Thursday, May 31, 2007

A bit disappointed really

It is soon to be my 50th Birthday and we are having a bash or a party. My relatives are coming but not my parents (they don't like that sort of thing - it is a bit far and we will do something else) but my brother and his family (I only have 1 brother) isn't making the journey down. OK they will be down a week or two before and bring my parents for a nice meal.

I do feel a bit disappointed though that some of my cousins are coming from a lot further to the party and my kid brother isn't.

The excitement is building

This new venture is beginning to get more and more interesting. I'm actually going to go and see the head man on Saturday and drive down to meet him. There is work that I need to do on the Project Management side that no one else ought to be doing as we get ready for launch.

How exciting is this? Well I think it has the potential of Google or Skype or PayPal perhaps. This is the only working system I have seen that doesn't cost the earth and that businesses can subscribe to without breaking the bank. I can't say more for the moment until after next week but the market is global - the trouble is controlling the growth rather than anything else. Get the growth right and it is years ahead of anything else out in the market.

Bit of a dilemma

I need to get some travel insurance and then thought well I ought to mention that I have bladder cancer and - well - actually I don't have it at the moment and I'm under treatment so that it doesn't come back. But it could do, so where does that leave me? It is all a bit strange isn't it. Also, even if I should get the symptoms again whilst we are away - there is little that anyone can do and it isn't something that you get sudden relapses or anything else strange happen to you. As I said before - you wouldn't even know unless I told you.

So I shall have some fun asking the insurance companies what (if any) changes they need to make to my policy.

Some will, I have no doubt whack their fees up and I'm sure that the more notable ones will hardly need to bother.

Watch this space.

Preventative Medicine

The meeting with the Doc went well. We were both pleased about the results of the biopsies and also the Blood Pressure readings and the weight loss.

He is a bit concerned over the damage to my Kidneys (not much not significant) and also that some of the readings are getting towards the wrong end of where they should be etc. Most stuff is normal and also pre-diabetic stuff is backed away from those figures. There may still be a glucose intolerance but for the moment the figures do not show that.

Upshot is that there are more tablets - great - I hate any medicines - long story I will share with you one day. Anyway, I have to have these Statins for cholesterol and the like - even though my readings are good and within guidelines he would like to get them to really good.

My Blood Pressure tablets stay as they are and so that is under control - I am glad about that.

He wants me to have aspirin but is writing to my Consultant to make sure that it will not affect what she is doing - he doesn't want something with the potential side effects of aspirin (bleeding) to mess up the work done so far.

Oh and a blood test in a month and then give him a call. At least it isn't a fasting blood test this time. Doesn't matter I still don't like them. Nor did I like the "keep monitoring your reaction" over the next few months.

The biggest upset of the lot? I can no longer have Grapefruit juice or the Grapefuit fruit. That is one of my favourite things. Edited - I said fruit and I meant Grapefruit oops - one missing word and it means something entirely different!

The post arrived

And the cheques were there today. I joked with the wife saying that - that's the sort of money you'd expect if I'd have died. Mmm, she wasn't overly impressed with that sort of humour. Perhaps I should be Darth Vader - I mean I've always been on the Dark Side?

Right - I must away loads to do, little time to achieve it in and let's hope the Doctor is gentle with me today. I certainly don't want to be doing with anymore blood tests and all that malarkey for a while at least.

Back to see the Doc today

Hopefully it will be for a chat and where do we go next. Problems are that I am out tomorrow and next week treatment starts, job starts and so on. I need to chat to him about things like frequency of BP readings and on lifestyle changes made and continuing those on.

I am hoping I just get a "go away" for 3 months :-) We will see I have to go later this morning.

Wednesday, May 30, 2007

Change - Life's only constant

I find myself today breaking free of the routine of the last 10 months and having to restyle my life around work, keeping fit, home and hobbies. My exercise routine needs to be changed to be at a different time of day rather than anything else.

I could indulge myself with 30 or 40 minutes of exercising, then relax and then go and have a shower and easily I'd have eaten up 2 hours of my day. Leisurely breakfasts and not really having to rush and tear about, eating meals at set times, watching the same shows at the same time each day - routine.

I've got to get out of that routine and change. I take my blood pressure every morning and evening and I won't be able to do that so I think I ought to change that to weekly now. I'm seeing the Doctor later this week and I hope that he will agree. I have 6 weeks or more BP readings and everything looks reasonably steady although I think he wants my BP to be a little lower still. The upcoming treatment will mean that we may have to hold fire on that.

Again, the treatment will necessitate a certain amount of routine. The Mondays are always a series of routines and rituals.

It is going to be interesting moving away from the comfort of routine to the organised chaos that is to come in this job. Like many things - humans aren't great at changing especially where that change takes you out of your comfort zone and somewhere a little beyond.

Vacation / Holiday

Well I went and booked it this morning.

A family holiday and an unusual one. Off on a cruise to see the Faroe Islands, Iceland and Norway. I have always fancied Norway and when the girls thought that Iceland would be cool (I had to get that one in somewhere) we found this cruise that takes in both.

I've never been on a cruise before but it looks to be really interesting. We leave after my party and we arrive back before the next party - most of my friends are either 50 or 60 this year!

I am looking forward to getting away so much.

Insurance clarity

I ought to make it clear about the Insurance. It is something I took out myself against getting a critical illness and not something attached to the NHS or anything like that. It was a conscious decision to cover the family should anything happen to me. The facts are these days, as I suppose I have just proved, that you are more likely to survive a critical illness than in the past and that an ordinary life insurance wouldn't do anyone any good if I survived.

So the way we set this up was to have individual Critical Illness covers (husband and wife) and also life insurances first death paid out the other. This covers all that stuff. We haven't had medical insurance since I worked as an employee back in the early 90s. I was just about to get Medical Insurance when I was diagnosed - how ironic is that :-) However, I probably wouldn't have got seen or operated on so quick anyway.

So - Having said all that - it means that the house can be paid off and that I can go and do this new riskier venture (if I don't do it now and take a risk - then what I've learnt about myself in the past 9 months would be betrayed) and more than that - it is going to help get family life stable again. By that I mean, the knock you take as an individual is bigger than you think. Your confidence and your self belief are rock bottom, you don't feel good about yourself or your body, you know there is something wrong with you, you can't see it and it can kill you. Disturbing. Now imagine what it does to your family - whether they can take in the enormity of it or not?

The family gets whacked sideways as well and whilst money isn't the answer it will enable me to do a few things like have a really good family holiday - it may be one of the last together as the oldest is 17 now anyway. It means that I don't need to worry that I lost my job and I don't need to worry about paying the bills if I did lose my job. It means that we can have a party (my 50th coming soon) and not to worry about the little add-ons that will make it memorable. It's a security blanket because it isn't over yet but from now on, no one needs to worry about the expense of being ill, getting treated and wondering where the next penny is going to come from.

When I said it was a weight off my mind - perhaps you can see that it steadies the ship, it removes uncertainty and it allows us to remove pressures of the mortgage - once that is gone, the house is ours. It means that I don't need that mundane "steady" job I can go for the excitement and risk of this new one. If that falls apart, I can say I gave it my best shot and then return to what I am doing now and it would allow me to setup a business that I would want to run not the one I run at the moment if that happened as well if I wanted.

University beckons for the oldest - that is no longer a worry financially.

Anyway - you get the picture - it isn't Rockefeller money nor is it enough that I don't have to work and it certainly wouldn't work as a Pension but it just eases everything.

Whilst I never really wanted the thing to have paid out at all - I am glad that we went down the route of taking it out.

Getting away from the subject of the blog

Will happen. I just realised this as I was on another forum specifically about Bladder Cancer - The Bladder Cancer Web Cafe which is a great site - there is a link on the right hand side of this blog.

I've arrived at that part of the journey now where, I'm beginning to get my life back and I'm beginning to see that I can control how much I should be concentrating on each aspect. Sure, the weight of the disease was lifted - what - two weeks ago today and then the insurance finally stated that I did meet the requirements and we were never certain we would. You see CIS (Carcinoma in Situ) is written out in the policy - even though it is pretty nasty in bladder cancer terms as it happens. What was in was that there was a malignant tumour. So that is a weight off my shoulders and then, almost at the same time, I've got the job. The job really was reliant on the insurance money though as I do need to finance my entry into the business.

So three things all happening together and I can make plans, work around treatments and know that I can finally begin to get my life back.

That is why, for the first time in 10 months that I can actually start to think about other things and fill this blog with the ordinary things that are happening which should instill to anyone who has just been diagnosed that things do improve and that you do come out of the dark places and back into the light and that you can hope for better days than you have now.

Hope - if you have just been diagnosed - things do get better - it is time and how you and your head deal with it.

Tuesday, May 29, 2007

Don't you hate it when

Your browser crashes just after you filled in page 4 of 5 of the details you need to book your holiday? What a pain. Not only does it crash but it loses all the other sites you are connected to. Thanks Microsoft IE7 no wonder i normally use Opera Browser.

It is a flaming nuisance as I have now spent another 20 minutes getting through all the pages and re-entering the data again.

Technology can sometimes drive you mad.

A half reasonable result today

We managed to clear out huge tracks of the office rubbish and my desk certainly looks more organised. There is still a way to go as there are 5 or 6 projects that are awaiting something being done on each. These are in neat piles now. I am being far more ruthless than I ever thought I would be. My engineering magazines (had them for more than ten years) my PC magazines (at least 10 years as well) have all been dumped. All the old instruction books and old software also need to go - no one wants them anymore and they will not run on today's machines anyway.

All my old Open University notes, files, tutorials, assignments and also my Maths Foundation stuff are also in the recycling bin. You just keep so much stuff that is of no use to anyone anymore. I did find tow or three sheets that I did keep but they are relevant to something I am doing now. The rest has gone to three large sacks for recycling.

Finally I also cleared out my Computer Case. I keep spares - Operating Systems, Modems, Network cards etc. I've thrown away stuff that will never get used again and boxed up some stuff that I may need. But again, I've been ruthless with that - I mean - who uses a modem anymore and 3 1/2" disks - what are they??

I've seen the holiday I want to go on and the family have given "outline consent" so I think I'll go for that tomorrow. If it is available (and the first one wasn't) we can go just after my 50th Birthday party and go on a cruise. Anyway, more when I know about that. I've often fancied trying one out and this looks just the tonic and takes in a bit for everyone. At least that is the plan.

The job starts next week and I'm getting myself frantically up to speed on that. I'm certain that I can bring some really good values to the business and that I can help in a number of positive ways. To that end I have got some added responsibility already which I picked up details of today.

Operation Organise

Is under way.

My office now needs to be turned back into an office. Papers need to be filed. Stuff that has been accumulating here for weeks, needs to be put away. Files need to be put back where they came from, equipment needs to be placed in more useful locations and so on.

My office comprises these days of just two PCs, two laser printers, a large ink-jet printer, TV, drawing board, trolley, two desks and a lot of filing cabinets and cupboards.

Neatly (in some cases) and rather more collapsed heaps (in others) papers, folders, magazines, software disks and other such detritus are each calling out for attention.

I need to get organised as soon as possible so that I can get ready to work out how I am going to now run three assignments at once and have my treatment. It should be a fun ride.

Monday, May 28, 2007

Another sort of planning

Deciding what to do next, how to celebrate being here at all. How to return to what is now how we view normality. Normal will now include treatment, review, continuing life style changes, pills for the rest of my life and dealing with the shock and the aftermath of the experience.

The new job is - the more I look at it - quite a change for me. It has all the normal things I do know about, including managing partners and general management. What is different is how bleeding edge this is and what it will mean once it is up and running. I'm glad that I've decided to do this as I need the change and the challenge. More than that it is a symbol of the changes that have happened to me in the past few months.

Then there is planning to make sure that I ensure the family are provided for. That mortgage can go for a start.

Finally - a holiday - something special, something different and something that will allow a celebration and some luxury and something that we wouldn't normally do.

Intensive Day

I've been working out my strategy for this new job and thinking through how I should approach and manage this. It is quite an exciting prospect I have to say. It will be hard work I am certain and I am sure that I will be able to bring some useful experiences to the job.

I'm going to give this a rest now as I haven't worked out how I am going to fit all the other stuff in at the same time :-) A nice problem to have I suppose.

And of course; this time next week I'll be recovering from my first BCG treatment. A day later I'll be off to Wales and Cheshire for my training. That should be interesting. That week will be absolutely manic as I have a meeting on the Saturday morning, no doubt people will be trying to get me and I just won't be around. I imagine that it will be quite a shock to many when I am not there to sort them out.

Dull day

It was pretty awful but at least everyone seemed much better today. I watched my F1 race it was OK. Not much of anything to speak of, barely any incidents and not a lot of thrills and spills, glad I didn't go down to see it.

I've been working on my contract for this new job - phew - what a lot of clauses and a lot of changes I want. It still surprises me to this day that people don't read these things properly. I was interested that someone has obviously added a clause as all the number sequencing was out so all the cross references were wrong.

I was talking to a friend the other day and I did a contract review for him. When he brought up one of my queries the chap said that they had never had anyone query it before but when they read it - it was obvious that there was an issue.

Let's hope I haven't gone overboard with it. Lots more to do tomorrow as I need to work out a strategy for covering my time over the next few weeks - all hell will break loose!

Sunday, May 27, 2007

All surfacing this morning

Slowly but surely all are struggling out of their beds and feeling better all around - good.

It is a miserable bank holiday weekend it is raining and grey - mind you there is plenty to do and I have lots of things to sort out with work, leisure, treatment, hobbies and so on. Now I just need to work out how to fit everything in. This is a better headache than having nothing to do but now the worries of insurance and stage of my recovery are out of the way I should be able to shake off the apathy of the past and move forward, better to have too much to do than too little - the devil makes hands etc....

Saturday, May 26, 2007

Monaco

My favourite Grand Prix? Maybe. Well last year I reckoned I might get to this one. Obviously that wasn't meant to be. Perhaps next year. I need to get to one of them soon as I haven't been for years and years. I'm a bit of a petrol head and loved my trip to Brands Hatch years ago to the see The European Grand Prix (I think) if not it was the British one.

Noisy as you like and I just had a fabulous day. Watching from the TV is fine but Monte Carlo is a great place to visit and people watch anyway and with a Grand Prix it would be a great fun weekend.

It has been a strange day. Oldest is OK - she went shopping, youngest has recovered but wife not been seen all day - too tired. So the house has been remarkably quiet. All seem to be recovering though.

It looks like

I'm the only one fully fit and healthy this weekend. Wife lying down in a darkened room with headache from hell, Oldest daughter suffering post exam relief and hay fever, youngest with a sniffy cold.

I'm feeling quite good about things at the moment. I have to go and see the Doc sometime next week to get sorted on BP tablets. Hopefully he will have the results from the Hospital and realise that on Monday week I start the BCG treatments. That will screw any blood results badly as the BCG whips you blood into a frenzy and gets your immune system able to repel speeding bullets, see through people's clothing and all other stuff that Clark Kent can do! It is pretty cool stuff :-)

Friday, May 25, 2007

Calm Down

I have calmed down now. It really has been a pleasing week all things considered. I met up with some very good buddies tonight and we had a curry and a few beers (as you do).

We are still quite a way off the anniversary of my original symptoms but as someone commented tonight - it had been a pretty bad year up until this week. I managed to catch every bit of bad luck going. Well, let us all hope that things get better from now on!

A long weekend off and then I need to hit next week running. Lots to do and fit in. Life is going to get hectic and exciting all in one go.