Remember Kubler Ross?

You may recollect this diagram from some time ago when I was discussing the various stages that people go through especially in terms of someone dying (the grief cycle) and this depiction by Elizabeth Kubler Ross depicts the emotional responses that one goes through. Interestingly we respond to other events in our lives in similar ways and each person responds differently and to greater or lesser extents.

As Change Managers we see this when a major organisational or process change happens in a business. When you get diagnosed with Cancer you tend to follow this sort of pattern. Denial, Anger, Depression are familiar territory too. Being told you are terminal must have a similar impact on you and those around you. Everyone is adapting at different times and in different ways and may be in different phases so it's pretty much a mess all around. It's getting to acceptance that's difficult oh, and by the way, you can slip back and repeat some or all of the cycle again - quite easily if my experience is anything to go by.

Call me sensitive

I was left wondering about the phrase my sister in law used on Sunday night "Don't worry we'll look after you dad for you" and being the cynic that I am - or maybe I was just raw - didn't find it particularly the right thing to say. I'm probably taking it all far too personally but my brain gets thinking and one of the good retorts would have been - "oh so you're going to keep him from dying then?" or some such scathing ugly witticism which, unfortunately my brain is nasty enough to retort with.

I've often worried about that side of my character and in a way could do without the holier than though attitude displayed - if it was actually that and if I didn't read it wrongly. As I mentioned before in my blog, no bugger came and saw me when I was ill and so read into that what you will. I sound a bit hung up on this but it's the guilt of it all. You see, when my parents were local I used to see them every 4 to 6 weeks and they often used to come around here. We used to take the children a lot to see them but they've never ever babysat them whereas my in-laws have on many an occasion. I'm trying to set the scene here for why I shouldn't actually feel guilty. They all moved away around 10 years ago. Since then I've probably seen them twice a year. On some occasions I've seen my parents a bit more often when I travelled a bit more than I do now as I'd plan a stop on the way up or down the country.

My brother lives next door in relation to me - you can walk between their houses in 10 minutes and yet it sounded very much as if they were doing me a favour not being neighbourly to my parents. As I said, perhaps I'm reading it all wrong but it's unlikely me to get characters wildly wrong. I perhaps let people have the benefit of the doubt a little longer than most people would but generally I can smell a bad un. I was amazed that there were 7 of us at the pub and my brother never stuck his hand in his pocket - this from a guy that took a pay cut larger than my yearly salary a few years ago! I could go on about some other stories far worse than just not standing his round (it's a big social stigma in the UK is buying or standing your own round). I then found out that they'd had a bumper day of sales that day - which they didn't mention when we discussed their side business. Pah!

So there you go how to get all bitter and twisted and to balance the going up and seeing your folks who know how busy we are and how difficult it is to get all of us together. It was good that we managed to get all 4 of us together in one place. the girls haven't been to see them for about a year although they did go for a day to pick up 2 large dolls houses - they have one each of my mums houses that wouldn't fit into the new house.

I just need to get my head around it, get the balance right etc. We've offered to do what we can from where we are. I've suggested I can bring up his brother and sister in law to see them - but - he's not that keen. Dad doesn't do visits or anything else - he's always been a very private person and talking to Mrs. F. I realised that my mum and dad don't have any friends at all. They've never had friends around them. Dad's work friends are long missing in action and whilst they know the neighbours it isn't the same at all really. I have no idea what mum is going to do after dad has gone. Maybe she will retreat into herself for a period but I hope that perhaps she won't. We will be able to have her down with us for a while as we now have a spare room. Perhaps she'd like that and perhaps we can introduce her to some new activities or ideas. It worries me that my parents have always done things together, have been inseparable and that they've lived quite quiet, private lives together. Another hurdle to be overcome in good time.

I really don't understand how I'm handling things at the moment, I had a nice experience with my dad this time and he was able to be at his best for a good part of the time. We never did discuss what he wants from me or the elephant in the room but perhaps - after Wednesday - we can start to build up what's needed. I will speak to my mum about it as I've said to her "what do you want from me?" She knows the difficulties as well as I do and she realises that neither of them want me to be there all the time anyway. It's a balance thing and my brother and sister in law are on hand.

Well I'm back to going around in circles and not answering this question or situation properly as it is just too difficult to deal with.

Stunned Silence

That's what I feel like at the moment. The weekend started off well enough we got to Cambridge and picked up L from halls and she was a lot more chatty and animated and so that was good and we drove up via the outskirts of Lincoln and had a break. What I hadn't realised is that we hadn't taken the kids (Kids! 18 and 21) there since they were small - and I mean L was a baby and we happened to be staying nearby so I took them to where my mum was born and the farm house that I used to stay in with my Nan, then her next house where she lived until she died. Past my Aunt and Uncles place, the wharf, the drains (canal drainage) and drove past the old church where my real granddad was buried (I had 3 but only even knew the one).

We got to the Hotel, booked in and had a good evening party with my cousins and my aunt. We will be back up there next April for a wedding which will be nice. I can't believe it but my cousins are 37 and 30 :-)

We drove down to my parents yesterday and stayed overnight (just) when the Hotel sorted us out a couple of rooms :-)

So what can I say, dad looks frail and has lost a lot of weight but his sense of humour and appetite seem to be OK - much better than when I last saw him. He's got the operation this Wednesday and they need to remove the plastic stent and replace it with a stainless steel one. After that we will see what happens. I've known my mum and dad be argumentative - not in a nasty way - they've disagreed about many things may perhaps be the way of it. Mum has flatly banned dad from driving - she thinks his reflexes aren't up to it and I'd have to agree on that - between the two of them though there was a bit more to it than usual. I think it's all to do with the way my dad is charging around as if he can climb Mount Everest and yet he isn't steady on his feet, she is being over protective and he's pushing the boundaries a little too far - as if "danger" is his middle name!

I'm of the opinion that they are in the denial stage at the moment and entering the anger bit. It's difficult to come to terms with and whilst we spoke and we chatted it was definitely the "Elephant in the room" and whilst dad and I spoke about hospital and some areas about cancer - we didn't speak about anything further. I just wished him well on that and we will see what happens after Wednesday. I need to find out about any treatment and I guess they will broach that then.

Met my kid brother and his wife and son. He brought his father in law along - I haven't seen him for years and of course his wife died only a month or so back so I spoke to him about that for a while. So I bought a drink then he did and despite waiting for my brother with a long pregnant pause he wasn't going to buy a round so I ended up doing another. He can be a little bit like that. We had a good old laugh and joke, talked about dad and all that and then his wife told me "Don't worry, we'll look after you dad for you". Now take that as you will but why not cut me and stick me in a barrel of salt? What the hells was that about? But then I've never really got on with her or my brother so it is pretty much par for the course in my estimation. It's difficult enough to get up there and back for us but as I often say - I'm not the one that moved away from here - they all moved away from me and to a place where you need a car to do anything, it's just bizarre.

So apart from that - which I may have misread - I did thank them both for everything they are doing for dad. If they were expecting me to run up and down - then they'd best not hold the breath. With good roads we made it back in 2 1/4 hours - about the best we've ever done from them.

I'm feeling pretty sad about dad at the moment and you can see it is tearing the place apart as the illness starts to get a hold on him and as he gets frailer. I helped him up at one point and his arm is all bony as are his fingers and that of course was a big shock to us as we haven't seen him for some months and he was a couple of stone heavier then. It's nice that he had time for us, this time. It was nice to see him at his best but we did speak about the forgetfulness and other side effects, searching for a word and knowing what it was but not being able to utter it and other stuff I used to find. He's a smart guy and he knows what is happening to him, that's the trouble and that's the tragedy of it. That and that its the anger and denial and no doubt the effort my brother and sister in law are having to put in to control it all. She's doing a grand job but I don't need to be reminded how powerless I am all the time!!!

Well here's the weekend

I'll be heading off in the morning to do the round trip and pick up L from Cambridge on the way - off to my cousin's 30th birthday party for Saturday night then back down to see my dad on Sunday afternoon - and my mum too. Drop L back to the station to get her back to Cambridge and then see my brother in the evening. Go and see my folks again on Monday morning and then get A and Mrs. F. back here for the afternoon as A has to go off and run her Rainbow unit.

Oh well - let's see how it goes - not looking forward to Sunday but perhaps it will be OK.

More when I get back.

Nice evening out

Just myself and a friend and a few beers at the Conservative Club and then we went to a Greek restaurant locally - I've never been there before but it was excellent - a good price and really good food, nice staff and apart from the ambient noise (quarry tiles and large open ceilings).

So nice I'll have to go back as the food was really good and I had some Calves Liver and followed up by kleftiko (literally meaning "in the style of the Klephts", this is lamb slow-baked on the bone, first marinated in garlic and lemon juice, originally cooked in a pit oven. It is said that the Klephts, bandits of the countryside who did not have flocks of their own, would steal lambs or goats and cook the meat in a sealed pit to avoid the smoke being seen). It was beautifully tender and I haven't had one like that for about 15 years or more!

It's local too so hopefully I can get some of the family to go with me next time. Things are moving a pace with the business but I'm now getting ready to go and see my Aunt and cousins and then go and see my dad. I had a long chat with my friend about that tonight and he was very gracious and let me get a load of s**t off my chest - good friends do that. I think I'm ready to go and see the family now :-)

You're just different to me that's all

As I say to some people. You see, there's what it is and what it is, perception and angle you view it from all make us each what we are. Too many people expect conformity from me but, I'm now far worse than I ever was and I don't really conform to normal patterns. I don't think the same and I'm not made up like some people - I find that people seek my opinion and then don't like the answers they get :-) Funny isn't it?

Then there's issues like my dad not wanting to have this huge operation and me defending his corner even though it will probably mean an outcome nobody wants - everyone wants to go to heaven but nobody wants to die.

Given the possibility of being laid up for a month or more because of the operation which may extend his life by a couple of months then the answers are obvious to him and to me. Not everyone gets it though. That's why a lot of people are different to me - they don't face the facts and they don't get the pragmatic decision that needed to be taken.

Back's a little better

What a nightmare that was - I can't believe how many times I've hurt my back recently and so I think I've got to go back to basics here and be very careful about the amount of exercise I do with it. You honestly can't feel it except occasionally when it gets to high speed and your legs feel like they'll cramp and also your sides begin to burn - now to you that would have been a warning sign - to me it was a sign that things were working. I will just have to tone it down to the medium slow pace I originally had it on and not do anything strenuous on it.

After many thunks of Nurofen it appears that my back has stabilised a bit and so I'll be able to go to bed and get some sleep tonight. Hopefully I'll be feeling a little better in the morning.

L appears to have settled down now and it sounds like the locals in her halls are a bunch of social misfits. She's going to hang it out and find people on her course and then it doesn't matter too much - they can form their own clique and to hell with the neighbours. Mind you - who knows with these things - it's their first time away from home and they are all probably at each other's throats.

Sorted

Finally sense has broken out and everything can be done in one go and at one time. A phone call down the right ear and it was sorted out. It doesn't need to be like this people.

On the other front - everything is quiet and we haven't heard from L so hopefully she has settled down a bit and gotten a sense of proportion and met some of her fellow students now.

I've woken with the backache from hell so no more exercise for a few days until I sort this. It must be the vibration plate it doesn't feel like you are doing that much exercise and yet you must. I will need to take it right back to the lower settings = I'd built up to over 50% but obviously need to tone that down a bit.

More Craziness

So Dad needs to go in for tests - of course my kid brother can't keep running around but they want him in x number of times (why they can't coordinate it I don't know but as I reassuringly say to my parents - don't ever expect them to move at your speed or do what you expect them to do). So they say they can send a car for Dad (or transport or whatever) but my mum (who now hasn't driven a car for about 10 years I guess) cannot catch said car, bus or whatever with Dad she will have to make her own way there. Dad, who hates Hospitals won't go anywhere without her.

Does anyone see a problem in this at all? Obviously not the powers that be in the Hospital fraternity. Some limp wristed wet jobsworth who hasn't got a grey cell in between their sodding ears can't work that one out then. Older people who live miles and miles away and have to have tests and aren't allowed to drive after them and are asked to have someone accompany them on the one hand are then refused the best way to comply with that request. I bet a lot of older people who are ill no longer drive and looking at the prices that they scandalously charge at Hospital car parks these days (don't get ill if you can't afford to pay to park your car - and if they delay your appointment you can get a fine for not having the correct length of parking ticket on your car!!!). Don't get me started. Well I've already said I'll pay for taxis but it is just criminal that they cannot sort something out and that they need to have multiple visits when one would do. It causes all sorts of problems to the patients, it can't be a great way to conduct business and it can't be doing much good to anyone really.

If it wasn't a criminal act, which would stick you in jail by the wet liberals in this country, I'd like to go down there and kick some people up the arse until they actually did the job that they are paid for. I mean here is a shocker for you here is an article that came out in 2004 and there are others more recently here and here that give the shocking truth that our NHS which you hear all the shocking stories about it being under manned and wasteful and too many closures and all that is the fourth largest employer in the WORLD. Yes the world - how about that? SO when someone was ranting about losing 10,000 people in the NHS this year they should perhaps look to note that natural wastage of employees in the NHS is around 50,000 per year anyway.

All those people and they can't sort out something simple like getting a sick man and his carer together on the same transport FFS. Get a sodding grip people, no wonder the world's in the state that it is in if you can't arrange a piss up in a brewery - it really is simple stuff to sort out.

Not Again

Well I don't think so - got the "can I come home?" message tonight. Luckily a talk with A and Mrs. F. averted the crisis. What's wrong with people who expect (in less than 24 hours) that it won't be a little difficult to make new friends or to perhaps be lonely. It must be me - I don't get it. I suppose having wanted to get out of the house (in a nice way) and working away from home, wanting my own flat etc means that I've quite often found myself in strange places, knowing absolutely no one. However, I think I'd have given it a full couple of weeks first, I mean Uni hasn't even started yet FFS!

Mrs. F. could obviously see how annoyed I was about it but sense appears to have prevailed. I just find it difficult to work out. It's not as if she hasn't gone off for holidays, a huge trek in South America or other such things - there you go though - you sometimes can't work it out can you - or it must be me. I find the whole thing preposterous and it's like not liking something you've never tried, some sort of fad.

Anyway - it appears that she has taken refuge at the boyfriend's house and will retry tomorrow to get to know her flat mates. Maybe she'll give them a little time to get to know her rather than expecting life long blending in 5 minutes. Right - Cynical and Sarcastic voice off and flame off for now.

Cancer Fighting Strategies

A friend of mine posted this on Twitter the other day. I've reproduced it here and it's worth having a look at but in my ignorance I can only really comment on the Oxygenation piece that mentions to FOCC budwig part of the diet that I follow which so far, touch wood, appears to be doing fine by me - especially in the area of my blood pressure which remains normal - which is pretty good for me :-)

There are a number of things on the list that look as if they make sense but I'm no practitioner and so I'm going to be spending a bit more time reading it slowly and taking it in and seeing if it makes sense to me.

There is certainly a lot of information there and as I said above I can only really comment on the Flax Seed Oil and Cottage Cheese protocol and not the rest.

How annoying

We went out for a curry and had a good evening but then L realised that her eyes were hurting and it looks as if the eye infection she had before she went away had returned. So she dashed off to A&E (ER) and got that sorted. In between times some friends had dropped in as surprise but of course she wasn't there!

I went to bed quite late and was woken by serious a really stomach ache and back ache and I couldn't get comfortable but it wasn't or didn't feel serious it was just hurting a hell of a lot. I'm almost certain it was trapped wind whcih I won't even tell you how I came to that conclusion but it meant I couldn't travel with L, A & Mrs. F. to Cambridge. I eventually got up some hours later and slowly began to feel better and now I'm off to bed early to catch up on the sleep I didn't get. I'll be seeing L next week to hear how she's got on this week and no doubt we will talk down the week.

I spoke to dad he's getting over his horrible turn from the hospital last week or whenever it was. He's bright enough but has a series of appointments and procedures this week! I've suggested mum talk to them and understand why the letters they've received are different to what they've been told. I've set the scene in a way too that I won't be around for the next couple of weeks after we go this weekend.

Well - let's see what this coming week brings. I know I'm going to miss young L being around the house but as I said to her this morning - she's going to have the time of her life in between studying so go for it and enjoy every minute of it. Her friends who have now finished have all said that they really wanted to be back at Uni as they miss it so much.

Live for Today

I believe it was Dale Carnegie who coined that some years ago - it was to do with - and I'm paraphrasing this so bear with me whilst I put my spin on it:

You live for today and mustn't regret the past - that has happened and you cannot do anything about it - it's in the past and that's gone. Neither must you live for tomorrow as well it may not arrive, it means you're not living for today which is the only thing you can live for. Tomorrow hasn't happened, the past can't be changed. In a way it is a difficult way to live as if you are like me you may regret things in the past and sometimes I look back and we were having a conversation tonight and my daughters and my nephew were amazed that you were allowed to smoke on trains, on the underground, in planes, in shops and all over the place. I regret that I ever did smoke but that was the life I was brought up in, everyone smoked and all your mates smoked etc etc.

The point? Well the point is that I was trying to explain that there's things that you need to let go - it's difficult and it isn't in our nature but I am trying like mad to let go of the past as it doesn't help me and it holds you back and that's not good. It warps your mind can poison it too. This is what I find, that things I regret can become a burden and yet there's nothing I can do to change it and that word spoken in anger, or some sort of action I now think wasn't right cannot be undone, forget it and move on. I am finding myself regretting the past but also building up a sort of hit list of people who'd done me wrong and I was planning revenge that realistically I couldn't take, blaming these people for something that it isn't really possible that they'd actually done.

The brain is a strange thing and so I found myself with this stupid set of thoughts and decided that it was time to do something about them. Then Dad got ill and L is off to University proper - staying away and I can see that there's a little reticence about it from L and Mrs. F. and yet I see the positives in this and would have jumped at the chance. It isn't as if we are that far away. But what I was getting to was to be positive, go for the day as tomorrow hasn't happened yet.

So Dad's situation is all about the day and the future isn't looking nice but like us all we can't do anything about that. We can just do our best everyday and not waste it.

The Last Supper? Well Last Curry Actually

We are off out for a family curry to say goodbye and wish good luck to L who is off to Cambridge tomorrow to start University and Freshers week. I really hope that she looks back at this as being the best 3 years of her life - well maybe the rest will be too but you know what I mean.

To me, these years cement your future and you "grow". Mind you I never kept any of my college friends as I didn't particularly bond with them - they were all right but I'd never ever consider them as life long friends - they were just people I worked with and happened to go to college with. In fact I only have one friend left from that time. Both of our lives have been intertwined and it is a shame that the other one from that sort of era died earlier this year. My friends are either old school chums or friends from recent work or from my Masonic circle. Lot's of my friends though met people at University and they still know them and in some cases their marriages were from people they met.

I hope that L gets to meet good friends and has good times as well as enjoys the course she is on. It should be an interesting course for her as she is very good at maths and her course includes business, finance and accountancy so pretty comprehensive and I hope a good foundation to go on and do what she wants in life.

I enjoy it when we all go out - we don't do it half enough in my estimation.

Context

Putting it all into context. That's where I am at in my life at the moment. The business is coming together and making a lot of sense now that the planning is almost but not quite finished. It's been a long road and in reality, we haven't actually started unless we get funding and it all could have been done for nothing :-) That's the reality of the situation and hard as that may seem, it's the bottom line about the business. I'm also involved in another business start-up that is in very early days too and one that may pay some dividends in a few years time. So that's business.

Family will suffer a big upheaval this weekend as L goes to University. Unlike A, she will actually stay away and be in Halls. She's justifiably very excited and a little nervous too but she has a great personality that will carry her through and her boyfriend isn't too far away and in fact neither are we if it comes to it. I used to drive there and back every day for about 6 months when I worked in Cambridge so it can be done :-)

Then there's Dad and his situation to deal with. That is getting a little interesting as his birthday coincides with my Father-In-Laws who is 90 this year and My Nephew who is 30. My cousin is also 30 and we are off to her party in a few weeks - the weekend I go and see my dad. So my sister in law is planning a joint 30th and 90th party which would take place at the weekend when it is my dad's 81st birthday. Do you see the problem? Of course, I'm not sure my Dad would actually want to be doing much to celebrate. We did something for his 80th last year - and of course now I know why he wasn't particularly great at that either. Doctors reckon that dad could have been suffering some sorts of problems for 18 months or more. That fits in exactly with my recollections of the 2 or 3 times I've seen him in that time.

So a number of things will be coming to a head shortly and work and family are the main ones. In a way, I'm hoping that I'll be able to keep some sort of control over some of it but, of course, quite what happens when I see my dad in a week or so will determine what actions I'll be taking on top of the work I'm doing now.

To add a little pressure to everything else I'm trying to sort out finances for the Lodge and need to get those sorted pretty quickly and in between times - it's all a bit much. At least later this month I get a weekend away with my buddies down to Margate - which I hope will be a laugh like it was 2 years ago (doesn't time fly!).

Some Good News

And that's that Steve Kelley over in the US has got another clear from his scope and that they are using new improved cystoscope that means he can go straight on to BCG treatment tomorrow.

That's great news indeed but there's a bit of a mixed bag about the ongoing treatment. Read Here for more information.

I'm quite grateful that my Hospital is 5 minutes (at the most) drive from here and I used to have all my treatments at 2 pm but for Steve who has to go a long way for his treatments it's a different matter.

Anyway, the absolutely brilliant news is that he is clear and can once again go on for the next stage of treatment.

Jazz Night

Was a really good evening and I really enjoyed that first beer - it went down a treat :-)

Didn't talk about Dad to my friends as they are much older than dad and one of our number isn't going to turn up again as his Parkinson's Disease has led to complete lack of control (if you get my drift). Bless him, he's been fighting this for about three years I think and suddenly it's out of control and it is just so sad. So I didn't even bring up my Dad's news and then the other very young chap who had Appendix Cancer now has a UTI so he isn't feeling great. The music was very good though so the list of ailments and problems was kept to a minimum :-)

Whilst I'm writing, let's spare a BIG thought / Prayer / Finger Crossed / or whatever else you do to wish Steve Kelley well on the 8th September as he has his Flexible Cystoscopy. Let's hope that it is all clear and that he can progress on to his next set of treatments (I believe it is a maintenance set of BCGs). Steve's had the whole of summer off and has been looking after himself with a new diet, FOCC, exercise (which still sucks) and various supplements, all of which add to a regime of eating and exercising in an effort to combat cancer and it's causes.

Things move on apace here as L gets ready to go to Cambridge this weekend. I'm so pleased for her. Of course we are going to miss her a lot but what an opportunity and one that I never experienced - I just hope she grasps it and realises that these 3 years will probably be the best of her life and also that they will bring her life long friendships and experiences that she can cherish forever. I really wish that I had those opportunities when I was her age but if I had, I wouldn't be here now - I probably wouldn't have smoked or worked in the industry I did, met Mrs. F. or had A & L :-) so there you go! :-)

Back in my groove

I'm helping other people come to terms with my Dad's problem :-) Doh! Just like I did with mine, I've been doing the logic and medical bit and saying how it's going to be. It's a bit bizarre as the outcome is pretty much written although I hope to speak to him and see what state of mind he is in about it. I think it will be very different to mine and I've to respect that of course.

Many would think it somewhat selfish but I doubt that they'd have the background and experience to make that sort of call. I like to think perhaps I do have that sort of background and experience and can offer the advice I have without it being impertinent or not called for.

I said it earlier on in this blog that you tend to get the Snake Oil pedlars and Witch Doctors rattling on about something that can only be drunk on the fifth Saturday under a Blue Moon when the Rabbits are mating in the trees or some such tripe and utter bollocks. They really can go to hell and the fast way :-) I won't be pushing anything of the sort - all I can do is explain what I do and see if that's something he'd like to look at. At the moment, even I don't know if it's the right thing for me but so far it's worked so perhaps for him it may help some way. We'll see.

I do feel slightly borderline on things I have to say - I'm certainly a bit confused about what to do. It's a silly question to have but we communicate on very similar plains my dad and I and we don't really tend to say much to each other. We have a laugh and a joke, we are pretty similar people in many ways and I'm not convinced that he's going to want me to be attending his side a lot. Certainly see him more often but I can't imagine him actually wanting me to be there that often. I'll speak to him when I see him and see what he wants to do - after all it's his decision and I'll follow his wishes.

A Plan

I've been speaking to Mrs. F. and I reckon I could make a plan to go up and back most weekends to see my dad. I guess it all depends on how serious things are, quite how accurate the medical team are and quite what his expectations are. I'm trying not to sound mechanical or uncaring or that in some way my presence will not be too much or too little and not an imposition. Of course, what IS the right thing to do also comes into it.

This month I'm only available to see him on the day I have free to see him. October may be a bit different I suppose especially as it is his 81st Birthday. It's mostly up to him and I'm wanting to be there and at the same time not wanting to either.

It's all pretty confusing at the moment. For example, I see my parents once or twice a year and have done for the past 5 or so years. I saw a lot more of them before I was ill as I was driving a lot and so made detours to go see them on the way to and from Yorkshire where I worked for a while and on other trips too. When they had the old house we stayed a little longer and generally we try and stay for two or three days at a time. We coincided a Narrow Boat holiday to cruise right past their door and stayed with them then too. So I do try but the main contact is by phone, religiously twice a week now it used to be once a week and when needed.

So I'm in a dilemma about being good company or not and I'm being a bit selfish too and I don't know if I'm going to be comfortable with myself for not seeing him more. Let's face it, if he'd have had something that brought about his demise in the past few years I wouldn't have been there and that's the problem with it all. I have lived in this house for 23 years and I've lived for the most part here since I was 10 years old when my parents moved out of London. It was my parents and my brother that made the move to Norfolk/Cambridgeshire and I have to accept that I'm a bit stuck about that and what it means is that I wont see my father many times more now and my brother will see a lot of him. Maybe I feel I'm not doing my bit? Maybe I am? It's a quandary all right and one I'm not sure I have the answers to at the moment.

My friends all tell me it was important for them to be there at the end to have had the time with their dads especially one whose dad died very suddenly.

So my side is this. I've lived through my illness and I may still be living through it as far as I know. I very much doubt I'll have a normal life any more. The sword of Damocles hangs over my head every time I go to the toilet and urinate and every time I go to be checked. My cancer can come back and without doubt it was my burden to carry and whilst I am aware that everyone around me may have suffered - I very much doubt that it matched the physical symptoms but I know that mentally it did affect many. Mrs. F. and the girls are pretty pragmatic people. As a family unit we are pretty much matter of fact, logical, things will be what they will be and I dislike myself immensely as I too have a very matter of fact outlook on what is happening now. Sure I do get troubled and I do worry and I am sad but I'm also a realist and things have to be what they will be. Life has a beginning and it has an end.

I know what I dread and that is seeing what I saw in myself and after having lived through my experience I will see in my father what I saw in myself but what didn't happen in my instance (but could well have). Some take my attitude as being hard and uncaring and yet in reality that isn't the case, it is being realistic. Should I go see my Dad many times a week when frankly the last time I saw him that often was when we worked in the same building 20 years ago. Generally I'd see my parents 10 times a year when they were local and now I see them twice a year if we are lucky. I don't know - I'm sure my mum, dad and brother will make their opinion known when I see them in a few weeks.

It's also fair to say that I'm not very close to my dad either - we get on fine don't get me wrong. We laugh and joke we aren't in any way estranged or anything like that but he is and always has been an introverted and very private person and whilst he will always be my dad, we never did things together after I left home. We've never been out drinking, cricket or football or any event I can think of and I've no complaints about that either - it's not my thing either. We did all the father and son stuff when I was a kid so that was great. He's been great with the Kids - he's known as "Funny Granddad" for good reason, he's there if you need him and he's never given advice (unlike my mum LOL) except when asked for and never ventured to many opinions - occasionally when I was a bit younger he gave me some sage words of advice (I was a little headstrong before I settled down a bit).

And that's it. He's never asked me for anything and we all get along OK. I have a number of slight moans about him not doing things like attending family parties and get togethers leaving us as the lone representatives because my brother doesn't "travel well" either by the looks of things. My exile during my illness and the fact that the spare rooms no longer exist and I stay in a Hotel (well Pub) nearby these days to make the journey more bearable and to have a bit of extra time there.

I feel like I'm being really selfish about this and I know I'll be unhappy with myself if "I'm not there when..." or should something happen but at the end of the day, if it had been local and they hadn't moved then I could indeed share the car journeys, hospital visits and some of my experience I suppose. It's a guilt trip and one that I probably cannot win because no matter what I do decide to do it won't be enough either in my eyes, my parents or my brothers.

Wedding Update

It was an interesting wedding venue and the bride and groom stayed in a tree house for their first night which was near the huge marquee and tea-lit woods.  Very unusual.

My dad was mentioned but only in passing and so I didn't have to listen to people not being able to express themselves.  I have a very simple view of these things and that's brought about through my own experience - of course.  Spoke to mum today and things seem OK, dad's recovering from this awful bug he picked up at the hospital but other than that he is fine and beginning to eat again properly.  He was being cheeky so definitely on the mend!

I heard one bit of advice about "being there" as often as possible but I'm not sure that is possible for me as such - it's difficult and we are having to make arrangements to be there.  I know I should try and I'm stuck here wondering what I should and should not be doing.  Perhaps dad will give me his own message when I'm there in a few weeks time. In a way that's the difficult part for me, I work all week, I haven't paid myself in over a year and I need to get things happening for my own family and myself so using up my spare time - of which I have very little is going to be difficult.  I'll just have to work out what I can and cannot do in the time available to me.  Sound callous but somewhere along the line I need to be realistic.  I'd dearly love to be 30 or 40 minutes drive from them so I could see them at weekends and once or twice a week but I'd need to invest 5 or 6 hours to do a trip and that really slows down and limits my available options.

That's arranged

Booked hotels etc so I can go visit my dad in a few weeks time. Girls will either get there themselves or come with us. So far so well planned.

Interesting day today as we go and celebrate the first of our friend's children to get married. Wow, I feel old now. It's been around 30 years since all of us got married and here's one of the youngest ones getting married. Amazing.

I'll be chatting to some friends this evening about dad as they now know and we will just see how it goes. I hope it isn't too bad as we should celebrate the wedding not be sad about my dad.

Rude awakening

At the crack of sparrows this morning. Kid brother had been up most of the night as Dad picked up some horrible bug at the Hospital and was in a bad way getting the Doctor out to come and see him. Highly unusual. Dad's hardly ever ill and as mum said - "he's making up for it now!"

My kid brother said "did I wake you up" and I said he did and then he looked at his watch! Doh...

I was pretty tired after being up in London and so wasn't at all with it. Anyway, things have settled down, the person who got the most amount of rest after the Doctor sorted him out was Dad :-)

It's one of those things I suppose, we might have to get used to Dad being ill more often.

Facebook

I see my brother posted to Facebook and it was a heart rending sort of statement. It says "Not once did I ever feel that I don't need you in my life. No words are enough to describe how much you mean to me, Dad. Just want to say, I love you."

Well - yes that's true but at the end of the day I kind of think he knows that. It invokes sentimental messages from people that know us but it doesn't for one minute address the issue and that is - "Dad, what do YOU want to do?"

Only in that conversation - which I intend to have in a few weeks can we hope to sort this out. It isn't my illness or my brothers, my mums or anyone of my realtives - it's his and he must decide.

Slept well enough

Mrs. F. suggested I listen to a Radio 4 broadcast about terminal cancer this morning but, in all honesty, its a special day and I don't want to make my mood any worse than it is because it is the 100th meeting of London Lunchtimers and I'm the Chairman so I need to be on good form.

I'm meeting up with a friend afterwards for a couple of beers and a chat so that will be nice. As long as we aren't too late of course. I could do with a little company and he's a nice guy.

It's a strange day - I'm sort of OK today - I slept quite well - it must have been the couple of rather large scotches and I'm not feeling too tired either - I just hope that I do well at lunchtime and that a few late afternoon beers and a chat will make me feel a bit better.

How things look after a few drinks

Mrs. F. looked at me and knew pretty much what I was thinking and A, my daughter, was pretty upset when Mrs. F told her. Not surprising, he's much as I remember my grandfather was to me, a lovely man. Talking of which I went back to my Grandparent's house in my subconscious/dreams last night. I remembered every bit of the flat, where everything was even the smell of the place and my grandparents speaking to me. Being an awkward teenager and having nothing useful in terms of conversation, taking my girlfriend there for their 50th Wedding Anniversary but I recall, this perpetual calendar my granddad had and as you turned over it's art deco style chrome canister it changed the day (unless you did it too fast). It was the most fascinating thing.

I sit here at way gone 1 in the morning knowing that the booze is probably talking a bit by now feeling a little tearful and yet thankful for having been my parent's child. I can see it no other way, not having been brought up fairer by anyone else (although in my youth I may had happened to mention what my friend's parents let them do!) and in all honesty I just want Dad to have "no regrets" - by that I mean that we always had what we needed and more, we weren't poor but neither were we rich, we got by and I've no axe to grind about it. Whether I'm brave enough to say that I don't know, time will tell on that one and I'm certain that Dad's never wanted for anything else from us. I'm sort of gutted for my mum, my parents are close and have lived as a couple for over 50 years. Modern day marriages (mine especially) aren't like that - I've worked away for a lot of the time and I've worked long hours and sometimes I wonder for what?

Any way - it's getting very late now and I've had my glasses of scotch and reflection. Tomorrow I'm off to London for our 100th Meeting of London Lunchtimers and maybe, just maybe, I'll have a few beers after that. I may need a victim to go drinking with or might just come straight home and have one or two at my local and then wander home.

All in all - it's been one of those days. I have full empathy with my dad as I recollect how wretched I felt when my doctor told me he thought it was a tumour) that's before I even had it checked out. I fell apart completely when I got home and so I can only begin to imagine what it is like at home at the moment. It's a big thing to come to terms with. I remember going for the job at the charity and the President asked me "Did you think you were going to die?" and I said "Yes, I did". You may think it was a cruel question but he knew that the job I was going to do and the work needed as their first PR person needed me to understand what that actually felt like. I felt it once and I never wanted to feel it again and then today happened.

I don't feel drunk or even squify - no idea why not. I just feel distant.

And now I do feel bad

My brother sounded quite shaken on the phone and I can see why. I'm quite shaken up myself - I didn't think I'd be because I'd prepared myself for this. It's a fact that we all have to go but it is also a fact that we would rather go on our own terms.

Pancreatic Cancer - 10 months if he has the operation 6 months if he doesn't. It's slow growing in someone his age but even so, 6 months is no time at all is it? In younger people it is more aggressive as I recollect from some of the people I know who have had it.

I'm shocked and yet I knew this was coming - I suppose hearing it and how upset my brother was didn't really help things that much.

I might be feeling a little uneasy

But I'm sure my parents are going through purgatory and my brother probably is too as they meet the expert team discussing Dad's Pancreatic Cancer. I'm powerless to do anything as are we all of course. I must stop myself living it for him too - it will undoubtedly not be good for me.

I said a long time ago that your disease is yours and although you get support it's really only you who has the mental and physical battles. Anticipating what it will be like, how you'll feel, how others will feel and so on make for an interesting combination.

We all want to go to heaven but nobody wants to die - but we're all going to and that's the thing. Can you do anything about it? Not really, just come to terms with it and understand that is what is going to happen. You just hope it isn't too soon!

Well it wont be long now until I hear what the experts have to say. I suppose it will be all the obvious questions that Dad will have to ask and I do hope they've written them down as I told them to. These are important but they do have a local nurse who is able to answer any questions they've forgotten or that may arise.

I wouldn't want to be sitting in on today's meeting at all. I feel bad just typing this.

Tomorrow's The Day

Dad will get his discussion with the medical team and will find out the situation about his Pancreatic Cancer. It's early stage, that's good, it's Pancreatic which isn't quite so good and he's coming up 81 which makes things a little difficult and therefore subject to the "quality of life" discussions.

I'm trying not to sound blasé about it - it isn't, after all, a subject to be blasé about now really. I'm sort of hopeful that because it is early that they can give him something to slow things down and that he'll have some sort of opportunity to spend some time in doing things whilst he is able. I'm in some doubt about it myself, I know enough about Pancreatic to be dangerous and so decided not to go up and sit in on the meeting tomorrow. What good could I, a survivor, actually do when I can't imagine that there's going to be that opportunity given to him.

No matter what happens tomorrow, it will be a shock and it will be traumatic. I've to wait for the call in the late afternoon (I guess). My brother takes these things badly. I seem to have come over all calm and OK about it but I'm on the edge, I can feel it and I'm not sure how I'll react. I know what's coming and I think I know how I'm going to deal with it and yet, somehow, I'm struggling because of my own experience. I'm bordering on the edge, I can feel that and I think that it may change things. I've never been close to my father and that's because I'm very much like him. I'm sure he too has a similar psychometric profile to me. We don't do relationships very well and we have a number of other traits that may be perceived as being quite cold and almost ruthless but we aren't really.

I see a lot of myself in him except for some areas and I'm wondering if things will change and we will get a little closer, either through shared experience or through talking a little more deeply than we normally do. He is a very private person and I'm probably not quite as bad as that.

Anyway, it will soon be tomorrow and we will find out the prognosis and I guess the amount of time left - there I've said it!! Everyone dies of course and it wouldn't be the best choice of a way to go but it happens to us all. I've been lucky in a way that I've done a bit of path-finding for the family in terms of cancer treatments. I can only imagine what is going through my dad's mind as he lost both his parents to cancer. The trouble is, I can't be there for him or share my experience with him in its entirety and I don't suppose he'd want me to either. He's made one key decision and has to make some more in the next week or two. As I remind my brother and my mum, it is his life and he must decide what he is comfortable with. We have to accept his decision (whatever it may be) and we need to provide whatever support he needs. It will of course be hard on Mum and my brother too as he is quite sensitive to this sort of thing. He made a lot of fuss of me being ill and worrying but not enough to drive the 2 1/2 hours to see me of course :-) Sorry being a little bit wicked with that statement :-)

Let's hope it doesn't pull us apart - I could do without that.

Bladder Cancer Podcast

This may be interesting - it is almost 14 minutes long and it explains Bladder Cancer, Symptoms, Treatment etc.

Dilemma in the making

My folks live a long way away from me. Sure I could drive there and back in a day but the journey isn't particularly nice. It takes you around the largest car park in the world (or part of the 125 miles that is known as the M25). Then the M11 which isn't too bad a road if it is quiet. It doesn't need much for it not to be. Then at the end of the M11 there is still as much time to drive although nowhere near the distance to get to them. So it could easily be 2 1/2 hours and often 3. That would mean me driving for 6 hours roughly as I'd be held up somewhere or other. of course L is going to Cambridge so I can perhaps fit some sort of double visit in but then you need to add a hotel stop on to that.

I'm not saying I don't want to but it obliterates a day entirely or two to make it a reasonable length of visit. We will go up in a couple of weeks time to see them as we are already heading up north beyond them. It means coughing for hotels rooms but I'm not really worried about that. I'm just sort of stuck about how often I can visit my dad. I think they used to go and see my granddad a lot in Hospital but I think that was once a week. I used to go when I was nearby up in London but got banned after granddad got to a point where he didn't want us to remember him how he ended up. I can understand that too.

It's at times like this I question why the moved away from here. Here where I could have seen them even in the evening and just driven down for an hour or two. But they moved away as did my brother and it kind of leaves me in a position where I feel a little bit bad about not being there to help out or visit. It sure is a quandary - what to do for the best.

As I said in the blog sometime ago I was a little bit annoyed when I finally calculated that my parents hadn't been down to see me whilst I was ill. Having said that, I've a feeling they must have come down for a day for some reason as they've sat in my comfortable chair that I bought just after I was ill. I wonder if they came down for a day with my brother. I think they probably did and dashed back home because of my brother's dogs. Mind you I might be imagining that as it certainly feels like a long time ago they were here. So, with the proviso that they might have made a visit in the past 5 years it still makes me wonder what I'm expected to do now that Dad's ill?

The thing is that I have to wake up to the fact that this will very probably be the cause of his death at some time in the future and maybe we will find out some more detail on Wednesday. It isn't going to be good news and I suppose they'll give him a series of options and we will just have to live with that. I'm sure he will set some rules and put them in place and things will be what they will be. I'm certain that it will just even out and I'll just have to make the adjustments I need to make and do what I need to do at the time. Now I feel helpless and have no idea what to say about it. Not sure what to say when we meet in a few weeks but that will just be another awkward moment that cancer brings about all too regularly.

All quiet - thank goodness

Spoke to mum and things are settled at home - dad's feeling well enough to drive again so they will give that a try later in the week and drive into town. It's a strange thing but he feels well and now they've put the stent in and things are operating as normally as they can, he's getting around without his stick and he's got energy and appetite back. It sort of explains why he wasn't at all with it when I went to see him some time back. I'm hoping to get up there in September and see him. Once the specialists have told him what's going to happen - I'll need to work out what I'm going to do in terms of going to see him when I can.

The trouble is of course that I've got my own commitments too and so I need to work out that side of the equation as well.

Hurrah

The laptop has taken all of its updates without a problem and I've cleaned out all those annoying bars that now come with software these days. What a damn nuisance - I can spot them when installing but also noticed that the virus and malware checkers also spot them so I can kill them off when needs be.

I really do hope we can get out backing as we can do away with all this utter nonsense you have to go through. I guess it has taken me the best part of 8 hours to sort this new laptop out. I've probably done more than the average user - like backed it all up, got recovery disks and recovery driver disks, password recovery (from last time) and I've upgraded everything from the BIOS to the office productivity software with their latest patches and upgrades. How a mere mortal is meant to know they are supposed to do this is beyond me. Mrs. F. has just been upgrading Firefox and its asked her questions about add-ins, compatibility and all sorts which she has no idea what it means.

Spoke to the parents this morning - all seems calm and so I'm pleased about that. Big day on Wednesday when they find out more.

One Leaves the Other Appears

My daughters that is L is in Tenerife, A has just arrived back from Edinburgh and I am sitting at my PC with the new laptop going through the usual setup routines and booting and rebooting, uploading, downloading and generally doing much what I did a week ago. It's Deja Vu all over again....

I'm greeted with a label urging me to back up the system - I don't need a prod I understand this but I just love that the reasons I should do this are:

Causes of Data Loss:

56% Hardware & System problems

30 % Human error and computer viruses

9% Software corruption or program problems.

So what are the other reasons - that isn't 100% :-)

This is like saying that the new car you bought only has a 5% of working properly! It's amazing that we have to put up with this.

Damn PC

So it went back to the shop today to get the money back and interestingly they tried it out and verified my diagnosis... It's taken the best part of 24 hours of my life that damn machine. Setting it up, backing it up, setting all the scanners and stuff up, then downloading all the updates (hundreds of them) to repair the flaky software and then it blue screened then the password trouble (now known to be the shift key issue) and then resetting it all back to factory default all to find it was a fault with the machine. How any ordinary Joe would manage to do this is beyond me. I supposedly know what I am doing and I have to say the last two weeks of broken PCs has convinced me that there just has to be another way.

We've got our money back and now invested in another make of PC altogether - I've already got one by them and hopefully it will be the answer and provide L with a laptop that will last through her University education. Incidentally she is just about to fly off to Tenerife in a few hours with her friend - her first holiday on her own. I hope she has a good time and enjoys herself.

My business partner is on his way over and we are going to catch up on where we are and plan the remainder of our work. It's been the hardest work and yet somehow enjoyable to see it all coming together.

How can this be?

L's new PC doesn't work properly - it appears that the problem may be an intermittent fault with the keyboard. All that time I've spent on it was down to the fact that the Shift keys are buggered. Add in all the hours of backing the sodding thing up to start with, making recovery disks, uploading all the latest software and hundreds of updates and the damn thing has just bombed out on me. So what I now have to do is take it all the way back to its original configuration and start again. This is why we set up Doddle in the first place so no one would ever have this nightmare.

Talking of which we enter the hardest part of all - we are so close we can taste it but cannot quite fix the final words, diagrams and figures into the final document. We've all the right words but not necessarily in the right order.

I am beginning to feel a lot fitter now and my back pain is all but gone. I will slowly get back to exercise over the weekend - it's a real nuisance being injured as you just daren't go and injure yourself further.

Bank holiday weekend coming up and so a curry and beer might be in order tomorrow :-)

Mmm - facing up to the inevitable

It isn't easy is it? Dad's got Pancreatic Cancer. It's early stage and it hasn't spread. The operation is an ordeal that, frankly, a younger person would struggle with and so that's been discounted. My brother needs to get his head around this. I think I understand the thinking behind it myself and I can see that the decision will inevitably lead to a different course that now needs to be run.

It isn't an easy decision and yet it is in so many ways. I'm not sure if I'm being strong and helpful or bloody minded and hard but I'm doing the "voice of reason and logic" at this end. I've not suggested anything nor have I advised or pushed for anything. That isn't my job at the moment, I've got to be supportive and a good sounding board because whilst it's all personal and emotional, the decisions made need to be based on firm understanding and knowledge of what they mean.

I think it is not going to be an easy few weeks until we hear what the specialists say and then that sinks in. It's not an easy cancer to deal with and the outlook isn't great.

I'll no doubt talk to them about diet and things once they've had the discussions themselves. At the moment, eating and everything else is just fine in fact he's probably felt better now than he has for well over a year.

I feel a bit bad now that it was illness that made my last visit to see him such a misery for me. Now I understand that, I kind of feel a bit bad for being upset by it.

As for me, I'm beginning to take it in a bit now. I had some terrible nights early on when I knew he was ill mainly because of his hatred of Hospitals etc and I knew it would freak him - well luckily he's done OK there and so that's good. He knows he has to go in and have the stent removed and a new stainless steel one inserted. That will keep him as well as he can be in one area. I'm hopeful that whatever route he chooses it will be right for him. I'm not looking forward to the next months and year(s) at all but everyone dies eventually. Mum's pretty cut up about it of course as is my brother and we will just have to work it out as we go I suppose.

Dad seemed to be accepting what was going on and needing to know more about it which I hope next week's meeting will resolve.

That was an awkward moment

Spoke to my Dad. Danced around and sort of half laughed at the seriousness of his situation. I think he wanted "my blessing" that he wasn't going to go through the major operation that would be needed to potentially sort things out. I think my brother thought it wasn't the right thing to do but I guess I'm a bit more pragmatic about it than that. The operation for Pancreatic Cancer is a pretty heavy one even for a young man. Steve Jobs had it done and you can see that whilst it can be effective in an 80 going on 81 year old man what exactly would it do?

It's a Quality of Life thing if you ask me. But it took me back a bit as I wasn't expecting to talk to Dad at all for a few weeks but he appears to have bounced up and is putting a little weight back on and isn't stumbling over any more and his mind is back - he was very worried about losing that. In fact we noticed that to start with.

So it's put me in the tiniest little tail spin.

On the big upside - a good friend got his results today and they are all OK so that's good. Very pleased for him too. It's all the hanging about and worry that you could do without...

As a final whinge today, the brand new PC we have just decided not to take the password we set for it and I've had to go in and do a registry hack to change it. It's cost me another 3 hours that I didn't want to lose! Crazy - it did this after it updated itself. Crazy.....

Ramping up

Even more now as we get right into the guts of the business plan and the ideas come together and the plan begins to fill up with content. It takes some time to do small parts of the document, like the area I've just done showing share ownership and the changes in that over a period of time. Somehow you need to illustrate this n a useful and meaningful way - not easy as some of this stuff is pretty dry in terms of what you can say about it and we don't want to be stating the obvious.

On top of that it's been a pretty disruptive day all around and I've just been tide to my desk. The TV man came and replaced the set top box which is great because it has an optical output which is now plugged into my surround sound system :-) So Grand Prix racing is going to sound great on it as do films - I've tried it out a little but it is late and so don't want to wind the sound up too much. The sub-woofer makes a pretty good rumble though and so I'm looking forward to trying that out in anger later on.

Back to business and my head hurts

I was working with an old friend this morning who wants me to get involved in a deal with him that would be a pretty useful little sideline to what I'm doing now. Crazy isn't it, nothing comes along for ages and then, just when your doing well in your own thing, along comes another that I really ought to get involved in mainly because it would help out my friend and who knows, there may be something interesting at the end of it too.

Then I started working on the valuation of our business and the share distributions, dilution and so on. I've been building a series of models that allow us to model potential scenarios in that area.

Then my head decided it was about to explode so I stopped :-) Thank goodness for that!

Then the TV Set Top Box decided to die so that needs to be fixed in the morning. It looks like we are going to get a good old summer storm tonight with 50mm of rain (2") predicted it should be a hairy old night!

That's reassuring then

Spoke to mum this morning and I could hear dad in the background being, dad! Mucking about, firing off one line jokes and all that. So that's good. A couple of days and they're over the shock part and I guess realising that they not going to know until 31st August what it all means and what to do about it so no need to worry on that front.

Dad appears to have got his balance back (or mostly) and his mind back which he was worried about. This really does interest me because I was pretty put out that he sort of ignored me last time we went to see him - he wasn't his normal self and he appeared to be more interested in the TV than me. Well it looks as if that was also part of this too. I remember being pretty put out at the time but in hindsight I can see that's wrong on my part.

Nobody else saw it because it was gradual. Me - well I saw it because I hadn't seen them in perhaps 6 months.

Anyway - it appears that things are settled a bit for the moment. The 31st will be a stressful time I'm sure. I'll be seeing if I can get up there sometime in September to see them.

Mary Archer's Bladder Cancer

In the Telegraph today - Jeffrey Archer's wife Mary has a new bladder to combat the disease. It is an interesting story but the words used by journalists are still - well emotive perhaps?:

• "Battle With Cancer"
• "It is a formidable operation for the surgeon, let alone the patient."
• "decided to describe their ordeal to inspire other sufferers of the disease"

It does show what a wonderful job they can do though for more advanced stages of the disease - thank goodness that I didn't need that although there was a phrase mentioning "exhaustive chemotherapy" which I can see in this case would not be a real option and this procedure gives hope for us all. It is a little different in the case of males as it also involves radical work on the Prostate (I think) which has its own side effects.

The Pursuit of Happiness

It occurred to me that one of the strange things about life is that you sometimes don't appreciate what you have. For example, L is in Cambridge, she's found her accommodation, she's making plans, she's getting to meet people, wander around where she will live for the next 3 years. She is SO excited and I know, just because of her personality, she will have the time of her life. It's what I said to her. You will look back on this time as the most fantastic time that you will ever have had. You'll be young, at the peak of your energy levels and you'll be with lots of people, some of whom, will be your friends for life. I didn't go to University, so how do I know this? Well, my friends that did go and our friend's children are changed forever by the experience.

I always regret not going but I don't blame the system that stopped me. In all probability, I wouldn't have the life I have now so it's academic (or isn't). What I then thought about is some of the people I've met in my journey. I've climbed the greasy pole, I've had great roles where I've managed massive change projects and indirectly affected millions. Sounds great doesn't it but does it make me happy? I have a smug regard for the good things I've done but when I worked at the Charity it taught me another angle. I could use my ill gotten skills for good :-) The stuff I learnt fighting my way to the top could be leveraged to "do good" and suddenly, work meant a different thing. Most of the people I worked with did great things and they did it for very little money and yet they appeared to be quite happy in general (of course everyone has a moan every now and then). What I mean by this is that they had a simple, happy life. They didn't need to think about too much, money was important but wasn't everything. They invariably had a strong family life and they just seemed to enjoy themselves and be 'happy with their lot'.

I'm sure that if you'd push them to be more ambitious and to get on and climb the greasy pole etc that they would but they were just happy where they were, doing what they did and doing it compassionately and happily. Work life was (in my eyes) drudgery and not exciting at all, there weren't difficult challenges and there were very few 'dramas' happening. For me I have to have the excitement, the challenge and the deadline - it's the the thing that I have always had - but am I happy?

Yes I'm happy but actually I do have a hankering for just doing a simple job and then ramping up my social life. I've often felt that a job that was local, somewhere in the country or near the sea would be lovely. Arriving home in time to sit down outside, look out over a fine Vista with a glass of wine. Having enough money to have friends around for get togethers and the like, wandering in to a local pub, having a beer or two and being one of the locals. All those things have a certain attraction for me. But the people I worked with had little but appeared to be happy with their life without all the things that make my life buzz along.

I'd like to think that the girls will have a happy life if at all possible. This current atmosphere of greed and the pursuit of more and more goods and consumables doesn't help to set the scene and it doesn't actively engage the whole of society. It drives a wedge between the haves and the have nots which actively exposes the disparity in our society and splits us. Perhaps we will all wake up at some time in the future to the ugly face of capitalism - I saw a picture of Victoria Beckham with an £18,000 hand bag. Some people don't make that sort of money in a year. At some point in time surely we might have an outbreak of sense somewhere?

If I can borrow from our American Cousins the phrase Life, Liberty and the pursuit of happiness set down in the United States Declaration of Independence. I think it would be nice to have a simple straightforward set of rules like this in the UK. Sure we have the Constitution, Magna Carta but I doubt that anyone else could quote from that. I doubt we'd be allowed to bear arms though :-) We are dangerous enough without that :-)

So as I see L being SO excited and SO pleased to have got the place at University and just turned 18, I see all the hope and wonder that we set out with at that age and I hope that that is what she gets. She is a very funny girl with a great sense of humour (and an opposite nasty side if you do ever upset her and go past tolerance level) so all bodes well and I'm proud and envious all at the same time.

The Curry Club

Off for a meeting of the Curry Club. 17 of us and I've decided to drive tonight and not to have a beer. It does me good not to occasionally - I have a few left over from last week in the Fridge so can have one when I get home if I'm desperate.

We only have a couple a year - it will be a good turnout with 17 of us there and will be nice to catch up with all my mates. I'll also be able to give the Jag a run out - I've hardly driven it this past year - so it will be fun to have a little drive around :-)

My back is almost back to normal and I hope to restart exercising next Monday - I actually miss it and was most annoyed about it early on but a few days off and a curry tonight wont go amiss.

Reflections on Dad's Cancer

Sooner or later we all have to come to terms with stuff happening to our parents. It's that sort of time of life when that's what happens - my friends have all gone through something like this. So now it's coming around to us and it's not a good time at the moment of course.

I'm pretty cold about it at the moment - we aren't going to know more until the 31st August and so I can't do much about it. I'd love to stick my oar in and get some FOCC going for Dad but it isn't my place to do that at this particular time. I may suggest it after we hear what is going on. It sort of sounds as if they will offer treatment but not an operation - not surprisingly you need to be young enough to handle the severity of it.

I was more upset when I first heard what he had - it's a precursor to Pancreatic Cancer (Jaundice) yet he had none of the other side effects. The upshot is that it is early days and that QOL can be provided. The downside is that it isn't a 'good' cancer to get - it has a pretty bad prognosis and Dad's indicated that he isn't up to fighting it.... His wishes must be obeyed but I think I'll explain some alternatives that I know of.

You know my take on it that it is all about living, you do everything you can to achieve it. Let's hope that he gets his head into gear and decides to take this route. But I have to respect his decision whatever it may be.

Oops - upset my brother

Come to look back on it, Mum was pretty matter of fact and told me what was going on and then said talk to my brother. So T has all the details and the nurse didn't know what stage (other than early) or much else really. We know there is no tumour and we know that at 80 going on 81 the full operation just isn't on the table for Quality of Life (QOL) reasons.

The next appointment is 31st August and so we hope to find out what will be on the table at that point in time. It's a long way off isn't it? They aren't exactly rushing and so that is a partly good sign I guess. However, as I said to my brother the problems are that, generally speaking, all the cancer patients I knew had a worse time during the treatment than they did from the cancer which, strangely enough, wasn't painful or even noticeable in my case. The treatment was the thing and then I realised that T wasn't really as with it as he made out.

Of course everyone is upset and I probably did my worrying 3 or 4 weeks back with a general lack of sleep and worry about my Dad. He's obviously upset and Mum and T need to come to terms with it. I already have and in a way I'm being very matter of fact about it because how else can you be? I suppose me saying to T that everyone has to die didn't help the conversation along too well now I come to reflect on it but he should know me by now. I've a healthy regard for being alive these days.

However, Pancreatic Cancer does command some attention with only 5% of those diagnosed making 5 years. That figure has been like that for years - it's a difficult one to tackle and so Dad's options are somewhat limited and the 31st will provide the answers. T invited me to go up for the day but I really don't want to do that - it probably isn't right that I do at that time and I'm not sure what, if any, value I'd be.

I'll get up and see them in a few weeks anyway as I am due to go up north and it will be a good opportunity to see them and to carry on to my cousin's birthday party.

So Dad's got Cancer

Not sure what sort of Cancer it actually is yet - they just gave the results and he has to go to the big Hospital an hour or so away to meet a team who will give him the low down and discuss what to do about it.

It is very early stage so that's pretty good and he has to see them in a week or two - which seems a long time to me. Dad didn't actually want to talk to me - not surprising after getting that news I imagine but he has told them he doesn't want major invasive surgery so they know that - he will have the stent replaced though and we just have to see what they come up with for him.

I'm waiting for my brother to call and have a chat later. I doubt he will be in a great frame of mind - he tends to take this stuff badly. I'm being pretty pragmatic about it as I tend to be and want to hear the results of tests and a bit more information to understand quite what he has and what the stage and grade are.

It's not great news of course - never is - the doctors will no doubt explain what it is all about. I'll hunt out my list of questions and see if he wants them. Not much more to say really at the moment.

Back Ache and Goodbye PC

I had a terrible back ache yesterday but managed to feel a lot better last night and into the morning but it's back with a vengeance probably as I was still dealing with the troublesome laptop. I've had to admit defeat - it's only the second PC I've ever had this sort of unsolvable problem on and I can only imagine it is something quite mysterious that doesn't appear on software testing. How anyone can sort this sort of thing out themselves is beyond me it was a mess and I worked about 20 or more hours on in it and completely rebuilt the machine! What a nightmare. So it kind of work to a fashion but even with a new operating system on it still crashes.

So I sat down tonight with a seriously bad back. Rewarded myself with a beer and a bacon sandwich! I know - but I can't do anything exercise wise so might as well.

Can't quite fathom out what is wrong with me though behind all of this. I think I'm worried about tomorrow and my Dad's diagnosis. More for the fact that he's talking all wrong. I heard a phrase tonight saying that "not wanting to die" wasn't the same as "wanting to live" - Dad's got a negative mindset and that's not a good thing to have. Of course, we don't know what that diagnosis will be, they didn't find any tumour and nothing looked wrong with his Pancreas but they took biopsies anyway. Well we will find out soon enough.

It is also A level results day tomorrow so the students will be getting those at 9 am. L will go and collect hers and let's hope she gets her results and can go to University. The accommodation is ready and all the paperwork is here. Other daughter, A, goes off to Edinburgh a little later in the morning and it all sort of kicks off.

To go back to me, I've been feeling quite emotional and strangely not right about things. I have moments of really emotional welling up that I can't work out what it is about - maybe it is Dad.

Also thoughts for a good friend of mine who is having some tests at the moment and another family member with a benign brain tumour. It's all happening.

Vibration Plates a Warning

Just a slight warning, I slightly overdid it yesterday on some of the twisting and bending and have managed to hurt my back again. I think this is also to do with sitting twisted trying to sort out a laptop which is positioned to my left meaning that I've been twisting to the left to attend to it and working at an angle. So a combination appears to have left me in a twinging wreck this morning :-(

The plate IS very powerful and will seek out any weaknesses and it was enough to give me a pretty painful tweak.

Why you should go to your Doctor

It was a strange chat I had with my Doctor - you see I hardly ever go to my doctor - I actually have to be ill and I have to have had a chance to get over it. So for around 30 years I really didn't go to the doctor as I wasn't really ill. My doctor told me that around 80% of the people they see are well, to put it bluntly, somewhat Hypochondriacs and that the see them a lot some every few weeks. Of course there are some who are ill ill.

Here's a damn good reason to go to the doctors HERE this is Chris Evans and his story is very typical of today's cancer stories and I like the way this is written. He's well known in the UK - not sure about elsewhere in the world but in a way this is the sort of story that makes people think and let's hope that he has saved a few lives with this particular story.

I'm reflecting on my father's choice of words about having treatment or an operation and saying he won't unless it isn't intrusive (the operation) - I have no idea what the specification is for treatment though. He finds out this Thursday and I hope that it is something he can cope with. I understand that treatment may be daunting but reading that article I'd also be aware of what not having treatment can do too.

My own treatment was challenging but I am sure that other treatments are far more challenging. I remember that I did put myself in a state of mind to receive them, that it was a positive step forward and that it was going to make me better. The side effects were not reflective of the efficacy of the effectiveness of the treatment (apparently) well you could have kidded me :-) Some of the reactions were bad and physically took a fair toll but I'm here and I lived to tell the tale. That's the result - if I hadn't of had the treatment or the operation - I'd be dead. That didn't fit my plans at all. No Sir, that wouldn't have done. I think myself quite a lucky guy really. I kind of wished I knew what I know now when I was in my late teens as perhaps I'd have not lived the life I did for many years. I didn't go the whole hog and do drugs or anything like that - neither was I a soak but I did enjoy a beer and a cigar and I worked like mad to build a certain lifestyle and it bloody near killed me!!!

Anyway - I find myself quite upset at the moment with my dad's status and his reaction to it. He just sounds negative and that's not what I expected really. The weekend with the family down for the party was also a bit of a hard time. They are great and turn up from afar and then ask where my mum and dad and my brother and his family are? I make excuses about not travelling well and all that, it's hard and I can see them looking slightly askew and wondering why that should be. I felt bad for not having been up to see my Dad but I'll arrange to pop in on the way to my cousin's birthday party next month which again they are not going to.

I'm not certain how all of that will go really. We don't really talk about me being ill. My mum and I talk a bit about it but I've tried not to overdo it and of course you can tell sometimes when you say too much or give away some of the "pain". In fact, it is strange that this blog has far more detail in it than even my close family know. I certainly wouldn't have made too much of a fuss but I know a couple of times after my BCG treatments they would have seen me not looking my best and some of the photos of me early on when I was ill look as if I've been photographed in black and white whilst everyone around me is in glorious technicolour.

In fact the one thing that I feel these days is sadness that I upset so many people around me through being ill. They must have also gone through some sort of worry about how ill I was. When I think of their feelings it really churns me up. I don't feel sorry for myself that much but I feel sorry for those whom I frightened with my illness. It seems a strange way of thinking but there you go.

Vibration Plate Progress

I used a higher setting today and it really racked up the exercise. It was just too much today and I was surprised how it shook me about. you could really feel the vibration tightening up my muscles especially the leg and hamstrings. My sides and back actually feel a little stiff and my arms fairly buzz after doing some press ups on the plate.

Dad has his appointment on Thursday afternoon - they say they want to discuss his treatment. Interesting times. He's told us that he isn't having any treatment but he doesn't even know what it is yet! Certainly, it will be interesting to find out what it is and what they are going to do about it. No use worrying about it now though.

This flaming computer I'm repairing has all but died, I'm having to do a completely new install to see if I can rescue the situation. Apparently they had a friend over who showed them how to download certain stuff which looks as if it has stuck some pretty nasty malware on it. When trying to get rid of it, it's killed off the malware checkers and virus checkers and wouldn't let them load and it has put in blocks as well. So I may not have been able to rescue anything by the looks of it - all their photos and stuff gone.... Sad.

Birthday Weekend

It's been a full on weekend and great fun for L as it was her 18th birthday and it has been a lovely celebration. She is quite a bubbly character and full of fun and laughter. She looked great in a "special" party dress. She can now legally drink and vote so tonight she went out with her older sister to the pub for a drink and the quiz night.

The trouble is that I was late to bed on Saturday morning and this morning too as friends came back to the house - then it was Sunday lunch with my Aunt, Cousin and her boyfriend who came down a long way - about 4 hours drive or so.

We are going up to see them in a month or so. This friend's laptop is still not working properly - it seems to be in a permanent death spiral loop of blue screens....

Diet restarts tomorrow as I've had the weekend off to have beer, party food and cake!

Oh Dear

I went to bed around 2:45 after working on the laptop and it still isn't fixed properly. It needs some serious work done on it. It isn't working properly at all and looks to be full of Malware :-(

So my daughter also decides that it is all so exciting that at 7:30 she wants the household up and about to open presents for her 18th - to say I have a thickish head is an understatement. The process of troubleshooting is a logical elimination of various obvious problems and taking those out after each investigation and ticking them off. Of course when it gets complex like this one - some logic goes out and a bit of intuition comes in followed by lateral thinking and just hit and hope if all else fails.

We have the party later on - I hope I stay awake long enough to enjoy that.

Still at it

Trying to repair someone's laptop - because I know a bit, I become the repair man something I hope our business, if we get finance, will make a thing of the past. The amount of time I've spent so far on this exceeds five hours now and at £60 an hour (that's what the help desk would charge you at a £1 a minute) it would be cheaper to get a new laptop! That's the reality these days.

If you haven't seen what we are hoping to do then you can look here. We intend to bring in a new era where you don't have to be a computer wizard to own a computer. In fact there won't even be a computer.

So spent hours doing this and found malware has screwed the computer and I'm trying to remove it and it is trying to stay on the PC. Grrrr.

L is back from her camping holiday in Cornwall and getting ready for her big day tomorrow - she is 18 bless her and a big party tomorrow evening at the local Golf Club will, we hope, be a nice way to celebrate. Let's hope that no ones gets silly...

The ouch affect

My friend's girlfriend's mother isn't well. They've managed to get her home from hospital and it will be for the last time and the children are sitting vigil and it's all pretty sad. These things are and I haven't experienced it myself but there's a certain bit of me that went through this realisation ust 3 or 4 weeks ago. Dad's experience is a reminder that this is where it is all heading and that somewhere along the line this will happen to us.

It's sad because my friend's daughter is due to get married in a few weeks and timing is not without it's irony.

I'm still reeling from Dad's illness and sudden recovery. It brought it home to me and it also made me quite angry in a way. As you may recollect - I was left to my own devices when I was ill, no one actually came to see me. It's been 5 years and a month. I have made the pilgrimage when I was fit enough and so sometimes, I do feel (whether justified or not) a little bit put out. I also found that no one turning up for my 50th birthday was a bit naughty too. Maybe I just don't get the hint :-)

There was I tonight worrying about not going up to see my dad or run them around, despite the fact my brother lives 5 minutes away (I live 2.5 Hours away roughly). And yet no one did that for me - do you see the problem? It may be me but I still feel guilty I didn't get in my car and go up and see them last week but it wouldn't have done any good anyway. I don't know - I'm confused.

Anyway it is L's 18th birthday this weekend and we are going to have a big party. She's going to be spoilt rotten and she will also be the centre of attention on Saturday evening as we have hired the local Golf Club for a party, food and disco. My relations will be there and would have travelled from beyond where my folks live. However, if they couldn't make my party, then there is little doubt that they'd have put themselves out for my daughter.

I'm not that bent out of shape about it but you'd have thought that once in a decade they could have made the effort?

I know that some of you will be worried about me - you have no need to worry - I'm not "that" put out about it, I do find that it sends out the wrong signals to my daughter and my wife though. we "laugh it off" but as you can imagine it would make you question the logic of it all.

Well it's time for bed and I'll probably think different in the morning. Of all the feelings I've had recently with Dad's illness and me - not being there - I have to reflect on how much they were there for me when I was ill. But I'm being unfair and unkind and your family are your family after all, no matter how bizarre they seem to act.

It takes time

Getting in shape and losing weight but I do like the encouraging signs. I was really thrilled with the FOCC (Flax Seed Oil and Cottage Cheese) or budwig diet (well part of it). I've only missed out once in - however long I've been doing it. I noticed straight away that my blood pressure had dropped, almost as if off a cliff. Yesterday's and today's readings were pretty low for me and 117 over 73 is really getting it where I want it.

As I said yesterday the vibration plate exercise plus the cross trainer seem to be the ideal mixture now. Where I used to do 30 minutes or so on the cross trainer followed by some dumbbell swinging and a few press ups, I now do 15 minutes on the Vibration Plate and 10 hectic minutes on the cross trainer. What I've noticed is that my circulation certainly feels to be better and since the FOCC and this exercise, my skin is smoother (I sound like some commercial now!).

I would like to drop another 1/2 stone but cannot see that happening for a while. Most of the stuff that's easy to come off has already and now it is just plodding away at this gradually - you mustn't lose weight too quickly - and see how a few more months will work out.

A week of Vibration Plate Exercise

Well - it is a funny sensation especially today as I wound the power right up to around 75% capacity and nearly shook my insides out :-) Wow is this thing powerful.

So - what's the week 1 verdict?

Well yes, it appears to work as my little love handles have disappeared already and I'm feeling firmed up on arms, legs, belly too. I've realised that I need to do both the vibration plate and the cross trainer. The reasons are:

Anaerobic Exercise - is exercise intense enough to trigger anaerobic metabolism. It is used by athletes in non-endurance sports to promote strength, speed and power and by body builders to build muscle mass. This is what the Vibration Plate system does.

Aerobic Exercise - is physical exercise of relatively low intensity and long duration, which depends primarily on the aerobic energy system. Aerobic means "with oxygen", and refers to the use of oxygen in the body's metabolic or energy-generating process. This is what the Cross Trainer gives me.

So what I've done in the past couple of days is a 15 minute vibration plate workout (no you can't just stand there and let it do the work for you) followed by a 10 minute session on the Cross Trainer with this exception, because it is 10 minutes and not 30 I go hell for leather and really get close to collapse at the 10 minute mark whereas I used to plod on with the longer routine. So what does this do? Well they say a 15 minute workout is close to 60 minutes worth on the Vibration Plate. You must warm up a little but it doesn't take long and then you need to vary the speeds and all the different positions which you do for no more than a minute each and believe me, sometimes it is difficult to do them for 30 seconds let alone a minute. I do a series of workouts that cover the whole body and tonight the high speed squats I did were agony, such was the intensity of the plate at around 75%.

I can tell you that I'm around 1/2 stone lighter and that my Blood pressure has dropped to below 120 over 80 - I recorded 117 over 73 earlier and I have to say that I'm feeling pretty good. I didn't do two days exercises in full as I was out and because I was only lightly testing out the Vibration plate on Monday and Tuesday last week.

So I think it looks like a good investment - it is strange that you don't actually sweat doing the exercises or get out of breath but you do feel your muscles working. the press ups on the plate and squats and planks are really amazing as you can feel everything working together. You sort of notice things the next morning - if that makes sense? I feel really fit in the mornings and as I've said I've noticed quite a bit of weight falling off mainly around my stomach but more especially at the sides rather than the front. It is a bit early to make any great statements about the Vibration Plate but I do actually enjoy doing that for 10 to 15 minutes - it's a bit of fun although watching your body flap about isn't all its cracked up to be :-) it's like jelly on a plate - wobble, wobble :-) But it is good fun and also only holding and doing exercises in short bursts and changing them lots of times is great. I can then get on the Cross Trainer, burn out 2.5 kM and then do some weights and I do a couple of minutes on very low on the Vibration Plate to just cool down.