You may recall I was having a bit of difficulty eating the FOCC mixture and so I decided to open a new bottle of Flax Seed Oil and try mixing that with Cottage Cheese - result? It tasted fine and worked well with my Tuna salad - a little "wet" for my liking - so I just added a bit more tuna and voila it seemed to work out just fine with a taste and texture very similar to tuna mayonnaise and so I reckon that the other Flax Seed Oil must have started to turn rancid.
I've poured the old one away and will use the new bottle from here on in.
My urine tests were amazing this morning as the 4 biopsies are bleeding a little and the blood indicator was the top it could possibly be! At least my test strips are working. My Alkali pH level was around 7.5 and that's not bad - I've had some bicarbonate of soda today and intend to keep doing this although I will try some checks on pH with and without it in the future.
I'm planning a whole series of things for my health starting in a week or two when I'm recovered. This involves making my diet work together with reading my blood glucose levels, blood pressure and urine and bringing this all together. I've now lost enough weight that I fit most of my suits and shirts but I need to move on to the next level and plan bringing more exercise into my daily life. I think that in my mind I've settled on a plan (or plans) what to do from this point onwards but of course the recent hiccough in this through thinking I had cancer again has knocked planning to one side. I need to spend some time with Mrs. F. so we can balance out the risk and reward stuff and also to agree on what I can and cannot do and the sort of investment I need to build a new business (or businesses).
I am looking at one other permanent position which is interesting but the travelling is the killer with it and it would need to be rewarding enough to allow me to finance a flat or apartment near the office as I really can't be doing with travelling for 4 to 6 hours a day which it can easily be even though it isn't a long way away it is still a difficult journey by rail or road.
Tuesday, May 14, 2013
Monday, May 13, 2013
Scar War XI
Scar Wars XI
In A Galaxy Far, Far Away
In A Galaxy Far, Far Away
The Hunt Is On For The Evil Red Spot
Appearing Every Few Years It Brings Fear And Anxiety To All Those Diagnosed With It
Our Hero, Dave SkyNando, Confronts His Fears Head On.
I was hoping to use my Jedi mind skills with the nurse when confronted with the Type 2 Diabetes question. "Are you a Diabetic?" I waved my arm "These aren't the Droids you're looking for!" No, that didn't work. I did however explain that his notes said I was a Type 2 Diabetic (controlled by diet) and yet I had no knowledge of this fact and as I'd never been told by my Doctor :-) We then spoke around what my glucose sugar levels were/are. Now call me an old cynic but if I didn't know that I was a Diabetic and my Doctor hasn't bothered to test me for this or indeed talk to me about it then what could I say? He suggested that he might take my blood glucose to which I asked what would he compare it with exactly. we decided, whether by Jedi mind trick or me being bloody minded not to bother.
Once before have I been in at the crack of sparrows to the Hospital and very much like today should really have been given the later appointment. There are two reporting in times 07:45 and 11:45. I didn't go down to theatre until 15:00 and by my reckoning that's way over 7 hours without water and 16 hours without food. There were a couple of us in this situation and we played last man standing (well woman in her case and she followed me).
Inevitably as these things are and I should have known better - I turned up at the Planned Investigation Unit only to be told that I was in the wrong place and I should be in Surgical Admissions. Well of course I should be, that's where I always used to go until last time and the time before that..... As you might realise all parts of this blog are to be read with a heavy sarcastic bent. It was well packed but not uncomfortably so. In fact it was all going rather well as within 25 minutes I had been reviewed, spoke to the anaesthetist and been consented and spoken to my consultant who I trust. I told her how "disappointed" I was with the recurrence and she did say that they kept their eye on us for just such an eventuality and that it wasn't unusual for this to happen. From the diagram she had and the description she felt that she may just be able to nip it out and she would review what was there and what to do about it after grading and we chatted about Mitomycin as a potential one off installation and had I had it before, which I had not. SHe then said it was a little too early to discuss that yet but she'd get me sorted out no problem and I could go home straight afterwards if it was all straight forward. I said I'd like that - she knows I don't like to hang around.
The day dragged on and my first MP3 player ran out of batteries at 11:20 and so I pulled out MP3 player 2 which ran through until I was called on to get changed and have my "chat" with the nurse :-) The Theatre was very much as I was used to although they made a meal of getting the cannula in the back of my wrist. My Blood Pressure readings were all very high and are something I must address - I'm very surprised at how high they are especially given my diet - they should be much lower. I went out very quickly and came too feeling an urgent need to urinate - this is par for the course - the sting from the scope does this. So they gave me a bottle. It was then that my Consultant popped her head around the curtain and told me the good news. There was nothing in the bladder, no signs of a recurrence and nothing else in the bladder either. Previously (in 2010) she just let it go, this time she felt that she ought to take biopsies which she did (4 of them I believe). She then said once I'd urinated twice I could go home. That was good and I was moved to stage 2 recovery and given some water and coffee. Now I'm an old hand at this and so I threw down the first jug of water and also had 2 coffees. The second jug of water took a little longer to drink and they ordered some food for me - I had to keep that down apparently :-) and hour and a quarter later I managed to give a very full urine bottle to the nurse. So pleased was he with it that he said that the one would be fine and I could go home. Great - I was disconnected from the plasma and all the bleep, bleep, bleep machines and the Blood Pressure Monitor and allowed to get dressed. My "I'm Not Dead Yet!" Monty Python Tee Shirt always brings a smile to people's faces and it was nice to then get a sandwich and orange juice and yoghurt (all of which are potential poison to me on a Protein Diet) and I ate and drank those with gusto as I hadn't eaten for about 18 or more hours by then.
I managed to phone Mrs. F. and she could collect me on her way home from work. After having my cannula removed I I was transferred to the discharge lounge by wheelchair and was collected and "signed for" by Mrs. F. I had to make a couple of stops to the toilet just before and after this as the urgency to urinate is immediate. The pain was pretty bad and so getting home and having some Ibuprofen and Paracetamol really eased that. I see some blood from the biopsies and have had Mrs. F. place some old towels in bed as I'm leaking a little bit :-(
It's interesting that this is the second time I have been in to remove or investigate (I suppose) what looked like a recurrence and it turned out to be clear. In some ways it is a bit worrying that this has happened and in others it is better (as my mate Flocky Bicep said) "Better to have an Op that you didn't need than to not have one that you did" and of course that is right. If it had of been a cancerous tumour it needed to come out and it is better to know I suppose. But it throws up all sorts of questions and there aren't any easy answers to them.
An example is how come I saw something in my urine that I perceived to be a bit from a tumour? How come the doctor suggested that the cytology had come back positive (although it could be me reading an inference)? Did he and the previous doctor just bash the wall of the bladder with their scope and there was nothing really there at all or was there really something there that disappeared (without trace) on both occasions? The doctor actually drew the anemone shaped tumour and it's location on my medical notes. Why did I see blood traces in my urine samples (although not recently)? Did going back to FOCC and bringing my body to a high pH (alkali) level get rid of what was in there (if it was)? The trouble is that all of this data doesn't make any sense as it stands.
I'm certainly going to have a hard think about how I move on from here. Everything is different again (without jumping to too much of a conclusion about the biopsies). I've got my life back and I haven't got cancer which I thought I did have. That's the thing above all that is great but did I have it in the last 4 weeks since the flexible cystoscopy? Has something happened in between and the answer is???? Given the evidence, we will never know. Did the Akali environment banish the little blighter from my bladder? If so how come it left no trace? It's all very peculiar and it has happened twice to me now. Perhaps my bladder bruises easily? My consultant explained that perhaps it had something to do with the way the bladder squeezes itself to eject the urine but whatever it has reignited my desire to do something about remaining cancer free. I certainly have the tools and the inclination to do that. More on that in later posts, for now the main thing is that it looks as if I am cancer free still. Long may that continue.
May The Force Be With You!
Something to Ponder
I'll write a bit more but:
- No sign of tiny recurrence / tumour
- No sign of anything untoward in bladder
- Biopsies taken to check anyway
This is like Scar Wars X - then they saw a red mark / spot and did a TURBT only to find nothing.
What makes this different for me is:
- I thought I was some tissue fly out while urinating a few weeks before the flexible cystoscopy
- It is difficult to interpret but some of my urine strips appear to show trace blood
- I thought the Locum suggested that my Cytology had results that supported his observations
- It is the second time this has happened to me - are there more false positives
I can't even begin to tell you what a relief this is for me.
A Couple Of Hours To Go
I've eaten a late (very) late meal of scrambled eggs. They suggest that it is worth doing and I'm still drinking water. It is just gone 1am and I'm winding down for the night. I'm going to get up at 6 and have a shower and then get ready to go - I have to leave at 7:15 to be there at 7:45. I hate the fact that I have to sit in Planned Investigations - I've seen people sitting there at 9 in the morning and I don't find that a great place - it is ridiculously hot too and so I'll sit near the door and get some breeze as that opens and closes. I'll also just wear a light tee shirt too.
I have enough music on two MP3 players and my Phone so that if I am in overnight I can entertain myself. I really don't speak to anyone as I'm really not that interested in discovering what people have or not and the quality of patient small talk isn't ever great I've found.
Some good wishes emails have arrived which were thoughtful and thankfully received. Nice to know people are thinking about you. This time tomorrow it will all be over and I guess I'll know something of what has happened and also what the next steps are likely to be. I then need to get my arse into gear and sort out my future. However the week is also full of meetings - Thursday Night - postponed drink with the lads (from Tuesday). Friday Night a Lodge meeting then I have two meetings on Saturday one with lunch and one with dinner (thank goodness it is cheat day).
I just hope they haven't beaten me about too much in the meantime. Best get off to bed now - it's going to be a busy morning as three of us will be getting ready and having showers - hence I need to be up first - even more so that I can have a final drink at 06:30....
More when I get back.
I have enough music on two MP3 players and my Phone so that if I am in overnight I can entertain myself. I really don't speak to anyone as I'm really not that interested in discovering what people have or not and the quality of patient small talk isn't ever great I've found.
Some good wishes emails have arrived which were thoughtful and thankfully received. Nice to know people are thinking about you. This time tomorrow it will all be over and I guess I'll know something of what has happened and also what the next steps are likely to be. I then need to get my arse into gear and sort out my future. However the week is also full of meetings - Thursday Night - postponed drink with the lads (from Tuesday). Friday Night a Lodge meeting then I have two meetings on Saturday one with lunch and one with dinner (thank goodness it is cheat day).
I just hope they haven't beaten me about too much in the meantime. Best get off to bed now - it's going to be a busy morning as three of us will be getting ready and having showers - hence I need to be up first - even more so that I can have a final drink at 06:30....
More when I get back.
Sunday, May 12, 2013
One Day To Go
It will most probably all be over by this time tomorrow - although the only other time I've been in early and didn't get seen until the late afternoon and was terribly dehydrated was probably the first or second time. I can remember just waiting for ever and ever and eventually they took pity on me and let me rinse my mouth. It didn't help we were waiting in a room with a water cooler! Great :-)
I'm OK this morning - no jitters or nerves at the moment. Had a good breakfast and continuing drinking water and I'm going to take it easy today. I'll be reading up some more about Type 2 Diabetes but the more I read the remoter it is from how I am and how I feel but the proof will be when I do some blood work. I haven't got a sharps bin yet so I will wait until I get that and after a day or so after I return from Hospital. It will be interesting to get some readings and to record meals, weight, glucose and perhaps urine tests and my blood pressure over a period of time and then "have a conversation" with my GP. I've just ordered my BP drugs online so let's see if that works again this time. They haven't called me in for a review even though one is due and when I called they said to wait until there was an attachment on the prescription form.
I've got my music and books (Kindle) ready to go in and my bag needs a final pack and that will be that. I need to reread my notes from Wednesday's Pre-Assessment and make sure I eat and drink "up to the wire" ready for tomorrow. They suggested, for the first time ever, not to take my Aspirin in the morning which is fine by me. It's not as if I miss out on these - I think I have only ever missed one or two in all the time I've taken them and normally it would be a Statin on a late night back or falling asleep before taking it.
There's a Grand Prix on a little later so I will sit and watch that and study my books and see if I can make any sense at all of the Type 2 stuff. The one thing I do know is that it is possible to reverse Type 2 and as I'm currently eating a low glycemic index, low insulin diet, albeit without the full exercise regime to go with it (I need to sort this out), I can't imagine I'm a Type 2 but there you go. The tale of the tape - or blood monitor will tell and once I've got data to work with, then we can do something about it. I certainly don't want to be in and out of the Hospital having loads of blood tests - I've enough to worry about with the "Tiny Recurrence"
Let's hope that it is just that, tiny, insignificant and that I won't require treatment. If I need to, then I need to but, let's see what happens. With any luck my Alkali treatment will have kept things in check too.
I'm OK this morning - no jitters or nerves at the moment. Had a good breakfast and continuing drinking water and I'm going to take it easy today. I'll be reading up some more about Type 2 Diabetes but the more I read the remoter it is from how I am and how I feel but the proof will be when I do some blood work. I haven't got a sharps bin yet so I will wait until I get that and after a day or so after I return from Hospital. It will be interesting to get some readings and to record meals, weight, glucose and perhaps urine tests and my blood pressure over a period of time and then "have a conversation" with my GP. I've just ordered my BP drugs online so let's see if that works again this time. They haven't called me in for a review even though one is due and when I called they said to wait until there was an attachment on the prescription form.
I've got my music and books (Kindle) ready to go in and my bag needs a final pack and that will be that. I need to reread my notes from Wednesday's Pre-Assessment and make sure I eat and drink "up to the wire" ready for tomorrow. They suggested, for the first time ever, not to take my Aspirin in the morning which is fine by me. It's not as if I miss out on these - I think I have only ever missed one or two in all the time I've taken them and normally it would be a Statin on a late night back or falling asleep before taking it.
There's a Grand Prix on a little later so I will sit and watch that and study my books and see if I can make any sense at all of the Type 2 stuff. The one thing I do know is that it is possible to reverse Type 2 and as I'm currently eating a low glycemic index, low insulin diet, albeit without the full exercise regime to go with it (I need to sort this out), I can't imagine I'm a Type 2 but there you go. The tale of the tape - or blood monitor will tell and once I've got data to work with, then we can do something about it. I certainly don't want to be in and out of the Hospital having loads of blood tests - I've enough to worry about with the "Tiny Recurrence"
Let's hope that it is just that, tiny, insignificant and that I won't require treatment. If I need to, then I need to but, let's see what happens. With any luck my Alkali treatment will have kept things in check too.
Cheat Day - A Sort Of Non-Event
As if I hadn't had enough cheat days this week - but there you go. I hardly did anything other than spike my system with some bread and beer. Other than that - not much to report.
I am getting a bit of the jitters ahead of Monday but it looks like it will be a dry yet cold day and I'll probably walk to the Hospital. I have my wife's number so I can call her at work (very rarely am I allowed to use that). I have no idea how long I'll be there but I reckon that there won't be the pressure to get out I normally put on myself and so with a whole afternoon to leap through the hoops of things to be done to go home, it might be that I can come home as she comes home from work - that would be nice.
Feeling a tiny bit sorry for myself this evening but I suppose that I'm allowed to do that. Getting a recurrence really is a nuisance and it throws up some long term concerns for me (us) too. I was hoping to talk about some of those with Mrs. F. today but she was otherwise busy - maybe tomorrow :-)
I am getting a bit of the jitters ahead of Monday but it looks like it will be a dry yet cold day and I'll probably walk to the Hospital. I have my wife's number so I can call her at work (very rarely am I allowed to use that). I have no idea how long I'll be there but I reckon that there won't be the pressure to get out I normally put on myself and so with a whole afternoon to leap through the hoops of things to be done to go home, it might be that I can come home as she comes home from work - that would be nice.
Feeling a tiny bit sorry for myself this evening but I suppose that I'm allowed to do that. Getting a recurrence really is a nuisance and it throws up some long term concerns for me (us) too. I was hoping to talk about some of those with Mrs. F. today but she was otherwise busy - maybe tomorrow :-)
Saturday, May 11, 2013
Good News
An ex-colleague has been given the all clear after 5 years of treatment. Good for her!
I went out last night to my friend's party and it was worth it. It was one of those interesting evenings - I did well for most of it sticking to red wine when some wag decided to bring something called a Jägerbomb so I had two of those rather reluctantly I hasten to add. The "hit" if I can call it that was in the Red Bull I guess and so having destroyed my best efforts to stick to diet we then went to a Turkish restaurant and ended up having a small beer and some great food which was also way off diet. Got home OK and then sat in front of the TV watching a concert (Rush).
Feeling sort of OK this morning but a little stressed - it's difficult to explain. It's a sort of anxiety which you can feel right inside your stomach and throughout your core. It's manageable and that's the main thing. I've started to get things ready and my Blood glucose monitor has arrived together with the spare lancets and test strips. I don't have the sharps box yet (to dispose of the lancets) and whilst I've set it up I may just do a practice shot and then wait until after the hospital and operation to set up and do this regularly.
I went out last night to my friend's party and it was worth it. It was one of those interesting evenings - I did well for most of it sticking to red wine when some wag decided to bring something called a Jägerbomb so I had two of those rather reluctantly I hasten to add. The "hit" if I can call it that was in the Red Bull I guess and so having destroyed my best efforts to stick to diet we then went to a Turkish restaurant and ended up having a small beer and some great food which was also way off diet. Got home OK and then sat in front of the TV watching a concert (Rush).
Feeling sort of OK this morning but a little stressed - it's difficult to explain. It's a sort of anxiety which you can feel right inside your stomach and throughout your core. It's manageable and that's the main thing. I've started to get things ready and my Blood glucose monitor has arrived together with the spare lancets and test strips. I don't have the sharps box yet (to dispose of the lancets) and whilst I've set it up I may just do a practice shot and then wait until after the hospital and operation to set up and do this regularly.
Friday, May 10, 2013
To Go Or Not To Go
I was umming and arring what to do and finally after Flocky gave me a call I decided I ought to go up to London to meet my mate - it is his 60th Birthday and in many ways whilst I don't feel that great, perhaps this will take my mind off things. I certainly knew I'd feel a bit rough by now and so it proves - my whole core feels ill but perhaps this change of scenery and my friends will cheer me up?
I got good news this morning from another Masonic Order I am in - I've got an active office for next year and a pretty senior one at that - it is totally unexpected but nevertheless appreciated and it is a great honour.
Right off to get ready and head off to London for the party.
I got good news this morning from another Masonic Order I am in - I've got an active office for next year and a pretty senior one at that - it is totally unexpected but nevertheless appreciated and it is a great honour.
Right off to get ready and head off to London for the party.
Thursday, May 09, 2013
Great Evening (and Afternoon for that matter)
I arrived at the station too early and found my travelling companion already there and so we jumped the early train and headed off to London - there was an almighty shower of rain as we got near but when we arrived it was quite pleasant and so we walked to Drury Lane and then popped into a pub and we had a couple of drinks prior to the meeting. The meeting was really good as was the reception and meal afterwards - I do like Champagne and there was plenty of that to start with. A number of us travelled home together and that was nice - we had quite a laugh on the train and I managed to get a laugh out of some of the travellers as I explained how my travelling companion had to change in another room to us but came in. I suggested that we "give the old chap a few pence for a tea and send him on his way" :-)
Anyway, it was a very pleasant day and that's the great thing - finally we've gotten around to the fact that we are in this to enjoy it. Some people don't get that. It was nice to meet up with a number of the Masters and Secretaries - we all go to each other's meetings as honoured guests - affectionately known as the Mafia or the Red Apron Mafia. I may even get to go out more next year as the chap taking over from me really isn't a travelling sort and so I may get to represent him during his year - who knows?
Chatting to a friend about the "diabetic" issue he was surprised that I'd not shown any symptoms considering the "masonic meals" I eat and also the drink and everything else. I'm surprised too I have to say - I don't recollect having any Hypos but of course there is the day after cheat day when I do often feel rough and I would probably have eaten stuff that would spike my insulin - mind you this doesn't happen until the next day and so it's all a bit of a mystery. At least all my stuff I notice has been dispatched and so I'll do some checking of my own on this.
Lots of people were wishing me well tonight and some who had heard were a bit distressed but others once I told them wished me well and I'm still pretty positive about all of this - it will be what it will be (of course) but the words used are "tiny recurrence" this is on the left wall of my bladder beyond the ureteric orifice. I'm on the urgent list and so it obviously can't be left for too long but let's see what happens.
I'm certainly OK tonight about it - I feel fit and crazily I feel pretty healthy - losing the weight helped a lot of course and I hope that helps in recovery too.
Anyway, it was a very pleasant day and that's the great thing - finally we've gotten around to the fact that we are in this to enjoy it. Some people don't get that. It was nice to meet up with a number of the Masters and Secretaries - we all go to each other's meetings as honoured guests - affectionately known as the Mafia or the Red Apron Mafia. I may even get to go out more next year as the chap taking over from me really isn't a travelling sort and so I may get to represent him during his year - who knows?
Chatting to a friend about the "diabetic" issue he was surprised that I'd not shown any symptoms considering the "masonic meals" I eat and also the drink and everything else. I'm surprised too I have to say - I don't recollect having any Hypos but of course there is the day after cheat day when I do often feel rough and I would probably have eaten stuff that would spike my insulin - mind you this doesn't happen until the next day and so it's all a bit of a mystery. At least all my stuff I notice has been dispatched and so I'll do some checking of my own on this.
Lots of people were wishing me well tonight and some who had heard were a bit distressed but others once I told them wished me well and I'm still pretty positive about all of this - it will be what it will be (of course) but the words used are "tiny recurrence" this is on the left wall of my bladder beyond the ureteric orifice. I'm on the urgent list and so it obviously can't be left for too long but let's see what happens.
I'm certainly OK tonight about it - I feel fit and crazily I feel pretty healthy - losing the weight helped a lot of course and I hope that helps in recovery too.
Another Day In London
I think I will make this the last thing I do before Monday - I need to go into my shell for a few days. At least I'll be seen on Monday morning not have to wait until the afternoon. They've told me to prepare for an overnight stay - not that I particularly want to do that but at least I have all afternoon to recover and see if I can get off home, whatever the terms and conditions are this time. I've learnt not to pre guess them - they continue to change.
Today I'm meeting someone and we are off early so I need to start to get ready this morning! I have to leave just after I've had lunch we will be there in plenty of time so perhaps can have a leisurely drink.
At least I shouldn't be home too late. I'm still annoyed about this type 2 diabetes thing but I'll sort that out after I've been in and recovered.
Today I'm meeting someone and we are off early so I need to start to get ready this morning! I have to leave just after I've had lunch we will be there in plenty of time so perhaps can have a leisurely drink.
At least I shouldn't be home too late. I'm still annoyed about this type 2 diabetes thing but I'll sort that out after I've been in and recovered.
Wednesday, May 08, 2013
All ordered
Glucose monitor, strips, lancets and sharps box, software downloaded and I will hopefully get all the stuff next week and can do some checking on blood glucose levels and see where it is all heading. The software looks cool and you can do all sorts of averages and trend monitoring.
It will give me some ammunition and give me enough data to discuss what needs to be done, if anything. I'd be very surprised if I have any problems but there you go forearmed is forewarned etc. It will also be interesting to see how the diet I am on is affecting my blood.
On the FOCC experiment - today I tried 3 cottage cheese to one Flax Seed Oil and then added some tomato puree to make it into a marie rose type sauce and whilst the tomato made a bit of difference it didn't make it much nicer. I shall try various options until I get something that is palatable. My pH remains at 7.5 and above although early this morning it was as acid as I've ever seen it but then again I had been out eating and drinking the day before. Although I tried to keep to diet it was almost impossible. I enjoyed the food and the company and the drink too and this Thursday is also another difficult day too. Anyway the main thing is that I know enough to keep to diet or as near as possible the major thing is to have or continue to have low insulin and low glycemic index foods. Well now I can check myself and that's the main thing - at least I will be able to determine what is going on with this body of mine.
It will give me some ammunition and give me enough data to discuss what needs to be done, if anything. I'd be very surprised if I have any problems but there you go forearmed is forewarned etc. It will also be interesting to see how the diet I am on is affecting my blood.
On the FOCC experiment - today I tried 3 cottage cheese to one Flax Seed Oil and then added some tomato puree to make it into a marie rose type sauce and whilst the tomato made a bit of difference it didn't make it much nicer. I shall try various options until I get something that is palatable. My pH remains at 7.5 and above although early this morning it was as acid as I've ever seen it but then again I had been out eating and drinking the day before. Although I tried to keep to diet it was almost impossible. I enjoyed the food and the company and the drink too and this Thursday is also another difficult day too. Anyway the main thing is that I know enough to keep to diet or as near as possible the major thing is to have or continue to have low insulin and low glycemic index foods. Well now I can check myself and that's the main thing - at least I will be able to determine what is going on with this body of mine.
Thanks GP
Interesting pre-assessment - now done at the Out Patients area and by one of the senior staff on the Urology Ward who I've seen before. It was very quick and of course my Blood Pressure was through the roof. Sky High - it came down of course and once we'd had "the chat" well things got on fine until she queried my questionnaire form.
She said I read that you were a diabetic and I said no I definitely wasn't a diabetic but that years ago I got a bollocking from my doctor for eating too much fruit and since then I'd changed my diet. She then dug out a letter from my GP saying that I was a Type 2 Diabetic controlled by diet. Well - hold on a minute, when were they going to tell me this news - rather important I'd have said? Anyway, I shall bring this up the next time I have a review which must be due soon. Maybe I'll do a few tests and get a handle on whether I do have a problem. Certainly the urine tests aren't throwing up anything noticeable and I suppose I ought to get some glucose tests done but I hate blood work but perhaps in this instance it will be worth doing.
Anyway the upshot is she has me down as a diabetic type 2 controlled by diet. Of course I'm on a low glycemic index diet anyway so I'm doing the right thing but frankly, it would have been nice of them to tell me FFS.
I didn't need the ECG this time - I'm not that old and everything else was tickety boo so that's great. In on Monday and let's see what they come up with.
She said I read that you were a diabetic and I said no I definitely wasn't a diabetic but that years ago I got a bollocking from my doctor for eating too much fruit and since then I'd changed my diet. She then dug out a letter from my GP saying that I was a Type 2 Diabetic controlled by diet. Well - hold on a minute, when were they going to tell me this news - rather important I'd have said? Anyway, I shall bring this up the next time I have a review which must be due soon. Maybe I'll do a few tests and get a handle on whether I do have a problem. Certainly the urine tests aren't throwing up anything noticeable and I suppose I ought to get some glucose tests done but I hate blood work but perhaps in this instance it will be worth doing.
Anyway the upshot is she has me down as a diabetic type 2 controlled by diet. Of course I'm on a low glycemic index diet anyway so I'm doing the right thing but frankly, it would have been nice of them to tell me FFS.
I didn't need the ECG this time - I'm not that old and everything else was tickety boo so that's great. In on Monday and let's see what they come up with.
Pre-Assessment Day
Indeed - pre-assessment day is here. My second letter arrived and as I noted the words "tiny recurrence" are in it so that's OK. Of course my original G3pTa and CIS aren't going to help matters in the longer run and so - well - you never know - they may need to do something a bit more radical dependent on how things move on from here.
For now - I'm doing all I can to make sure that I give myself the best chances and I'm certainly keeping to my diet and continuing to take my flax seed oil and keeping my alkali levels above 7.5 - let's see if that does anything.
If I continue to have recurrences it will lead inevitably to something more radical and whilst that isn't particularly pleasant - I still need to be aware of it. I suppose I just need to see what grad this recurrence (tiny as it is) may be and we go from there.
For now - I'm doing all I can to make sure that I give myself the best chances and I'm certainly keeping to my diet and continuing to take my flax seed oil and keeping my alkali levels above 7.5 - let's see if that does anything.
If I continue to have recurrences it will lead inevitably to something more radical and whilst that isn't particularly pleasant - I still need to be aware of it. I suppose I just need to see what grad this recurrence (tiny as it is) may be and we go from there.
It's Late - It's Deep and Meaningful :-) To Me!
And so it is. It IS late and I've had a drink., my words are a sober man's thoughts I suppose? I had a few chats tonight about what I'd like to do now. Of course, present surgical procedures and prognosis will determine some of this but it is nice to note that I have a tiny recurrence. That is something for me to grasp onto.
I do, however, still have a problem. That is what am I to do with myself from here on in? I feel great, I've now dipped below 16 stone and I'm getting back to my stable pre cancerous weight :-) So many people are on my side and are helping me - it really is so nice. I really have to wait until next Monday to sort out what will happen to but I am assured that I will have people in place should I need to. That really is reassuring to me but I hope that I will be able to do all of this myself. I suppose next Monday's outcome will tell.
It is so nice that people have stepped up to the plate though.
I do, however, still have a problem. That is what am I to do with myself from here on in? I feel great, I've now dipped below 16 stone and I'm getting back to my stable pre cancerous weight :-) So many people are on my side and are helping me - it really is so nice. I really have to wait until next Monday to sort out what will happen to but I am assured that I will have people in place should I need to. That really is reassuring to me but I hope that I will be able to do all of this myself. I suppose next Monday's outcome will tell.
It is so nice that people have stepped up to the plate though.
A Great Day Out
I was very pleased with today - Breakfast at Simpsons and then to get promoted to a Past Provincial Grand Junior Warden and then a nice meal with great friends and a taxi ride to another friend and a late train journey home and it is gone 1 in the morning now! What great day I've had. I was one of the first called up to the top step as a Past Provincial Officer - third in line and it sort of shows how long I've been around - just a few months over 30 years!
When I got home I had a letter from the Hospital. The gist is "This has shown a tiny recurrence on the left wall of the bladder beyond the ureteric orifice" The plan is to have a biopsy and diathermy - basically a TURBT as far as I can tell. Anyway - I'll find out a little later today at my pre-assessment.
I take heed in the fact that it is a tiny recurrence and let's hope it is just that and it can be contained through management.
I've had a great day and that's the important thing - the last time I had a day like this would be 6 years ago when I had the active office as Sword Bearer. Here is my picture in the Lodge carrying the sword - one of the most memorable days of my life! That's me in the middle of Grand Lodge holding the sword. I suppose - unless you are in Masonry - you won't understand what this means but there I am, in front of the Provincial Grand Master, in front of 1,200 or more people. One of the proudest days of my Masonic Career. There aren't many who can say they've done this for sure.
When I got home I had a letter from the Hospital. The gist is "This has shown a tiny recurrence on the left wall of the bladder beyond the ureteric orifice" The plan is to have a biopsy and diathermy - basically a TURBT as far as I can tell. Anyway - I'll find out a little later today at my pre-assessment.
I take heed in the fact that it is a tiny recurrence and let's hope it is just that and it can be contained through management.
I've had a great day and that's the important thing - the last time I had a day like this would be 6 years ago when I had the active office as Sword Bearer. Here is my picture in the Lodge carrying the sword - one of the most memorable days of my life! That's me in the middle of Grand Lodge holding the sword. I suppose - unless you are in Masonry - you won't understand what this means but there I am, in front of the Provincial Grand Master, in front of 1,200 or more people. One of the proudest days of my Masonic Career. There aren't many who can say they've done this for sure.
Monday, May 06, 2013
Looking Forward To Tomorrow
Whilst I have to be up and moving early - it will be fun as we are off to meet for breakfast at Simpsons in the Strand - a bit extravagant but hey this may be my last time to be promoted, I'm about as far up the tree as I can be (only one possible promotion without becoming a member of the Executive). So breakfast will really push the boat out to start our day, then I can grab a drink or two before I need to be on duty at around 1 pm. Then the meeting starts at 2:30 (for me) and then we will dine in the Grand Connaught Rooms in the evening before going on for a few evening drinks and heading our way homeward.
I've been going to this for around 23 years (I think) and only ever missed a few although I've often been to the meeting and not dined. I like the idea of getting a coach up there from the local centre but as I'm inevitably working on the day as a Steward (a type of usher) I don't get the chance to do that - it is meant to be good fun.
Anyway - I'm looking forward to this as I have the pre-assessment on Wednesday and it just takes my mind off of that.
It is meant to be warm and sunny today and as is to be expected, the clouds rolled over mid morning and have stayed rolled over - so much for the "heat wave" promised. Mind you they say heat wave and it was going to be 19 degrees - they also say we have an epidemic when only 1000 people are infected - what school of journalism did these people go to? Makes you wonder. I particularly like the fact that they can't get the weather right a day in advance but can predict the climate way into the future using the same modelling computer. Yea - right!
A glimmer of hope - a gap in the cloud and the sun has just peaked out. Like all good Englishmen, with a possibility of sun it's on with the barbecue - three pullovers and just go and enjoy ourselves :-)
I've been going to this for around 23 years (I think) and only ever missed a few although I've often been to the meeting and not dined. I like the idea of getting a coach up there from the local centre but as I'm inevitably working on the day as a Steward (a type of usher) I don't get the chance to do that - it is meant to be good fun.
Anyway - I'm looking forward to this as I have the pre-assessment on Wednesday and it just takes my mind off of that.
It is meant to be warm and sunny today and as is to be expected, the clouds rolled over mid morning and have stayed rolled over - so much for the "heat wave" promised. Mind you they say heat wave and it was going to be 19 degrees - they also say we have an epidemic when only 1000 people are infected - what school of journalism did these people go to? Makes you wonder. I particularly like the fact that they can't get the weather right a day in advance but can predict the climate way into the future using the same modelling computer. Yea - right!
A glimmer of hope - a gap in the cloud and the sun has just peaked out. Like all good Englishmen, with a possibility of sun it's on with the barbecue - three pullovers and just go and enjoy ourselves :-)
Sunday, May 05, 2013
FOCC Experimentation
I used to have my FOCC (Flax Seed Oil and Cottage Cheese) with breakfast cereal or with probiotic yoghurt which made it quite palatable and I also used to make my own sort of muesli type arrangement with dried fruit, berries and grains. However, all of these food stuffs are off the menu as they contain in varying quantities of carbohydrates and or other sugars that I just don't eat day to day. So I've been trying to use the FOCC more like a mayonnaise that I can have with salads etc. The trouble is, it is very salty and it just doesn't appear to work well with prawns, tuna, egg etc.
I've realised that I've been making up a reasonably large batch of it anyway - 4 Tbsp Cottage Cheese to 2 of Flax Seed Oil blended. So today I made 2 Tbsp to 1 which meant that I didn't have to work through as much as I normally have. I then added tomato puree - be careful some have strange ingredients but the one I got just has Citric Acid in it so that's fine. I had a mixture of Avocado and some left over prawns and tuna and some crab sticks which seemed to go down OK with the FOCC and Tomato Puree making a sort of sour marie rose sauce. I'm still experimenting to get this right - I might try some mustard powder and lemon juice to try and mask the Flax Seed taste.
I'm continuing the Bicarbonate of Soda twice or three times a day and let's see what happens after my operation and the results of that. I'm pretty keen to make sure that I give myself every chance of beating this recurrence and I'm doing whatever it takes to do so.
I've realised that I've been making up a reasonably large batch of it anyway - 4 Tbsp Cottage Cheese to 2 of Flax Seed Oil blended. So today I made 2 Tbsp to 1 which meant that I didn't have to work through as much as I normally have. I then added tomato puree - be careful some have strange ingredients but the one I got just has Citric Acid in it so that's fine. I had a mixture of Avocado and some left over prawns and tuna and some crab sticks which seemed to go down OK with the FOCC and Tomato Puree making a sort of sour marie rose sauce. I'm still experimenting to get this right - I might try some mustard powder and lemon juice to try and mask the Flax Seed taste.
I'm continuing the Bicarbonate of Soda twice or three times a day and let's see what happens after my operation and the results of that. I'm pretty keen to make sure that I give myself every chance of beating this recurrence and I'm doing whatever it takes to do so.
A Better Day After Cheat Day
Must have been tired out as I slept in and dozed until around midday (yes I know but I must have been really tired). This got over the having to force breakfast down and I felt fine when I got up. I had some scrambled eggs and mushrooms and my pint of cold water, half teaspoon of Bicarb and a coffee and feel fine no queasy feelings at all.
There's plenty of activity going on in the house as it is a Bank Holiday tomorrow A and her friends are around making stuff for a picnic tomorrow which is meant to be a nice day. We are awaiting L's boyfriend to arrive through the holiday traffic and other than that - it is a quiet Sunday.
I'm looking forward to an interesting week - I'm out twice on Masonic business this week - I get a promotion Tuesday and so I'm spending a day out with friends doing that. On Wednesday it is pre-assessment day so I just need to get that out of the way and then on Thursday back up to London for another Masonic meeting where I'm a guest of honour. It should be interesting as that's the one I went to last year when the heavens opened and everyone got soaked. It should be a fun day out.
I'm not sure now if I want to go to my mate's 60th on the Friday and also a further meeting on the Saturday. I think I might just duck those as I'll be getting cranky and when I get cranky I tend to overdo things.
There's plenty of activity going on in the house as it is a Bank Holiday tomorrow A and her friends are around making stuff for a picnic tomorrow which is meant to be a nice day. We are awaiting L's boyfriend to arrive through the holiday traffic and other than that - it is a quiet Sunday.
I'm looking forward to an interesting week - I'm out twice on Masonic business this week - I get a promotion Tuesday and so I'm spending a day out with friends doing that. On Wednesday it is pre-assessment day so I just need to get that out of the way and then on Thursday back up to London for another Masonic meeting where I'm a guest of honour. It should be interesting as that's the one I went to last year when the heavens opened and everyone got soaked. It should be a fun day out.
I'm not sure now if I want to go to my mate's 60th on the Friday and also a further meeting on the Saturday. I think I might just duck those as I'll be getting cranky and when I get cranky I tend to overdo things.
Saturday, May 04, 2013
Cheat Day
Yay - cheat day has arrived and I'm looking forward to a day of not being too tied to my diet. I have continued with the bicarbonate of soda (in water) three times a day just after meals - this I hope will continue to keep my body Alkali and I'll do a few more tests later - I tend to do mid morning and mid afternoon. I find that I'm keeping to a pH of 7.5 or a little above. I can see the test result for a little trace blood in my urine but that's to be expected with a small tumour in the bladder. At least I see no haematuria (blood in the urine) which is pretty awful and spooks you out. I haven't seen any tissue being passed either since some weeks before the procedure.
I'm reminded that on Monday it is the 35th running of the 1066 motorbike jamboree - some information here. A lot (thousands I reckon) assemble up the road from us and all you can hear are bikes going up and down the main road for a hours until about 9:30 when all you can hear are the roar of motorbikes and they seem to keep coming past the end of the road for well over an hour. More information here. It cause quite a bit of congestion for perhaps 3 or 4 hours in the morning but after that it all quietens down. It's certainly not a day to go down to Hastings unless you have a bike I guess.
It should be a nice day for it - I can't imagine we will want to venture out although I may go and have a look at the bikes this year. I used to take the girls along to watch the bikes. Some pop wheelies and do short burn outs to entertain the "crowds" which turn out to watch.
Working on whether to go to the pub at lunchtime or not - I suppose it depends if Mrs. F. brings back beer from the supermarket! :-)
Feeling sort of OK today as I intend to try and make the best of cheat day and the long weekend.
I'm reminded that on Monday it is the 35th running of the 1066 motorbike jamboree - some information here. A lot (thousands I reckon) assemble up the road from us and all you can hear are bikes going up and down the main road for a hours until about 9:30 when all you can hear are the roar of motorbikes and they seem to keep coming past the end of the road for well over an hour. More information here. It cause quite a bit of congestion for perhaps 3 or 4 hours in the morning but after that it all quietens down. It's certainly not a day to go down to Hastings unless you have a bike I guess.
It should be a nice day for it - I can't imagine we will want to venture out although I may go and have a look at the bikes this year. I used to take the girls along to watch the bikes. Some pop wheelies and do short burn outs to entertain the "crowds" which turn out to watch.
Working on whether to go to the pub at lunchtime or not - I suppose it depends if Mrs. F. brings back beer from the supermarket! :-)
Feeling sort of OK today as I intend to try and make the best of cheat day and the long weekend.
Friday, May 03, 2013
Nice morning out
It's a lovely day out there, blue sky, not too hot and good old Flocky suggested a meet for a coffee - which was just what the doctor ordered - or he would have done if I'd spoken to him I guess! :-) A quick trip to the supermarket and got my lunch and dinner - some prawns to go with my FOCC and some Mussels for tonight - I also bought some celery and mushrooms to go with the Mussels - nice! I made a sort of prawn cocktail with lettuce, tomato, cucumber and the FOCC mixture. There's still something missing - I think it tastes far too savoury and salty and I thought about making a marie rose sauce until I looked at the contents of the Tomato sauce (Ketchup) loaded with Fructose - how awful that everything appears to have corn syrup, fructose, sugar etc in it. I'm going to see if I can try something else like perhaps Red Pesto to change the taste. I never used to notice it before but of course I had it with cereals and yoghurt both notorious for bucket loads of "sugar" however disguised in it.
Cheat day tomorrow and if it is really nice - I might suggest a lunchtime trip up to my local - I haven't been there for ages and I feel like having a few beers and lighten up a bit. I need to regain my sense of humour and do some pragmatic working out of my situation. I think the recurrence is a body blow although it's not the end of the world by any means it adds to a complicated mish mash of things going on which are all about life, the universe and all that good stuff. I don't trust myself to make any long term decisions at the moment - I feel that I'm thinking straight and yet somehow don't feel comfortable with what I'm coming up with - being an intuitive sort - this mistrust defies the logic that I put into reviewing the situation and coming up with a plan of action.
Anyway - nice to get out and lighten things up this morning and the walk was very pleasant indeed as well as good company and a couple of decent black Americano coffees went down just fine. Here's to a good weekend and fingers crossed the sun will continue to shine.
Cheat day tomorrow and if it is really nice - I might suggest a lunchtime trip up to my local - I haven't been there for ages and I feel like having a few beers and lighten up a bit. I need to regain my sense of humour and do some pragmatic working out of my situation. I think the recurrence is a body blow although it's not the end of the world by any means it adds to a complicated mish mash of things going on which are all about life, the universe and all that good stuff. I don't trust myself to make any long term decisions at the moment - I feel that I'm thinking straight and yet somehow don't feel comfortable with what I'm coming up with - being an intuitive sort - this mistrust defies the logic that I put into reviewing the situation and coming up with a plan of action.
Anyway - nice to get out and lighten things up this morning and the walk was very pleasant indeed as well as good company and a couple of decent black Americano coffees went down just fine. Here's to a good weekend and fingers crossed the sun will continue to shine.
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