Well here we are again

I have had a light breakfast and from now on can only drink water which is good and means at least I will not get dehydrated as happened a couple of times before.

I am taking myself in this time as it hardly seems the right thing to do to let C come in with me and sit for hours whilst I go into being Mr. Quiet - I can do that on my own easily enough. She will come along after work and see where they have taken me.

My music is loaded and I am keeping myself busy doing a few jobs this morning. I will distract myself long enough for everyone to leave, then go and have a shower and then pack my bag and get ready to leave at about 11. I am due in at 11:30.

I'm not as worried as earlier times but it still isn't something that I enjoy doing. Lets hope that they have a bed ready for me this time rather than going straight to theatre. Going straight to theatre really is quite traumatic.

Slight Nerves but OK otherwise

I'm a little bit fluttery but otherwise OK i am just going off to bed and hope for a good night's sleep. I have to be up early to have breakfast and then I can potter about, pack my case and do other stuff before going.

Strange as it may seem it is again going to be a hot day tomorrow - I do choose them - I just hope I don't get the rash I got last time I was there.

Bed calls - I need to get some rest

A day to go

I'm not as wound up as I normally get and it could be because these operations and treatments are becoming a routine thing. I know what to expect and there aren't any hidden "nasties" out there. It is just one of those things you have to do.

I can - I suppose now count these down like I can with the maintenance. If the results of this are OK then I will have 6 more BCGs, an Operation and if that is OK, a further 6 BCGs and a final Operation. Viewed that way it isn't too bad.

Of course, once I know what the outcome of this batch is and the likely start of any maintenance, then I can do some planning. It is likely that treatments would start in June and September and the next Operation just before Christmas.

The rest of the day is all about planning and making sure I have completed all of my tasks of which there are quite a few still.

That Time of Year

Nothing quite like a walk in a Bluebell Wood in early May.

Courtesy BBC News http://news.bbc.co.uk/1/shared/spl/hi/pop_ups/08/uk_enl_1209989747/html/1.stm

The run for the post

Surprisingly the work I needed to get done, really didn't quite get done and through no real fault here I think. A few miss-communications along the way appear to have occurred which means that tomorrow I will need to catch up with about 30 minutes worth of work on my part.

I need to get my MP3 player loaded with the tunes I want to play and get myself ready to go in. This time I am taking myself in on my own. As log as I can keep a level head, I think I can do this. If they keep me in, getting home may be fun. I cannot walk really but there is a bus from the car park almost to home so I might try that. I hope that they will let me out on the same day if at all possible they did the first time but not last. I don't like staying there for the overnight bit but there you go, needs must.

Surprising what you now take to be normal. I'm still not looking forward to that cannula though - who does?

Final batch of work to be done today

I have managed to get through quite a bit of work and I am now on the final run in to get this lot pulled together before Wednesday.

At least tomorrow I am working from home which will be a blessing. I also found out that I can access my e-mail from home which is great. I need to make a note to myself to remind me to do that on my return - set it up that is.

Well - must away and get on as this blog writing is taking me away from my other work!

Back to earth

Sending out notices to a number of the Lodge members about one of our member's funeral arrangements. A stroke victim and you have to feel for the family as it isn't the first time this sort of thing has happened.

I shall see how fit I am to go to that. I know I'm not allowed to drive for a week or more afterwards.

I've just written the e-mail and now the letters so that everyone will know. Sad thing to have to do but there you go. We all have to go sometime.

I still love this music

I had this and Carole King, CSN&Y in my MP3 player when I went into Hospital. I don't have too much Joni Mitchell or Linda Ronstadt but I have plenty of spin off stuff of the era.

Do you enjoy the lyrics? Here are some from tonight's show courtesy of JT. Actually this one is about a suicide but such a lovely song never the less. Music still means a lot to me. If you are as old as me you may recollect that despite what my Dad used to tell me, you can actually hear the lyrics and the songs stand the test of time, it is so good to hear them now. The surprising thing is that most of the people who sang them actually survived their years doing some serious damage to their heads with drink and drugs.

Just yesterday morning they let me know you were gone
Susanne the plans they made put an end to you
I walked out this morning and I wrote down this song
I just can't remember who to send it to

I've seen fire and I've seen rain
I've seen sunny days that I thought would never end
I've seen lonely times when I could not find a friend
But I always thought that I'd see you again

Won't you look down upon me,
Jesus You've got to help me make a stand
You've just got to see me through another day
My body's aching and my time is at hand
And I won't make it any other way Oh,

I've seen fire and I've seen rain
I've seen sunny days that I thought would never end
I've seen lonely times when I could not find a friend
But I always thought that I'd see you again

Been walking my mind to an easy time my back turned towards the sun
Lord knows when the cold wind blows it'll turn your head around
Well, there's hours of time on the telephone line to talk about things to come
Sweet dreams and flying machines in pieces on the ground Oh,

I've seen fire and I've seen rain
I've seen sunny days that I thought would never end
I've seen lonely times when I could not find a friend
But I always thought that I'd see you, baby, one more time again, now

Thought I'd see you one more time again
There's just a few things coming my way this time around, now
Thought I'd see you, thought
I'd see you fire and rain, now

A Late Evening

It is a James Taylor evening on BBC Four channel. It is really interesting as I came in on the end of this. I thought James Taylor, Carole King and the Eagles were great, Jackson Brown and then CSNY - Crosby, Stills, Nash and Young and so at this early hour in the morning I am sitting up watching a great documentary all about the West Coast and now it is James Taylor's Sweet Baby James and all that. It takes me back to just leaving school and getting interested in music and spending late nights around at people's houses and flats listening to music, getting drunk and smoking American cigarettes!!

I think that perhaps I should have cut back on the smokes! But then we all smoked in the 70s.

I used to think that "You've got a friend" and "in my mind I'm going to Carolina" are just fantastic tracks.

Whilst it is late, the evening is just so fascinating that I am somehow drawn to keep watching. Sometime I wonder why I bought myself a state of the art DVD recorder which I could kick in to record all of this. I'm just like a moth drawn to a candle...

Something you can't buy

A very good friend of mine told me something along the lines of "You cannot buy stature". It then dawned on me that the reason I was OK about the past things - tribunal going against me and so on is that, there isn't a snowball's chance in hell that these guys will ever succeed.

Rationale?:

• They have shown themselves to be untrustworthy to everyone who has met them
• They haven't kept a promise in what must be a year now
• They say one thing and do another
• They speak big and act petty
• They have little or no respect for themselves let alone their investors
• They think that they are ahead in the game but their competitors actually have customers

I could go on but the more I think about it the worse it gets as they have no credibility left and they need to explain to new investors why so many old investors fell by the wayside. Then they need to explain why it took them another year to put right the software after they launched it and then they will have to explain the trail of company names for the past 3 years. Also that if it is such a great idea why is everyone else heading for the hills.

I can content myself with the conversation I had last week with a couple of my partners who I introduced who have reversed away at high speed leaving only those who invested years ago to stay and watch on with morbid interest. At this point the Vulture's aren't circulating but they are perched watching. There is the sort of morbid curiosity building as at a car crash or disaster scene, it is horrible but at the same time you are drawn to look at it. Well some people are.

So - you can't buy stature and you can't buy most of the things I'd like to think I stand for. Today's society seems to be all about selfishness. The one thing you learn if you have to rely on people is that they are the ones to treat properly. Annoy them and you lose just about everything. Lose your reputation as a fair person, a decent and honest person and you may as well go and retire as you cannot re-build it. These guys have bitten the hands that feed them so many times and this time tried to sever the whole arm. They mistakenly think that is how to take them to the top of the food chain but Hyenas still have to pay homage to the Lions (my thanks to Eric Cantona for the inspiration).

My guess is that the reputation damage these guys have suffered and will continue to suffer will make it almost impossible for them to continue in the future. Those who think it is a good idea and have been with them for years are sitting back and waiting for it to happen - if it does fine, if it doesn't - fine, they have businesses to run as well and it doesn't make a lot of difference one way or the other.

As for me, I am writing it all off, putting it down to experience and walking away. I'd like to get out there and assist in their downfall but they already have major problems and a rotten core which will eventually tear the business apart. Anyway, life is too short and there are others who can take up the fight now. They have real money and real contracts in place so they can resolve what they want to do and do it. Most probably sat back to see what would happen in my case before committing to move.

Dont worry - be happy

I find the massive moments of doubt the difficult things to deal with. I alluded to the almost daily worries and concerns that assail you after you have been diagnosed with an illness like cancer. Of course, we know that I've survived it. But the mind worries that if you've suffered one type of cancer then "perhaps" you are more susceptible to getting another and every ache and pain is worrying. My legs hurt - instant diagnosis - bone cancer! My mouth bled the other day - instant diagnosis - mouth cancer, I had a very slight cough - throat cancer. I think you can see what I'm driving at. Every little thing isn't little anymore its a big thing, it is worrying it is the first signs of cancer.

Paranoia you may think and yet it is generally the first thing that pops into your mind when you are not being upbeat. Being slightly down makes you like this. Being happy dissolves a lot of it away, not all but a lot.

Approaching Wednesday's operation I can see that I am getting a little quieter, a little more withdrawn and that I will be less than great company on Tuesday evening and Wednesday morning. I am looking at this quite positively as if this is clear then I will only need to have another 2 operations after this one and so can count them down.

Given that I thought I'd be having this sort of thing ongoing for many years I can approach it like this. I would be very upset to find that I had to keep on doing this for 20 or more years.

Finally on these points. The most difficult thing to get used to in all of this is that I'm not normally ill and rarely have days off sick. It comes as quite a blow to find out that your body isn't doing what it should do and that you can't run like you used to, lift weights or do the things your mind reckons you can. I'm no longer a "young" man physically - my mind disputes that of course. I find being ill, or having to be an ongoing patient very difficult, it isn't the sort of thing I want to make a habit of.

Working on my own stuff now

This weekend - a bank holiday one thank goodness means that I can concentrate on getting my own work done. I used to work the whole lot together but now, I need to give myself time in the evenings and weekends to complete it all.

Hopefully I can get it all done by Monday there is a fair amount to do and not much time to do it.

At least it will keep my mind off of having to go in on Wednesday for my Op. I'm lucky that they let me work from home on Tuesday so I don't have to go up to town then.

I'm feeling OK. I doubt I will be feeling quite as good as this next Saturday but there you go.

Hectic Life

We are coming to the end of a campaign and the money is being finalised, life is chaotic as everyone strives to complete their bit on time. Me? I'm the new boy and I have been picking up the actions that drop off the side. I'm really enjoying this job so much but there would have been no way I could have afforded to work in this area years ago.

Tomorrow we review the last month's work and I am sure that so far the quality and quantity is shining through. Someone said I had done a lot of work and I said that I wasn't getting paid to sit around chatting :-) That raised a few eyebrows when they said but you are the PR man!!

Well, in that case, maybe I am! We will see how tomorrow resolves itself. I am off out tonight and again tomorrow. The weekend is for me to catch up on all my work prior to going in to Hospital next week.

Someone thought I was going on holiday - I didn't have the heart to tell them what was really going on. Perhaps I will tell her quietly tomorrow...

Anyway, what can I say - I really do wish I had been doing this job a few years ago.

It was a strange old day today

I was doing lots of stuff and doing nothing if you know what I mean? I just did lots of small jobs which were 5 or 10 minutes things but I didn't stop all day.

I'm really pleased that members of the Council are happy with the work I am producing and so that is great. I hope that they will enjoy the results more than the initial plans! Then we can all be happy.

I have to get a load of information out of my head and into the Boss's brain by Friday so that I can get on with my Hospital stuff and leave them with plenty to think about.

I still feel quite tired and more surprisingly my legs ache a lot. I wonder if that is just that I am walking close to 3 miles a day and I'm just not used to it or that I tend to sit in one place a lot more where I didn't do too much of that here.

Soaked

Go on - how many times do you really examine the soles of your shoes? Every day, week, fortnight? Well I probably saw the soles of my shoes a week ago and today, as the heavens opened and my shoes filled with water I wondered, as I got to work as if walking in buckets of water, what was going on. The soles of both shoes had hairline cracks in them and like a sponge the water had just flooded my shoes.

Mmmmmmmmmm. Not happy about that at all. A new pair are needed ASAP.

Surprising Outcome

Wow - I lost the tribunal. That was a little unexpected really but says a lot for getting a good solicitor and spending that sort of money on the case.

I was a bit surprised at the result but, reading the judgement can see some (but not all) of the arguments. I'm surprised that anyone would "buy" testimony over documentation but there you go.

What this does do is release all of my intellectual property and releases ownership back to me. All of the work that I put in can therefore revert to me as there has been no reward for it and I can therefore do with my intellectual property what I like. Which, as it happens, given that I now work for a charity, means that I can donate it freely.

It is a strange decision even so, but, that is it. I was even more interested to note that the partners that I never introduced to these people and who are not recognised were all sent e-mails earlier. Such is the level of the people I had the misfortune of dealing with last year. They no longer have to worry about me, they do however have to worry about the writs coming their way from those who want their money back. I lost my time, these guys lost their time and their money. They have signed contracts - I hope that they will fare better than me.

Reflecting on that anxiety

I suppose that so much of the anxiety about going to this pre-assessment is about what they "might" find wrong with you. I know that it is good to know what you've got or you perhaps shouldn't think abut things that way and yet, cancer gives you a niggle ALL the time.

You see everything is cancer. I made my mouth bleed the other day and that was cancer. Had a nose bleed, a stomach upset, you name it, the mind says its come to get you another way.

I don't think there is any logic at all in those arguments but then again, logic and rationalisation go out of the window with something like this.

The nurse said, as we joked about my heightened anxiety, that one of her patients has been coming in for scrapes for 24 years and he still gets stressed out. Now I read that differently. I don't want to keep having to come back for 24 years. It's been 2 years this July. I may get out of this in 3 or 4 years (well that is my hope). I don't want to add 20 more years on top of that. I don't get ill, I'm not poorly, I am generally a well person and to be ill is very unusual. I would find it very difficult to be a habitual patient.

I think though that I may be stuck with the worry that everything was a sign of impending doom afterwards. Having had the shock of being mortal - everyting becomes a worry.

I should think how lucky I am that I work in a place that shows me real life on a daily basis. I think that leveller is going to be a good thing for me. Working for a charity that relieves poverty and distress does mean that no matter how bad you think things are for you, for other people it can be a whole lot worse.

Again, I marvel at my inability to realise how seriously ill I really was, someone did take me to one side and tell me all about my attitude and how it was paying dividends being so positive. I don't feel that at all. But maybe I have built up my own shields and defence mechanisms so well that I project a confident, it will be alright attitude and yet (dear reader) we know that is not the case all the time.

this Hospital stuff really focuses the mind. :-)

Unusual

My Systolic reading is high on my BP and yet the lower Diastolic reading is more or less normal. I'm not sure what that means they were always worried about the lower one being over 90 and last year it was way over that.

So it isn't that bad but of course, the damn thing is falling away now. I think that I will wait for a short while after the Operation and then do some more regular checking. I am quite good about salt levels etc. Having said that, I had a meal out on Saturday that had definitely been cooked using salt and so perhaps that might be contributory - who am I kidding :-)

Anyway, at least it isn't as bad as I feared it would be yesterday and I can go and have the operation.

OK- Acceptable

Well, that was sort of OK. I cannot help but get wound up over these things and yet there isn't a lot to them. My blood pressure was fashionably high but nowhere near my own readings. The walk up to the hospital was slow and deliberate and I was seen earlier than I should have been. They managed to find blood in my arm - despite the fact that many people may think I don't have any!

Had the MRSA tests this time and all the usual bits to make sure you can survive the surgery. I calmed down a bit but my ECG showed a high pulse rate - which is not unusual for me, I had to have beta blockers this time last year! So they were a little worried about that but I got it back under control a little later once they were no longer prodding and poking me about.

I almost got to the point of not remembering how many times I had been in when I was running through it all today with the Doctor - it is always a bit worrying when you have to tell them what you had done? As I was pleased with myself for managing to be reasonably under control I did succumb to a bag of Wine Gums on the way home - naughty but nice!!

So, just a week and a few days to go and I'll be back - not under the knife - but under the tube I suppose! I will be taking myself in this time. I have done it enough times to eel confident that I can manage that and that I will be able to turn myself off long enough to go through it. more as we get nearer no doubt. For now, back home and so can get back to work.

Not long now

I'll be heading off to the Hospital. I suppose I ought to be happy that it is just a short distance away really. It has been "lucky" that we don't have to trek miles and that I can quite happily walk there and back when I need to.

mind you I wouldn't like to walk following one of my BCG treatments! I walk like John Wayne afterwards.

I'm resigned to the fact that my BP might be off the scale today as it was yesterday when I took my readings. I can't do a lot about it so might as well just see what happens.