Wednesday, April 04, 2007

How to tackle tomorrow

I'm not sure how I am going to do this now. Do my exercise routines first and then have the tabs - but that would put those out to way gone 9 perhaps even 10 a.m. Maybe I should not do the exercises tomorrow and just go straight in for these and see how I get on. Perhaps moving exercising to the evening.

I feel that I don't want to break my routines now I have set them up but I cannot see me taking the tablets and then doing exercises as that won't work and lets face it bashing out 30 minutes on a tread mill after sticking a beta blocker in your system to slow your heart down doesn't make any sense either.

Oh well I shall decide in the morning. I did spend plenty of time relaxing yesterday - indeed I had loads of time to myself as everyone was out for the rest of the day.

Tuesday, April 03, 2007

Taking the rest of the day off

I've had enough today - I've done my business bit, I've been to the bank as well to sort out a problem that just never seems to go away, which is that they cannot get my address right and send my bank statements where they fancy :-) Worried about identity theft? Join my bank and they make it easy!

As it is my daughter's 17th birthday - just had her first driving lesson and frightened the neighbourhood - I think that I should take the remainder of the day off, relax, perhaps have a beer and celebrate. I don't take enough time off to myself or for my family and perhaps I ought to be less than serious for the rest of today. The becoming a drug addict stuff starts tomorrow! :-)

Keep Taking The Tablets

These tablets are minute. You need to employ an optician to see them.

As I am driving a little later today I don't intend to take them until tomorrow morning. I have also been warned to be sitting down to start with as the effect is noticeable quickly.

I have also just ordered a more accurate Blood Pressure Monitor. The Wrist one was not good enough to give the readings the Doc wanted so a new one has been ordered to arrive by next week. I'll be able to put together a weekly review of blood pressure so that we can chart it. As the GP said - it is pretty obvious that you'll get accurate readings at home. He then took my pulse and said "It's a little bit fast - but that is to be expected but the good news is that you must like me so that IS a result!" I like this GP - I really didn't get on with the last one at all - he had the bedside manner of - well Attila the Hun.

I Don't Do Drugs

I DO now!

I'm on beta blockers for a short while to get me through the operation next week and I'm on some very mild BP tablets as I'm prehypertensive - none are going to punch the daylights out of my Kidneys (for obvious reasons).

It is a rich man's game being ill - a two week supply of one and a four week supply of the other £13.70. I feel quite privileged that I have enough money to be ill.

I'm off out to day so I'm not going to tempt fate and have one of these tablets until tomorrow morning, and then I need to be sitting down. I need to curtail my exercising or keep it at a reasonably low level as all these things kick in to slow my heart and to lower my blood pressure.

I expect that this story will run and run.

Monday, April 02, 2007

Jekyll & Hyde

That's me. I'm not actually that bad but I do get pretty much like a cornered animal before having to go to the Hospital or the GPs. Not so much the GPs perhaps although the Doc I am seeing tomorrow is a nice enough chap.

Leading up to today from about mid to late morning there was no laughs no normal mucking about it was all business and "lets get this over with". Now I am almost a different person.

Pyschosematic stuff

How peculiar that the back of my hand is throbbing like it normally does when I have the cannula taken out. I suppose it is one of those things that happens and you start to relive some of the stuff you know is going to happen to you.

I'm reasonably OK with this at the moment. Tomorrow will be an interesting day to see how this is all going to be tackled. I've seen my results tumble but when I get near anything that even looks medical then BP goes skywards.

The crazy bit is how low my BP is in the morning and especially shortly after exercising. No use second guessing what they will do tomorrow as long as there is a road map through this.

The Countdown Begins

So - back on board the Roller Coaster next week and preparations start now for getting myself ready. There is the mundane stuff - "Don't forget your toothbrush" and the slightly more serious (for me) of not forgetting my MP3 player (used to be my CD Walkman) so that I can try and calm down a bit. I also need to pack a book and some glasses so I can read the damn thing. The lights are so severe at the Hospital it is all or nothing.

I'll also need to sort myself out for the sitting around doing very little business straight after - 1 week rest is normal unless they have to do what they did before and I end up 4 weeks of little or nothing.

No doubt there will be more detail soon as I think about it. I'm still slowly calming down after being given the OK. At least my 24 hour monitor didn't show the sorts of readings they were getting. The way she was questioning me I would have expected them to have whipped me straight in.

That was touch and go

My Urology Nurse was there - she knows I am stressy and so we did the BP tests and as expected they were through the roof - not as bad as last time. They came down gradually and I gave my readings from this morning which were pretty good.

It got to the point of almost being refused but they picked up the 24 hour tapes which obviously changed minds a bit and so I have to go and see the GP tomorrow - no doubt for some form of treatment and can therefore carry on with the operation.

The funniest bit was when she said she was going to do the blood test the readings went through the roof again. I often wonder why I am the person least surprise by such things - when they are about to stick a needle in you would you think your blood pressure would fall?

I am in a strange position now as I am looking forward to getting this sorted out and yet I can feel the stress beginning to build again and my the back of my hand has started aching - that is where they put the cannula and I'm sure it throbs every now and then just to remind me.

I have the appointment tomorrow morning and I hope that we can get this particular problem under some sort of control and then get on with sorting the next piece of the puzzle out.

It isn't a quick fix either - I originally thought it was going to be one of those binary things - like it is or it isn't fixed and all that - it would all be over by Christmas (sort of thing) and it isn't going to be over by this Christmas or perhaps by another 5 to 10 Christmases :-( At least this though is a gateway to ongoing maintenance or more radical treatment that is why it is so important.

Checked my BP - strewth it is still high but I am in a better frame of mind myself.

Here we go

Just over an hour before we leave to go the Hospital - I am beginning to feel it already - trying to control things this time with some breathing (not that I don't breathe you understand) and just trying to relax - I might take my music along with me this time again - not sure if that helped or hindered to be honest.

I've tried all the mind tricks "what's the worst thing that can happen?" all that stuff and honestly you can't rationalise with me at times like this.

Today is the day (again)

Assessment two (sounds like an Arnie Film). Judgement Day II - but I doubt it.

I've decided that this morning I will take a few readings myself which are in the high normal range. I do feel apprehensive but I don't think that I will get in to an argument about things this time. I'll see what they decide to do with me, given that it is only three weeks tomorrow that the anniversary of the last assessment. If it is the same person it will be interesting as they were really concerned about my BP.

A couple of hours to go yet.

How much are you getting

At the moment I am guessing that I am providing you with 90 to 95% of what I am going through. I'm not sure if I should give the last 5 to 10% yet.

I tone down the language that I sometimes think in - I'm allowed to swear in my mind I think :-) I try and describe things differently rather than use too much base language for that. The blog is still semi anonymous. I will open it up a bit as things go on.

Like most things you area allowed in, but only so far.

At the moment what does it all mean?

It is difficult to sum up quite what I am thinking at the moment. I want to get the assessment over and done with and I want to get this operation sorted so that I know one way or the other what comes next. It gets one major thing sorted in my life and it should allow some sort of plan to emerge about what to do next. I'm not helping myself and it frustrates and upsets me deeply.

The delays and my own stress levels aren't helping me and I get really stressed out when I should perhaps be relaxing and let this stuff happen. It doesn't help me to help myself which is unusual for me, I do want to help myself to get well again. Mind you, if you are built that way, you are built that way I suppose.

Then there's everything else - like work and the future to review. Just about everything is on ice at the moment. I can't seem to move forward until this is (not resolved - a different word perhaps) understood or comprehended. At that point, what ever the prognosis, I can make a judgement call on what needs to be done short and long term.

Then there are lots of little things that start to mount up and there is a level of stress and commitment required on things that you don't want to do or have to put off and yet I feel bad about doing that. I am putting a lot of things off on the basis that once I know my fate I can decide what to do then. If it keeps going backwards then the list of things to do just keeps getting larger. Of course, perhaps I ought to do them anyway. The uncertainty of what will be found means that I have only planned a few things this year. Normaly my diary would be a lot fuller.

On other levels I am feeling fitter and losing weight, eating properly and taking care of myself better than I ever did and the question is - why the hell didn't I do these things earlier in life - the answer is - of course - I was never ill before now. I also thought I was fit :-)

So at the moment I've got the immediacy of the assessment and the operation and at the same time keeping fit and continuing to improve my health. In the medium term I need to know what the next steps are going to be, a rough idea of how my future is going to shape up and some grown up discussions about what I need to do, what I want to do and what I will do.

The are levels of things that I need to or have to do. Family, House, Education, food, money etc. The basics.

There is on balance with that, what I want to do. I've had the big wake up call, there are things that are in the back of my mind that are saying these are the things you need to do before you die (sort of).

There is the what I will do as there just has to be a trade off between what I have to do and what I want to do.

In a way I am looking forward to being in a position to focus properly on those questions. I've said and hinted before that there will be casualties in the outcome of that. Somewhere along the line perhaps I need to be extremely selfish or perhaps I need to drop some activity or some other action that will arise out of this. I think I have to balance that when I come to it but be realistic now that it may happen that someone, some people or just I gets hurt by the decisions I will have to make.

Turbulent times at the moment, no job, possibly no chance of getting one for a few months until this next lot of stuff settles down, possible other medical problems on the horizon or maybe not, further treatment, realisation of the severity of the situation and actions arising. As a Project Manager I should be "revelling in it" - but dealing with people is not the same as dealing with yourself. I'd tell myself to "pull myself together" but I know that things are neither simple nor are there any easy or indeed right answers at the moment.

The conundrum that is cancer. It works on many levels, getting better or getting things under control is just a start. Trying to get on with the rest of your life is a juggling act that I have yet to master.

Be assured, I will master it, it is just how long I take to do it that cannot be assessed.

Sunday, April 01, 2007

Here I go again

Back to the Hospital tomorrow for an assessment. I thought I was doing alright but I'm starting to get slightly wound up about it. I'm hoping for things to be not so bad - I've supposedly lost a fair bit of weight, lowered my blood pressure and calmed down a bit I think.

We will just have to see what tomorrow brings I suppose? They can always call it off again if they want to. Not sure the consultant would be over pleased about it though.

Weigh Hey!

Excellent - another 2 Kgs off this week, down below "obese" category and on the way down which is great news. I'm well pleased with that sort of loss that is close to 2 bags of sugar gone but I was feeling a lot better towards the end of the week (excluding Friday of course).

I can actually feel the loss so I knew before I got on the scales this morning. Now I need to keep up the diet and to keep up the exercises too.

Back in my Office

Pleased to say. The party I believe, given by the slow way everyone is getting up this morning must have been successful. It looked like a bomb had gone off in the dining room and kitchen obviously because young people are so uncoordinated that they cannot keep food on their plates.

I upped the exercises to 40 minutes this morning - also pleased to have recorded the lowest blood pressure reading I've seen as well.

I have the assessment tomorrow and so I am hoping that I can keep relatively calm to keep the BP within the bounds of normality.

Saturday, March 31, 2007

Shutting Down for a short while

Whilst they use my office for one of the party goers to stay over - nice of them to tell me after it had all been arranged by them!

Logging off but back tomorrow

The Waft of Party Food

All I can smell are sausages and the like being prepared in the Kitchen - the little apprentice human beings have offered me a couple to try but so far I have resisted. I have escaped up to the office but will now go and lock myself tortoise like into the back room.

Thanks

So I just got an e-mail.

"DaDaer sir
we got your name and your addres true internet that you are one of exporter of used shoes an clothes and we are one of lmporter in our local market we only been buying from uk companys.pls can we know the wey you uperate both your price even am now in uk"

Nasty stutter at the start?

So I've suggested that they write to me as they have my "addres" - whatever that may be :-)

Party Tonight

Not mine - my little baby is 17 soon so she and her apprentice human being friends are around tonight banishing me to the back room and perhaps the kitchen.

All is looking set fair, cakes is made, food is beginning to be cooked and prepared and all valuables and things that could be knocked over are moved, next door neighbours have been warned to expect a bit of noise and to complain if it gets too bad. perhaps I should have paid for them to go out for the night?

More worrying than having a party is that Driving Lessons also start in a day or so too. Not for me for her!

Cheered Myself up

I just cooked a really neat soup for lunch using Water Cress. Really easy to make although trying to find Water Cress is a nightmare. You can get it in packets but not loose anymore.

I beginning to sound like my parents reminiscing about getting stuff in newspaper - although I remember going to the shops for my Mum with a bag and getting x Lbs of potatoes tipped into the shopping bag. If the Greengrocer missold anything to my brother or me - mum would be around there and give him what for as I remember. We had the treat then on spending a few pence on sweets - much to the delight of my Dentist I imagine.

Anyway get down to Waitrose and pick up a copy of the recipe or perhaps from their web site. It was really good.

Additionally, the latest from the kitchen is that bread consumption has gone down 75% as had cheese too. We have had to throw out some Ham we bought last week as it is past it's use by date. Also we are having to replenish the fruit bowl three times a week now.

As you can probably tell I am feeling 100% better than I was earlier - I have no idea why wearing a stupid piece of kit should have made me feel as ill as I did? Now I feel fine - stupid, really stupid.