing. Let's hope there isn't a repeat of the fatality of 2 weeks ago to one of the young riders.

Cracking Day

What a good day I've just had - the trouble is I can hardly stop working. I tried but the TV programmes are pants tonight. Maybe I should go and grab a DVD and watch that? That might do it and stop me working at this sort of speed...

Yes - I've completed the major document and I've got quite a bit done today so ought to go and relax a bit.

More Nuts

Brazil nuts that is?

Another report linking selenium to positive benefits for Bladder Cancer Sufferers HERE. I already have Brazil nuts whenever I can - not sure if I have any Sunflower seeds here - plenty of Pumpkin seeds and pine nuts but will need to see what else I have around the house.

New Day - Optimistic Cheerful Start

Good morning - feeling really chipper this morning, really upbeat and thoroughly enthusiastic and go ahead. Can only put that down to a number of milestones. I finished off a major piece of work last night and issued it to the committee, the wiki is completed and looking great and in just 6 months things have really come together. I know I was glum after they'd pulled my original document to pieces and lost all the formatting but now it looks great (even if I say so myself). There is something really satisfying about a job well done and I'm really pleased with it. It probably doesn't mean anything to anyone outside of Freemasonry but it is to do with raising money for the charities and is a manual about how to plan and execute a Festival.

The new business has started to become even more of a reality with its logo and artwork, web site, business letterhead, business cards etc getting nearer to being finished. We only await out "copy" of our 30 and 60 second drill, 2 minute picth and conversation piece to complete the picture (we are unable to currently describe what we do in simple layman's terms due to its complexity)

The sun is shining, the sky is blue, it's Friday, I'm healthy, I haven't put on any weight this week, in fact it looks like I may have lost a little bit and everything is well with the world.

In the US, Steve, who has been clear now for 27 months will commence his set of three BCG treatments for maintenance today. Steve makes me smile too, always has done, with the great super hero title of BioHazard Man :-). I'm sure we all wish him well and for there to be as little side effects as possible.

Yes - things look and feel good. I hope that I keep this happy for as long as possible!

A Reminder to 4 years ago

Today we got our graphic designer in to start our branding exercise. We did a bit of reminiscing as I haven't seen him since just before I went in to have my operation - I kind of knew what it was. He was interested to see how I had got on because and I quote:-

"you were sh*****g yourself last time I saw you. You were in a right old mess!"

Well on reflection he wasn't wrong - I knew I was pretty ill and it was 2 days before my flexible cystoscopy which actually diagnosed it and in less than a week I had the operation. I've corresponded with him since but it was only today that we met up again.

I'm looking forward to working with him as he is really creative and I hope that his work gets us moving forward as a business - we need to start to get some traction and this is the first real step.

Didn't go

Well I didn't go and have mixed feelings but I am certain that it is the right decision not to for my own well being rather than anything else.

Met a nice chap last night who seems interested in joining Freemasonry and so had a long chat about it and it was nice to hear someone who finds modern life throws up challenges and was looking for something different which we certainly are. Left him to go take on board all we said about it and see how he feels later - no pressure on him - he can think it through with all the facts.

He was harking on about how petty people can be. A bit like I wonder how or why anyone would want to find my insignificant little blog and then post a spam message on the comment field knowing full well that I would probably kill it off. I'm amazed that people actually spend their time on forums trolling and baiting people and if I'm not mistaken, I'd consider that there is some sort of industrial espionage going on on some of these public discussion sites. I'm looking into an Amazon discussion board having just ordered a Kindle ereader. The discussions are generally quite readable and interesting and then every now and again you can see something that is blatantly wrong. I thought one about some person buying one and losing their eyesight was so bizarre and stupid that everyone would realise it was a troll baiting the group. It was obvious to me that it was someone paid by or employed by a competitor firing off bile in order to rubbish the product. Rather than everyone ignoring it or reporting it they gave it credence by answering it.

So what is my point I hear you ask? Well if these people are acting alone what on earth can their sad little lives be like? If they are getting paid for it, it is a sad indictment on society that anyone should be employing shoddy dirty tricks like this.

I went in to one of my old email accounts yesterday as I hadn't received any emails for some time. A "new improved spam system" meant that many of my emails were locked into the close to 3,600 emails I found in there!! It would have been nice of them to tell me...

Rant over for this morning.

Turning to whether to attend the funeral or not

Tomorrow - well in a way that has all been taken away as our graphics man is turning up tomorrow to do our logos etc. I was talking to a friend of mine today who Flocky Bicep and I bumped into outside Costa Coffee. I was saying how I really don't like attending funerals and I'm not sure that I'm properly equipped. Indeed I heard another of our members died last night at his computer of all things. The medics say he passed away peacefully just sat at his desk.

Both of these guys were quite old (late 80s and 90s) so it is to be expected, they weren't tragic deaths, sad but not due to something other than old age and nature.

However, I think there is always a reminder to me of what I stared at 4 years and 2 months ago. I don't think it is a "fear" of death as such but the fact that you stared into the jaws and pulled back out. It just gets me inward looking and why go there if you don't have to? Both guys will have a god send off - so many people will be there and not having me there won't matter a jot.

Anyway - I didn't even enjoy writing that. I can't easily explain it but I just feel it in the pit of stomach and I'd just be pants at trying to keep it all together - I'd probably be grieving for myself psychologically!

I sound all screwed up and yet I don't think I actually am....

Determined, Angry, Driven

I am really in the driving seat this week. I found the jerk I met last week gave me the necessary energy and strength to kick some butt this week and I made huge progress in some key business areas.

I wish I could bottle all this energy and store it - somehow it drives me on and on and makes me work late and won't let me stop even though I'm tired. I just have lots of drive but I am acutely aware that I have little long term stamina to keep this level of effort up for more than a few weeks!

I need to be very careful about the effort I'm expending. It is all well and good putting this in but I must be aware that I'm not yet fully fit to endure it. I need to work out a reality check point to make sure that I don't overdo it as I am doing right now at close to midnight having been up since 7:30 and working since 8!!!!

Note to self: You know you are doing it - stop when your body tells you to and not when your brain thinks it should. You KNOW it makes sense :-)