Have a look HERE at a post made on a social networking site ecademy. I sometimes feel like this myself that actually whilst I survived etc etc there is still this problem of never quite getting back what you had before.
See what you think - it is a bit stark I grant you but makes me look at my situation in a much better light.
The weekend starts tomorrow really but today was good news day for Steve in the US who is again all clear after 21 months and has 3 more BCG treatments and no more pushing and poking around with until September. It is great news and the wonders of medical science are that this killer of a disease can be treated and have good rates of success is a testament to all the wonderful people who have researched this and of course all those patients who have gone before us.
It still amazes me that someone should come up with the thought that flooding your bladder with BCG would invoke an immune reaction that would help get rid of the cancer cells and strip those away allowing you to grow a new lining of normal cells. Amazing really when you think about it.
So that has started my weekend off well. The sun is out and it looks to be the beginnings of spring with crocus flowers emerging after the last few months of snow and rain and grey days it finally looks to be a pleasant again. That lightens my mood too.
I've said before that I don't think I actually have Depression as some would describe it but I certainly feel "blue" a fair bit and down, tearful and sometimes even lacking self confidence. I am certain it goes with the territory of having had cancer and finding that I am still concious of my recovery which is ongoing - it isn't over yet by any means.
The wonders of the weekend are the joy of hearing Steve's news, the end of a particularly difficult working week for me and that this week I DID make a difference to people's lives and may have two or three people now aware of the charity and it's services as well as all the major charities.
If I'd have got up and gone to the Station I would have found no trains as there is a fire further up the line and I imagine the City must look like 1/2 day closing as hardly anyone can get in from the South East of the capital. Anyway, I'm not one of them.
I am out later giving a talk to a Lodge which will be great. It is reasonably local to me - just 9 miles away. It is amazing as it will take me a lot of time to get there as I have to drive at School going home time and crosses a series of major roads. The Sat Nav reckons 24 minutes - I reckon I can double that.
I'm feeling pretty neutral today but the sun is out which makes a change - the last few months just seem to have been grey all the time. Everything gets a lift when we get a nice Spring day like today.
Nearly went back to bed I was so tired. Managed to get to work, falling asleep only twice at my desk and many more times on the train on the way home :-)
Tomorrow is big committee day - last time I got out of my pram and threw my toys around this time I envisage putting the committee onto the defensive and setting them things to do.
I feel a bit low still but I have turned out stacks of work in the past few weeks and it should culminate in some kudos tomorrow - although that doesn't pay the bills of course!!
I am then off on Wednesday and Friday with a few other bits to do in between. Ii have a mountain of paperwork to get through but hopefully by this weekend I can get that done ready to hand over some of my job to my successor. I live in hope.
My friend has called to say his company are about to make him redundant and in a way that has freed his mind a bit and allowed him to consider his options. He and I are involved in this other venture and I am now seriously considering quitting or coming away from full time properly the current job. I am finding it difficult to sort out quite what I should do as I can see an argument for both side, can see that I have been lucky to work with some lovely people and all that but, fundamentally there is a problem with doing what amounts to your hobby in a full time capacity.
My appointment is now set for the 12th April and my pre-assessment is the 6th. It looks to be an early appointment so who knows I may get out the same day - it hasn't happened recently but I live in hope.
Energy levels are quite low after the excitement of the weekend and two meetings one after the other. The trouble is, as always that I put a lot of effort in and the great news is things went well but afterwards it is all a bit of an anti climax. I'm just feeling tired and tomorrow I need to head into work which I don't fancy at all. Tuesday is committee which looks like I'll end up controlling and then Wednesday I am out at a Lodge doing a talk in the evening. Thursday is a nice half day followed by a Lunch event. Friday I have decided to stay at home to recuperate.
It is strange - I just feel lazy and don't want to do anything at the moment.
My other friend who has Bladder Cancer has been given the all clear. Thank goodness for that - we thought it was bye bye bladder last time I spoke to him. In fact he is just on check ups. I wonder if that was because of the immense trouble he had as he had to go back to theatre he was bleeding so badly last time. Anyway - good news for him. That has cheered me up a bit considering the bad news about my friend's dad yesterday.
What happens is that every time you hear this it brings you back to your own situation (of course it does) and I start to consider how lucky I really am and in a way it cheers me up and depresses me all at the same time. I'm really glad that I am where I am and I feel like I do but also there is the realisation that many people don't have that good fortune and their lot isn't so good.
I decided to get back onto the Cross Trainer today and surprised myself with a 15 minute workout that went quite well. I am surprisingly fit but need to do things regularly to be of benefit. I just need to get my diet under control a bit better. The inevitable lunches and dinners I go to throw this out every week. I need to make sure that I eat properly though and so can't starve myself or do anything too serious as it may affect my health in other ways.
Still - I am in better temper than I have been for a while and whilst Ii still cant say I am enjoying my job, at least it isn't getting me angry like the past few weeks.
I was back to running the show today and so was busy and involved and then some other things came up and I was back in and interested. I imagine it will only be short lived. I am off tomorrow and Friday and again doing three or so days a week helps me to stay there and not to chuck it all in.
Got a shock as the chap who suggested I set up this blog let a few of us know that his dad has tumours in his brain and lungs and has been diagnosed with cancer. It sort of knocks me off balance a little when I hear these things. at least, I think, I can offer some assistance somehow. He starts radiotherapy very soon and I'll see him in a few weeks to have a chat.
I can at least give the human side of the patient so that no one makes the mistakes I've seen when they talk to me documented earlier in this blog.
So - what for me? feeling a bit worn down really and awaiting the date for the next procedure/operation. they said they would get back to me on Monday and didn't. I'd like to know so that I can ensure that I don't have any appointments at that time.
I am still working out whether or not to stay at the job - it really doesn't do anything for me although I am one of the characters in the organisation - I don't carry any responsibility or much clout and end up clerking a lot. I'll need to make a decision soon though.
I see that the pragmatic view is to leave the current job. If I give notice now then they can get someone in 5 weeks I would have thought and I can assist on the odd occasion going back in on a day rate if they need me. That is the pragmatic view. I'm thinking that if I do that I can start in April and get tucked into the other project. Of course, that doesn't pay at all and so there is a need to balance out the risk/reward equation.
Lots of "ifs" there but that is the choice I need to make. I remember the disappointment of the last thing I got involved with but with this one I am closer to the source and in the driving seat so it will be my own reputation that is on the line so to speak. Having taken close to a year out doing this before, I am being cautious about going out there again. However, I haven't exactly made up my mind today but I am thinking clearly now about what it means. I have to seriously consider that I may need to fund myself for 6 months doing this. I was hoping that we may have funding in June or July but if I set it that it is September then that gives me something to aim at.
I suppose watch this space will be the watchword.
The sun is out after a miserable start to the day and I'm sitting here working my way through my options for work and my other venture. It seems more important today that I put some effort in to the stuff I have been working on ready to go and get some finance for taking it forward. I also realise that I have some responsibility for the job too.
A long hard look at that really leads me to conclude that they need a clerk to do the work and me to supervise and come up with the creative side. I'm certainly not happy to sit there and be given work to do and to change like some oik. If they want to employ someone with their brains sucked out with a straw then that is what they should do.
I have no idea how this is going to end up. I'd like to tell them to stick their job tomorrow but some of it is good. I am out in a week or two to a meeting and that is good meeting other people and telling them about the charity etc., that's a nice thing to do as is creating some of the more useful documents they now have.
I have all day to ponder what to do.
How utterly strange that was last night. It kind of concerns me how ill I felt all of a sudden but some friends popped around today for a meeting and said that it was very hot in there and perhaps that may be it.
I was a bit annoyed that they saw it though - up until now I have been able to keep it to myself.
Anyway - moving on - the meeting was good and I can move on from there. It hasn't helped the argument to stay or not at work. I still need to consider what to do about that.
It was a lovely evening but at the end I had one of my strange funny turns and felt ill, claustrophobic and all that boiling hot, nauseas bit. I stood outside and was OK in a few minutes but just felt awful for that short time.
They are my friends and were worried about me which is nice. I don't like it as it shows some of the damage that my cancer has done to me. This is all about self esteem, self confidence and belief in myself and that actor quality that has always covered my tracks for me, failing at the last hurdle.
Whether I wanted to show this side or not, it happened and I felt really ill for a short period of time. Nice to see everyone being concerned but I didn't want their evening to end that way let alone mine.
I am really, really looking forward to a night out with about 16 of us. Flocky Bicep has organised it and we are starting off with a mini pub crawl - luckily enough all in the boundaries of my village so nice and easy to manage that the off to the restaurant which is a whole 5 minutes away at the most.
I've been feeling quite stressed out recently and I am looking forward to having just a good laugh and chat with the bunch of us.
Tomorrow I have some of the team coming in on our business venture and with a bit of luck I should be able to get some sanity into my thinking giving me a way forward. I hope so - I could do with some clarity of thought and to dump all this stressy baggage I am carrying around with me.
Everything just seems to be getting on my nerves at the moment. The job, trying to get things done when everyone (it seems) is trying to stop me - it sounds like paranoia doesn't it :-) ?
It just drives me to distraction and I wonder if I will be able to hold on much longer. I'd rather give it up and take a chance on this other job of mine if the truth be told. There is no money in it - or not at the moment but perhaps I'd be able to concentrate and actually get something achieved.
I know there is work for me to do where I am, I'm just really struggling now with the mediocrity of it all and trying to swim against the tide. Someone told me to take the money and live with it but it isn't me. I can't go native and be as bad as half these people. The good ones are good but the others really are "jobs worths" and I just know it is all going to end in tears.
So I am heading off to bed and hope to get another good night's sleep and a good day's work tomorrow.
If anything pisses me off more it is micro bloody management. If you can't trust me to do something say so and I'll give it to you. But otherwise stop interfering with what I am doing and stop stopping me by stopping me (if you get what I mean). Every-time I get somewhere I have to stop, stop my designers and get a proof run up for something that isn't ready only to be told afterwards that it isn't ready to be reviewed just exactly what I told them at the time.
Now, I am in my belligerent best, as everyone gets copied in to the "so shall I stop work until you've reviewed it or are you going to tell me that something is missing as if I didn't notice it? "
No wonder deadlines get missed. All that is going to happen now is that I have to stop work as I just waste time carrying on and it actually screws things up as "Changes will happen" not because they are necessary but because they can be made and the quality will suffer again.
Damn it, it annoys the hell out of me and no ones sees it - or rather they do but they actually can't help themselves they have to mess around with things.
This is the exact time when I am at my worst as I'm thinking - "well you can stick you job!" and the trouble is I'm getting really close to saying it too.
A slightly better turn of fortune today - a good meeting and I was impressed at how things went and was pleased that we had made some major progress. The girls are still giving me grief about me "not being me" and "not my normal old self" but at least this afternoon was a bit better and I was back to cracking some jokes and lightening the mood that no doubt I have created.
It is difficult to be the person who is always cheerful and has a good word for all.
I'm working at home tomorrow and Friday. I will do a bit of each sort of work some of the charities and some of my own. Curry night on Friday and I am really looking forward to that. About 14 of us and all going to my local curry house which does serve up good food so that will be fun.
Saturday will be working here all day and perhaps I will take Sunday off. The next few weeks are critical I think to get on top of both jobs and see if I stay or go at the Charity. I have a job there until 2017 if I pursue it and the thing is, whilst I'd love to do it I hate the journey, I despise travelling on trains that are too hot and airless, crowded and dirty and full of obnoxious people too half of the time.
I have picked up a number of things to do that I didn't want to do and so my list of things to do just got longer and longer.
Caught up with a guy I know who is having his biopsies next week and wished him well for those. Mine must be due in 6 to 8 weeks time now. Yuk. Mind you they could be the last.
I just listened to a load of old rubbish that my friend spouted out on the way home. The difference - I was sober and driving and he had a few too many glasses of wine. It was lucky he knocked one of them over earlier too really.
It could be me or it could be him but suddenly everything is somehow us younger guys not showing respect or doing something he wouldn't do and so on. The terrible irony of the situation is this guy is in deep financial do do and stares into the abyss regularly. He cannot budget or use logic to stop himself and somehow this road of righteousness is something that he wishes his disciples to follow.
I can't believe I have grown so far apart from him so quickly and yet in the early stages of my cancer he was one of those who played the dark humour card with me. He didn't he admits now realise quite how ill I was (mind you neither did I then). We had desperate times in our friendship when he introduced me to the business venture that I thought would allow me to be close to retirement by now and that collapsed. It was more a case of me seeing the problem late and not getting him out in time. They owe him a lot of money too and he will never get it back. They owe me a load of time - I suppose I could monetise it but - that is 2 or more years ago now.
Quite why he has gone off on to some one man crusade is beyond me. I am not sure that I would take things quite so seriously and he jumps to massively wrong conclusions only to be pulled back to the reality some time later. Yes - a strange thing indeed and the trouble is he made himself a target for a number of people this evening and that will just add to his woes later.
How interesting as I wrote this an apologetic email has arrived. Back to repair mode for me and him again.
Life gets bloody complicated sometimes - surely it doesn't need to be like this.
I'm OK today - I allowed myself a sleep in of sorts and got to work and managed to move things on quite well. I am off to a meeting a little later and hope that it will result in me being a bit calmer and chilled out than I have been although I have to drive through this incessant rain to get there at least I am not doing anything and that will be a result.
Back to work tomorrow and with any luck I can sort out the documents I need to do and set enough items in motion that I can take the next few days off to work on the other project.
It is probably the pressure I am putting on myself and the fact that it always appears to be me left sorting things out. Trying to off load responsibility to others is a hard thing to do especially when no one is coming forward to take them off your hands. I am definitely not my old fun filled self at the moment and I hope that I snap out of it soon. It seems strange to me that I should be filled with so much pent up aggression given what I've gone through. I should be laid back and not have any worries but for some reason that isn't happening.
Not really, had a conversation with a buddy in Prague. He is coming back to the UK - maybe, mind you he must have been there for a decade it seems. Had the usual chat about work, my BC and all that.
My sense of humour is a little better but I could easily walk into work tomorrow and just chuck it all in. I doubt that I will though. There are a series of meetings coming up this week and I am out Tuesday night too. Friday sees a night out with our impromptu curry club. That is back here locally as we have a good curry house and two pubs in the village so we have a 2 pub crawl followed by curry - something to look forward to. I should have been going to Surrey for a meeting but a local curry will be better I think.
The thought of trying to get on with my work this week fills me with dread as I can't imagine anyone will have actually done anything in my absence. It will be what it will be I suppose.
So I'm not in the best of humour still and I'm finding it hard to put the time in to do the two jobs I have at once. I haven't sorted out all of this yet. It would be easier if I could guarantee a job after June/July when this should shake itself down. The trouble is of course that I like the job that isn't paying anything yet because of the challenge and I hate the paid job because it is routine.
But not as bad as yesterday. Still want to go and break something or break something on someone :-)
I'm really surprised about this. I'm not angry on the outside at all. I am seething on the the inside though. How strange is that? Anyway, I had a coffee with Flocky yesterday and afterwards a quick beer on the way home and we discussed many things and some of the anger abated.
Calm down - easy to say - hard to do - is the order of the day but I just seem to see red when I talk to people in the office at the moment. I think they have worn away all my defences and I just want to smack them in the face and beat some sense into them....
I will plan to be in the office on as few occasions as I can again next week and work out what to do. Mrs. F. seems quite supportive of me if I just chuck it all in. Not sure that is exactly what I want to do although it would fix my problem it would leave others in worse problems and I don't do that to anyone. A weekend to think it through. At least my Lodge accounts were audited and agreed this morning so that is good.
