Monday, January 17, 2011

Fellow Cancer Suferer Requires Some Funds

Here is a LINK to a blog about a lady in the US who is undergoing pioneering treatment but has to stump up the costs herself to get to and from the centre which is half way across the US from her home. She has just undergone Cyberknife treatment as well but just gets on with things.

If you can spare some cash to assist in the travel arrangements I'm sure that would be gratefully received and I'm guessing that if you are local you'll be able to assist in other ways.

Want to know a bit more click HERE. I'd commend the blog to you as well because it has an incredible main story and lots of other things happening too.



Sunday, January 16, 2011

You know who your friends are

That's what it is in the back of my head bang, bang, banging away. What is it?

It is that you are on your own no matter what people actually say. Here's my nagging niggling thought. I've not been great in the head for a good few weeks and of course, it has to be a couple of things doing that:

  1. Cancer undermines most of your self confidence and self esteem
  2. I am finishing my old job at the Charity - I have to say good bye to it
  3. The new job is in reality not a whole group of us but just the two of us

Let me explain:

  1. The thing that cancer does to you is to make you worry about it coming back or coming back as something else - I mean if you've got it once - perhaps your body will do it to you again and let you down. So underlying absolutely everything must be that in the back of your mind and most of the time you get a quiet moment you think like that - it isn't negativity - although maybe it is in reality.
  2. I've just wrapped up my identity access badge and sent it back, will do my last invoice and will alter my email etc. I've hung on long enough and you soon get forgotten no matter how popular you thought you were. No one is as interested in you as you'd like to think they made out they were. They've all gone back to business as usual and that's fine. I now need to break the bonds and ties.
  3. Here's the real scoop. I asked one guy to do one thing last year - he has taken 6 months and delivered nothing in the whole of that time. Sad but true. There are two of us thrashing out the detail and the nicest bit about that is that there will be only two of us able to face the investors (plus our financial man) but the others are lost in the wake of the ship we've built and sailed - they haven't read the stuff we've produced. That's the way it is and so I just need to accept that as I thought it was a team effort but I see that just the two of us are going to complete this. No wonder it felt lonely.

Anyway - I have a new vigour to get on and get something happening. I really shouldn't have started a finance document tonight as my head will be full of numbers. So I've stopped now and will complete this post and then hit the sack.

The shock of that reality is the sheer amount of work I've got to do in the next 6 to 8 weeks - oh well we have a meeting this Wednesday to resolve some of that and let's see what happens there.

Saturday, January 15, 2011

Purpose

That is an emotion you can struggle with. As I leave the charity and pursue something a little more entrepreneurial I see the question (besides work) of what is the purpose? Why, having cheated the really dangerous stuff and being much better and all that. Why?

You know that thing when your number is up and then it isn't? Fifty or more years ago it would probably have been curtains for me - I suppose they could have operated but who knows. Today I suppose you are more likely to survive or live a little longer but it just strikes me that maybe there should be a purpose.

I'd really like to think it is the new business, after all it is about social equality and access for all and if only we can get some finance, who knows what good it could do. I suppose that we will have to wait and see if we are convincing enough to potential backers. What I do know is that in business that may be my purpose but I'm not sure about private life? I need to think about that and adjust myself to it because at the moment I've lost one of my philanthropic activities and there is a bit of a hole left by it.

My Roller Coaster Life

Continues - and I'm stuck here writing my blog and messing around late into the evening. I've actually been to bed but cannot sleep so back downstairs. The last 4 or 5 years have been like this and I suppose I should be used to it or do something about it.

I'll just get to bed when I feel tired I suppose and until then I'll try and do something to tire me out which is just as likely to stimulate my brain rather than shut it down.

Crazy crazy stuff. If I were normal though I wouldn't be me!

Friday, January 14, 2011

Time - where are you going

Yesterday was a nice day really but I was anxious not to lose time because I had to go up to London and so I was feeling like someone had "robbed me" of my time. I have no idea why - I was after all going out to enjoy myself, something I ought to do a bit more really. I'm chairman and so needed to be there but I didn't stay for too long as I wanted to get back but by the time I eventually arrived home, I could only realistically do a few hours work.

Today my mind and general demeanour are much better - so perhaps getting out was good for me. Today I've been catching up with loads of bits and pieces in preparation for a full on onslaught to get all my tasks done. I think both my business partner and I are coming to the full realisation that WE need to get this done and not rely on others. We have tried to get others to "step up to the plate" and actually they all have other commitments to fulfil and so they wont be able to. So we are hopelessly outnumbered and in it on our own in many ways. This is OK, we always - in the back of our minds - knew this was the case. It just feels like we've reached base camp and have just seen the peak of the mountain so high it hurts your neck to look up to the summit.

Accepting that is probably the difficult thing and now it's time to eat the frog and just get on and do it (JFDI) as we used to quip.

Also I arrived back to see that the charity and I will part ways at the end of this month - mutually of course - but that was both a sadness and a release - if that makes any sense? A sadness as my working there was a real lifeline for me in terms of paying back (in some strange way) my survival. It allowed me to recover not only from all the bladder cancer stuff - it allowed me to recover from the wreckage of the previous business and all the horrors that had happened there. A release too as I no longer need to check everyday for emails and actions which have tailed off now anyway. All my emails can be redirected and I can just do the odd small piece of project work as and when required.

I was a little upset about that last night but after some head sorting this morning I see it for what it is and I enjoyed my 2 years there and rebuilt much of my life and much of my self esteem and self confidence which cancer and the previous business stripped from me. Looking back I certainly came from a low low place and whilst I'm still not out of the woods, I am grateful that I had the opportunity to set it all up. Mind you, as I constantly tell people, I am a builder - I create things, make sure they work properly and then, when it gets to actually running the business, department or whatever it is, I have to go on to the next building or creative project - I don't do business as usual (BAU) - what would you rather do design and build or maintain it?

So changes but for the better I think. I have asked to be considered for a role as one of the Charity's Trustees - it may take some time to come up but that way at least I'd be able to put something back in the future.

Wednesday, January 12, 2011

No news - good news?

Let's hope so - still not heard anything.

Had a reasonable day here today - business partner came around and we did get some work done - we are both feeling a little low still - I think that this because we realise that we are, in reality, batting on our own on this. Some of our partners are busy doing other stuff and so we are left with some serious work to do in a short time.

I think that this is hitting home. The work we've done to date has been research and preparation work. Now we are getting results and pulling it all together. It is an uphill struggle sometimes to get motivated and just "eat the frog" and get on and do it.

I'm off to London tomorrow for a lunch meeting - I'm chairman of the London Lunchtimers and so will have a nice day out but really I want to be here cracking on with my work. I foresee that I need to put some serious time into this and maybe that will help to get me out of my mini rut I'm in.

Tuesday, January 11, 2011

Not heard a thing

About young M and his Appendix Cancer Operation - maybe we will hear in the morning.

I had a terrible night's sleep thinking about this ending with the most horrible dream I've ever had which climaxed in some terrorist slicing off my daughter's head with a Scimitar in glorious technicolor! I daren't even tell you what a mess I was in as awoke from that as it happend at 2 in the morning.

Dreams are of course a collection of many things and inputs but it was just awful and I can see that it was a combination of stories from the UK and US press that combined to make that so and the "parent's worry" about his "little girl" going off to New York in a week or two. In fact she is so like me in many ways that I ought not to worry she is planned, calculated and sensible and has always proved herself to be so. Even now at 20 she still checks in and we know what is going on. She is very adventurous and sensible and planned all in one. L is the one that can be a bit of a loose cannon. A and L are off to Sheffield University tomorrow - L has an interview for the Degree course she wants and she has a reference that - frankly - I'd kill for from the school where she is doing her spare time work placement. She will get on and do well in life because she has all the common sense of her mother and the sense of humour of her father and a get on and do attitude. If they rejected her that wouldn't be a problem - she knows what she wants to do (and in my opinion what she is great at) and she will get there by whatever route gets her there. She will be a great teacher - it is one of the things I always wanted to be - I felt that was what I could have done but the 60 s and 70s weren't always about what you wanted to do but getting a trade first and then do what you want to do. I have the luxury of letting my children choose what is right for them not what is right for my wallet. If they bankrupted me getting there, I think that would be OK too? Well maybe.

I got everything that was possibly in my parent's power to give to me and it has worked out OK. I think that I owe that opportunity to my children - to give the best I can too. They've got a few steps up from where I was - it isn't where I'd like it to be but it's the best I can give at the moment.

They have to do the best with the opportunity they can - I am certain that they will. I may whinge a lot about things but deep down inside I believe that they will make the best of their chances because they are well supported by my friends and family as well as by us.


Monday, January 10, 2011

Tomorrow a big day for

A friend of mine - poor lad - he has Appendix Cancer and they will be operating on him all day long - they say it is a 13 hour operation. It's just so sad that he has this - he isn't that old, I remember him being born and he has Cerebral Palsy - but gets on just fine and we meet up maybe 8 times a year for the Jazz night. He is probably only in his early 30s and is the nicest young man you could meet, very pleasant and he is a joy to know. I can only imagine what his family are going through now. He lost his dad whne he was very young - he died of Cancer and very quickly as I recall - diagnosed one day and dead within a few weeks - it was that sudden - a shock to everyone prompting them to move away and so we saw less of them than usual.

It was only a few years ago that we made the connection between out family and theirs and he is, indeed a far distant cousin by marriage - you ned to go back 3 generations and across 2 to get to them :-) We thought that was most amusing and he and I enjoy each others company and have a laugh and exchange pleasantries.

I can hardly imagine whet it is going to be like for him and his mum and sister tomorrow. Let's pray for a favourable outcome - I imagine he will be poorly for some time after this and I really wish that they come through for him.

I tend to be very much thinking about myself at the moment - I think it is all reflection - I'd like to think it isn't being selfish. This poor chap has a mountain to climb this next few months and I just hope and pray that he does that - it hardly seems fair to me that he already had a set of bad cards dealt to him and despite all of that he has triumphed through and got himself through school, got a job he has held for a long time and gets himself about etc. He's good company and a thoroughly delightful young man - but for some reason that I have yet to fathom or work out, that doesn't matter in this world we live in. You'd have thought the good and the innocent and the caring would get a few breaks in life or at least deserve them but making sense of this life sometimes is extremely difficult.

My prayers tonight are with him and his family and the surgeons who have to call on the full skill and abilities to help cure him.

As if to spite me

My laptop today is not connecting to the network where last night it was happily chatting away to it. There appears to be no reason behind this behaviour except that I wanted to do some printing this morning and it wouldn't let me :-(

I'm definitely feeling Januaryish. I just can't get enthusiasm for anything - it all seems to be too much trouble and it all appears to be a big weight on me at the moment. I have up times of course and Saturday I felt the best I have done for a while as we were out at the Lodge and had a very good meeting. Suddenly there are lots of things in my diary and the enormity of the job ahead with the business has started to set in.

Today I am slowly getting started on reorganising myself for the onslaught that is to come. It should be one hell of a journey, I'm just a little reticent in starting it.

Sunday, January 09, 2011

Much better frame of mind

I feel a lot better but have noticed that I am pretty tired and not sleeping properly yet again. I always seem to have problems at this time of year. I'm guessing I ought to get really stcuk into some exercise and some sort of routine and work starts tomorrow to reset my office and get myself back into some serious working.

It is amazing how small thing annoy me too - I was under impressed with an acquaintance of mine who thought it was amusing to mess up their answers on our survey - I wouldn't mind but I'd rather them have said I'm not doing it than to get all abusive about it? I have no idea what that proves other than they were probably drinking when they did it or have some other motive - luckily the delete button is easy for me to use....


Saturday, January 08, 2011

I haven't seen you for a few years David but I have to say

You look so well. My goodness, you did look ill when I last saw you, so grey and so drawn." Well this was true as it was in the January meeting of our Lodge when I was really ill - 2 years ago now - our 75th Anniversary meeting where I took a leading role and where I gave the history of the Lodge despite being really ill - perhaps the worst I have ever been in my life - because I had a double ear infection and hadn't long come out of Hospital and was just horribly ill. I remember the whole thing and how sick I felt. Oh dear - I was bad....

I had a terrible time in Hospital not long before, had an Op cancelled, had a terrible set of experiences and my GP was horrified at how bad I was before I went to see him (well I didn't think I was that ill). Bless him, this guy said to me how completely different I looked and to sort of add to this I was told I looked in my late 40s by a couple of the girls earlier on and I don't think they were after "brownie points" or anything. That made me feel good - you don't mind them knocking 8 years off your age after all :-)

So I chatted to this guy and he said how great it was to see me and how I wasn't "grey" or "drawn" and how I looked so much better. I could have kissed him because you may not realise what a lift this sort of conversation has for me. I Look back at photos I have of me when I was really ill and I do look drawn, grey and old and near to death (truth be known). Now I have a good complexion, rosy cheeked, and all the other good stuff. I could do with more hair (couldn't we all) and I could be a little fitter than I am - I still look a bit over inflated and carry a little too much weight though!

Anyway - I was so pleased to get a compliment like that and it just boosts your ego. We had a great evening and a fun time - long may that continue.


What is going on?

As a 30 year plus IT person - I still cannot believe the latest issues I've had with my PC and with those that forced me to go to a new operating system but don't allow me to use the software I bought off them? However, you may recall that I've been having network problems, so much so that this new PC would never connect to the local network at all and so all the shared drives (backup) and printers and scanners were unable to be used so I had to email my other PC or transfer files so that I could print them off.

I have no idea what has happened but for the past 3 days the computer has regularly connected to the network and I can use its full capabilities at last? I haven't altered anything that I know of it has just all suddenly clicked into place. Perhaps an update has come in - who knows - it works and that is brilliant.

Roll on when we can get Doddle to market and this sort of nonsense can be a thing of that past.

Friday, January 07, 2011

It's quite amazing how

A really promising conversation with a Corporate Finance house earlier today really lifted my spirits. I think my spider senses were on edge but I needn't have worried because most of the questions I had and assumptions I'd made were there or thereabouts and so I was pleased that common sense and working through our processes seem, once again, to paying dividends and after promising me 20 minutes we ended up at 45 minutes and it was great that this guy "got" what we were doing.

Suddenly things don't look so gloomy and I realise that the work we have done will stand up to scrutiny and we are thinking along the right lines. Even the £Ms of capital I was talking about didn't phase the conversation - amazing.

So I am happy about that and we will soon be getting on full bore at this. I can see next week taking on a much better temper than this one. I doesn't take much to get me fired up and back on track - today I feel so much better about things.

The mind is indeed a strange thing....

Spirits Lifting a bit

Gradually things are getting better and I'm feeling better - the car is back which relieves travelling pressures. A meeting with my business partner and a slow start to the year and a gradual ramp up may be helping. I think it may have been a good move to jump in and get immersed in work but in reality we need to think and plan a bit.

A is off to NY for 7 days flying out on the 20th. My Nephew is out there and so his mum and A will go out there to meet him. An opportunity not to be missed although I bet it is cold there this time of year.

I have a Lodge meeting tomorrow and that will cheer me up as I'll meet a bunch of friends too. It's been just one of those weeks and I wasn't at all surprised to hear that my business partner is similarly having sleep pattern difficulties as well. We had just a little too long to think about things over the Christmas break.

At least each day is a gradual improvement and a better frame of mind.

The annoying thing about this is that before Cancer (BC) I was never like this, I was always very optimistic and nearly always up. Cancer affects you in many ways, it kind of humbles you but it plants many seeds of doubt in you too. I know many people don't get this bit at all and carry on completely as normal but in my case, it has undermined my confidence and heightened phobias and other worries that were well managed or hidden before.

Wednesday, January 05, 2011

Flocky Bicep to the Rescue

I had coffee with young Flocky earlier today (it still is today) and that was really good for lifting my spirits. I've been down of late and heaven knows it is good to meet up with others who have had or have experienced something similar. You don't actually need to say a lot to those kindred spirits because you know that they know and they know that you know, if you know what I mean?

My business partner is similarly good for me as he has experienced Cancer first hand and we were both diagnosed and treated within days of each other. That is a common and amazingly powerful bond that almost goes unspoken but this blog is full of his and my experiences with the Black Dog. The Black Dog, for the uninitiated, is the dark gloom of depression and the black dog lurks on the outer fringes of your sight and conciousness. It is always there but sometimes it is a long way away and other days it terrorises you.

Tonight I went to the Jazz night and got mini panic attack. I stripped off down to my tee shirt from my huge warm jacket, scarf, gloves, hat and so on and was still boiling hot. Thankfully I psoke to some people who were also hot and they opened a window to get some fresh air in but I was massively uncomfortable. So much so I nearly rang Flocky to warn him that I was feeling queasy about Saturday's meeting of the Lodge if we had to dine in the smaller dining room when we actually had great numbers. I was feeling panicky just thinking about it and even writing about it too.

I am not sure why this is so but I can see that one of my big problems to overcome is this issue with claustrophobia. I have a friend who will come and hypnotise me to sort this out. He has managed to stop me smoking and to give me enough confidence to go to Hospital on my own and even have blood tests and other stuff that I never ever thought I'd be able to. Perhaps we can work on this. I do suffer if it is too hot though and I also have problems going to bed sometimes.

I feel that at the moment I am going through another period of change and so many things are happening to me (and just to me in my little world) that it destabilises my day-to-day existence. I cannot understand why I am doubting myself or all the things I stand for. I cannot get to the bottom of why I "need" the approval of people and worry what people think about me. I think this is just what a few weeks off and an introverted view has done. I doubt myself and my professionalism, I doubt how "good" I think or believe I am. I tear down my self confidence and spite myself for no other reasons than to inflict mental self harm. None of this is goodness although some of it stops me being a conceited bulldozer I suppose?

I feel on the borders of sanity and yet know that I am in overall control. This isn't the edge of darkness or the abyss, this isn't the descent into alcoholism and self destruction, it isn't physical nor is it overtly the actions of someone who will transcend the line. I feel I am someone who doesn't quite understand where they are now, a sort of netherworld area (like Neo in Matirx 3 - stuck in between worlds) where all options are open and I can stare into each and like or despise what I see. Where alcohol could be an answer (bit I know it isn't), where running away is an option (but it isn't) and where I, as an INTJ, get to do what I do every decade or so and that is to go into a complete meltdown and destruct then reconstruct myself. A view here kind of sums up the issues I have "INTJs spend a lot of time inside their own minds, and may have little interest in the other people's thoughts or feelings. Unless their Feeling side is developed, they may have problems giving other people the level of intimacy that is needed. Unless their Sensing side is developed, they may have a tendency to ignore details which are necessary for implementing their ideas."

And

"When under a great deal of stress, the INTJ may become obsessed with mindless repetitive, Sensate activities, such as over-drinking. They may also tend to become absorbed with minutia and details that they would not normally consider important to their overall goal. INTJs need to remember to express themselves sufficiently, so as to avoid difficulties with people misunderstandings. In the absence of properly developing their communication abilities, they may become abrupt and short with people, and isolationists."

I have become very insular - I don't express myself very well except in business situations and I do not express myself very well - although I probably get somewhere with this blog.

Anyway - Flocky came to the rescue and I know that I do have a number of people whom I can rely on to put me on the right track. I just cannot believe how emotionally unstable and insular I've become and how phobias are once again encroaching on me.

I like to think that in business I am right up there and really on top of my game. Unfortunately, as a private person I just seem to be a bit of a wet blanket and a bit of a wimp at the moment. I'm sure it is all connected to what I have been through.

I like the statement "The INTJ's interest in dealing with the world is to make decisions, express judgements, and put everything that they encounter into an understandable and rational system. Consequently, they are quick to express judgements. Often they have very evolved intuitions, and are convinced that they are right about things. Unless they complement their intuitive understanding with a well-developed ability to express their insights, they may find themselves frequently misunderstood. In these cases, INTJs tend to blame misunderstandings on the limitations of the other party, rather than on their own difficulty in expressing themselves. This tendency may cause the INTJ to dismiss others input too quickly, and to become generally arrogant and elitist." because it kind of explains why I am like I am. I know I am like this and I realise that if you don't get it as fast as I do, often enough, then you are probably too stupid to work with me!! :-) No - honestly - if you can't keep up you don't stay in my team.

It isn't a great personality trait and I know I am like it but I have always had to be a leader or take a leading role and you have to be a bit like this to do it. Don't get me wrong, I think I do really well considering what I've been given to work with. I just find it a cruel thing that I don't have the ability to express or explain myself very well and that means that I come across in the wrong way to many people. The nightmare is that it hurts me so much when I realise that I've messed up or misunderstood a situation because I can't read it - I don't do emotions, I do logic - now I know how Spock felt.

Enough for tonight!

Sleep Deprivation

I am still at it, 12:30 and still firing away and still not quite ready to go to bed. I need to be tired as I just lay awake with my mind going ninety to the dozen synapses firing off in all sorts of directions. I just got the bill for the car which has been away for all of Christmas and they found the ECU had got water in it, plus the 70,000 / 7 year service and I'm not going to see much change out of £1,650 so that wasn't the best start to the year. At least I get the car back tomorrow. Mrs. F. Wasn't pleased at all with that but then she runs a brand spanking new Peugeot that hasn't had its first service yet!

So with that hefty bill to start my year off I hope that the car no longer needs too much repair work in the next year or two certainly it wont need this massive service it has just had. It would have been an impact if I had of been working let alone with me not earning - well not earning much.

I think I will have some money to come in later this month though as I need to do some upgrading of a wiki web site.

I realise that the most conversation I had was about the car tonight! Not a lot else was said.

I was offered to go to New York this month as my nephew is over there for 3 weeks. Typically I have no time in January to do that. A may go if she can get a flight and a Visa sorted which will be good for her. I've only ever set foot on US soil once in Seattle and that to walk from a coach to a ferry back over to Canada :-)

Oh well there you go - one day I shall make it. If all goes well maybe in the next year or two we will need to wander over state-side. I hope she can make a flight and get visa and all that sorted. Amusingly we have adverts inviting us to California and Florida and yet visas have gone from free to $14 - all sorts of tax hikes have also just hit and so it is probably more expensive than ever to find a flight etc.


Tuesday, January 04, 2011

Maybe?

Could it be that I just don't have anyone to talk to that makes me down at around this time of year? I spoke at length to my business partner today for the first time since Christmas Eve and I felt one hell of a lot better afterwards. It then dawned on me that in terms of "company" and peer conversations I really only had the briefest of conversations on Christmas Day with my brother in law's girlfriend and my nephew who I would put being on the same wavelength and interest levels as me.

The waste of oxygen is fine if you can talk cycling all day long which I can't. The Kids maintain their own council in their own rooms most of the time and Mrs. F. is always busy doing something busy to occupy herself. It kind of makes sense that I've basically been shut away for 2 weeks with little stimulus and certainly no one to have any sort of intelligent discussions with as I very much doubt anyone else is in the least bit interested in the great world around them.

I sure feel a lot better now than I have these past days so getting back to doing something interesting will at least get my mind off any other thing that may be holding me back.

Its interesting too as he was also feeling a bit down. I don't put it all down to this I expect that both of us are fully aware of the mountain we have to climb to get our ideas to market and we just spent a little too much time thinking about it instead of doing it!

At least I am not as down as I was - it looked terribly black yesterday, today feels a lot better.

Can't say things are any brighter

I feel very strange at the moment and I'm not sure what it is that is doing this but it is pretty unnerving and not at all pleasant.

I feel a lack of confidence and a general dark malaise again and the Black Dog is somewhere abouts close but not breathing down my neck. It is a most unsettling feeling as I cannot easily work out what is wrong or why I feel like I do. I have an inkling of what it might be but I don't want to go there and see if that is true. I'm not sure I want to face up to something that I think is there and - in truth - I'm not willing to discuss it here on the blog at the moment.

It isn't about my health I know that. I am happy that I am well and whilst I know that I need to get back into some sort of routine after Christmas and the excesses of that (we all deserve a break) it isn't that either. It isn't my physical health although things could be better but, as an article in the Telegraph on Saturday pointed out, we aren't meant to last as long as we are lasting and certainly not to 100 as they would have us now believe that up to 10% of the younger people these days will!

No it is not physical health at all it is mental and it worries me a bit as I really shouldn't be worried about much should I? I've got my health back and I feel much better than I have for years. There's just something chipping away in the back of my mind; some paranoia thats altering my perception of things. It's as if I've been marginalised and put to one side, as if I've come out of a long time in the shadows and emerged to a half life where things revolve around me but I'm not directly involved. I'm not engaged with the activities and everyone just gets on and does their own thing without reference to me at all. It's as if life is happening all around me and I'm not there. As if I were dead and a ghost and looking in on it like some spirit voyeur.

It's the most bizarre feeling and quite disturbing, like being sent to Coventry or some such thing. Where it is quite acceptable to take an action and not tell me it is taking place or for me to find that I'm in the house on my own and everyone has gone out to shop or those sorts of occurrences. It could be me not hearing someone saying they were going to do something I suppose. I'm finding this wider afield too that no one takes the time to respond to you even in the most urgent of communications. Is it that no one gives a flying F*** these days? I've written to people asking for an urgent response only to get a nothing back in return. I've gone out of my way to communicate something someone has desperately wanted and they haven't even bothered with a thank you.

Perhaps it's me? Let's see if a night's sleep improves the situation any better?

Monday, January 03, 2011

Worrying Signs

I'm a bit worried about my state of mind again - I'm finding sleeping bad again and I'm having my mini panic attacks especially when going to bed which makes me stay up later until I'm so tired I can't keep my eyes open much longer then I'm forced to go to bed.

I'm also getting recall anxious about things and I'm not absolutely certain why that should be. Work starts again tomorrow although I've been doing a little bit of pottering around getting people to complete the survey for me. That's been difficult in a way as some people just can't concentrate for more than a few questions and so I'm a bit worried that the figures will be skewed but I suppose we can look at individual questions and analyse them.

Maybe I'm worried about work - the difficult bit is coming up or maybe it is something else. I'm sure that the different sort of Christmas we have just had (its over as Mrs. F. Packed up the tree and everything this morning) the kids being off all over the place and potentially not being around that much may also be giving me food for thought. Whatever it is I wish it would go away and let me think about something else. Maybe it is just 2011 being laid out before me. Who knows - I just don't need all this head stuff right now.


Friday, December 31, 2010

New Year's Eve

Here we are again. I went and had a look back to last year and that was funny - I thought that I had gone to get my blood test on Christmas Eve last year and yet the blog said it was New Year's Day? That was a bit strange as I was certain I had done Christmas Eve. Oh well - it just shows how your mind plays tricks on you.

I saw that I resolved to get healthier and lose some weight, so that happened. I'm about 15 stone 10 or 12 at the moment which is pretty good but I think that I ought to go for a lower weight in 2011. I need to get back exercising again too and to make some serious time to work and to rest.

So perhaps I'll list some resolutions:

  1. Lose some more weight gradually
  2. Get fitter and try to make exercise regular
  3. Make time for work and rest and distinguish between them
  4. Try and get a little bit better in terms of outlook (not as depressed as I get)
  5. Enjoy life a bit more

I think they are achievable. I'd like 2011 to allow me to take the business, Doddle, a little bit further than it is at the moment. The survey is coming along nicely which we need to add some real weight to our business plans and I'm getting really enthusiastic about the New Year and the work we are going to be doing in January and February to finalise the business plans and start to find finance.

Happy New Year to you all.


Thursday, December 30, 2010

No Silver Bullet

I remember reading the Mythical Man month by Fred Brooks and part of the re-read recently was No Silver Bullet. You can find a bit more data here and here.

The Silver Bullet - often seen wiping out Werewolves and Vampires is a simple straightforward solution which, of course in real life isn't always the case. In No Silver Bullet Brooks looks at why complexity is inherent in software development.

So what on earth am I talking about? Well I'm looking at the complexity of life and of your actions. You see it would be great to just pack everything in, move somewhere and go and start all over again - that would be great. Then you realise that you have roots, family, associations, friends, work and all sorts of complexity that invisibly hold you back. If you just upped sticks and did it yourself, you'd leave someone else with the mess you'd leave behind as there is a trail of loose ends and things left undone or part done.

I'd like to get a thumping great big broom and get rid of loads of stuff and clear my brain and my life out and just get going from a relatively clean sheet. It isn't going to happen but it would be nice to imagine that you could. New Year's Resolutions wouldn't come much bigger than changing your whole life I guess :-)

For now, I doubt that the gravity of my life will allow me to pack it all up and go do something different but it would be nice if it were possible.

Christmas

When most people have trouble one way or the other. Ask my friend who mans a telephone helpline for the Samaritans - this time of year is one where break down occur and things start to get troubled for many.

I can see that as I'm probably feeling a bit like that myself again. It happens every Christmas even before I got ill and I work my way through it - or appear to. Things are not always right and it was funny that today, Flocky Bicep called up and I suddenly realised that I no longer have the Secretary's job and actually in a perverse way I miss that because it kept me busy and allowed me to perhaps take out some of my boredom on it.

Then there is the very real changes going on in the household, the kids aren't kids any more and have their own social life and one drives and the other one soon will do. They are out a lot and there is a lot of adjusting that needs to happen basically because kids run your life and when you start to get it back again you need some time to rehabilitate. I've just sat up as they have been about 80 miles and back this evening and gone to a Ski Dome for snow boarding lessons - its a long trip around the major orbital motorway around London and they've just got in way past midnight but then they are 20 and 17 and so it isn't a problem - I very much doubt I was in until the early hours myself at their age.

I just think that things are a lot different this year and that Mrs. F. and I have to start adjusting to it. Unfortunately those adjustments aren't without their problems in that over the years many of the things I like she despises and - if the truth be know - I don't find talking about children and her work in the Nursery particularly interesting nor inspiring, heroic and wonderful thought that work maybe, I never understood the subtleties of 3 year olds psychology preferring to immerse myself in scientific and historical pursuits.

So tonight after trying to work out what to do as the kids are doing something for New Year (well they are having a party at our house) I was trying to suggest things to do and to get out of the way as who wants your parents around to spoil your party? We won't go to London for the New Year's Eve celebrations - whilst the trains run all night I just can't imagine myself in a crush of people to watch the fireworks for 10 - 15 minutes. Parties - well Mrs. F. doesn't "do" parties or people particularly well so that's not on the menu either. I doubt she'd like the pub and these days you have to pay and get a ticket to get into the pub on New Year's Eve. A restaurant might be on the cards (I can imagine not an expensive one though - Mrs. F. doesn't do expensive either).

I'd be happy to get away for a few days to a Hotel somewhere but not sure that will go down well either as she'd not want to leave the kids to fend for themselves. I reckon the UN ought to come in and mediate in the decision :-)

Oh well - I can see why other people, not just me, feel like this, I suppose it is a relief when they all clear off back to school, University and work and leave me home alone to press on with my stuff that some sort of equilibrium falls about the house.

Monday, December 27, 2010

That figures

Heard from a distant relative about her daughter and found out that she had breat cancer which I knew about but that the stress of that sometime afterwards had led to what we old peopl call a nervous breakdown. Having seen this sort of breakdown at first hand and, dare I say, been quite close myself (I'm sure), it would appear to me to be totally within context of having Cancer and carrying on family life and even a career whilst getting on with the business of having your treatment and having the arguments in you mind all the time about it.

Now, I'm not sure if you can get cancer and just treat it in your mind as something like a broken leg or serious illness? My experience says that you actually battle a lot of this out in your mind and that you seriously wonder about the future and you do a lot of inward looking stuff. I imagine some people are so busy or make themselves so busy that they don't think too much. Whatever it is, I think it is pretty important to know that not only are you weakened by having cancer physically you must also be weakened mentally although I also believe you draw an awful lot of strength and determination through it.

Hopefully she is on the mend but these things take ages - a friend's wife has been pretty down all year but came out before Christmas to an lunch and was in good form - where before she wasn't good at all. It takes a long time to repair body and soul when you get cancer and I just hope that she recovers quickly and gets on with things without putting herself under any more stress.

Well that was unexpected

Mr. Waste of Oxygen turned up and was almost a changed man - apparently retirement has done him well, he is less stressed and less obnoxious and was downright chatty and even amusing at times.

I'm staggered but pleased also as this guy has disrupted my Christmas for many years. At least he was bearable and even went as far to make some presents for us (he doesn't normally do presents). We decided this year not to embarrass him by not buying him anything. Now who looks red faced :-)

I've had quite a good Christmas so far and I managed to only offend a few people so I'm getting better at this.

Saturday, December 25, 2010

And now for Christmas

In just a few hours I'll be up and getting things sorted out for another Christmas Day here. Unfortunately the waste of Oxygen man will be here and so I will be extremely busy elsewhere all the time until he falls asleep and can then meet the family. Not my side of the family, Mrs. F's side and I get on OK with them all except the one runt in the litter. You may perceive my disdain and non Christian feelings but at the end of the day he just disrupts the general feeling of proceedings. If he was a horse, we'd have to shoot him - nuff said.

I make a special effort at Christmas to get along with most people but this guy stretched my patience and my goodwill to the utter limit. I'd rather it not be a test and for him and my sister in law to "GET THE MESSAGE" that I'd rather not have this social misfit in the house at all. However, as he amuses everyone else I suppose I had better let him in. Never have I met someone with the airs and social graces of Gollum's father :-)

So - peace and goodwill to everyone but Mr. Waste of Oxygen - to you - all I want is for you to behave and don't give me back chat or be your unsocial, bigotted, ugly self. For once - turn up and enjoy the company and occasion and don't make everyone else feel like they want to murder you at the end of the meal. I take no prisoners and tell him the way it is in direct and non direct terminology - the irony being that neither he nor my sister in law get it at all - someone please bring me a cattle prod or tazer for Christmas - you KNOW I will make good use of it!

Merry Christmas to everyone and peace and good will to all men, except Mr. Waste of Oxygen. Have a good one!


Friday, December 24, 2010

Worked a Treat

Getting my blood done on Christmas Eve is great as I waited all of 3 minutes until my number was called and I was in and out in less than 5 minutes. That's excellent and even better than last year. I went and got some Chestnuts on the way home but declined the Cafe and Pub returning home to cook the Ham and just chill out with the family. The girls been quite funny this afternoon dressing up as nativity play cast members and photographs a plenty have been taken.

Mrs. F. and the girls have gone off to Church and will collect me on the way back and we go - as is tradition - to our friends house for a lively party start to the party season. It is all very special and all the children, who have grown up together, well hardly children I suppose, will be reunited and we will hear all about University life and what they have been up to since we last saw them.

I'm wearing sensible shoes this year and I am not going to fall over in the ice like I did last year!! That was a crazy episode.

Tomorrow everyone is over here and I can get to cook the Christmas Meal - maybe next year I'll do a bit more cooking - after all I'm pretty good at it - there just isn't much call for me to do it as everyone's lifestyle means they are rushing around all over the place.

Merry Christmas to you all. Let's wish for health and peace for the coming year.

Late again

I've decided to go get my blood test again on Christmas Eve - it worked out nicely last time with just a few minutes waiting and so I will do that again tomorrow coming back by way of the Cafe and the Pub. Then it is into Christmas Eve routine of cooking and glazing the gammon and then off to friends for the evening - this time I will not fall over!!!

I'm late because I worked all day today to get messages out for my survey for the new service, rallying people to the cause and then we watched a couple of films which was nice. Then Blade was on TV - and I have only ever seen the last 5 minutes of that so I watched it and then realised that finishing at 1:40 wasn't in my planning at all.

I'm fasting now until I get the blood test done so just water. The GP instructions don't tell you so I had to ring up. No apology or acknowledgement that they don't tell you of course. At least I'll get that out of the way for another year.

Wednesday, December 22, 2010

Looking Back

I see that this year, at last, I'm looking in better shape than I have for the previous 4 Christmas periods. For this will be my 5th Christmas since being diagnosed and that in itself is a massive milestone that - until I just checked, hadn't occurred to me. I looked back and each year is slightly better than the year before but what surprised me is how re-reading them I feel that I was "down" in each one and not the way I perceive myself to be.

I feel that I am up far more than down person. I really feel that I have been positive and yet when I read what I felt like last year and right back to 2006 I see that, in fact, I was actually quite low or my writing was quite low. I seem to be rattling on about lots of things that were getting and keeping me down and I guess, being ill, it does mean that you go through a lot of unpleasant stuff and I can remember that Christmas of a few years ago I was pretty ill and another I was trying to recover from BCG treatments and another I had my operation cancelled and I went back in again just before Christmas and so on. This year - I have had a clear in my recent scan, I'm up about the business, I feel confident and I am beginning to get back to the "me" of 5 years ago.

I said earlier this year (here) that cancer took away my self-confidence and made me lose my identity and doubt myself. I can't tell you what that is like unless you have experienced it for yourself. Worse than that - whether it is me or not - I feel that no one I know treats me the same since that date and whilst that may be surprising, it doesn't re-wind and everything resets itself to June 2006 - far from it. I still feel a little alienated from some of my friends and family - not in a seriously bad way but I'm just different and I couldn't tell if it is them or me that changed those relationships. don't get me wrong, some of these relationships have got closer, some more distant and in many ways I say I don't care but in truth I find the loss a little hurtful sometimes.

So - there's me starting off with how good it all is and yet it is still a depressing old post :-) Not meant to be, just reflecting on the changes and the differences. I am massively improved this year - confident - strong - brain working again and firing on 80 to 90% and almost back to my own comfort levels. Self confidence is being worked on - I am much better but the bouts of claustrophobia and emotional wobbles are still there - manageable (just) and I am beginning to cope with them although whether or not I could ever commute into and out of work in London everyday now is debatable, I hated it even when the trains were relatively uncrowded, the recent weather would have completely rattled me with huge delays, cramped conditions and broken down trains - no - glad I'm no longer doing that. Why on earth you'd put yourself through all of that I have no idea.

So what have I learnt looking back?

  • Living is good
  • Exercise sucks and still does but it helps keep you healthy
  • Eating properly has advantages - look I lost a stone and a quarter already and still gradually losing weight - not for the next 2 weeks though!!
  • People and good health are more important than loads of money and stress
  • Worse things happen to other people
  • Humanity is out there - it arrives unexpectedly and unannounced sometimes - that's nice
  • People may treat you badly - it doesn't mean you have to go down to their level and join them (OK so occasionally I enjoy giving as good as I get)
  • I have every right to express my opinion as do you - get over it
  • The biggest rut you have to get out of is the rut YOU are in
  • A one in a million chance still means there is a chance
  • You meet the nicest people on the Internet and occasionally the nastiest
  • If it itches - scratch it
  • Friends - it's nice to have them - value them
  • Jealousy, deceit and loathing destroy relationships
  • Building a business is a lot of hard work and sweat and toil not some romantic journey where you don't participate but reflect in my hard work as if it was your idea (sorry I needed to get that out of my system).

So I'm sure there are plenty of other lessons and things I learnt too. I have made a decision that today is the last day that I am working and the remainder of the holiday period is mine to potter around and enjoy.

I think I'll come back to doing a review over the next week or so as I found it quite disturbing to read how I was over the past 4 Christmas periods. The first one was interesting as of course I was on treatment for CIS and hadn't quite realised how serious that was - thinking that perhaps the worst was behind me at that time - I know different now of course!

Tuesday, December 21, 2010

Reconnecting with some old friends

I hadn't realised quite how I'd disconnected myself from my old friends - whether consciously or not and it was nice to re-build those relationships and friendships especially now that I am feeling up to it. I think I can now begin to see and believe quite how ill I was these past years and where I thought I was doing a good job of keeping in touch and all the balls in the air - I didn't. I suppose I knew that when I took the job at the Charity - it was a very convenient bolt hole and I'm forever grateful for them for that. I hope they got good value out of me in the time I was there - I feel they did - but I'm biased.

I feel my confidence growing and my strength returning and my brain is getting back to what it used to be like. Things, of course, are not the same as they were before, far from it, they are better in many ways and I've learnt some home truths that I'm disappointed about but not surprised by. These are things about me and I've had to deal with finding out that I wasn't as universally liked as I thought I was before I had cancer. I mean it's no beauty parade with me anyway - that's why I used to run projects and manage things - someone has to do it and someone has to not be liked all the time. I'm slightly disappointed in myself in terms of quite how I behaved then. It is interesting that the new me is quite different although I feel that in order to do what I've got to next year I may just have to return to being Mr. Assertive and things may just have to be done to get to a resolution.

I'm reflecting on what happened to me this time last year as on the Christmas Eve last year I fell over on the ice causing wide spread panic amongst Mrs. F and the girls who thought I had broken something - I had - mainly my pride and composure :-) No new shiny leather shoes this year I can tell you. I had - if memory serves me rightly - only just come out of Hospital too which didn't help matters. At least this year that is right out of the way and I can relax into the holidays.

It has been good to reconnect and it has helped to have moved on a bit. I may go and look back at my blog and see what has happened these past 4 Christmas holidays and remind myself how far I have come. I've come a long, long way - I know this - it takes a period of stopping, reflection and looking back to realise sometimes just how far I've come.

Monday, December 20, 2010

Well that was interesting

Flocky - bless his little cotton socks - picked me up this evening so we could go to our rehearsal as my Jag is in the garage still being sorted out - not good news - been over a week now :-( Anyway, it's snowing and not nice but he came and picked me up and dropped me off - it is pretty slippy out there so big thanks to him.

When we got to the centre I found out that I won the Christmas raffle draw and so I came home with a box of goodies including a nice 1 Litre bottle of Famous Grouse whisky which is great as I was planning on buying one. Also loads of sweet and savoury treats for the family too so for £5 stake I guess there had to be £50 worth of goodies in the box. I'm pleased about that and so are the girls who have laid claim to the two tins of chocolates :-)

It is travel chaos out there and the snow continues to fall, the airports and railways struggle and I imagine we just ought to hunker on down and ride it out.

Admin, admin, admin

Makes the world go around :-) Phew - that's the first lot out of the way. It is one of those things I hate doing, I build things and get the working or fix things but I'm pants at running things. Administration and routine are not my thing at all, I just can't bear to do the same thing day in and day out it would drive me insane.

Still more work needing to be done on another set of tasks which I may leave to tomorrow as I have done so much work today.

Have been considering quite what to do over the Christmas period and I have come to the conclusion that pottering about is favourable. Just doing a bit here and a bit there and just chilling out. Time to get some "me time" and consider what is going to happen next year. If we thought we had been busy this year, 2011 holds far more in store and we need to be a bit more visible and proactive. I can see January being a hard graft filled month as we struggle to get to the real detail of the business costs and challenge all our assumptions and ideas.

Sunday, December 19, 2010

Gee but it's cold

I don't remember a cold snap like this for 20 years or more. We got out today but it looks as if the whole place will turn into an Ice Rink tonight and tomorrow. Plus, we have more snow on the way to give us more problems tomorrow.

In the meantime - I am trying to work out why my radiator in my office isn't working? Airlock maybe? Will have to do some exploratory work tomorrow on that. At least working up here the heat is rising up the stairs so warmer here than downstairs.

Getting a crack on with my administration work which is just what I need to do. If I've learnt nothing else about having to do stuff you don't like it is to just "bite the bullet" as they say and get on and do it. I prefer the phrase we use at Doddle which is "time to eat the frog" :-)

Frog partially eaten - more frog to eat tomorrow. Best get it out of the way....

Extraordinary People

I always liked the saying "Remember that you are unique, just like everybody else" - tonight watching the TV I was reminded that so many people just what we think of as ordinary have extraordinary things they have done. Young girl on the TV survived a massive brain haemorrhage, another person today just turned up at a local shopping centre spending 3 hours digging people out of the snow and just RAOK (Random Acts Of Kindness) and then there are the people who have volunteered to work at the Hospitals because staff can't get in.

We forget how good we can all be with all today's negativity and this recent sneering TV attitude these days. Interview with Transport Minister giving him grief about condition of the roads - how often do you get 6" of Snow in 30 minutes? Then when he was trying to answer that they kept interrupting. The BBC used to do good unbiased reporting and they actually used to have news on the news. Now because of some entertainment programmes - you get breaking news followed by some anal entertainment update then some news items about hundreds of people being killed. I am going off the news from these guys as they rarely give unbiased reports, their journalists react rather than report and their propensity to talk down to me and to treat a ballroom dancing light entertainment as world news needs to be seriously thought through. Utter bollocks in my opinion and hardly the torch carrier for the world in terms of journalism.

The snow came in with a vengeance this morning and we are back under about 4 to 6 inches of snow - not as much as before but wetter and more inclined to freeze than the last lot (doesn't make sense but the last lot was more powder snow). Somehow we need to get L to work tomorrow if possible. It looks as if we might just miss a further set of snow tomorrow - but we wont know until then.

I have moved back into the office freeing up the dining room I have been working in for the past 6 weeks or so. I need to get stuck into some serious work in the next few days. The survey and web site seem to be going along fine at the moment so I'm pleased about that - but I am curtailing my workload for the remainder of the week and will try to make a fresh start on the 4th January - well that is the plan.

I'm now quite pleased with myself following last Tuesday's judgement day after having a few low days afterwards. Hearing from Steve in the US and also some of my friends - this is quite common and it seems unexpected but when you consider the sort of stresses you are under (even if you prepare and don't show them) you could see how it happens.


Friday, December 17, 2010

Whoa - Snow and Tired and Disaffected and...

So yes - Snow - wasn't expecting that until tomorrow - it has stopped but we have a good dusting - enough to make the roads slippy. The car isn't cured (this is my car) and will have to continue to wait to see what is wrong. Some sort of electrical problem the man says - they just need time to find and sort it out!

I've been working all day and just didn't fancy going out in the snow, hanging around for a train, getting cold all so I could get a few free beers and vol-au-vents - so I just carried on here. I have to say I didn't feel particularly welcome when I went there last time and so in a way I need to make this break with the place. I can't keep balancing that and my doddle work.

We are expecting a huge dump of snow tomorrow - that will be fun.

Thursday, December 16, 2010

That's not good

I've been following a blog for some time and got the wrong end of the stick and thought that Jeanne had died a few months ago and was just shocked but I hadn't read it properly.  Things looked they were going quite well until today when this post was released.

I can't even begin to imagine how this feels.  I'm pretty sad about it but you have to admire and be in awe of this lady's attitude.  The Blog http://assertivecancerpatient.com/ is an excellent resource and testimony to living with cancer.


Saw this the other day - Christmas Dream - Perry Como

I'd forgotten the Odessa File started like this - rather seasonal I thought.

I'm getting into the spirit of this now :-)

Thursday dawns

I was up earlier than normal and I'm pretty much charged ready for today with the team.  I've cleared the decks and I'm ready to finish the year with a flourish and finalise the things I am working on and then get to do some serious R&R.

Before then though - I reckon I need to spend a few days on catching up on my administration work and a few days getting in touch with people I haven't spoken to all year long...

It's rather nice now, on reflection, to be looking forward to a year which promises a healthy start and I hope that it continues when the next judgement day arrives in April 2011 - it sounds a long way off doesn't it?  I bet it will be here in a flash :-)

Wednesday, December 15, 2010

Relax

It is time to slow down and relax.  The team are here tomorrow and I intend to look at shutting down as far as possible for a couple of weeks to recharge our batteries and hit 2011 at full pelt.  It will also give me time to catch up on some essential administration here.

I could do with a couple of weeks off and just take some time for myself for once.  I don't think I will need to convince the boys too much about that.

After tomorrow I have a few more things to do to get ready for Christmas but it is Mrs. F's birthday first and Christmas doesn't happen until the 17th at the earliest and more like the 18th.  She has to work tomorrow which is a real shame.  We are booked for a meal in the evening so we may get back home before the bad weather - on its way from the Arctic, sets in.   Bbbrrrrr.....

After the High - the Low

Now you'd be right to think what has HE got to be Low about but it is just the way I feel today - I should be ecstatic but in fact I'm a little bit down and not bubbly etc.  I can raise my game to be me when everyone is around but actually I feel a little flat.

I think it is to do with the stress (whether concious or not) of going to get your judgement and I felt really in control and well prepared yesterday and happy but not leaping around when it was over.  I hadn't thought about it one way or the other.

Today I think my body has just relaxed and it is as if I am drawing breath again and so I feel quiet, reflective, grey, neutral and not much of anything.  It is a very strange place to be in but just goes to show how much it takes out of you leading into one of these procedures where you get to have your fortune read and where your stress levels are much higher than you probably thought they were.

After all said and done I am very happy with the result - today though I am just not showing it :-)


Tuesday, December 14, 2010

Reflections

I went up to the pub and met my mates and we had a good few beers and a belly full of laughs and I managed to squeeze out my apology for being a "bit of an arse" a little while ago.

For some reason, I like to beat myself up and give myself a hard time about my condition and how I treat my friends and how - well - self centred I am.   You may think that when you have Cancer, it is all about you and I suppose you would be right.  The problem is that I suddenly get a gripping fear about it all being about me and that I somehow turn into a "Me. Me. Me. Me" sort of person.  I suppose it does do that and then I try and redress the balance.

It's not easy being in this place and it's not easy balancing your own needs with those of others.  This blog is the pressure valve on many occasions and thank goodness it is here as without it, where could I have turned?

Today the news has once again been good and I can only hope that it continues to be so.  To everyone I have offended in the past 4 1/2 years I apologise but there is every possibility that I will continue to offend you for as long as I write :-)

Wishing you all a great Christmas - I think that now I am going to have one and that I am ready to pack up work for a short while and just relax properly.


Clear

Well that went better than expected - all clear and things are looking up.  The cytology was clear and the scope was fine - in fact better than I expected it to be.  That was clear, so pleased with the news and really delighted that it was a better experience than the first one I had which was of course when I was bleeding heavily and not really at all mentally ready.

Today I started off with drinking quite a bit of water and coffee and just kept going and had around 2 or 3 pints by the time I left to go to the Hospital.  The hairdresser distracted me and I went to have a shower and got myself ready.  As it happens when we arrived I was whisked in pretty quickly, did  a urine test and got changed into my gowns, I swallowed two ibuprofen and two paracetamol and then went in - they gave me two antibiotic tablets and I was then on the bench and if I was there 2 minutes that was all it was.  The Registrar did the procedure and said that he'd like to see me in 4 months for another scope.  

There was some discomfort but not the awful stinging I had last time and it was similar to having the BCG done.  The nurse said my breathing was good and I explained that all the BCGs I'd had probably helped - as usual my stress balls caused some comment but as I explained - I find it works well as I don't move my hands about and it allows me to concentrate on breathing as well.

I'm now going to sit back and do nothing for the rest of the day!  I also had a toasted cheese sandwich for lunch as a reward - I don't eat bread and so it was like comfort eating :-)

I'm obviously delighted with the result and can look forward to Christmas and every other day in a better vein.

Slept Well

I don't tend to if it is an operation and I'm ready to go in and at the moment just waiting for the hairdresser to turn up so I can get my hair cut and then get into preparation mode at full tilt.


Drinking plenty of water and liquids so that I am well hydrated.  It may hurt when you pee but making sure you can actually pee and just wash it all through is equally important.  

These procedures are important little milestones in the overall scheme of things.  I am hoping that I'll get a clear of course but nothing can be guaranteed.  I liked the fact that people tell me how well I look these days - hell I must have looked rough before :-)  I did see some older photos of me and I looked grey and washed out so perhaps there is something in that?  I am hoping that all will be well today - that would mean a good Christmas and New Year and no matter how I play down the fact that this is just one of those things you have to do and that it doesn't play on your mind.  From experience the relief and energy you get after being told things are OK is massive so there must be some seed of doubt and worry, I guess it is just natural to fear the worst - even an optimist must do that I guess.

At least this will be out of the way though and that is a good thing.  More later. 

Monday, December 13, 2010

Judgement Day

In 12 hours to be exact - I'm sort of ready to go, we have the hairdresser at 9 in the morning and then I can go have a shower.  Mrs. F will run me down to the Hospital and I can call her when I am out.  I have my stuff ready to go - a Kindle, MP3 player, stress balls, Meds and some water, my letter and a few other bits and pieces.  I must remember to have plenty to drink.  

Mrs. F. and the girls are going off to London to see the Nutcracker and so they will just drop me off here and I'll look after myself for the rest of the day.  Hopefully they will be home in the early evening.

It is Mrs. F's birthday on Thursday and we were going to book a restaurant but the weather looks atrocious for Wednesday night and in to Thursday morning.   It looks as if we will have a severe fall of snow like a few weeks back.  Not looking forward to that I have to say but we will just have to see how it is.

I'm reasonably relaxed about going for the flexible cystoscopy tomorrow.  I've had one before and although that was a long time ago, I remember the only bit was how bad it stung.  That is why when I arrive and just before the procedure I'm going to bash down two ibuprofen and two paracetamol.  I hope that it will sort me out long enough to get home and then I can just curl up in bed for an hour or two.

Thursday, December 09, 2010

Still not right

So I cancelled going out Saturday as my throat feels like it is wrapped in barbed wire and now I've got the sneezes to go with it.  I wanted to go but realised that if I got cold or chilled travelling there and back I may not make the do on Sunday.  It all happens this time of year.

Have maxed out on Paracetamol and had the team around today as well.  Things are coming together quite well but a few minor problems are just holding back our progress at the moment.

At least we got the customer survey and questionnaire finished and I can publish that in time to bore all my friends at Christmas.  

Best head off to bed and see if I can't shake this cold or whatever it is off.  It isn't debilitating as such it is just a nuisance.  It has been a week since I had my tooth out and that appears to be healing OK although there is still some swelling around the area. 

Mrs. F & L are off to Gloucester tomorrow - L is attending the University there for an interview.  She has a presentation to give and has to discuss education with them.  I think she will do well.  They have to get there and stay overnight in an Hotel and then carry out quite a bit on Saturday and they'll get back Saturday night.

I hope that I'm fit and well when they get back or for Sunday when we have our Christmas Carvery Lunch which I am really looking forward to.  Of course next week will be interesting too as I have my judgement day and it is Mrs. F's birthday too so again a busy week ahead.

Wednesday, December 08, 2010

Rough

I feel rough as you like today - sore throat still, I'd have thought that should have gone by now and thudding low down headache.  I've had enough pills to kill a horse and I'm finding sitting down trying to work just isn't doing anything for me at all.  

I will perhaps give up and just go and lie down when Mrs. F and A and L arrive back from the Nativity Play up at the Nursery.   

I was disappointed to hear last night that a friend had lost her job after 15 years in the job on some trumped up disciplinary.  Little people hide behind this sort of behaviour, if you want rid, step up to the plate and say so don't dress it up as something that you made up that they did wrong.  This is someone who went out of her way to make sure things happened - in her own time and all the other heroics she performed.  The good thing is that the people left behind who assisted in the betrayal don't know the half of it and it should be amusing to watch it all tumble down like a house of cards.  However, she is left with the bad taste and feeling that she did wrong when  once again some little jumped up spreadsheet jockey - who obviously has no balls - wants to balance his books.  Good for him, I hope that his employers - for he answers to others - sh1t on him like he has on others.  Little prick.

I've quite tired myself out doing that little flame out.  I'd like to meet the little git face to face, little dictators are my speciality :-)

Right - retiring hurt - I feel I want to cough but know it will feel like barbed wire if I do :-(

Tuesday, December 07, 2010

Blimey it's cold today

Then I found out Mrs. F. had wound the thermostat down to 15!  15 for goodness sake no wonder my feet are like blocks of ice.  The best bit is she gets in and says it's cold in here why don't you put the thermometer up?  

The laptop has been playing up all day - it intermittently drops the network but not the internet and just randomly connects and disconnects as and when it feels fit.  This is apparently quite normal.  Of course if I'd like to invest a few thousand pounds upgrading the reminder of the house's PCs and infrastructure then it would go away.  As if!

Finding that some of my team aren't taking the launch of the web site in the right way seeking only to publish the web site address without positioning it with the obvious result that people don't get it and have written huge critiques about it.  That has been put right now and hopefully the little note positioning it will go out and stop wasting everyone's time.  Certainly we got fed up with trying to fend off loads of comments that wouldn't have been fielded in the first place if they were correctly managed.  Some people have an overly romantic view of what it is to build a company from scratch thinking, I am sure, that this will all be easy and corporate.  Those of us who have done it before know that this is the honeymoon period, the worst is about to break upon us in 2011 if we get the money.  I feel I may have to just give these guys a reality check talk soon.

So today has been one of cold feet (in more ways than one) a few smack downs and at last I have completed the customer survey form and got that on-line and in a printable version - thank goodness for that.  It has taken me months to get everyone to agree it and finally that is done.  

This time next week I'll have had my judgement day inspection and no doubt be hopping around peeing razor blades.  I am getting myself prepared for that but frankly, after having had plenty of things shoved up me without the benefit if local anaesthetic and all the other stuff they do to me these days this will be a relief not to have to prepare myself for an in patient procedure.

Aspirin

The latest information on Aspirin - amazing findings out this morning from the BBC and I just saw the interview http://www.bbc.co.uk/news/health-11930988 it is pretty impressive findings based on lots of data.

A small daily dose of aspirin - 75mg - substantially reduces death rates from a range of common cancers, a study suggests.

That's the dosage I've been on for around 4 years so let's hope that it is so.

Monday, December 06, 2010

Fun

Having fun, enjoying the company of people and just all getting along with each other.  It was so nice this evening to find that the guy I've been having so many problems with over quite a period of time is almost back to his old time best.  He is still in deep trouble but at last seems to have accepted that and is fighting his way back.  His old sense of humour is appearing again and that's just great and it is pleasing to see that.  Fingers crossed for him, he has an interview and could land himself a job that may actually steady his ship and allow him to build into 2011.  I do hope so.  He has had a wretched time of it this year.  It will also give me a bit of a breather too.

Talking of a laugh, L & A were on top form tonight L has my sense of the absurd and A has my darker sense of humour.  Between them bouncing off each other and taking the rise out of me too it was seriously amusing in the house tonight.  We haven't had quite so many laughs for a long time.  I like it and they are very funny when they relax and get going.  I hope that the next few weeks will be good for us over the festive season - goodness knows we haven't had the best of times these past 4 1/2 years and I'm seriously considering just putting everything on hold and just going for a two week mellow and chill out, leave the business to look after itself and see if we can't all get back to normal again.   

Not that things were abnormal but you can probably imagine that things have been strained and we have all had to deal with me being ill.  I may whinge about how I've been, to them it can have been no easier seeing my looking like sh1t and perhaps  not being my usual self.

Time to let our hair down and make up for the rather staid Christmas holidays we have had before.  I will see if I can make that so for us all, it would be a good goal to aim for before the end of the year.

No Screening For A While Then

This report just out:

http://www.screening.nhs.uk/bladdercancer and the report can be downloaded here show that it isn't conclusive to run screening tests at the moment to diagnose bladder cancer.

I know that I am still providing samples regularly which I believe are in part to do with this.  They get the sample some time before hand and can relate the actual results to those in the sample.

I'm still pretty impressed with the rate that discoveries are happening and after listening to Professor Colin Cooper a month or so back about the advances in Prostate Cancer research - I think that things are moving in the right direction.

Let's hope that bladder cancer, which is getting pretty much high up on the list of male cancers at No. 4 will be able to be detected early and dealt with swiftly in the future.  Until then, we need to be thankful of the work that has been done to date especially in the efficacy of BCG.

1 week to go until my Judgement Day.  At least I will not be going through the pre-assessment (would have been tomorrow) and all that palaver.  Now to see if I can brave the Flexible Cystoscopy out - after having my Wisdom tooth pulled last week and root canal a few weeks before that I sure hope so. 

A Cold - Just the After Effects?

I can't tell whether this sore throat and occasional sneeze is a cold or the after effects of the tooth extraction.  I have felt lousy for the past 4 days ever since I've had the tooth hauled out.   I'm still whacking back the tablets and hoping that they will resolve the headache and other jaw and throat issues.  

Last night was one of those nights where - as often happens - I got to thinking too much and the room closed in around me and I felt claustrophobic and melancholy all at the same time.  I'm not sure what brought it on, maybe the slight tweaks in my throat and nose were making me breath unusually or perhaps thinking about things too much from the previous blog.  I certainly had an unsettled night taking a while to relax and then to actually fall asleep.

Little episodes like this happen and I sometimes don't understand why - I'm really fragile and vulnerable at those moments.  I was really sad and down and just felt sorry for myself.  Luckily these episodes pass and I can get up and on pretty fast from them these days.  

I need to see if I can find out what the trigger event(s) were so I can recognise this sort of thing coming and deal with it.  At least it isn't as bad as the earlier episodes which gives me hope that these will continue to get fewer and farther between and be shorter and less intense.  They are still not very nice though.  I guess my heads repairing itself as well as my body getting back to some sort of normality.

Perception

Is everything so the tag line on our site goes.  But perception means many things.  I like our tag line as it works on many levels it says a lot about how we feel about the business and how we feel about ourselves.  It also asks the reader to reflect on what they are thinking and feeling etc.

So perception - how do I or others perceive bladder cancer?  It floated into my head tonight and I  considered what I knew from the various conversations I have had and some of the observations I made on my journey.   There are major differences of course if you talk to someone who has or has had cancer as opposed to someone who hasn't.   

Perception is the knowledge between those of us who have had cancer and how we immediately understand the situation of the other person.  By this I mean as soon as we both realise that we have had cancer then we automatically have a bond of understanding and we know what the other has probably been through and it is OK (generally) to talk in some detail about what went on and how we are, the tests and the blood and gore etc.

If we haven't got that cancer bond then it can be a difficult conversation and that in itself is where the perception bit comes in.  It is just difficult in terms of subject matter and different people process it differently and that makes for some interesting conversations.  

I was quite surprised to see someone almost jump back in surprise when I said I'd survived cancer :-) it was as if I'd have come back from the dead or something.

Some people are curious, some patronising, some fearful and some just want to get the hell away from you.   It's all driven by what you do and don't know and what you think or how you are taught to think.

Sunday, December 05, 2010

Ouch

My Jaw is aching - not surprising I suppose considering the near 1 hour struggle the guy had getting my tooth out and yanking it this way and that.  The damage I can feel with my tongue is pretty extensive and where he has had to leverage against my lower jaw and lip it is still numbed.

So I've had plenty of pain killers and some throat tablets too as I've got a sore throat and sound like I've gargled with sandpaper for a week.  Talking of gargling, having to wash out my mouth with salt water 3 or 4 times a day isn't too much fun either.  

The snow is melting fast and I was able to get out and drop L off to work this morning without too much drama.  I certainly could do without the jaw ache and mild headache and sore throat though.  

Oh well I shall just have to get on with it and hope that it settles down over the next week or so.  It will be the other end in a week and a bits time.

Saturday, December 04, 2010

Ooeerr

I went out last night, walking down roads where the snow ploughs had been - it was an amazing, quiet walk through frost sparkling roads to the pub to meet my friend.  To my amazement the pub was heaving.  We had a couple of beers and then wandered off to another pub that was a little quieter.  We had a few more beers and I wandered home again in a spooky white sparkling world.

Even after ploughing the snow must be 4 to 6 inches thick on the road.  This morning a quick thaw has gotten under way which is really getting going now.  We have the prospect of an overnight frost though and I need to drive tomorrow.

This morning I had the Jaw ache from hell and had to come downstairs to get plenty of pain killers and just lay down in my chair for a few hours.  I eventually dozed off and things are a little better now.  I suppose I ought not to be surprised considering how long it actually took to get the tooth our and also the amount of damage my gums, lips and jaw have taken.  I just need to keep taking the tablets and gargling and getting back to normality.


Friday, December 03, 2010

Salt Gargle - Yuk

I hate gargling with salt - not having tasted table or sea salt for a long time now it really is quite strange tasting so much salty water in my mouth.  It is doing me good so I have to remember that.  At least I am not looking like a Hamster this morning but I'm pretty tender and so using the pain killers just to take the edge off of it for the moment.  I woke up and there had been a bit of bleeding last night so my pillow looked a bit like the Godfather scene :-) it always looks a lot even if it wasn't.

So today the girls and Mrs. F. Have dug the drive out to the road and in some areas the ploughs have been through and sorted out the bus routes.  Local stores have been replenished and gradually people are emerging into the white scape around here.  The ploughs haven't got to us but the road looks passable with care this morning.  Just as well as we have to get L to work tomorrow somehow.

At least I have been able to get on with some work these few days and now that I'm clear of dental work for the foreseeable future I only have to go get my blood done and have my flexible cystoscopy.  I wonder if I can actually look this time?  Not sure that it would be in mine or their best interests as to pick up even the new slimmer me may be difficult :-)

Thursday, December 02, 2010

More days locked in

It seems that we will still have this appalling weather with us for some days yet and that's OK as I can stay in and get all my work done. There is sure to be plenty of disruption to come with burst pipes, refuse collections to be caught up and deliveries and post to catch up.

I'm just about to polish off some more pain killers and then do a salt gargle to sort out my mouth. It is OK but as with all these things needs careful attention and to follow the instructions to make sure it resolves itself properly.

Other than this I am feeling OK and looking forward to the morning when I can get a warm drink and food inside me.

Just to give an idea





This was yesterday - today it has doubled and so snow is half way up the cars.

Snow and A Cavity

Well another 8" of the white stuff overnight and the country is paralysed. Barely anything moving, no trains and just the odd 4WD.  It is so deep most people don't realise that they are actually acting as snow ploughs with their front spoilers piling up snow.  Efforts to move a van around the corner have made 2 hours and about 10 yards so far.  

The trip to the dentist was hard going, sometime up to my knees in snow but as he had made it in it was incumbent on me to do so as well.  The Wisdom tooth extraction was difficult and I can really feel it as there was much pulling and grinding and plenty of extra local anaesthetic which is now wearing off.   It has left a pretty badly damaged mouth and local area but plenty of pain killers appear to be sorting that out.  We are waiting for the snow to stop a little later today then the temperatures will plummet to -6 to -9 Celsius which is about 16 degrees Fahrenheit if I remember rightly!

No trains at all today again and it is amazing that we have this much snow this early in the season.  It reminds me of when I was a kid.  We don't do snow in England and we have no investment in the sort of kit that many others have as we don't normally get this sort of winter...

Anyway, no more tooth work for me until the new year - I'm going to see my dentist in March for a check up and see how things are.  For the rest of the day no hot drinks or food and starting tomorrow the old salt water rinses and slowly get back to normal.  I have to say that the Root Canal work might have been preferable but looking at the state of my tooth it sure needed sorting out.

I need to go and get some more tablets in a minute as these are wearing off and I feel like an opponent of Mike Tyson must have done.

 

Wednesday, December 01, 2010

Gridlock

If yesterday and today are anything to go by. Why two quite large lorries decided to come down our little road is beyond me. They both got stuck and thankfully a 4WD came and towed them on their way but - of course - not one could get anywhere whilst that was happening.

I reckon I haven't seen snow like this since 1967 or perhaps 1987 - it has drifted to be up to 2 feet deep - this is a lot for us in case you were wondering. Last year 6 inches of snow brought the place to its knees, this has done about the same and we are in for more. so they say.

Tooth due for extraction tomorrow which I am not looking forward to. I will call in the morning to make sure they are still going ahead. It will be a fair old walk to there - it is normally 20 minutes or so - I expect it will be 30 or 40 with it snowing.

Tuesday, November 30, 2010

Now that's what I call Snow

What an amazing sight this morning.  There was a fair amount of snow overnight but it just got worse during the morning and Mrs. F. kindly went up to the Hospital with my pee sample as she had to take A to get her blood test done.  I was waiting in for my business partner but the roads and basically the whole country shut down again today and so he ended up going home as the road here was blocked by abandoned cars and traffic accidents.

As there were hardly any people around A got her blood test about 30 seconds after she got there which was a blessing as she, like I, does not greatly like such things.  They handed in my test so that in 2 weeks time I can have my Flexible Cystoscopy.  Not something I'm greatly looking forward to but something that has to be done of course.

It looks as if we are in for more travel chaos - they only knew the snow was coming for about a week and they still couldn't cope.

Suddenly Christmas is upon us and I've a mountain to climb in terms of getting things done and trying to make sure that I have work and leisure things tied up.  Trouble is there are just so many things vying for my attention.  Oh well - I'm sure they'll all get done sooner or later.

Monday, November 29, 2010

Must remember

Pee in a pot tomorrow morning and get that off to the Hospital. The threat of snow here is now getting nearer. None so far tonight but that can change as quick as you like.

It is 2 weeks away from my Flexible Cystoscopy and only three days away for my tooth extraction and to top that the Doc wants a blood test (maybe I can do Christmas Eve like last time - it was empty then!!). Talking of which - the new simpler way of sorting this out isn't! They now have a printed paper form not the old bag and handwritten form - yippee progress. Well it would be if they actually informed you whether the fasting blood test is actually necessary. You see they say you no longer need to these days. On the old form it told you what to do on this one? Of course, not a word, you have to guess I suppose :-) Luckily Mrs. F is heading down to the quacks tomorrow so will ask the question of them. Typical! I wonder if it is me. Service and thinking about what you do before it backfires on you doesn't appear to be in the human Psyche at all. Why does no one think this stuff through? Someone else's job I suppose.

I'm feeling good and I had such a great weekend with the guys up in Scotland. So good that I feel that could (or should) become a regular feature on my calendar.

Some Photos of Strathaven

Pronounced "strayvan"


The Hotel


 That's roughly how cold it was :-)



The Town


Town Church


The Castle

Sunday, November 28, 2010

I'm Alive

Well I survived Scotland including the snow and ice. It was a really great time. More when I get some sleep - 7 hours + in a car there and back were enough to make me feel really tired. Let alone two nights of getting to bed gone 3 am don't help either.

Thursday, November 25, 2010

Yay - web site is up

Finally the web site is up and running.

I can't even begin to tell you how disruptive it has been to get to this stage but now it is completed, I'm really happy with it and it is just enough to get our message across without too much detail.

HERE IT IS

Now to get on with the rest of the planning work.

Cold snap

It is pretty cold here and the damp weather with this cold snap goes right through you. I've been working away today on various things to get the survey questionnaire completed and we have been struggling with the web site getting that loaded onto the web site and tested.

It worked find in test, a doddle in fact, but at the moment all I can see if the text and none of the images and they really are the thing that makes the site work.

Off to Scotland - where the worst of the weather is - tomorrow morning at 05:30 so I need to get myself ready and sorted for that at some time tonight! I am looking forward to it but not to miles of snow and ice that will go with it!!!

Maybe it is finally time to move my books and computer back up to my office and work up there where it is a little warmer than in our front room which is always cool - even in the Summer.