I'll have been "in" for an hour. I'm a lot better this morning and my back is just lightly twinging.
Today is as much about preparation as about sorting out the odds and ends of bits and pieces that have accumulated on my desk these past few days. So much paperwork and notes and post-its. I'll work my way through these to keep myself busy today.
That is a big part of today's strategy. Keep myself tied up with a list of small things and use up today's hours distracting myself from tomorrow's goings on. There are a number of things to do including packing, setting up my MP3 player, sorting out a book to take in with me and just doing some reinforcing stuff that my hypnotherapist left me.
The rest of the day is going to be spent trying to sort out the non balancing balance sheet :-) some letters and cheques I need to pay in and to catch up with invitations and acceptances and other stuff too.
Tuesday, April 10, 2007
Monday, April 09, 2007
Coming to terms with the outcome
It hasn't happened yet of course. I'm hoping that things have gone well and that I'll be put on maintenance. Like last time, of course, there is the possibility that they will find something and operate straight away. I won't know until I come around on that one.
The very worst that can happen is things have got seriously worse and that they'll need to do some serious work on me. I would imagine they would have to tell me after they had done biopsies etc.
If the treatment hasn't worked but things haven't got seriously worse then they can do another set of instillations and potentially they can do another batch with some heavier chemical cocktails in them.
I realised only recently that I really hadn't come to terms with either the seriousness of my condition nor indeed quite what it was going to mean to me. I think that I deal with it in a way that it isn't that serious (to me), it is treatable and that it isn't going to get me. I'm not sure of my level of conviction when I say it though. I think I have more doubts now (some brought about by the delay) that I did 3 or 4 months ago. I've been told by a number of professionals that I have had some nasty stuff happen to me and it was no wonder I was stressed out. All in all I have realised - perhaps in the past three or four weeks - just how serious and how nasty bladder cancer is especially in its CIS form.
This new "calmness" has been a relief to me as I feel very much at ease with things and perhaps able to cope with the next steps in treatment. I'm so pleased with the hypnotherapy - I really am finding it difficult to think in any truly dark and negative ways, those thoughts are turned and held at bay.
But there are loose ends in all of this too. It isn't just the treatment, it is things like insurances, job, career, family, friendships. money, lifestyle, overall health and a combination of things that all add to the mix. It isn't just a yes or no after Wednesday as each element (and I'm sure there are more than the few above) are going to interact with the other to dictate the next route to follow.
I need to get away from the guilt of having the luxury to think like this - some folks never get the chance do they?
The work / life / balance thing has never been more apparent to me than at the moment. Clearly I've made some quite important changes to my diet, my lifestyle and my outlook. The next set of decisions - post Wednesday - will probably also change the way I live my life from that point onwards. To date I am holding back and I'm still being very cautious. I wonder if I will throw caution to the wind or take the brakes off a bit, whether I'll look to work back in the fast and furious world or take a back seat. I wonder too if I'll be looking long or short term on such things?
Someone said life begins at 40. I'm 50 later this year - perhaps life truly begins then for me?
Speculation is fine I suppose - I need to wait until Wednesday and then perhaps a few weeks later to really know.
The very worst that can happen is things have got seriously worse and that they'll need to do some serious work on me. I would imagine they would have to tell me after they had done biopsies etc.
If the treatment hasn't worked but things haven't got seriously worse then they can do another set of instillations and potentially they can do another batch with some heavier chemical cocktails in them.
I realised only recently that I really hadn't come to terms with either the seriousness of my condition nor indeed quite what it was going to mean to me. I think that I deal with it in a way that it isn't that serious (to me), it is treatable and that it isn't going to get me. I'm not sure of my level of conviction when I say it though. I think I have more doubts now (some brought about by the delay) that I did 3 or 4 months ago. I've been told by a number of professionals that I have had some nasty stuff happen to me and it was no wonder I was stressed out. All in all I have realised - perhaps in the past three or four weeks - just how serious and how nasty bladder cancer is especially in its CIS form.
This new "calmness" has been a relief to me as I feel very much at ease with things and perhaps able to cope with the next steps in treatment. I'm so pleased with the hypnotherapy - I really am finding it difficult to think in any truly dark and negative ways, those thoughts are turned and held at bay.
But there are loose ends in all of this too. It isn't just the treatment, it is things like insurances, job, career, family, friendships. money, lifestyle, overall health and a combination of things that all add to the mix. It isn't just a yes or no after Wednesday as each element (and I'm sure there are more than the few above) are going to interact with the other to dictate the next route to follow.
I need to get away from the guilt of having the luxury to think like this - some folks never get the chance do they?
The work / life / balance thing has never been more apparent to me than at the moment. Clearly I've made some quite important changes to my diet, my lifestyle and my outlook. The next set of decisions - post Wednesday - will probably also change the way I live my life from that point onwards. To date I am holding back and I'm still being very cautious. I wonder if I will throw caution to the wind or take the brakes off a bit, whether I'll look to work back in the fast and furious world or take a back seat. I wonder too if I'll be looking long or short term on such things?
Someone said life begins at 40. I'm 50 later this year - perhaps life truly begins then for me?
Speculation is fine I suppose - I need to wait until Wednesday and then perhaps a few weeks later to really know.
A bit better tonight
I did no exercises this morning and my back has been rather tender all day but now, late at night it appears to be a lot better. I really didn't do much today and so almost complete rest. I'll see what tomorrow brings as I'd have liked to have done some more exercise before going into hospital. I will probably have to stop for a week afterwards remembering what they told me last time I was in.
I'll spend some time getting ready tomorrow and sorting myself out ready for Wednesday. I'm still feeling remarkably calm (for me) and whilst I'm not looking forward to the event, I am not like I usually am and getting more and more stressed out.
I really am quite impressed with both the medication and also the hypnotherapy which seems to have helped quite a bit.
I'll spend some time getting ready tomorrow and sorting myself out ready for Wednesday. I'm still feeling remarkably calm (for me) and whilst I'm not looking forward to the event, I am not like I usually am and getting more and more stressed out.
I really am quite impressed with both the medication and also the hypnotherapy which seems to have helped quite a bit.
Not a lot better this morning
My back is still giving me twinges to remind me it is there. I can only imagine it was a combination of loading, unloading and dragging the bouncy castle around too :-) Plus being on my feet the rest of the day here probably didn't help.
I hope I've gotten rid of this by tomorrow or Wednesday latest otherwise going into Hospital is going to be added fun.
Talking of which, I still appear to be a lot calmer about that than I have been before and I am not getting that "dread" feeling too. I am really hoping that I can carry this through over the next few days.
I hope I've gotten rid of this by tomorrow or Wednesday latest otherwise going into Hospital is going to be added fun.
Talking of which, I still appear to be a lot calmer about that than I have been before and I am not getting that "dread" feeling too. I am really hoping that I can carry this through over the next few days.
I paid for it on Sunday
Bad back - I wonder if that was the Easter Egg Hunt or pulling the BBQ out of the shed or just as I was on my feet for most of the day?
Whatever I have a sore back and whilst I can move about I can only do that slowly.
Whatever I have a sore back and whilst I can move about I can only do that slowly.
Saturday, April 07, 2007
Long, Long Day
It was a long day today, we started early and went to set up the Easter Egg Hunt and together with some really superb friends we had a wonderful morning and I really hope made some young people's day. I felt really good about our efforts today and I am sure that those who attended enjoyed the entertainment we put on.
Later on we had friends over for a barbecue. That took a bit more organising and work than I had expected. I unleashed my secret weapon recipe. Hot plums on Toasted Hot Cross Buns. You must try this. Slice up some plums (they say grill them). I put them on a searing pan and then cooked them down adding some honey and then after toasting some Hot Cross Buns, empty the plums and honey onto them. Wonderful.
A good day...
Later on we had friends over for a barbecue. That took a bit more organising and work than I had expected. I unleashed my secret weapon recipe. Hot plums on Toasted Hot Cross Buns. You must try this. Slice up some plums (they say grill them). I put them on a searing pan and then cooked them down adding some honey and then after toasting some Hot Cross Buns, empty the plums and honey onto them. Wonderful.
A good day...
Crikey
I do 6.5kMs on my cross trainer or more every day - that is 4 miles roughly. That's not bad at all.
Friday, April 06, 2007
In on a day like today
I remember my Mum saying that to me - it is a wonderful day outside and I am - stuck in here! I think I will try and wrap everything up in the next hour and sit outside.
My BP is even lower and all is ship shape today. I suppose I had better look out for getting a BP reading of 0/0/0 !
My BP is even lower and all is ship shape today. I suppose I had better look out for getting a BP reading of 0/0/0 !
Morning Report
Well - I got back up to 30 minutes exercise - a few minutes afterwards my BPM is 90 and I have a BP of 125/75 - stunning.
I still feel really good and not at all worried about going in on Wednesday. The ache at the back of my hand has gone too. I'm not getting any of those jitters and rising stress that I normally get either.
I have the house to myself as the family have gone off to London for the day and I need to concentrate on some accounts that are giving me a headache, some correspondence that I should have looked at a few weeks ago and getting ready for tomorrow's Easter Egg Hunt at the Old People's Home.
The weather looks set fair for today and tomorrow and so we are going to have some friends over on Saturday afternoon and who knows, I might even wheel out the Barbecue for its first outing of the year.
I still feel really good and not at all worried about going in on Wednesday. The ache at the back of my hand has gone too. I'm not getting any of those jitters and rising stress that I normally get either.
I have the house to myself as the family have gone off to London for the day and I need to concentrate on some accounts that are giving me a headache, some correspondence that I should have looked at a few weeks ago and getting ready for tomorrow's Easter Egg Hunt at the Old People's Home.
The weather looks set fair for today and tomorrow and so we are going to have some friends over on Saturday afternoon and who knows, I might even wheel out the Barbecue for its first outing of the year.
Quite relaxed about this
I am surprisingly relaxed about things at the moment. The rising panic and stress seem to have gone and I'm going to have to put that down to the tablets and to the hypnotherapy.
I was really sceptical about this before but having had three or four sessions now it really is interesting. The one amazing thing was that you lose your sense of time. I thought I was "under" for about 15 minutes and yet this time I was out for 55 minutes. The experience was totally relaxing and a little psychedelic too.
I'll see how I am tomorrow. Spooky!
I was really sceptical about this before but having had three or four sessions now it really is interesting. The one amazing thing was that you lose your sense of time. I thought I was "under" for about 15 minutes and yet this time I was out for 55 minutes. The experience was totally relaxing and a little psychedelic too.
I'll see how I am tomorrow. Spooky!
Thursday, April 05, 2007
Don't try and do double entry bookkeeping
with a fuzzy head. Cor - this is doing my head in and I have a small anomaly in hundreds of entries and blow me - it is taking ages to find it. The good thing with a balance sheet is that when you do find it everything just falls into place. I'm really puzzled on this one, it is such an "obvious" amount.
I keep having to take my blood pressure and pulse - it is SO strange having so low a set of readings. Also my hypnotist has also left me chilled out too (well chilled out but sort of up and lively as well if that is possible?).
It is too early to say whether he has managed to cure me of my fear of Hospitals and all that so watch this space. All the positive messages are great though and its the like many of these things, a positive mental attitude, optimism and taking control yourself (if you can) all seem to help. I'm hopeful that I can now look upon the experience of going into hospital as one of taking the next step to health rather than anything else. Anyway. let's see how we progress with that.
I keep having to take my blood pressure and pulse - it is SO strange having so low a set of readings. Also my hypnotist has also left me chilled out too (well chilled out but sort of up and lively as well if that is possible?).
It is too early to say whether he has managed to cure me of my fear of Hospitals and all that so watch this space. All the positive messages are great though and its the like many of these things, a positive mental attitude, optimism and taking control yourself (if you can) all seem to help. I'm hopeful that I can now look upon the experience of going into hospital as one of taking the next step to health rather than anything else. Anyway. let's see how we progress with that.
Second Day on the pills
And my Blood Pressure is tumbling. I think 115 over 65 is pretty low and 75 BPM heart rate is pretty low for me.
I suppose I ought to come around to everyone else's way of thinking now then that this probably was a good move.
I suppose I ought to come around to everyone else's way of thinking now then that this probably was a good move.
Just Call Me Mr. Horizontal
No - just do it :-) My BP is the lowest I have ever seen it, my pulse is a trace and I feel brilliant. How much better can today get? If I was any more laid back I'd be horizontal...
Hypnotherapy
I'm no Wacko - strange, peculiar, quirky, off the wall, and other descriptions may well apply but I'd give a Life Coach a good kick in whenever I met one and I don't believe in mumbo Jumbo and "the Law of Attraction" which sort of says that I deserve to have Cancer may, as you may imagine, really upset me!
So - Hypnotherapy - what do you think - strange, weird, all a bit stage show and people barking like dogs etc?
In my limited experience, nothing can be further from the truth. Some time ago I had hypnotherapy to stop my craving on smoking. Nice job - how about this - no side effects, no cold turkey, no screaming at everyone no standard withdrawal symptoms like yelling at everyone, tearing my hair out, over eating etc. So what I hear you ask?
Well - I'm terrified of going into Hospital - it is the most frightening thing for me - I don't know why but it is. You must have guessed that from my previous posts. So I spoke to my friend and he agreed to come around this morning and work his magic on me. My Guardian Angel has something to do with this - I got an e-mail saying do it OR ELSE :-) I need no more prompting than this as I can imagine getting the wrong side of this lady :-) I'd have my arm ripped off and be beaten with the wet end if I didn't. I'd back her in celebrity death match against anyone!!
He used a "wellness" script (some people may recognize that phrase as "snake oil" but in this case it isn't) It was really good. Usually I am in quite a shallow trance (basically because of being sceptical). This time I was in quite deep and it was really quite "Trippy" but based on what was being said. I thought I'd been out for 15 minutes where in fact it had been 55 minutes. I won't really know how this has worked until next week of course but I feel fantastic (You often do coming out of hypnosis) and I can (at the moment) think about next week without getting wound up about it.
I'm not feeling at all anxious, upset or funnily enough that bothered about it and yet I have been for ages. I remember this from the last sessions I had and I have to say that if it worked then and after 20+ years of problems - solved them - then this too is a bit of a success. I certainly feel an awful lot better than I did before.
I will keep you posted - I now feel good about going in next week - how strange.
So - Hypnotherapy - what do you think - strange, weird, all a bit stage show and people barking like dogs etc?
In my limited experience, nothing can be further from the truth. Some time ago I had hypnotherapy to stop my craving on smoking. Nice job - how about this - no side effects, no cold turkey, no screaming at everyone no standard withdrawal symptoms like yelling at everyone, tearing my hair out, over eating etc. So what I hear you ask?
Well - I'm terrified of going into Hospital - it is the most frightening thing for me - I don't know why but it is. You must have guessed that from my previous posts. So I spoke to my friend and he agreed to come around this morning and work his magic on me. My Guardian Angel has something to do with this - I got an e-mail saying do it OR ELSE :-) I need no more prompting than this as I can imagine getting the wrong side of this lady :-) I'd have my arm ripped off and be beaten with the wet end if I didn't. I'd back her in celebrity death match against anyone!!
He used a "wellness" script (some people may recognize that phrase as "snake oil" but in this case it isn't) It was really good. Usually I am in quite a shallow trance (basically because of being sceptical). This time I was in quite deep and it was really quite "Trippy" but based on what was being said. I thought I'd been out for 15 minutes where in fact it had been 55 minutes. I won't really know how this has worked until next week of course but I feel fantastic (You often do coming out of hypnosis) and I can (at the moment) think about next week without getting wound up about it.
I'm not feeling at all anxious, upset or funnily enough that bothered about it and yet I have been for ages. I remember this from the last sessions I had and I have to say that if it worked then and after 20+ years of problems - solved them - then this too is a bit of a success. I certainly feel an awful lot better than I did before.
I will keep you posted - I now feel good about going in next week - how strange.
Amazing
I can see why they ban Beta Blockers in sport. I decided to do just 20 minutes and took things easy. I managed to complete as many kMs as I normally do in a session. I am hardly out of breath and my BP and Heart beat are low even recovery has been quick.
Wednesday, April 04, 2007
Surreal Thought of the day
So - I'm at a Jazz night and there is a chap who plays the Washboard.
Anyone under the age of 50 may want to be excused at this point. A Washboard is a corrugated piece of metal they used to wash clothes against and scrub them with a brush years ago.
OK - In a Jazz band they washboard is played with metal thimbles - here we go again. Thimbles are things for protecting your fingers when sewing (please don't ask me to explain what sewing is!!!).
So sticking thimbles on your fingers and rubbing those up and down a galvanised and corrugated board makes a rasping sound ideal for Jazz songs. PHEW - so far so good. I wished I'd thought how hard this was going to be before I started writing it :-)
The surreal thought is this. The chap that plays this turns up tonight night with his wife. Go back 50 or 60 years when they are courting and she takes him home to meet her parents. Can you imagine what the conversation would go like?
Father: "So what do you do for a living?"
Player: "I play a Washboard"
Father: (somewhat taken aback but being British) "Will it keep my girl in the style to which she has become accustomed?"
Player: "I don't know, what instrument does she play?"
Father: "So what do you actually do playing a washboard?"
Player: "I put on a bunch of metal thimbles and strap this washboard around my neck and run my fingers up and down it to make a sound."
Father: (Looking curiously at his pipe which has begun to sag out of his mouth and taking a large swig of his Whisky) "And you make money doing this?"
Player: "Well yes, kind of"
Father: "Mother - come out here and listen to this" (Waves Pipe in the air in a beckoning way)
Mother: "Yes Dear?"
Father: "Doris's boyfriend plays HIS washboard and makes money doing so. How come you just wash the clothes and I've so far had no return on investment?"
Mother: "You are such a Banker!"
OK - OK - I have probably just proved why you shouldn't do these Heart control drugs!
Kids - don't do drugs......
:-)
Anyone under the age of 50 may want to be excused at this point. A Washboard is a corrugated piece of metal they used to wash clothes against and scrub them with a brush years ago.
OK - In a Jazz band they washboard is played with metal thimbles - here we go again. Thimbles are things for protecting your fingers when sewing (please don't ask me to explain what sewing is!!!).
So sticking thimbles on your fingers and rubbing those up and down a galvanised and corrugated board makes a rasping sound ideal for Jazz songs. PHEW - so far so good. I wished I'd thought how hard this was going to be before I started writing it :-)
The surreal thought is this. The chap that plays this turns up tonight night with his wife. Go back 50 or 60 years when they are courting and she takes him home to meet her parents. Can you imagine what the conversation would go like?
Father: "So what do you do for a living?"
Player: "I play a Washboard"
Father: (somewhat taken aback but being British) "Will it keep my girl in the style to which she has become accustomed?"
Player: "I don't know, what instrument does she play?"
Father: "So what do you actually do playing a washboard?"
Player: "I put on a bunch of metal thimbles and strap this washboard around my neck and run my fingers up and down it to make a sound."
Father: (Looking curiously at his pipe which has begun to sag out of his mouth and taking a large swig of his Whisky) "And you make money doing this?"
Player: "Well yes, kind of"
Father: "Mother - come out here and listen to this" (Waves Pipe in the air in a beckoning way)
Mother: "Yes Dear?"
Father: "Doris's boyfriend plays HIS washboard and makes money doing so. How come you just wash the clothes and I've so far had no return on investment?"
Mother: "You are such a Banker!"
OK - OK - I have probably just proved why you shouldn't do these Heart control drugs!
Kids - don't do drugs......
:-)
What a difference
In just one day I am amazed that my blood pressure has reduced by so much and my heart rate too. Of course the drugs are doing what they are supposed to do but I've never seen readings like these and even at 11:30 at night my BP is lower than that when I wake up.
I'm beginning to get used to the light headed feelings. I'm sure they will go away once I get acclimatised to the side effects (or perhaps the results).
So I'm going to take myself off to bed - apparently a side effect is a disturbed night's sleep.
I'm beginning to get used to the light headed feelings. I'm sure they will go away once I get acclimatised to the side effects (or perhaps the results).
So I'm going to take myself off to bed - apparently a side effect is a disturbed night's sleep.
Light Headed or what?
Blimey - these meds have really kicked in - talk of felling light headed. I can definitely feel the difference.
I am going out tonight to listen/see a Jazz night. It was great last month - I suppose I had better be a little wary over this new found almost floating sensation.
I am going out tonight to listen/see a Jazz night. It was great last month - I suppose I had better be a little wary over this new found almost floating sensation.
No - Ridiculous
Yes - absolutely ridiculous
My BP is - well - so low I can hardly believe it and I am concerned that a heart beat getting close to a beat a second can't be that great :-)
We are talking a massive decrease in Blood Pressure - no honest - 116/75 at 65 BPM in the late afternoon that is better than my lowest by a long way - Whoa! At least my nurses will be pleased and...
Guardian Angel :-) .....
If you are reading this - my Hypnotist friend is coming around tomorrow to see if we can combat my phobia about Hospitals, needles and the like.
Now wouldn't that be a leap forward if that could happen? I'd be really pleased if I was able to control all of the fears and worries on that side.
My BP is - well - so low I can hardly believe it and I am concerned that a heart beat getting close to a beat a second can't be that great :-)
We are talking a massive decrease in Blood Pressure - no honest - 116/75 at 65 BPM in the late afternoon that is better than my lowest by a long way - Whoa! At least my nurses will be pleased and...
Guardian Angel :-) .....
If you are reading this - my Hypnotist friend is coming around tomorrow to see if we can combat my phobia about Hospitals, needles and the like.
Now wouldn't that be a leap forward if that could happen? I'd be really pleased if I was able to control all of the fears and worries on that side.
Appears to be doing something
I decided that I ought not to do the exercises this morning and instead had a small breakfast and took the tablets. They did kick in although nowhere near as "punch like" as I was expecting but I do feel a little light headed (not feint headed) and I can tell my heart isn't beating anywhere near as fast is it has been these past few days. Blood pressure is down, not markedly, but down nonetheless and it is in the normal band.
I'm taking things easy this morning and making sure that I am getting up and down slowly and not doing anything stupid just in case.
It is not as marked a transition as I had expected but I do certainly feel something has changed. More as it goes on I have no doubt.
I'm taking things easy this morning and making sure that I am getting up and down slowly and not doing anything stupid just in case.
It is not as marked a transition as I had expected but I do certainly feel something has changed. More as it goes on I have no doubt.
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