My friends told me I should post up some of the e-mails I sent out to them to keep them up to date with my Bladder Cancer diagnosis, treatment and (let's hope) recovery :-)
I haven't been ill for 30 years before this happened so it was all a "bit of a shock" and it is quite worrying and depressing but I hope I can share some of the ups and downs as well as some of my particular humour with you.
Talking of which, whilst I have has some pretty bad days, having a laugh with my mates (even one who sent me through a near the knuckle Prostate test animation) was some of the best medicine you can get
3 comments:
I'm so glad you posted maybe you can help me. It looks like you might be in the UK and I am in the lovely us of a. Near the end of November I was diagnosed with acute renal failure. Since then spending a month in the hospital being intubated, extubated, intubated again you name it tests. Nephrostomy tubes and more than I care to talk about. Bottom line I have Bladder Cancer and its not in the transitional stage but the squamous stage. I have to wait till the 11th to see the head oncologist. Well I see my primary care today and is she going to get a load of how I feel. Right now I'm suffering from frequent urination. Meaning I go in the middle of the night and don't know I have. Thank god I have a very understanding. Like now I had to go and I couldn't hold it it just came out. So off to the docs I go I will let you know what happens but I feel since I'm on state aid i'm put on the back burner and I'm disabled do to MS any suggestions....thank you for your time Robint62@comcast.net
Hi there and thanks for posting. The very best place I found for support and information was the bladder cancer web cafe
http://www.blcwebcafe.org/ there is a very good forum of people on there who have had and still have bladder cancer and there are articles about every stage - I don't know a lot about your particular squamous variant but I checked on the site and there is some useful information there.
A lot of people on there are in the USA - you are right I am in the UK so lucky in some ways to have our National Health Service and I don't understand the US system at all. Again the folks at Bladder Cancer Web Cafe will know more than I do.
I'd encourage you to get on to the online forum and have a look at what people have found and how they have got on. You can post your own questions or contribute from your experience. I have provided a number of responses where I knew the answers or had suffered the symptoms etc.
I wish you well for your meeting with your oncologist today and hope that you get a way forward. I found that once I got a plan what to do I wasn't so worried about things and at least I knew we were making progress.
Give the Bladder Cancer web Cafe a try. My very best wishes to you.
I had bladder cancer in 2005 ..Yes it was guite a shock,I am a surviver now..I am out from chemo 3 years this may 11-My advice is do what the doctors say. talk alot about it,and the days do get better, I AM LIVING PROOF.fEMALE AGE 62 And living is my friend.
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