I like to consider the one great thing about Freemasonry, beyond the moral and charitable foundations is that it is about brotherhood or brotherly love. these 21st Century days those 17th century words probably don't mean what they actually meant when they were first coined and can be twisted somehow and maybe those words need to change a bit. I't isn't love in the way you'd expect it to be described since the 1960s for example.
What it means, of course, is comradeship if you like. What - perhaps it feels like to be on the same side, team spirit, brothers in arms maybe. So tonight's great vibes were when they read out that I was in next week for a small "set back" in my progress and the 9th operation in 4 years. My Almoner, C, has been great and kept his eye on me ever since I've been ill. He reads this blog so knows some of the ups and downs. He is great and I know that he does lots of other visiting things that he never tells anyone about. Such is the mark of the man. So C reported to the Lodge what was going on and the well wishes were and still are quite over whelming. I have to bat these back saying it will be OK, it is only a minor thing, it is no "big Deal" it is the sort of reality that is bladder cancer. I always, and maybe I shouldn't, enjoy explaining how they actually get into my bladder to do this work. "Is it key hole?" they ask. "well - they go in through your penis" kind of kills off the conversation. If you haven't go the wincing by then - well you're just no good at it :-)
The other one is "how did you find out?" - so you say "I went to the toilet and pissed blood all the time" also has about the same squirming effect. I don't actually do the "beat around the bush" stuff for long as people really need to know. They need to be aware and also in some ways to understand the facts that it isn't a death sentence.
So where is this blog going? It is rambling a bit and the reason is that one of my friends, who I have known for a long time, and I've whined about before on this blog, is still driving me bloody nuts. I've known him all my Masonic life and it is because of him I am so involved and yet, when he is in the sh1t and needs our help he doesn't see that we are trying to help. But the reaction is so bad and bitter and everything is wrong about the guy that I can't get near, help or anything. the reason? It appears that it is something to do with I've got things sorted out and I'm OK and somehow it is wrong.
That still doesn't translate well! Let me try this then - You can tell I find it difficult to tackle this because it is a long term friendship but he's just p1ssed everyone off and try as you might, he isn't going to accept your help as he is now in full denial that there is anything wrong. I can't get past the protective shell he has put up and that shell is nasty, aggressive and spiteful and hurtful to his friends. I have to keep trying even though it hurts me I suppose.
So tonight I suggest that I had to take a course of action as I wasn't sure whether he was going to turn up and he rounds on me as if I have done it to hurt him. I have to do these things to get them done and meet targets. He is Mr. Unreliable incarnate and suddenly, because I have had to be pragmatic (and I don't really need to involve him) it is my fault. I'm easing him out. I'm doing something to him. I didn't even need to mention it.
How long do you keep trying for? He is a friend after all but for the last 18 months he has done everything in his power to destroy that and make me the villain and I'm (hopefully) not. He has made so many enemies recently. The girls in my office don't like him and he's upset most of the people I've introduced him to. He just can't help himself. He's even p1ssed off Mrs. F. and that, I can tell you, takes some doing.
So - there you go - love/hate relationship and it's all looking bad and the chap is becoming a self-fulfilling prophecy - he's going down and despite all his friends rallying around, he's turned his back on them too and going to the depths all by himself. I was thinking of a phrase that summed this up and this one does that:
"I’m trying to see things from your point of view, but I can’t get my head that far up your ass!!!"
So back to the blog - the ugly and bad is done. The good are all those who wished me well, looked worried, didn't quite understand that it isn't that serious but they thought it was. The ones who thought I was being brave and yet it's "just the way the cookie crumbles guys" and all that stuff. I sort of spent the time rationalising it the way I rationalise it:
- It was a tiny, minute tumour
- the remaining 99.9% of my bladder was clear of cancer and has been for 3+ years
- You can't treat a tiny, weeny little tumour like that - it was cut-out and is NO LONGER THERE
- It was low grade, low threat, less than CIS or any other tumour I've had before
- Decreasing the time between biopsies is best in class behaviour and the right thing to do
- If they find anything now - they can scrape it out. If they don't we revert back to the original 6 month reviews
- In 3 months not a lot can happen to a bladder that was left cancer free
- BC grows slowly and can be controlled
Now I know this - and Steve K in the USA knows this as do many pragmatic sufferers. We live with odds and facts and binary decisions. We also live with "other stuff" that may or may not assist but we rationalise and we decide and we move on from there. We know that this is what happens, that BC is no death sentence to us as we were "caught early". We are constantly monitored and subject to the best western Medicine available.
Of course, our friends don't know this. They think we are "brave", that we are "warriors" and yet we are no different to them. When you get this you decide to live or to die. It is your choice. If you wish to live then you have to undergo many things. Believe me, some of the things I want to live for are very important for me - perhaps see my daughters down the aisle - see them graduate or maybe - though I'm not sure of this - to become a grandparent. I don't know but to me, life is worth all the fighting, the Hospitals, the treatments and all that. What does it mean if you just roll over and "take it up the ........." you fill in whatever blank feels appropriate.
I'm not brave - I do however believe I am an Advocate or Ambassador and show people that Cancer is survivable, something that you tackle with dignity and good humour. That surviving matters, that doing the right thing is the way forward, that you need to have a respect for these things but that you don't fall over cheaply and that you play your part in defeating this scourge to society. Cancer ruins so many lives. It never fails to make me feel humble that I've survived, that I can still fight it, that - compared to many others - I am so lucky to have something that is treatable. My family are older, imagine a younger child or family dealing with this and I do get upset by it.
Now I'm arguing the point I made above about these wonderful people, who aren't directly affected by cancer being worried about me and there is me, worrying about them when, in reality I find seeing anyone else in distress especially young people and young families equally upsetting. The balance is that I've had quite a bit of life and they haven't. It would leave a dent here but my children are older and I hope more resilient.
I like my friends, the good the bad and the ugly I just wish the one person I had so much time for - for over 25 years - can just switch back to being the person I admired and loved so much. Today, I find it so very hard to enjoy his company or to try and have any sort of discussion with. I feel that my energy just drains away and that all attempts to get close are met with a virtual stab in the heart with an ice hardened dagger. It is so sad but what I'm getting to eventually is this nagging in the back of my head and it says:
Look after yourself. Only your survival is important, be selfish for once in your life, do the right thing for yourself and your family. Enjoy your own life and do your own thing. I've not lived by those rules ever. I was brought up to help people and yet the nag nag nag in the back of my head says these things. Look after yourself and your own, sod everyone else. Survival is all.
I fight against this selfish view, rightly I think. But maybe, just maybe there is something here that means - just concentrate on getting yourself right first. You can't help other people if you aren't well enough to do that. You can't keep getting emotionally involved, whipped, beaten up without their being further toll on your health. Be Utterly Selfish and get yourself well. Sod the rest.
That is what my head says and is wrestling with. Sometimes I really hate the way my brain works - it has these arguments and moral battles and no one actually wins out.
Time for bed said Zebedee