I'm very glad to be home

And have my close family here for the weekend - the girls get on great together and so we do have fun and enjoy each others company. I'm being allowed to let off steam and have some child like fun and be a crazy dad for the day so that's cool :-)

I'm glad I went to see my mum and dad and show some support and I spoke to my mum long and hard on Friday to make sure that she knows I can be there - she realises the distance and the cost but I think it is true that she also realises that practically it isn't possible to get there and back in a day so I have to plan things.

I feel pretty helpless to do much more than do what I'm doing - it's upsetting but I've got to get real here - I can't help much other than provide the balanced views I'm doing and a little insight into the overreactions of my brother and sister in law and my mum. All trying their best to help but disturbingly not allowing my dad to consider his options and decide what he wants and what he considers best for himself.

Back Home

A bit of a hold up on the way back but back home and thankfully able to divert myself this weekend with a party for my father in law and nephew - 90 and 30 respectively. That should be nice.

I've come bearing gifts - well - lots of farm produce for us and I need to take in all the things that have happened this past 4 days. I find it disturbing that my mother and brother are treating my dad like some sort of naughty kid (even though he was like that when the fever was rampant). However, I may have got it through to them that they need to be reactive to his needs not proactive - in other words the last thing a dying man needs to be reminded of is that fact. If you think an electric bed is a good idea then have that idea ready for when he finds it difficult to get in and out of the bed he is in now. Don't get him it, make him change into it for all it does is remind him that he is ill. If you'd have done it to me I would, like him, be bloody furious.

People do things in "good faith" and yet they don't think of how the person who is ill and facing death is actually going to feel when they act out of the kindness of their hearts and kick him in the teeth at the same time. You can overdo the love and support and I hope that, if I've done nothing else, that I've stopped them trying to over protect and try and wrap him in cotton wool, he has pancreatic cancer - he isn't going light in the brain!!

My Week

Was it a good thing to come up here? I think perhaps it was right to do that and in a way I would have kicked myself if I hadn't. I found it amusing for one of my friends to say that I had "now done my bit" which I found amusing and disturbing at the same time. What he meant was that I could perhaps stop kicking myself for not being there for dad whilst he also knew that no one had come down and seen me :-) But at the same time it belittles the act too.

I would have felt bad if something had happened this week and I hadn't made the effort. In a way I feel I should be here more but it really isn't practical. We would all like to "be there" and yet in reality that isn't possible is it? Ideally I'd like to be here for my mum and dad for as long as it takes - it isn't going to happen.

I feel my mum's pain and my dad's confusion and upset and the wider family - especially his two brothers, one older and one younger. I feel somehow that I need to do more but you know what, I also have my own things to do as well. The trouble is that my mother and brother (and sister-in-law) too are treating dad like a kid - I've "had words" about that and suggested that they treat him like the head of the family he is and give him a bit of respect. He doesn't need to be told what to do - he needs to come to these decisions in his own time and when he needs to. He doesn't need an invalid bed now - he may do later, leave the suggestion that we will do what is necessary to deal with his condition and respect his wishes. Everyone wants to advise and push him and yet he needs to make some decisions in a logical fact based way. I know he shouldn't drive the car and so does he but he needs to arrive at that decision based on facts about his reactions, his body movement and his strength - he knows he can't walk down the garden let alone drive a car but he doesn't need to be told.

So - I've done my bit and I know I've got to come up here again and perhaps only a few times more. I've no idea whether I'll be here at the end - that's not my choice, that's the predicament I am in because it wasn't me that moved up to this area of England. It's desolate farming country a million miles from the sort of countryside I live in. There are some amazing houses here but they are rotting away and yet it must have been some place given the scale of the buildings I saw on my walk today - including a house that has to be 17th century that is just what I have always dreamed of owning - a place probably older with turrets that appears to have grown organically and has bags of character. The trouble is - what on earth would you do up here but be a farmer? There really isn't much else I can see to do.

So I've got mixed feelings - it could be the last time I come here I suppose. However, I hope not but I don't think I could hack the day I had Tuesday - my poor old mum and brother had a terrible week with dad. Every now and then dad goes off somewhere in his mind and drifts off and back again but normally he is tired and I'm concious that perhaps I can only just be there and around for them - maybe that's all that is needed - just to be present.

Oh hell what do I know :-) Mind you sat in the bar tonight and there was a conversation going on following a wake for this chaps mother who had just died of Pancreatic Cancer and they mentioned Steve Jobs and Patrick Swazy and of course that just re-enforced what will come in the near future. I don't see dad living beyond Christmas unless he has a very strong will and starts to take on some sort of diet and treatment that may help - I find it unlikely that it will happen I think the decision to die has been made.

I should have been at the Guildhall this evening and I've only just thought about that. It would have been a wonderful event but I'd rather be here - it's dad's birthday tomorrow and so that is important I think. Oh well - I'll be home tomorrow night and I think I will be quite morose and quite upset when I get back there - it's been a strain and it's been emotional :-) I hate what cancer has done to my dad and the frail man who stood there today and at one time he was almost child like and you never want to see your dad in anything other than how you remember him.

More later when I get past the upset. However, I'm not as cut up as I could have been I think.

Ooooeeeerr

I got my tyre fixed this morning and got to my parents a little later - dad was in bed and it was nice to see him a little better and the bruises receding. I then went to the shops for them and dropped of the notes to the doctor, picked up some scotch for dad's birthday and posted some letters and had a nice breezy walk.

I left earlier today as dad got quite tired - it just floods over him and that's just the way things are. It's so frustrating for him and so I got out when he started to get tired just before his tea. My mum wants to feed me but its too early for me.

I have a list of things to get tomorrow from the farm shop as it is so cheap around here. I should be able to do some pickled onions over the weekend with a bit of luck.

I'm sure I'm going to be really cut up when I get home tomorrow - I've had to be massively diplomatic so far. Tomorrow my brother and his brood will be there, dad will have his last birthday with us and I'm sure that the moment will not be lost on anyone in the room. He laughed with me today and gave me my inheritance - a bag of sweets :-) bless him.

Of course Steve Jobs dying today also hit home especially as he had the same cancer! Oh well tomorrow is another day.

Progress

Well Dad's home, I brought him home with mum and my brother late on Tuesday afternoon. He was being a "bit of a handful" and not taking things seriously, he was told not to drive but the doctor and the nurse weren't really that good at delivering this message but frankly, I cannot see him ever getting behind the wheel and I think today that he knows that.

It's difficult to understand that this little step is just one of the things you have to give up as you head towards your destiny. It is one reminder that you are losing your independence and that's why he wants to hold on to it. Of course, he isn't thinking clearly on this and there are lots of other problems like this. The interesting thing is that everyone is dealing with this differently and Dad doesn't do "being ill" so was surprised to see me yesterday and also that I was here for the rest of the week. In a way - I had to come up and he could have been in Hospital all week but I'm here and was able to fix some stuff in the house and also baby sit dad whilst mum did some chores too. It was nice to wander out into the Conservatory and let them both have a sleep and catch up. Things were a lot less frantic and a lot better today.

Dad looks so much better after just one evening of real sleep. Hopefully he can build on this and just have a stable time from now on.

Now the bad stuff - well he does look much thinner than when I last saw him and he is much much weaker. I can see the fear and also confusion in his eyes, I know him of course and I've never known him be scared before.

I'm glad I came.

That's fixed then

I'm off to see my folks tomorrow at the crack of Sparrows. At least I can take over from my brother and sister-in-law and do some supporting chores if nothing else it will give me an opportunity to see dad and mum and try and assist.

I've got my Hotel sorted out - well my brother may need his spare room :-) yea right! I have to laugh about it - he even recommended various other hotels I might like to check out :-) At least I can get away at a reasonable time and spend some time in a Hotel Bar having a cool beer and thinking stuff out. I've got my friend bringing me some literature tonight. He works for the Samaritans and it will be worth leaving the leaflets to hand in case they need them - sometimes it isn't easy to speak to family and these guys provide a vital service to just allow you to chat and talk and get it off your chest. They are well trained and know how to get you to talk about yourself and your feelings etc. A lot of people think it is only about suicides which of course they do deal with but also dealing with other difficult situations too.

The Mirror on what might have been

It sounds strange but I looked at my dad a few weeks ago and I saw myself. I saw what might have happened to me had they caught my cancer a little later than they did. It brings back much of the trouble of that time to me and in many ways I dread going up there this week. I think everyone is putting a brave face on at the moment but deep down inside I'm certain that they fear what will come next.

Me? I'm reminded of all the stuff I go through and how fortunate I am to still be here. I'm not saying it hurts any more than it does to the rest of the family but it certainly hits home a lot more to me. The spread of the cancer and the speed at which dad has changed in a very short space of time is frightening and this latest period in hospital may herald a pattern (I hope not) for the future.

I'll go up in the morning to see him and see what I can do this week. It's going to be a hard old week but I should go. I may have been disturbed by the fact that no one came and saw me in all the years I was ill but it doesn't mean that I have to behave like that.

Spurred into action

I spoke to my brother and I think I ought to go up this week if only to share the load and take mum to and from the Hospital and sort that out. It sounds dire trying to find a parking place and all that! Typical hospital - pretty new one too and not enough places to park - who designs these things FFS!

Dad's a bit better, has been able to get up and wander around himself and has started to get around without the aid of a walking frame so a good sign there.

It always surprises me that I have to stay in a hotel when I'm up there considering my brother has a spare room but they may give you an inkling of why things aren't exactly great between us. Anyway, I'd rather pay to do that I think :-)

It's all a bit difficult in terms of work etc but they have wifi and I have a PC and a phone so that can work :-) I hope to get away pretty early so as to get to my mums in time for breakfast and so I can do whatever is needed. Additionally I'll be there for my dad's birthday which will also be good (and bad) all at the same time. I have no doubt that the Elephant will be in the room at that time.

It's Late and yes I'm still up

Pondering the words I heard my mum say tonight and how sad dad was that he wasn't fit enough to come home. He knows that it will be hard work for mum and I can see that he's beginning to start to think things through in a pragmatic way. A few weeks ago he wouldn't have seen that he was soldiering on as if nothing had happened.

I caught a moment in mums voice and it's kept me up to gone 1 so far and I think it may be time to go up again and see him. This is the bizarre thing, it's only 14 days since I last saw him and so much has happened and changed. That's what is alarming about this, it is as if someone has flipped a switch and dad's gone from one state to another and transformed. It reduces us to helpless and weak individuals and that's not how he was - ever. I find myself listening to various pieces of smooth classical music and working out what I can do this week and how long I can go up for.

I'll take a view on it tomorrow but I think the hidden message is that dad may be thinking he isn't coming home. Whilst he is up to his usual laughs and jokes he actually doesn't have the energy to get up and down and move around fully unaided. That's got to be hard for him to bear and perhaps I ought to get up to see him as soon as I can - I don't want him to interpret that as some sort of last gesture either. It's hard to know what to do and of course the business is at a critical state but then again I'm sure that me thinking about this rather than taking action will materially affect it anyway.

It's better but it's worse

Dad's improved in terms of his attention and his mind and he is very very slowly getting some strength back but not enough to get him home yet I fear. He is very weak and needs assistance getting around. He can get about on his walking frame but it is a slow process and so he knows, and told my brother, that he felt he would not be coming home too soon.

I'm in two minds now what to do about this and whether I go up this week. It may be the case that I take a view tomorrow and Monday and make a decision and just go. I can ring around and get a Hotel easily enough, I have their addresses and details all written out now.

I fear going as I fear it may mean that if I'm there he may read it all wrongly. Perhaps not, I probably don't want to see what has happened to my dad. Let's face it, I only saw him 13 days ago and he was fine - a little thin but otherwise fine. That's what is overtaking me, how quick this all is and how fast everything is moving.

Talking to my mum tonight it was pretty obvious that there is an acceptance that things aren't quite what they should be and dad's blood pressure is going up and down all over the place. Until they stabilise him, he isn't going anywhere.

What to do?

Tearing Down My Defences

Whilst dad is having his own problems and living out the final chapter of his life I wonder whether I'm recoiling from the very real feelings that go back to my time with the early stages of the disease and the things I lived out in my waking and sleeping dreams and the visits of the Black Dog and the barriers and walls I've built up around myself to protect me from it.

I'm certain that I've built a legend and a narrative about me illness that is for me and for me alone but it helps to deal with it personally and when interacting with others. There's a tale, a weaving of truth and fantasy, of anecdotes and experiences that I hold onto as "My Story". It's part of who I am, it helps me deal with what happened to me, it allows me to explain what happened in my language and to suit me. Some of it may be blown up or down to suit the story telling but it is a shell that wrappers me and keeps me from harm. What I see and hear in my father's situation is all of the things I dreamt would happen to me (that didn't thankfully) but other things remind me of the loneliness and the doubt, the fear and the worry, the pain and the anger, the Black Dog and the Little Voice, the shame and the worry.

I see myself dying with him and I don't like it at all it really pulls and I see myself holding back and trying not to get too involved emotionally as it will tear me apart. I'll need to be at my best in the event to deal with the relatives - mum already can't deal with them and my brother is a lot closer to my parents than I am and so I will need to hold it together for him too. He's actually stepped up to the plate magnificently these past few weeks - it hasn't been that long but it feels like it. I may have reservations about other members of his family but he's done well and I have no doubt he'll feel particularly wiped out when the inevitable happens.

Me - I'm afraid that bits of my defence are falling apart now and that I'm questioning things - I don't tend to do things on an emotion I tend to do things logically - one one hand I want to go up and see them but on the other - what purpose does that serve? I'd rather wait until I get called up or when there is time at home. By the end of the weekend I think I might be able to forge a strategy about what to do for the best.

A little better again

Apart from his temperature and blood pressure going up and down all the time, dad's back with us and beginning to face facts. He's too weak to come home at the moment but he is getting his head back into gear. He has been told to use his walking frame and so he is actually doing that as the Doctor told him, not one of us. He will also be told that he cannot drive the car too as this is just outright dangerous.

He doesn't remember much until yesterday and so a few days are completely wiped out (again). The antibiotics appear to be doing their thing and he is able to get to the toilet (in time) with assistance and so that too is good. He realises that he is too weak to come home and he understands that he needs to listen to what people tell him. He still gets confused and forgets (or makes things up).

So - he's better and with it but he's lost a heck of a lot of weight, can't get around without the frame and still has something not quite right with this infection he's got. I see the chance for Chemotherapy retreating over the horizon as this would have knocked the stuffing out of him and given his immune system a severe shock.

I'm still battling the guilt of going up there or not. Does he need loads of us around his bed or do I wait until he is home and just spend the odd hour there? What will I achieve and so on. I can go on beating myself up all the time about this but perhaps I'll just have a think about it over the weekend.

Perhaps today we will find out a bit more

Like is dad diabetic, how far has the cancer spread, are they going to start to treat the pain he is beginning to get now, are the anti biotics working and so on. It's all lots of questions and we don't even know if he will be out of Hospital this week or not. He's been in for 3 days now - it feels like weeks!

I spoke to mum and she was upbeat and getting to grips with things now. Not sure if my brother has been able to do any work this week what with running around to and from the hospital. I'm still in two minds what to do really - I've no idea if going up there is going to help or hinder things and whilst it's my dad, I also have my own stuff to do. Having worked for 18 months without pay doesn't leave me in the greatest of positions to be up there and staying in hotels etc for any great period of time. Sorry that sounds callous and it isn't meant to be it's the way it is and what use am I going to be anyway?

More later no doubt.

So now things slowly change

It is amazing how quickly things change n'est pas? I spoke to mum and brother tonight and Dad's better, not great but has eaten a little, is being cheeky (always a good sign) and sent everyone home at 8 so he could sleep. That's the upside.

Downside is - yes it is colon cancer and yes there's something strange going on with his stomach area which needs sorting, his white cell count is down a bit and that is where we left it apart from he needs to have or see a neurologist. 18 months ago he went to the GPs with this balance problem and the found nothing. Now we have balance and memory issues - which aren't Parkinsons they say and they are also pretty certain it isn't Alzheimer's Disease either. However it is pretty serious as he keeps falling flat on his face or falling out of bed etc.

I've been out with a friend who has very kindly listened to what I've had to say and very kindly just been there for me. He's one of a very small handful of people who now know how I feel and the way I've been beating myself up over things. It was useful to have the conversation and to come away refreshed and to then speak to my brother and my mum shortly afterwards.

It is all a bit fast

I know from previous experience (2 people I've known have died from Pancreatic Cancer) how fast it can be. Both were discovered with late presentation when it was pretty much outside and in their system - one died within days and the other in around a month and he was only 26!

It appears to me that this is progressing ever so fast and my brother tells me that dad is now very thin and that he'd lost weight since I last saw him which is only 10 days ago. We've gone from knowing that he's pretty ill and terminal to being in Hospital and in not great shape in those 10 days. If he doesn't eat today that will be 3 days without food and whilst he is drinking water and being hydrated today may well turn out to be one that sets the course for the next few days too.

He's confused, my folks are stretched and emotional and I'm just beginning to feel bad and a little tearful as I feel for his and my folks pain and the fact that I'm not there. I'm waiting for and hoping that I'm not going to get the call from my family to go up this time. I really hope that this isn't it and that he will get over this, go home and slowly fade away. The longer he is in there though the less convinced I am about that.

And worse

It's close to 11 at night and I've just spoken to my brother who has filled me in on the latest. Dad's managed to climb over his bed rails and crash to the floor injuring his face! He doesn't know where he is and he thinks some of his fellow patients are ex-workmates and it is all getting very sad now. Mum is pretty distressed, of course, and well we are just going along with it all. It just makes for a terrible time for everyone, apart from dad who is out of it a bit and isn't really sure where he is, or why he is there but does know and accepts that he has cancer now.

I suppose we consider that we get the bad news and just sit back in our chairs waiting for the end to come and then for a few days retire to bed, call the family around and breathe our last and actually it isn't like that at all is it? This is just horrible and draining on the family and my brother and sister in law and mum are taking the brunt of it.

I'm sat here at the moment toying with the idea of going up to see him but I can't see that it will actually help the situation one bit. I need to find a hotel and with my inherent love of hospitals (even though I am much better now) it isn't actually going to be of any use, other than "being there". I think I just need to be on call at the moment and to be aware that I could be called up at any time. I'll sort out some phone numbers tomorrow in terms of hotels etc so that I can ring around and get that done.

It's all going back to the guilt trip stuff again and if they were here, local, even an hour away I could do something. If I were to go up for the day I can kiss 6 or 7 hours away just driving. It's just the way it is. I'm hoping that there is improvement tomorrow but it does now sound like there's been quite a significant progression and that the cancer has spread to his Colon and if that is the case then it's likely that other areas are getting infected and compromised too.

It's a sad way to go and it's never nice I suppose to consider that it's your dad and there's a highly intelligent man, a very strong man too laid so low and looking so thin and helpless. Let's hope they can sort him out sufficiently so that we can get him home - where he'll be happy and let him end his days there if possible.

Today I think it dawned on me that this is a turning point in his cancer and what is frightening is how quick this is all happening and how this particular form of cancer is so virulent and aggressive.

And it gets worse - apparently

It looks as if dad may have Colon cancer too someone at the hospital suggested. We wait to hear about that later today. It appears the hospital and the ambulance people have all been very good which is fantastic news and nice to hear. We should find out today a bit more and what they are going to do. Dad needs to have mum and my brother there so he can arrive at a decision as at the moment he isn't understanding everything and is a little "out of it". Maybe that's not a bad thing? I don't know. Mum sounded OK this morning and had managed to get a good night's sleep which is also useful as she had been up most of the previous night.

More later - no doubt.

My Breaking Point

Tonight I felt bad - I felt bad because I'm stuck here hundreds of miles away from my family that moved from this area (where I've lived most of my adult and pretty much of my childhood years). I feel helpless and I feel cold and useless. I feel like I'm making some petty point, scoring some points over my family who have probably only come back down this way twice in the ten years or more they've been away from this our local area, where we were all brought up and where we all used to live.

I know it is not true but my brain is telling me that I'm some sort of "second class citizen" some sort of "shit" who can't be bothered with his immediate family and who isn't playing his part.

It is my mind that is playing out this gladiatorial battle of wills. I'm the wronged party and then the next second I'm the wilful miscreant who isn't "doing his duty" and running up and down the hundreds of miles to look after my parents. Then the "little voice" is saying in my ear "When did they ever come and see you when you were ill?". "What did they do when you were curled up in the foetal position recovering from your treatment" and suddenly the little devil sits on my shoulder and whispers into my ear what a "Heartless bastard" I am and I cry. I cry because I feel so bad about this situation, I fear that my words are unheeded and that a decision my father has made has sealed his fate. He doesn't want treatment, operations or anything else, he's accepted that his time is run. The epiphany I see is that this is far from the truth and that there are other ways but dad's "old fashioned" he is set in his ways, he understands the facts one way and I understand them another.

It's all a bunch of bollocks and just too upsetting and too confusing to discuss. It is because of family, history, science, fact, fiction and many other factors that I now realise that I can't save my dad. I'm no healer, I've survived cancer and "so what?" Can I save my dad, can I save anyone? What qualifications do I have, how likely is it that I'm right about the Budwig Protocol, will that help him, will he believe it can and so on.

That is what will now send me to bed tonight upset. I am human, I am fallible, I am useless, I can't save my dad, I can't get to him in 10 minutes, I can't ease his pain, I can't do a lot. I can talk to them and I can probably help that way but other than that - I am utterly powerless to do anything. Test my faith? Of course - it pushes it to the utter limit and beyond.

Tomorrow will be another day and a defining one at that. I hope for good news and some sort of resolution. I fear that my father has opted to die, give in and succumb. It was never in my plans to do so and I'd have like to have thought it wasn't in his either.

I am rambling on - it's the way of it - I want him to die on his own terms, in his own way and without the complications and ugly hanging on bit - he will not want it like that and neither would I like my family to go through that. As for me - I'd like him to think that he could join with me to defeat this but I fear that he is beyond that level now and that his mind is set on the future none of us want to see.

So I entitled this my breaking point and what I meant was that tonight I really have, for the first time, realised that I am going to need to step up to the plate now. I need to put aside my silly prejudices and to just concentrate on the situation to hand. Too many people are taking the easy shot at me and it hurts like hell that I'm not nearby, that I'm not involved, not that emotionally attached either and that the way they treated me is diametrically different to the way they'd now like me to treat them. They can't have it both ways.

Mixed Evening

I was out with my school chums - it was a lovely evening but was interspersed with news of my dad and his situation. It isn't great and it isn't good but it is so difficult to judge - at a distance - what to do. I mean I can drop everything and go up there or I can wait to hear what is needed and do something then. As it is, I'd like to go up but what actual good (other than physical presence) can I be?

Here's the problem. What earthly good am I being there. I can't sit with my dad, there's visiting times etc. I can sit with my mum when needed I suppose? I can be there when required but when is that? I could just move up there I suppose. None of these are actually possible when you think about it. It isn't going to happen and whilst I fully expect to get the call to "get up here now" that isn't where we are, but I'm not absolutely sure where we are if I think about it.

I can imagine that mum isn't great as she is at home worrying. My brother is at home worrying and I went out of my way tonight to get a few extra beers down my neck and lean on my friends whose fathers have both passed away. They were great tonight and I'm sure they will be good for me later this year (or next) or whenever the time will be. It is a problem, it is a worry but my friends will be there for me and help me get through this.

Talking of which, let me mention a very good friend of mine who is a Samaritan. I have so much regard for him and he is one of my oldest and dearest friends. He gives up his time (and lots of it) to listen to people who phone with all sorts of problems. They give their time freely and I'm completely in awe of these people who just do this on a voluntary basis. Having met some of them I'm very privileged to have been in their company they are truly wonderful, self giving people who do things that you and I could never do. I feel that they may be a good help to mum, dad and perhaps my brother in the days and weeks ahead.

I think that my experiences have insulated me at the moment. I feel that I am thumping out the logic, reason and stability messages, the rock in a hard place but actually I found myself quite upset today. Not for the reasons you may think though. Dad's got to come to terms with this. My brother is taking the brunt of it and his wife is also helping. As you are probably aware - I'm no great fan of hers but she does what she does, she's pragmatic and strong and you need that too. Me, I feel for my mum and the hole that's opening up. It isn't her wish that the past 10 or 15 years have been lived in the way my father wanted it to be lived. She's not one for not participating but has done so to keep the status quo. She has given up her life for dad and in a way I want her to then go on and free up and go and have her own life after giving her all to dad.

Her giving it up meant that they haven't gone on holiday for years. That she hasn't been to family dos for years and so on. In a way I will rectify that when dad is gone as long as she decides that that is what she wants. I think she deserves some time out and a few good holidays if you ask me. "That side" of the family never came down to see me when I was ill, never came to my birthday party or those of my children and never made it down for Christmas etc. I haven't spent Christmas with my family for 15 or perhaps 20 years.

What I'm annoyed about is how "upset" I've become about this as it has never worried me before and it hasn't been important and yet now it is. There's no reason for it apart from the expectation that somehow it is I who have to change my ways and the relationship now. I've never changed, complained or got upset about it until now and suddenly I'm the "bogey man" it's my fault that I didn't move up there, that I happened to still live in the same house I've lived in for 23 years whilst they've all moved three, four or five times and each time further away from me.

I feel terribly guilty - I feel that I am beating myself up all the time and I'm sure I shouldn't be. I feel awful, I feel that I wont be there in time when dad dies, I feel so many terrible thoughts at the moment that it doesn't make me sleep and yet I know that logic defines that there isn't anything I can do. No one suffered my pain with or for me when I was ill. No one drove down to see me. Friends I knew came from Europe to see me but my parents never came down. I went to see them. I reassured them I was all right, I even took my family up to see them as well.

I just feel terribly guilty and wonder why I should - when I was ill no one, but no one came to see me - I'm not saying that it's right but just that I don't see why now it should be so different or what has changed. Of course it's my dad, he's not got long to live and I WILL go up and see him as often as I can - it's just the way I'm being treated at the moment which is somewhat galling. Perhaps I should just rise above it all - perhaps that - after all - is the way forward.

And Now back in Hospital

Oh dear, poor old dad - he wasn't at all well and now he is being taken by Ambulance to Hospital - that will please him NOT :-(

I spoke to mum and suggested that she checks with the nurse what he is and isn't allowed to eat - poor chap. I think the Pork Scratchings over the weekend couldn't have done a lot of good and then they had a meal of Roast Pork yesterday and I'm sure in my mind that the Pancreas is the organ that assist digestion of fat - although I'm probably off the beam there.

My brother has left work early to go and see him and see what is needed. An awful lot is resting on his shoulders at the moment and in a way whilst I'm still feeling pretty guilty about it and am rationalising things in my head about using my time sparingly in going up there - it costs me not only my petrol but also tends to be a night in a Hotel - well you can probably guess it really starts to rack up even if it is just me going up there. But I'd better work out what I'm going to do soon as if this continues I can't see where the light is - it just appears to be one thing after the other. For someone who never had days off in his life, hasn't been to the doctors or a hospital much he's making up for lost time.