Only hurts when I cough

I have an occasional cough which really rattles me about and hurts my stomach and groin area. I'm guessing it is the general anaesthetic and my body getting rid of it - there is no cold to go with it. I've taken a few cough sweets which has temporarily relieved that. It has been a strange day as I've been trying to get up to speed with my work and yet I can't sit down at my desk for more than an hour or so and I managed to fall asleep again ts afternoon for a couple of hours even after having plenty of rest last night.

I want to be fit and back to normal now but the reality is, it is taking much longer than I remember or want it to be. It sort of backs up my view that two things happened here. My Consultant told me this (if clear) would be the last lot of treatment and, as I understand it, it should be the last set of biopsies taken as an operation under a general anaesthetic. She also told me that in taking biopsies, they go deeper into the Bladder Wall to make sure that things are clear. If they have thought these are going to be the last then I'm sure that they would have gone deep and also there is a possibility there are more than the standard number done if the apprentice had a go and did a partial job.

So whatever it is I've got to get on with it and recover, it is just annoying that I am not quite as well as I want to be and that I just cannot get on with stuff that needs to be completed.

I have so much to do and it is frustrating to find myself unable to do it. I know that I should be happy enough that I'm in a position to moan about it!

Bad Day

Obviously it is too early to sit at my office desk for as long as I did this morning. My stomach is hurting, as is my hand and also where that thing came out of my shoulder. In fact, today I've felt as bad as I did this time last week as I was coming around. My shoulder aches and my urethra - well it is probably trying to settle itself back into its normal position :-)

I fancied going out tonight but in reality I don't want to be sitting on plastic seats or walking around much as I feel worse today than I have all week. How bizarre - all catching up on me no doubt and payback isn't comfortable at all.

I'm trying to get back up to speed with my studies and the work I was doing before last week. The trouble with that is I still cannot concentrate for long - I get sleepy too and so as much as I'd like to do a blitz and catch up, I am forced to do lots of small sprints to try and get things done.

BCG Tolerance

Interesting thing, thinking back on it and chatting to the Registrar last week. He, and in fact many of the Registrars, Doctors and my own GP, were really interested in how I got on with the BCG. I was told early on that it would be pretty severe, not to travel, not to fly etc. I was doing long journeys at the time but was warned off.

I reckoned that they were challenging and when I did get a bad one - it really was bad but that was early on when I hadn't worked out what to do. Stupid me was trying to carry on working afterwards and the next day when I should have been lying down. I didn't prepare properly and so on. Once I worked that out things got easier. To anyone who doesn't have to have these it is without doubt the most horrendous sounding treatment to have, especially how they deliver it into your bladder but, as much as you can get used to it, you come to accept it. It is, after all, saving your life and so if you look at things that way then you can deal with it.

It is a strange thing to say that it was OK for me and some people really suffer with it and take a lower dose. I've had 24 all full doses but I'm comparatively young as most people get BC when they are much older and cannot tolerate the sorts of treatments we are talking about here.

I'm just surprised that the Doctors are surprised about the way I tolerate it. I suppose they are told by many patients how bad it is.

I've kept detailed notes about the BCG treatments and the side effects and in a way looking back on them, the first two sets of treatments that were actually killing off the cancer were pretty rough and not nice but I honestly expected that I'd be lying in a heap for days, vomiting and not being able to eat and a pile of much worse stuff, I didn't expect that I'd even be able to walk properly or be up and about but I was OK after 24 hours generally. When I hear of how Chemo and Radio work I tend to think I got away lightly. But again, if you haven't "HAD" to go through it, it still seems terrible.

I think I need to think more about this to do the subject justice. It is, in my opinion, a balance between what is acceptable in terms of cure to you. The IVU X-Ray really made me feel very ill indeed and yet these BCGs made me feel bad for a short time but just look at the results.

1 Week On

I'm still feeling it - gee they must have pushed and pulled me around a fair bit last time. It feels as if they gave me a TURBT not a Cystoscopy for biopsies.

I am definitely a lot more tender and can actually feel where they pulled me about. My stomach muscles and that whole area feel strained and tender. I'm not sure how much that is also me getting out and about and carrying on as normal as well of course but I think you tend to notice these things.

I've decided to see what I can do to get my computer sorted out today. I have set up my e-mail on another computer (I have - no sorry had 3 so 2 remain). I need to set up some of my other e-mail accounts and to do a review of what I think is missing. I do tend to back stuff up all over the place and to have files on more than one computer. I also tend to do 2 back ups of everything and so, in general terms I am OK but anything that I have done since the last back up will be lost for sure.

As usual there is the inconvenience of lost messages and files but all my photos and important stuff is always double backed up. I might take a friend's advice and do off line storage in the future.

You tend to forget

How knocked about a General Anaesthetic makes you. I went out last night and again it was a nice do and lots of party food and beer etc. The trouble was I was really noticing it yesterday. The thumping pain on the back of my hand from where the Cannula was inserted and the bruise coming out now are reminders as is the very slight stinging whenever I go to the toilet.

Yes - you forget how knocked about you are until you start to get tired out and also how you sleep for longer and feel like sh1te. My throat is still a little sore and I am still making sure that I am drinking plenty of water. The problem with focusing on anything for a long period is also manifesting itself as I just cannot get the enthusiasm together to go and sort out my broken Laptop. I've tampered with it but it does look terminal to me as I cannot even get the hard drive to spin up!

Oh well - perhaps tomorrow and my head will be a bit clearer and I wont feel quite so exhausted.

Tired

Dazed and Confused. I succumbed to a long lie in yesterday before finding the Laptop had expired. A bit of a blow is that as under normal circumstances I'd have backed it up recently. It is my main e-mail client so I've lost my e-mails for the past 2 months at least.

I'm doing OK with this ongoing stream of events. I find we have another one today to go to but that should be it until the 3rd January. At least I'll have an opportunity to sit down today and rest. I've been keeping going and awake somehow but when I do get home I crash out completely. I think we are out in the evening so at least I get most of the day to sort myself out.

When I reckoned that I couldn't see where they had shaved my leg, I now notice patches of hair gone from my left leg. This increases my assertion that someone other than my Consultant actually did the work on me as it has always been my right leg before. I also know that it was the same Theatre as all the rest I went to.

The back of my left hand is now beginning to ache and bruise up but everything else feels OK. My middle areas stomach, groin etc are tender but not sore - I know I've had something done to me but other than that it is OK.

The dreams appear to have subsided and the only really recognisable difference in me is an anger about the way they went about this at the Hospital. Not my Consultant's fault - just "the System" and the sheer number of sick people in Hospital at this time of year. I do hope that the results are such as to ensure that I no longer need to go in for this level of surgery again.

Not good

My Laptop Computer appears to have died. That will make life interesting as I was about to do its back up earlier this week and didn't get around to it. I'm trying to work out what is on there that I need and I think that probably includes all of the latest work I completed on the history I was working on. I now need to check whether I put that in a share and where that shared area was. It could make next week very interesting indeed if I am trying to complete a document that I have already written and lost.

Oh well, it is a bit of a pain in the ass though as I just realised that I had put a list of people on it but can recover that from a friend.

Life without IT can be a challenge.

Merry Christmas

To all my fellow sufferers and warriors and survivors - have a wonderful Christmas. As a friend of mine who survived his cancer calls us The League of Extraordinary Gentlemen (its OK Ladies you are included too). We are indeed that - it is a club none of us wanted to join but now we are here, we are all extraordinary n'est pas?

I am just waiting for everyone to come home and to start celebrations with my family, my neighbours and my friends. My Nephew has just arrived from Luxembourg and he has been cheering me up with his stories. Soon Mrs F and L will be here and we can start to celebrate and enjoy ourselves together. I can start to lubricate with beer - which is a bonus!

It is a time of celebration and happiness but also a time of reflection. This year I look back to some of my friends who will not be here at this time, who didn't make it and I will spare a moment for a few who face that very challenging journey soon. I hope that they will have time to find peace and solace and the courage to face their very difficult journey ahead. This Christmas for them I hope will be full of hope and laughter and joy and not one of fear or bad reflections.

This year has been a turning point in my fortunes both in my health, my career and personally and I will be thinking about how lucky I am to have such good friends (with their remarkable senses of humour) and so many people near and far interested in and rooting for me.

It makes me feel very special and very privileged and it demonstrates that in this world where there can be so many ills and terrors, disease and disasters there is an island of hope that is called humanity and the care for (and of) your fellow citizens. If nothing else that I take away from this year it is that charity, friendship, trust and honour are all things that set us apart from the rest and I hope that we continue to demonstrate that in 2009.

Thanks for all your kindnesses and good wishes, prayers, black humour, toilet humour, bringing me down a peg or two, building me up, helpful suggestions and ideas, silent strength and just for befriending me, I cannot even begin to tell you how much it has meant to me this year to have so many people rooting for me. I appreciate it SO much.

Have a great Christmas - mine starts in 5 minutes :-)

Scar Wars VI - Return of the Bed - I?

Scar Wars VI

Return of the Bed - I

In a Galaxy Far, Far Away

Our Hero returns having been trained by Yogi (sorry Doug it fitted)

Our Hero has lost his sense of Tumour

All that is left of the Carcinoma in Situ has been blown away

The BCG and its Forces of Good have smashed the remaining cells of resistance

Once again the bladder functions as it should

Our Hero, keen to ensure no further outbreak of hostilities goes once again into the NHS

Filled with Trepidation (and other mind bending drugs) he enters the Theatre of Operations

Just One More Time!

Darth Urologist and her evil henchmen having failed to operate last time are keen to get our hero on to the table? "Do you expect me talk Darth?". "No I expect you to cry 003 and a bit" (thanks Flocky - I'll never get a girl friend now!).

Having starved, as instructed and arrived shaken, not stirred at the Hospital, our hero was led immediately to Theatre Preparation but was told, as were the others in the area - "don't get changed as we don't have any beds and you may be cancelled." "Deja Vu" thought our Hero Nero! "What did you say?". "Deja Vu" "Wow I thought you were about to say that". Time ticked by and our hero practices deep breathing and self hypnosis and listens to music and generally brings his blood pressure from off the boil to slightly above having your head squeezed in a vice.

Then the inevitable happens, the Registrar walked in and said that we are cancelled but asks me alone to stay as I am a priority and it might be possible to find a bed. The chap opposite gets dressed and goes off to enjoy Christmas and new Year without his Prostate being bored out. The other chap, who has been very nervously waiting decides to pay to go private and within 15 minutes he is signed up and gowned and off to Theatre giving me a nervous look and a thumbs up. I smile and wave reassuringly to him. He looks like I feel - poor fella, I know what he will feel like in the morning. Bless his cotton socks, on the way down to Theatre he tells the Nurse that he is worried that I may get cancelled again. I tell the nurse that I was feeling for him too as he has been having a terrible time and was really anxious.

I am told that it is now looking very doubtful and I am getting to a point of having not eaten for 16 hours or so and not having drunk anything for 6 or more hours and Mrs F. turns up and we discuss going home.

Suddenly all hell breaks loose and they want me to change and get ready to go to Theatre now. The urgency in their voices can only lead to complete adrenaline switch on in my body as they rush to get me prepped for the Op. The Porter arrives as I try to put my music in to calm myself down as it was such a shock to the system. I cannot listen to music, my BP is off the scale and suddenly I am really anxious as if in shock.

I arrive at Theatre and suddenly there are about 10 people around me all talking at once and I am now getting quite upset as they are all gabbling on about something and I can't seem to answer one at a time and get them to ask questions slowly. Eventually I get some sort of sense and we go through the check list, someone almost gets a smack in the mouth for some garbage question but I just give an angry retort back to whoever that was over my left shoulder - I can't remember the question now just that it was stupid. Calm descends on the room when my consultant comes in and leans over and smiles at me, she notes my heightened state of anxiety, apologises and says they will try and make things calm for me. From then on, only two people talk to me - it must have been their lunch break - The cannula goes in and hurts a little and they start prepping other areas but this time with little urgency and not roughing me up as they were doing earlier. The last words I hear are "a little pre-med and it should feel like a gin and tonic without the hangover".

I awoke in recovery and had a drink of the best water in the world, poured from the purest fountain of mountain glacier water (or probably from the cooler) however it is the best coldest water and tastes absolutely fantastic. Then I found I was catheterised. I was not happy, in fact, it must have been obvious as the registrar was called over who mumbled something about it and how all looked OK but didn't really answer me why on this occasion but on none of the other I had this bloody pipe and wash out attached to me. As is usual in recovery you come in and out of consciousness. I went in and out the washout bag was removed and when I came to next I was going to ward 5 - they were impressed that I knew where I was going as they had to look it up and then said I was right :-) They told me as they gowned me up where I was going.

I was on Oxygen and a drip, I came off those shortly after 2:30 in the afternoon but they kept the Christmas tree of valves and bits on the cannula which meant it was cumbersome and liable to get caught which it did on a number of occasions. The catheter was (thank goodness) a smaller one than I have been used to and so it was uncomfortable but manageable. I started drinking lots of water. I was less than impressed when I asked for water to be told that it could be got from any of the taps. I did explain that as they had connected me to a bag on the side of my bed and that the tube passes between the guard rail and the bed that even Harry sodding Houdini couldn't have escaped, finally did they realise that perhaps they would do it. Eventually Mrs. F arrived and she got me some water but the same thing. On the last ward we were not allowed to get it yourself as they needed to work out liquid in and out. On Florence Nightingale's ward, the war wounded and other miscellaneous ill people obviously didn't have that sort of problem and I yearned for the Urology Ward where at least they understood such things.

The General Surgery ward - what can I say, lots of very ill and very frail people with stuff connected all over them. Two guys opposite were almost bed ridden both had made successful expeditions out of bed on their Zimmers to the door and back. They were delighted with progress as they should be, they had made a distance of about 12 feet each. I'm not detracting from their efforts, just to highlight the sort of ward I was on. I was fitter than some of the nurses on there!

So, I wasn't happy and the poor old nurses were running about with lots of sick people to clear up after and so I got left to my own devices. then I found out I was staying in overnight and the catheter was coming out at 6 in the morning and I had to pee twice after that to go home.

I remonstrated with the nurse about it and she said how did I know what this was all about and I did explain that as this was the fourth time I had had this particular procedure I believed I was qualified to know what normally happened. I didn't win any friends. I was getting, by this time, pretty hacked off with it all.

My consultant arrived and she could see that I wasn't my normal cheery self. She explained why I was catheterised after I asked her why in a voice that was scathing and unbelieving at the same time. Apparently she felt that peeing would be too painful on this occasion and decided to do this. Me? I think she let someone else do the operation and they were less than gentle with me and she had to make that decision. I also asked her why I had this thing drilled into my upper left arm/shoulder. It was an Analgesic needle apparently in case I needed pain killers. I asked if it could come out as I wasn't using it and am normally prescribed oral pain killers. Sure was the answer but the nurses wouldn't take it out until I was leaving which again mighty pissed me off. By now the Cannula was also beginning to hurt a lot and they wouldn't take that out either.

Frankly - bollocks to the lot of them was my attitude by this late time of afternoon - about 5 pm. I was in a really foul mood by now and the other guys were really chatty in the ward. I spoke briefly to them but then stuck my MP3 player on and tried to calm down. It didn't really work and I had a meal, and Mrs. F. and L came in to see me with a pack of Wine Gums (for medicinal purposes only). Mrs. F. was pleased that I was a little happier than when she had left me. Not much gets past her and L is a very funny girl and so we had a lot of laughs and L and I destroyed a large bag of Wine Gums in the time they were there.

After they left, it wasn't long before lights out was happening and I was happy to have my light out at 9:30 and try and get some sleep. I was still too angry for sleep and the MP3 player did its best. I got perhaps 2 or 3 hours of fitful sleep but the chap diagonally opposite wasn't at all well and coughed and wheezed and was constantly being attended to. In the ward across the way at about 2 in the morning all hell broke loose as the lady in the bed was horribly ill and they needed to do a major clean. There were bangs and metallic crunches and rings as people clattered about to control her condition and to make the bed fit for her to return to.

In fact, that is the thing about Hospitals - you don't get any rest there are always people walking past you or along the corridor and dropping things and banging into doors and people taking measurements and all that. It is worse before you go to Theatre as every footstep could be the one coming to get you.

The Hospital experience is not my favourite. I am hoping that this was the last time that I need to go through all this. The mental preparation and the dread of it hasn't gone away, in fact I am better at this than I have ever been because I have prepared myself for it.

I suppose the best news about the whole thing is the fact that the bladder looks OK, it has a few phaser blasts and light sabre marks to the walls where the BCG and surgery have done their thing and in reality, I am most grateful to the team of people who have done this for me. Whilst I may not have enjoyed the "customer experience" the outcome looks to be the one that I've dared to hope for. Another few weeks waiting around to find out the results and I hope to have a good reason for mindless celebrations.

So, after a horrible night in the ward, at 6 the nurse came and removed the catheter and joy of joys no bloody injection before hand - they fill you full of antibiotic and blow me if they don't come along and whack you with another lot - but this time, out came the catheter and all was well with the world apart from the leaking you get for the first few hours. I duly filled myself up with water and made use of freedom from the bed - on reflection I should have done a Mel Gibson at this point, stuck on some blue paint and screamed out "FREEDOM!!!" at the top of my voice. I doubt anyone would have awoken and it would have been met by coughs, wheezes and the odd fart no doubt!

I asked if they would NOW take off my cannula and the device on my shoulder so I could have a shower. "Have a Shower with it on" These people are taking the p*ss I thought. In fact I thought of harsher words than that and at one time, I was considering coming home and taking out said Cannula and device myself - how difficult can it be? I was desperate to get home. I managed to sort out a good pee in a jug for them and they recorded that, had breakfast and delivered another "good" one and then got the news "just one more" I thought they were "F" joking. When I said that "you're moving the goal posts" I was told it has always been "three". "It wasn't last night" and neither had it been at anytime before. Apparently now it is as I asked two or three people. I then decided to divide and conquer by getting all the nurses involved. Having done the third pee and it being of good colour and consistency, quality and quantity I could go home. out came the cannula which bled like you cannot believe. I was surprised I had that much blood in my body. The other thing in my shoulder just came out - it didn't seem to be in a vein or anything but there was a needle dug in me :-( YUK.

So I got dressed and we re bandaged my hand after staunching the blood. I said goodbye to my fellow patients and got out as fast as I could. Rang home and Mrs. F. came and got me.

The Registrar told me that if I got any infection (Cystitis) or any thing like retention I must get back into Hospital A&E (ER) straight away. He then informed me of the possible scenario - again he said that it all looked clear but that lab tests would confirm. Then said they would need to look inside my bladder again at 3 months.

Dread - I don't want another of these in 3 months. I really hope what he means is a Flexible Cystoscopy. Now these aren't particularly pleasant things to have but in terms of keeping their eye on you they are a lot better than the preceding I can tell you. My first and to date only Flexi was 2 1/2 years ago when I was diagnosed. The pain afterwards was excruciating but I feel I can probably deal with that now and it will be done locally not miles away as it was then. I'll find out in a few weeks time what comes next and I will try not to get too excited just yet about being clear. If I am what celebrations we will have.

That's Better

I managed a few scattered hours of sleep. I forgot that I'd be leaping in and out of the toilet as I had been drinking water all day long so it was a bit of an hour here and there. Got up, a shower and beginning to feel the bruises and where they pulled me about on the Operating Table.

My brain is still a little fuddled as I can now see from yesterday's e-mails and blogs :-) No wonder they won't let you drive home after a GA!

I'll try and piece together Scar Wars VI later and post it up here.

The main thing is that I'm certainly in a better sense of humour than when I left the Hospital yesterday. I am glad that I didn't fire off any smart arse one liners to the nurses - they have a difficult job as it is. I was almost about to accuse them of bed blocking but thought better of it. It is amazing how you can turn from being a nice rational happy guy into a monster in short order. I have to remember it is a system failure, lots of people are very ill at this time of year and whilst I was a priority patient (you are because you have been cancelled once already) it wouldn't have mattered if these had been done in January really. It is amazing how stress and frustration makes even the mildest of us into angry people.

Sleep

Had a few hours in bed, a few hours in the chair and now off to seek a long sleep in MY BED and hopefully all will be well with the world in the morning.

Crikey Christmas Eve tomorrow. I shall be taking it very easy tomorrow I can tell you.

Settled down a bit now

It is always good to be home. I ended up in main surgical ward - it reminded me of Florence Nightingale, the Crimea and Consumption so I hardly slept at all due to the coughs and wheezes of the sick people :-)

Anyway, certainly in a much better sense of humour now that I have had some hours napping and running to and from the toilet all day :-) Keep the liquid intake up!!

Curiously having a catheter in overnight meant no burning and stinging sensation this morning which was a relief when going to the loo for the first and subsequent times - something to be said for that then but I still cannot stand stuff hanging out of my body and I was so uncomfortable with that and the half a mile of piping on my cannula. . They need to make up their minds whether they expect quantity or quality with urination checks. They asked for 2 last night then once I did that they changed their mind and made it three. By now my sense of humour failure was almost complete. The Cannula hurt like crazy and bled like mad when it came out and there was another one stuck in my upper arm near my shoulder which came out with no problems. Never had one of those before either. I wonder if they prepped me for something larger or because of the heightened state I was in did something else to me. I'm sure this wasn't the handiwork of my Consultant perhaps one of her apprentices.

Anyway, I'm back to my normal happy self after having gone through a pretty anxious and unpleasant day and a half. I've never had a set of biopsies like this - it actually felt like the 2nd TURBT in terms of how rough I felt. The cancellation bit was a nightmare and then as I was about to go home to reverse that was devastating, not that I didn't want the procedure, that I had resigned to not getting it done to 2009 in January and then all of a sudden it was panic stations, get the gown on, wow your blood pressure and heart rate are high - "No shit Sherlock!!" :-) I was into Theatre in 5 minutes flat - that from about to put my jacket on.

More when I feel up to it- have sat too long on this hard chair and can feel complaints coming from nether regions :-)

Back in one day

Fat chance. Back this morning. OK but a bit more battered and bruised than any of the previous. I thing they used a rusty drain pipe. Can't believe it I was catheterised overnight too, had bits sticking out of me and had a terrible night's sleep. Home now. I am going to hit the shower and lie down in a darkened room for a while.

Good News = Whilst there is red patches and scarring - it all looks normal. Obviously microscope will determine that. I wasn't impressed that I may need another of these in March though :-( More when I settle down - it was all a bit fraught as I was cancelled almost and then straight into Theatre at the 11th hour - nerves frayed to pieces as is patience in keep changing the goal posts on getting out.

A disturbed night

The dreams were back with a vengeance last night. In one, I waited for hours and hours to find they'd put me in the wrong ward and missed it again. They eventually put me last on the list. In another I met the in-between man - he holds the injection to bring you back from the dead and he'd had two already that morning. Pretty obvious where my brain was in gear last night then?

Have had my tablets and showered and I am packed ready to go. There is about one hour to go now. I'm tired but otherwise relatively neutral at the moment. It seems to be the pattern that the days leading up to the event are more anxious than the day itself. I was doing my deep breathing self hypnosis stuff yesterday but probably heightened my awareness of today's events rather than settled myself down.

I have my MP3 player on me and so I'm ready to get going and get this done and out of the way. I'm also ready for Christmas having sorted all the presents out and everything is wrapped. The biggest problem this year has been the chaos of the last two weeks where I have missed sending out cards to everyone or to some people. I did a lot earlier in the month and somehow I think I lost my list and unlike me, I cannot remember who got cards, who didn't and whether I sent them an e-mail or not. It is very unlike me - I haven't sent out the Company Christmas Cards (I normally do about 100 printed and 700 or so e-cards) either. It is a sign of the disruption the cancellation caused me that a lot of these things are not done.

Off to bed and guess I ought to get packed

I haven't done that - a bit strange but I just realised that I haven't packed my case. I'll do that now and get off to bed and get a good night's sleep. Some relaxing thoughts and breathing and I should be OK. I need to get up early and get ready - Mrs. F is going to drop me off before she gets on with her day.

I do hope that I get out on the same day this time - it is always much better to sleep in your own bed I reckon and you feel far more comfortable too.

That is food out of the way

I've had my evening meal and I'm having a last coffee and then just drinking water from now on. No more food after midnight (or was that for Gremlins?) I can have water up until tomorrow morning at about 6:30 or so. I'll need just enough to take my tablets and then I can head off to the Hospital. Some breathing and positive thoughts and my MP3 player and off we go again.

Let's hope that this time there are beds available and I can get this over and done with. It means a lot to me to get it out of the way. Each of the steps you take along the way are major milestones in getting cured and moving on. This could just be the last of the "heavy" steps along the way. Diagnosis, TURBT, BCG and Biopsies plus the IVU X-Ray (my personal worst experience of all time) can all be consigned to the experience and the "in my past bin" I hope.

Only present I want this year? Yes you guessed it. Fingers and everything else crossed that it all gos to plan tomorrow.

Ho Ho Ho

A Good Reason Not to eat Ice Cream

Very funny - I saw this - it is too late for my Christmas List but how about coming home from Hospital to see this on the Toilet???

Mumbo Jumbo?

I used to think that Hypnosis was just that Mumbo Jumbo - I'm the sceptic (not septic) and the enemy of Snake Oil and all that stuff but I did go for Hypnosis and for me it did work. I was a bit tense the first time and a bit worried about it. I needn't have been and it worked really well on tackling some of the very serious anxieties I used to have going into Hospital. My blood pressure would go through the roof (it still goes up but not as much) and I'd be in pieces. Fears from my childhood of painful procedures, being wired up for days to rigid bits of kit and spending days recuperating at home made for me, after 11 or so operations, with up to a month off on each occasion have a childhood and education interrupted by what today are minor procedures.

Steve in his excellent Got Bladder Cancer Blog advocates using a breathing technique SEE HERE

I use something similar to the second technique:

1. Find a little space preferably where you are not disturbed
2. Get comfortable
3. Long slow deep breath, hold for mental count of 4 as you exhale slowly close your eyes
4. Silent mental count 1 to 10. Count each number as you breathe out. Between each breath say to yourself "one..Deeper Relaxed..Two..Deeper Relaxed.." etc
5. By the time you reach the number 10 you can go deeper by visualising:

• Counting again from one to ten
• Going down one escalator after another
• A beautiful spot in nature, noticing the sights, sounds and smells (or somewhere you feel at ease)
• Skiing down a mountain
• Walking downstairs
• Swimming in the sea or lying on a sunny beach
• Floating gently on a cloud

When you are at a level of trance at which you feel comfortable, give yourself positive suggestions. Give each suggestion at least 10 times - be passionate about it; feel it, believe it

Emerge yourself silently and mentally by counting from Ten up to One and then open your eyes. As you are emerging yourself, give yourself suggestions that you will emerge "full of confidence, energy and vitality for the rest that you have just had, feeling marvellous in every way"

The suggestions I was given are below:

Every day in every way I am getting better and better
I am in control, I create my own reality
Negative thoughts have no power over me, I am in control
I create my own reality through the power of my mind and this is so
I persistently think and act in the direction of my good and my goal; to be a happy, healthy, relaxed person
I am love. I am loving, loved and beloved
I am healed by the Creative Force within me
My body knows just how to keep me well and I pay close attention to its signals. I obey those signals, I relax, I let go and stay well
My body systems are co-operating with the surgical procedure, we are all working together to create healing
My blood pressure is normal and will stay that way
My lungs breathe easily and effortlessly
Every day in every way I am getting better and better.

Now - you may think it is all Mumbo Jumbo but for me - it worked really well and this, together with music (all types work for me although thrash and heavy rock don't really soothe the mind in a Hospital - they are OK post Op though) help me to calm down. I can take myself into Hospital and not need anyone with me anymore and I can and have managed to see off the 3 previous lots of biopsies and 2 previous TURBTs plus 24 BCGs this will make 6 visits for General Anaesthetic procedures on me in 2 1/2 years. Sure - no one likes it but if you can control yourself then you begin to get to the purpose of what this is all about. It is about curing you and making you better. Sometimes it doesn't feel like that and yet at the end of the day it IS what this is all about.

How can I be of a cheery disposition and (normally) be positive? I often consider this to be a number of things:

• A wake up call
• A blessing (perhaps not quite the right word)
• A turning point
• Time to reappraise what IS important

I wouldn't say that you get some sort of deep and meaningful religious insight or suddenly the meaning of life pops out and bites your bum or anything but you do start to see things in a different light. Seeing the operations as steps to getting better and the treatments, which are challenging to say the least, aren't there to be horrible or to hurt you they do actually make you fight and get rid of (to a great extent) your Cancer. You just have to mend your thought processes around to the positives in all the horrors that are done to you. I still subscribe to the old adage that there are people far worse off than you and that I am lucky to live somewhere that not only has the ability to cure me but has the staff, resources and know how to make it happen. In some places in the world, I'd be dead by now, that is why I shouldn't be angry anymore about having got cancer and that is why I should be positive all the time.

A quiet day

L - who is off to Argentina next year on a World Challenge Expedition - is out again today and for the next three days bag packing and hoping to get some money from shoppers so that she can raise the money to go. She is meant to raise as much as she can herself and she has done really well. She needs about £3,500 to go and perhaps £1,000 for equipment. She is over 1/2 the way there.

I found out that Mrs. F didn't tell A that I was going into Hospital although I think that A probably knew as I'm sure I would have said something. She will let A know after I come out. Mind you not that A would be particularly worried about me going in anyway.

There is little left to do except for me to pack for tomorrow and I must catch up on my studies and on writing up this 75th History which, I am pleased to say looks to be nearing some sort of shape as I have all the information and the general layout sorted out now.

I'm trying not to think about being uncomfortable next week :-)

Sorry - it still cracks me up every time I see this photo - OUCH :-)

This time tomorrow

I actually hope to be asleep and getting ready for Monday's Op. I have managed to do a pile of work today but need to consolidate that somehow and to catch up on my Foundation course work. I am actually 2 weeks behind which is a worry. Mind you - quite how I could have studied Plato last week and Poetry this is beyond me - my head just wasn't in it.

I also need to work out quite how I go about doing my two assignments. All of this can wait as there is always bags of time over Christmas and the New Year when I am at a loss as to what to do and so I need to make sure I do it then. it can all be done sitting down and I have a Laptop so it isn't as if I will hurt myself???

I have to remember that next week - don't lift or do anything too strenuous. We just realised that I cannot walk over to me in-laws on Christmas Day - it is just too far and there are a couple of up hill stretches that would for sure mean I'd start bleeding. The number of times I've done stuff and regretted it afterwards!! I just need to remember that they do dig much deeper with these biopsies and I have to be careful for a good three or four weeks.

You know, the main thing is to hear the words all clear in the New Year. It wouldn't quite be re-birth but it could be damn close I reckon.