Friday, July 09, 2010
One Week Away
Thursday, July 08, 2010
Makes your blood boil
So let me get this straight
Wednesday, July 07, 2010
Friends the good, the bad and the ugly
- It was a tiny, minute tumour
- the remaining 99.9% of my bladder was clear of cancer and has been for 3+ years
- You can't treat a tiny, weeny little tumour like that - it was cut-out and is NO LONGER THERE
- It was low grade, low threat, less than CIS or any other tumour I've had before
- Decreasing the time between biopsies is best in class behaviour and the right thing to do
- If they find anything now - they can scrape it out. If they don't we revert back to the original 6 month reviews
- In 3 months not a lot can happen to a bladder that was left cancer free
- BC grows slowly and can be controlled
All Systems Go for Scar Wars IX
Tuesday, July 06, 2010
Early Morning
Nothing quite as boring
Monday, July 05, 2010
Well that wasn't so bad
I did 30 minutes on my cross trainer and racked up the furthest I've travelled before so that was pretty good. I am getting closer to the 8kM mark in 30 minutes and like Steve K in the USA, I think that exercise is the spawn of the Devil but it appears we must do some to assist with all the other things we do to fight off further attacks of Bladder Cancer. Still 7.4 kilometres is about 4.6 miles and 8 would let me hit the 5 miles in 30 minutes target.
Unlike Steve I do feel a benefit and can actually feel it is doing me some good. For distraction I stick my MP3 player on quite loud and just pound away for 30 minutes. I do a few minutes recovery and then do some light dumbbell work for about 3 or 4 minutes and that does me. After cooling down I check my blood pressure which is always reassuringly low and on a downward slope (which also gives me some satisfaction) and then I have a shower and have something to eat.
I was a bit worried that I'd feel tired or not up to the exercise today but in fact I'm obviously getting stronger and getting further along each time. I wonder when I'll get to the magic 8kM?
A Flocky Compliment
Sunday, July 04, 2010
Interesting Weekend
Friday, July 02, 2010
4th Anniversary and a Frightening Moment
Last night I was out and met my Nephew. I'd never really understood what it was like for people on the other side of my illness and he was very good and told me about everyone's fears and concerns. We discussed loads of things and then suddenly he started acting - well - a bit strangely. I ordered some food in case he hadn't eaten before he turned up to the wine bar but shortly after that it all kicked off.
I'll not go into too much detail but I managed to get him to the toilets where he stayed for a good 1 to 1 1/2 hours as I got water in and out and tried to work out what to do with him as he was coming in and out of conciousness and so I was keeping him awake and sticking water down his throat which promptly didn't stay there for long.
I grabbed his phone and managed to call his girlfriend and get their address in London. I spoke to my wife to get her to do a bit pf phoning and then the really frightening thing happened. I lost it, all of a sudden I just burst into tears on the phone and Mrs. F. said something soothing like "you're not going to help him like that" and it was over, I snapped back and said "NO, I've got this under control, I'm going to sort it out". I was the only person who was interested or helping and so it was down to me. I eventually got is address, half stabilised him, got a taxi driver and stuck him in a cab and let his girlfriend know.
I went back to the wine bar, drank my wine, tipped the wine waiter who did help me get a taxi and gave me a bottle of water to give to the taxi driver to give to him if he was ill further or needed it. I then got a very late train home and walked back here. I was close to tears all the way, I can't exactly work out whether it was shock - it all happened so quickly and was actually quite frightening - or just the way I am these days - I would never have been like this before BC or something else at play. I just found it all really distressing, really frightening and I'm emotionally drained this morning.
Today happens to be the 4th Anniversary of the first real signs that there was something wrong with me. I'd driven to Yorkshire and on arriving went to the toilet only to emit a stream of red urine. It really is stuff from a horror movie when you see it and it totally freaks you out. Maybe it was that yesterday (as we discussed it) or maybe it was also that I realised that it wasn't just me who was petrified by what I had, everyone else around me had to deal with it too.
On a lighter note. My business partner's cancer is also 4 years ago in a couple of weeks. He and I had no idea about the other's condition until later in the July of that year. After that we started to meet up and compare notes and feelings. I have to say that 4 years ago, I would never have dreamt that he and I would be attempting to start a new business enterprise. We are both really happy we have got to 4 years post diagnosis. His magic number is 5 so this time next year he should be able to say it is beaten for him. For me? Well Bladder Cancer is different - controllable but it does like to come back every now and then. Let's hope that isn't the case in a few weeks time.
As for my Nephew - it appears that he got home and was still in and out so the paramedics checked him over. He had just drank too much. I have to say - I didn't see him or appear that he was drinking too much but there you go - very hot weather we are having and if he didn't eat anything or maybe it was just his light frame but anyway - let's hope he just has the hangover from hell today......... And never does it again.
Wednesday, June 30, 2010
No Pressure Then?
This exercise malarkey is good for you - even though it sucks. I've seen a daily improvement and the graph looks like the slope on a championship skiing downhill!! Brilliant.
I'm laying off the exercise for tomorrow as I am going up to town and so won't have time. Friday Mrs. F. is taking me away for the weekend and there should be plenty of sea and sun and walking involved.
Life's good and my business partner was over earlier today as we were going through some of our plans. It seems to be going great so far. long may everything continue like that.
One week today is my pre-assessment. Two weeks on Friday is my operation. As I write that my left hand starts to twinge knowing it will get a cannula shoved up it and the bruising that causes. Oh well, it is all in a good cause I suppose.
I'm off for a shower now having completed my exercises and then will prepare yet another salad and perhaps fish tonight - maybe Pilchards. Flocky Bicep is horrified and things I may have "turned" :-) I'm surprised how good I can make a salad taste with all the ingredients I can bring to bear.
Tuesday, June 29, 2010
Blimey
That burst work I was doing over the last couple of days and today's exercise surprised the life out of me. I knew today I was burning up a lot faster than normal and did an extra kM in 30 minutes - not bad considering the resistance of the thing. Measure my BP and it was way down, probably the lowest I've ever seen it. I waited 10 minutes in case it was an anomaly but no there it was. way below my usual so I'm pretty pleased with that. If I can keep that going it will be good.
L has given me some hand dumbbells to use and I did 5 minutes with those after my 30 minutes on the machine. They made my arms wobble I can tell you especially holding out my arms away from my body.
Anyway, exercise really does appear to work - now to see if I can actually burn off some weight too.
Monday, June 28, 2010
The British and Their Weather
I know - no one else on earth understands this preoccupation we have with the weather but take today, about 28 Degrees C but humid too. Tomorrow is expected 28 Degrees with 70 percent relative humidity. We just aren't used to it. Years of evolution and we still find it too hot or too cold it is never quite right :-)
That's the trouble though living here, you wither get one thing or the other and can easily have 4 seasons in a day. We apparently have more Tornados and thunder storms than any country of our size more than USA so they say. I wonder who came up with that stat? Whoever it was, it seems surprising although we have seen quite a few Tornados of late even one in a London suburb!
But I digress what I was rattling on about was just how uncomfortable the weather is at the moment. I did my exercises today but was pretty worn out afterwards. I expected to be as I was sprinting and had another programme set which starts at high resistance and drops to a low plateau to do the crunch bit and then winds back up to the top resistance in the last ten minutes - that's the bit that grabs your attention. I have a fan running in my office. I have one in the bedroom too and it just feels so draining this weather. Perhaps we ought to get air conditioning or I'll work in my Jag all day tomorrow - that will mess up the global warming figures if I do that!
We will have to see what tomorrow brings - a nice juicy thunder storm would be good to clear the air but I doubt we will get one. Hopefully we can sleep tonight.
Hot work
Exercising in this weather is hot work and I have a fan blowing on me all the time - it sort of helps. I've been doing 30 minutes a day around about 5 pm every day it finishes off my work day, let's me have a bit of chill out time and vent if I need to. I tackle my workout using a pre programmed range on the Cross Trainer and I've also been doing these little short exhausting bursts of effort three or four times each session. It absolutely puffs me out but that is exactly what it is meant to do. apparently that burst sets off all sorts of good thing in your body. I have no idea about that I just feel absolutely knackered and it makes the sweat pour off me. No bad thing either.
I have ordered some sweat bands from eBay which I hope will arrive a little later this week - some cheap and cheerful ones that can be throw away when they invariably get tatty.
It was good to that Steve K in the USA has managed to lose a further pound this week. I didn't move but was a bit worried I'd put it all back on again. That may happen this week with Hotel food to look forward to.
Mrs. F. returned from a shopping trip today to say how easy it is to feed me these days. Here was my bag of fruit, my bag of salad, my sardines, mackerel and pilchards, cottage cheese and crisp bread and soup. The fruit includes figs and also some dried figs (I love these and no one else in the house does). I've got walnuts for my salad and low calorie mayonnaise and salad cream (again only I like that). I have tomato juice - yes you've guessed it only I like that too. I caught myself needing a snack the other day - a stick of celery. Suddenly it doesn't seem so bad eating all this stuff that was unappealing only a few weeks ago. I enjoy the time it takes to prepare a salad and the time it takes to eat one. The amount of fruit I eat these days is also far more than I ever did. I can really feel the difference especially things like the exhaustion I used to get. I still get tired but not anywhere like before, I feel good, my skin feels good and my blood pressure is down and all of this through investing about an hour a day in warming up and cooling down and of course exercising in between plus eating a lot healthier than I've ever eaten before.
Well I'm off for a shower now having cooled down sufficiently, taken and recorded my blood pressure and written this little missive.
It's Hot Again
Phew - there's a lot to be said for air conditioned offices. Unfortunately my office can only appear cool through the use of reciprocating fans (air blowers). I'm stuck in my office and wondering if I'm going to last out for the remainder of the morning or go and work downstairs which is surprisingly cool. The Front Room has always been so much cooler than anywhere else in the house. It is north facing and shaded by the massive tree out front. With wooden flooring it is just a few degrees cooler than anywhere else.
I'll see how I get on. I was pleased that I didn't put on any weight last week - I reckon it may have been close but I've lost all the drop off weight you tend to get immediately and am into the slow burn it off process. A little every week is good. It looks as Mrs. F. has managed to book us a Hotel for my birthday which will be a nice change. I think because the Goodwood Festival is on we couldn't get anywhere along the Sussex coast. Instead we are staying relatively local and going down to the Cinque Port of Hythe. I've not been there since I was a kid and did things like drive down there on a Saturday night with my mates for a beer and a game of darts!!! Crazy - but then petrol was cheap in those days.
It is quite near Romney and Dungeness so we can get out and explore a bit - it should be fun. My birthday isn't until the Sunday but that isn't a problem - it will be nice to chill out a bit. At the moment I am working all the time. By that I mean my brain is working overtime and all it does is think about this new business and so it can sometimes mean that in the middle of the night I can wake up with an idea and have to get up and do something about it.
I've been doing myself with my age too - I'll be 53 on Sunday - I've been saying I was 53 for ages - on Sunday I'll be right! Apparently where we are going has an excellent fish restaurant with locally caught fare so that will be interesting too. I'm looking forward to a few days off - the way things are going I don't see us getting away unless the girls get their acts tocgether.
Sunday, June 27, 2010
Was that on or behind the line
I have to say that - it was really, really close and after a look in slow motion I can confirm that I'm still not absolutely sure. My scales look as if I've lost a couple of pounds but the needle is that thick and the line that thin that it is difficult to say so I think that I ought to call it as no loss this week. Still 232 Pounds. I've managed to exercise every day this week and with the temperature reaching 30 Degrees C today it was a bit of a struggle.
England are out of the World Cup - a pretty average showing and some schoolboy errors in their game. If they played like they play their Premier League games here then perhaps things may have been different - a disallowed goal that was clearly in didn't help the medicine go down but, there you have it, once more we are disappointed but will we never learn?
This week I have another one of those lunch time appointments but I've ordered a half decent meal - I just need to ensure that I don't drink too many beers either side of the lunch!
Feeling quite good about things at the moment, that will probably change this time next week as I start to stare down the gun that is my next operation on the 16th July with the pre-assessment on the 7th July. At least I might get away for my birthday next weekend. It will be curious actually going to a Hotel on the 2nd July given that 4 years ago, on the 2nd of July, I went to a Hotel and all of this kicked off. Oh yes, and England lost in the World Cup that day too. How can I forget :-)
Adieu
Saturday, June 26, 2010
Saturday not as bad as it could have been
I picked up A from the station last night and packed L off to camp this morning, managed to clean up the kitchen changing it from war zone to habitable just to see it turned back by ravenous young adults at breakfast time. A is getting ready to go to her friends and then fly off to Zante (one of the Greek Islands) tomorrow, L will be back and then I need to get her to and from work tomorrow. In between times there are 2 games in the World Cup, Wimbledon, Moto GP, Formula One and GP2 to fit into a tight weekend.
I'm actually trying to work in between times too which is funny. We are at the stage in the new venture where we need to have a name and a way of defining and differentiating our service from others - but there aren't any others. So the quandary is that it is so different from modern computing that you can't refer to modern computing and there is the problem we are having. we might as well call it cheese or tarmac or something like that because it really is so far away and needs to be off the wall. So I am sitting in the front room with my flip chart doing word association exercises. Things are so bad that I was actually dreaming about it two nights ago and every time I woke up I would have to go and write down what I'd dreamt.
The air fair is in full swing and a huge refuelling aircraft has just flown overheard. The day is punctuated by the roars of jets and the thump of WW2 propeller crafts but they are just out of sight. All day people have been walking past with collapsible chairs and bags going up to the heights past the Church to watch for free.
The USA play today and we play tomorrow in the World Cup. Steve K and I are a couple of weeks into our trying to be fit and losing weight regimes. I definitely feel like I've put weight on this week through two nights out and having a few beers on Tuesday lunchtime as well. I'll check tomorrow evening and see what the score is. I am really pleased though with my blood pressure which has tumbled down after doing 30 minutes a day on my cross trainer. That is excellent and together with a few tips I picked up about doing some short burn out sessions during the exercises I hope to get a little more out of that in the long run.
There is a long way to go and I need to drop a couple of stone - 28lbs at least to make me feel anywhere near where I was a couple of years ago. If I can go lower than that I will be delighted. I've now managed to get into a routine especially with food and how and what I eat and when. I just have to continue eating the way I am and exercising and the weight will come off but gradually, no crash dieting - it doesn't work. The first loss must be down to the introduction of a new diet and that initial loss of weight you always get on a diet and with exercise. From now on I expect slow, steady progress.
I also need to remember that I am in Hospital in a few weeks which will mess up my routine. Last time I exercised after biopsies I managed to make myself bleed badly so I will probably have to take it easy for a week or two afterwards.
Friday, June 25, 2010
Funny Experience
I was doing my exercise which as readers of Steve K's blog know "Really Sucks!" and believe me it does. Then I heard myself muttering as I was getting to the last bit of the three hills programme I tend to use and really giving it some effort, sweating like you wouldn't believe I heard myself saying things like "take that cancer", "you're not beating me" "I can keep this going" and so on.
Suddenly I realise I've got more than one reason to put myself through these agonies every day - losing weight is definitely on the cards but beating cancer is even more important too. Diet, exercise, taking away carcinogens as much as possible and just fighting back make you feel good about this.
I'm quite surprised that I was putting quite so much aggression into the exercises but there you go let's hope it does the trick. It has already brought my blood pressure crashing down into reasonable territory so perhaps it will benefit me in many other ways too. Here's hoping because no matter what, exercise really does suck :-)
End of the week
I haven't accomplished as much as I wanted to this week. I had two nice evenings out. The curry was good last night and in the BBC news today Bromley, a few miles from here, was named as the Curry Capital in the UK and we were at my local curry house and as usual they did a fine job and the food was excellent.
Exercise, every day so far and made certain that I did 30 minutes each time even on the days when I was out. Mrs. F. is away this weekend, A returns from Scotland and then flies off to Zante, L goes to camp tomorrow where Mrs. F. is helping the 100 year celebration of the local Guides. Just to keep me on my toes, it is the Biggin Hill Air fair. That means we will be virtually blocked in here in the village as they make things one way for the traffic management. The trouble with that is that I have to get out just as they fair ends to collect L from work. Maybe I will leave early and just wander around and wait for her.
I'm feeling good and relatively fit. My stomach has grown a lot slimmer but I'm not sure that I've lost any weight though. With two evenings out I doubt that all the good stuff I have eaten here at home, may all be to keep me standing still.