Thursday, August 18, 2011

Oops - upset my brother

Come to look back on it, Mum was pretty matter of fact and told me what was going on and then said talk to my brother. So T has all the details and the nurse didn't know what stage (other than early) or much else really. We know there is no tumour and we know that at 80 going on 81 the full operation just isn't on the table for Quality of Life (QOL) reasons.

The next appointment is 31st August and so we hope to find out what will be on the table at that point in time. It's a long way off isn't it? They aren't exactly rushing and so that is a partly good sign I guess. However, as I said to my brother the problems are that, generally speaking, all the cancer patients I knew had a worse time during the treatment than they did from the cancer which, strangely enough, wasn't painful or even noticeable in my case. The treatment was the thing and then I realised that T wasn't really as with it as he made out.

Of course everyone is upset and I probably did my worrying 3 or 4 weeks back with a general lack of sleep and worry about my Dad. He's obviously upset and Mum and T need to come to terms with it. I already have and in a way I'm being very matter of fact about it because how else can you be? I suppose me saying to T that everyone has to die didn't help the conversation along too well now I come to reflect on it but he should know me by now. I've a healthy regard for being alive these days.

However, Pancreatic Cancer does command some attention with only 5% of those diagnosed making 5 years. That figure has been like that for years - it's a difficult one to tackle and so Dad's options are somewhat limited and the 31st will provide the answers. T invited me to go up for the day but I really don't want to do that - it probably isn't right that I do at that time and I'm not sure what, if any, value I'd be.

I'll get up and see them in a few weeks anyway as I am due to go up north and it will be a good opportunity to see them and to carry on to my cousin's birthday party.

So Dad's got Cancer

Not sure what sort of Cancer it actually is yet - they just gave the results and he has to go to the big Hospital an hour or so away to meet a team who will give him the low down and discuss what to do about it.

It is very early stage so that's pretty good and he has to see them in a week or two - which seems a long time to me. Dad didn't actually want to talk to me - not surprising after getting that news I imagine but he has told them he doesn't want major invasive surgery so they know that - he will have the stent replaced though and we just have to see what they come up with for him.

I'm waiting for my brother to call and have a chat later. I doubt he will be in a great frame of mind - he tends to take this stuff badly. I'm being pretty pragmatic about it as I tend to be and want to hear the results of tests and a bit more information to understand quite what he has and what the stage and grade are.

It's not great news of course - never is - the doctors will no doubt explain what it is all about. I'll hunt out my list of questions and see if he wants them. Not much more to say really at the moment.

Back Ache and Goodbye PC

I had a terrible back ache yesterday but managed to feel a lot better last night and into the morning but it's back with a vengeance probably as I was still dealing with the troublesome laptop. I've had to admit defeat - it's only the second PC I've ever had this sort of unsolvable problem on and I can only imagine it is something quite mysterious that doesn't appear on software testing. How anyone can sort this sort of thing out themselves is beyond me it was a mess and I worked about 20 or more hours on in it and completely rebuilt the machine! What a nightmare. So it kind of work to a fashion but even with a new operating system on it still crashes.

So I sat down tonight with a seriously bad back. Rewarded myself with a beer and a bacon sandwich! I know - but I can't do anything exercise wise so might as well.

Can't quite fathom out what is wrong with me though behind all of this. I think I'm worried about tomorrow and my Dad's diagnosis. More for the fact that he's talking all wrong. I heard a phrase tonight saying that "not wanting to die" wasn't the same as "wanting to live" - Dad's got a negative mindset and that's not a good thing to have. Of course, we don't know what that diagnosis will be, they didn't find any tumour and nothing looked wrong with his Pancreas but they took biopsies anyway. Well we will find out soon enough.

It is also A level results day tomorrow so the students will be getting those at 9 am. L will go and collect hers and let's hope she gets her results and can go to University. The accommodation is ready and all the paperwork is here. Other daughter, A, goes off to Edinburgh a little later in the morning and it all sort of kicks off.

To go back to me, I've been feeling quite emotional and strangely not right about things. I have moments of really emotional welling up that I can't work out what it is about - maybe it is Dad.

Also thoughts for a good friend of mine who is having some tests at the moment and another family member with a benign brain tumour. It's all happening.


Tuesday, August 16, 2011

Vibration Plates a Warning

Just a slight warning, I slightly overdid it yesterday on some of the twisting and bending and have managed to hurt my back again. I think this is also to do with sitting twisted trying to sort out a laptop which is positioned to my left meaning that I've been twisting to the left to attend to it and working at an angle. So a combination appears to have left me in a twinging wreck this morning :-(

The plate IS very powerful and will seek out any weaknesses and it was enough to give me a pretty painful tweak.

Why you should go to your Doctor

It was a strange chat I had with my Doctor - you see I hardly ever go to my doctor - I actually have to be ill and I have to have had a chance to get over it. So for around 30 years I really didn't go to the doctor as I wasn't really ill. My doctor told me that around 80% of the people they see are well, to put it bluntly, somewhat Hypochondriacs and that the see them a lot some every few weeks. Of course there are some who are ill ill.

Here's a damn good reason to go to the doctors HERE this is Chris Evans and his story is very typical of today's cancer stories and I like the way this is written. He's well known in the UK - not sure about elsewhere in the world but in a way this is the sort of story that makes people think and let's hope that he has saved a few lives with this particular story.

I'm reflecting on my father's choice of words about having treatment or an operation and saying he won't unless it isn't intrusive (the operation) - I have no idea what the specification is for treatment though. He finds out this Thursday and I hope that it is something he can cope with. I understand that treatment may be daunting but reading that article I'd also be aware of what not having treatment can do too.

My own treatment was challenging but I am sure that other treatments are far more challenging. I remember that I did put myself in a state of mind to receive them, that it was a positive step forward and that it was going to make me better. The side effects were not reflective of the efficacy of the effectiveness of the treatment (apparently) well you could have kidded me :-) Some of the reactions were bad and physically took a fair toll but I'm here and I lived to tell the tale. That's the result - if I hadn't of had the treatment or the operation - I'd be dead. That didn't fit my plans at all. No Sir, that wouldn't have done. I think myself quite a lucky guy really. I kind of wished I knew what I know now when I was in my late teens as perhaps I'd have not lived the life I did for many years. I didn't go the whole hog and do drugs or anything like that - neither was I a soak but I did enjoy a beer and a cigar and I worked like mad to build a certain lifestyle and it bloody near killed me!!!

Anyway - I find myself quite upset at the moment with my dad's status and his reaction to it. He just sounds negative and that's not what I expected really. The weekend with the family down for the party was also a bit of a hard time. They are great and turn up from afar and then ask where my mum and dad and my brother and his family are? I make excuses about not travelling well and all that, it's hard and I can see them looking slightly askew and wondering why that should be. I felt bad for not having been up to see my Dad but I'll arrange to pop in on the way to my cousin's birthday party next month which again they are not going to.

I'm not certain how all of that will go really. We don't really talk about me being ill. My mum and I talk a bit about it but I've tried not to overdo it and of course you can tell sometimes when you say too much or give away some of the "pain". In fact, it is strange that this blog has far more detail in it than even my close family know. I certainly wouldn't have made too much of a fuss but I know a couple of times after my BCG treatments they would have seen me not looking my best and some of the photos of me early on when I was ill look as if I've been photographed in black and white whilst everyone around me is in glorious technicolour.

In fact the one thing that I feel these days is sadness that I upset so many people around me through being ill. They must have also gone through some sort of worry about how ill I was. When I think of their feelings it really churns me up. I don't feel sorry for myself that much but I feel sorry for those whom I frightened with my illness. It seems a strange way of thinking but there you go.

Monday, August 15, 2011

Vibration Plate Progress

I used a higher setting today and it really racked up the exercise. It was just too much today and I was surprised how it shook me about. you could really feel the vibration tightening up my muscles especially the leg and hamstrings. My sides and back actually feel a little stiff and my arms fairly buzz after doing some press ups on the plate.

Dad has his appointment on Thursday afternoon - they say they want to discuss his treatment. Interesting times. He's told us that he isn't having any treatment but he doesn't even know what it is yet! Certainly, it will be interesting to find out what it is and what they are going to do about it. No use worrying about it now though.

This flaming computer I'm repairing has all but died, I'm having to do a completely new install to see if I can rescue the situation. Apparently they had a friend over who showed them how to download certain stuff which looks as if it has stuck some pretty nasty malware on it. When trying to get rid of it, it's killed off the malware checkers and virus checkers and wouldn't let them load and it has put in blocks as well. So I may not have been able to rescue anything by the looks of it - all their photos and stuff gone.... Sad.

Sunday, August 14, 2011

Birthday Weekend

It's been a full on weekend and great fun for L as it was her 18th birthday and it has been a lovely celebration. She is quite a bubbly character and full of fun and laughter. She looked great in a "special" party dress. She can now legally drink and vote so tonight she went out with her older sister to the pub for a drink and the quiz night.

The trouble is that I was late to bed on Saturday morning and this morning too as friends came back to the house - then it was Sunday lunch with my Aunt, Cousin and her boyfriend who came down a long way - about 4 hours drive or so.

We are going up to see them in a month or so. This friend's laptop is still not working properly - it seems to be in a permanent death spiral loop of blue screens....

Diet restarts tomorrow as I've had the weekend off to have beer, party food and cake!

Saturday, August 13, 2011

Oh Dear

I went to bed around 2:45 after working on the laptop and it still isn't fixed properly. It needs some serious work done on it. It isn't working properly at all and looks to be full of Malware :-(

So my daughter also decides that it is all so exciting that at 7:30 she wants the household up and about to open presents for her 18th - to say I have a thickish head is an understatement. The process of troubleshooting is a logical elimination of various obvious problems and taking those out after each investigation and ticking them off. Of course when it gets complex like this one - some logic goes out and a bit of intuition comes in followed by lateral thinking and just hit and hope if all else fails.

We have the party later on - I hope I stay awake long enough to enjoy that.


Friday, August 12, 2011

Still at it

Trying to repair someone's laptop - because I know a bit, I become the repair man something I hope our business, if we get finance, will make a thing of the past. The amount of time I've spent so far on this exceeds five hours now and at £60 an hour (that's what the help desk would charge you at a £1 a minute) it would be cheaper to get a new laptop! That's the reality these days.

If you haven't seen what we are hoping to do then you can look here. We intend to bring in a new era where you don't have to be a computer wizard to own a computer. In fact there won't even be a computer.

So spent hours doing this and found malware has screwed the computer and I'm trying to remove it and it is trying to stay on the PC. Grrrr.

L is back from her camping holiday in Cornwall and getting ready for her big day tomorrow - she is 18 bless her and a big party tomorrow evening at the local Golf Club will, we hope, be a nice way to celebrate. Let's hope that no ones gets silly...

Thursday, August 11, 2011

The ouch affect

My friend's girlfriend's mother isn't well. They've managed to get her home from hospital and it will be for the last time and the children are sitting vigil and it's all pretty sad. These things are and I haven't experienced it myself but there's a certain bit of me that went through this realisation ust 3 or 4 weeks ago. Dad's experience is a reminder that this is where it is all heading and that somewhere along the line this will happen to us.

It's sad because my friend's daughter is due to get married in a few weeks and timing is not without it's irony.

I'm still reeling from Dad's illness and sudden recovery. It brought it home to me and it also made me quite angry in a way. As you may recollect - I was left to my own devices when I was ill, no one actually came to see me. It's been 5 years and a month. I have made the pilgrimage when I was fit enough and so sometimes, I do feel (whether justified or not) a little bit put out. I also found that no one turning up for my 50th birthday was a bit naughty too. Maybe I just don't get the hint :-)

There was I tonight worrying about not going up to see my dad or run them around, despite the fact my brother lives 5 minutes away (I live 2.5 Hours away roughly). And yet no one did that for me - do you see the problem? It may be me but I still feel guilty I didn't get in my car and go up and see them last week but it wouldn't have done any good anyway. I don't know - I'm confused.

Anyway it is L's 18th birthday this weekend and we are going to have a big party. She's going to be spoilt rotten and she will also be the centre of attention on Saturday evening as we have hired the local Golf Club for a party, food and disco. My relations will be there and would have travelled from beyond where my folks live. However, if they couldn't make my party, then there is little doubt that they'd have put themselves out for my daughter.

I'm not that bent out of shape about it but you'd have thought that once in a decade they could have made the effort?

I know that some of you will be worried about me - you have no need to worry - I'm not "that" put out about it, I do find that it sends out the wrong signals to my daughter and my wife though. we "laugh it off" but as you can imagine it would make you question the logic of it all.

Well it's time for bed and I'll probably think different in the morning. Of all the feelings I've had recently with Dad's illness and me - not being there - I have to reflect on how much they were there for me when I was ill. But I'm being unfair and unkind and your family are your family after all, no matter how bizarre they seem to act.

It takes time

Getting in shape and losing weight but I do like the encouraging signs. I was really thrilled with the FOCC (Flax Seed Oil and Cottage Cheese) or budwig diet (well part of it). I've only missed out once in - however long I've been doing it. I noticed straight away that my blood pressure had dropped, almost as if off a cliff. Yesterday's and today's readings were pretty low for me and 117 over 73 is really getting it where I want it.

As I said yesterday the vibration plate exercise plus the cross trainer seem to be the ideal mixture now. Where I used to do 30 minutes or so on the cross trainer followed by some dumbbell swinging and a few press ups, I now do 15 minutes on the Vibration Plate and 10 hectic minutes on the cross trainer. What I've noticed is that my circulation certainly feels to be better and since the FOCC and this exercise, my skin is smoother (I sound like some commercial now!).

I would like to drop another 1/2 stone but cannot see that happening for a while. Most of the stuff that's easy to come off has already and now it is just plodding away at this gradually - you mustn't lose weight too quickly - and see how a few more months will work out.

Tuesday, August 09, 2011

A week of Vibration Plate Exercise

Well - it is a funny sensation especially today as I wound the power right up to around 75% capacity and nearly shook my insides out :-) Wow is this thing powerful.

So - what's the week 1 verdict?

Well yes, it appears to work as my little love handles have disappeared already and I'm feeling firmed up on arms, legs, belly too. I've realised that I need to do both the vibration plate and the cross trainer. The reasons are:

Anaerobic Exercise - is exercise intense enough to trigger anaerobic metabolism. It is used by athletes in non-endurance sports to promote strength, speed and power and by body builders to build muscle mass. This is what the Vibration Plate system does.

Aerobic Exercise - is physical exercise of relatively low intensity and long duration, which depends primarily on the aerobic energy system. Aerobic means "with oxygen", and refers to the use of oxygen in the body's metabolic or energy-generating process. This is what the Cross Trainer gives me.

So what I've done in the past couple of days is a 15 minute vibration plate workout (no you can't just stand there and let it do the work for you) followed by a 10 minute session on the Cross Trainer with this exception, because it is 10 minutes and not 30 I go hell for leather and really get close to collapse at the 10 minute mark whereas I used to plod on with the longer routine. So what does this do? Well they say a 15 minute workout is close to 60 minutes worth on the Vibration Plate. You must warm up a little but it doesn't take long and then you need to vary the speeds and all the different positions which you do for no more than a minute each and believe me, sometimes it is difficult to do them for 30 seconds let alone a minute. I do a series of workouts that cover the whole body and tonight the high speed squats I did were agony, such was the intensity of the plate at around 75%.

I can tell you that I'm around 1/2 stone lighter and that my Blood pressure has dropped to below 120 over 80 - I recorded 117 over 73 earlier and I have to say that I'm feeling pretty good. I didn't do two days exercises in full as I was out and because I was only lightly testing out the Vibration plate on Monday and Tuesday last week.

So I think it looks like a good investment - it is strange that you don't actually sweat doing the exercises or get out of breath but you do feel your muscles working. the press ups on the plate and squats and planks are really amazing as you can feel everything working together. You sort of notice things the next morning - if that makes sense? I feel really fit in the mornings and as I've said I've noticed quite a bit of weight falling off mainly around my stomach but more especially at the sides rather than the front. It is a bit early to make any great statements about the Vibration Plate but I do actually enjoy doing that for 10 to 15 minutes - it's a bit of fun although watching your body flap about isn't all its cracked up to be :-) it's like jelly on a plate - wobble, wobble :-) But it is good fun and also only holding and doing exercises in short bursts and changing them lots of times is great. I can then get on the Cross Trainer, burn out 2.5 kM and then do some weights and I do a couple of minutes on very low on the Vibration Plate to just cool down.

Monday, August 08, 2011

Exercise Sucks

In a term coined by fellow Bladder Cancer survivor Steve Kelley which I fully concur with. Steve explains in his various blogs why that is but as he and I are both aware, we needed to be fit and exercise sets in motion lots of things to help you help yourself in the cancer battle. I've now got a Cross Trainer and a Vibration Plate and a small set of exercising dumbbells.

So in today's news was this article from the BBC headlined as "Exercise should be 'standard part of cancer care'" I've complained about this before but think that it is true, unless you specifically mention exercise, your doctor isn't necessarily going to tell you to do it. I mentioned that I was thinking of doing it and was only told to go easy around the times I had treatment and the various operations (TURBT & Biopsy Cystoscopies) as well as a day or so after the flexible cystoscopies which can make you bleed a bit too apparently.

It's part of Steve's and my recovery strategies and whilst we differ a bit I think we both see the benefit of exercising. If you are fit in body then you are likely to be able to help in your cancer fight and in our cases, keeping the cancer away for good.

I think the only caveat I had was when I was having the huge bouts of fatigue (which apparently exercise can help) when I found it difficult to actually get out of bed because it felt like my body was 2 or 3 times heavier and someone had fiddled with the gravity switch.

Anyway - whilst exercise sucks - it has enough benefits to actually make it part of your everyday activity.

I JUST NOTICED !!!! If you can see the video clip on the page - - >> This is my cousin's Pink Champagne Dragon boat crew and there's a shot of her early on doing the exercises with an oar. She had Breast Cancer and the whole team are cancer survivors... Way to go W!!!

Sunday, August 07, 2011

Sunday Night

11 pm, sat at the PC, actually did a shed load of business work over the weekend. I did promise myself that I should take weekends off but I was on a roll and finished off a section that I was working on so that made things better.

I'm feeling a little relieved with my Dad's situation and that he is getting a little better but of course we wait to hear the verdict. I wasn't pleased to hear that he had already made up his mind not to have an operation (unless keyhole) or treatment - which did disturb me. I can see one side of the argument but of course I would being me and living through what I lived through wouldn't I?

So there we go, a week over and things are back to settled a bit now. I really want to work hard this week to see if I can break the back of the business plan elements and see how far we can get towards completion. It seems to take an age but the really good thing is that it allows us to consolidate all the work we've done in the past 3 years and - almost like cramming and taking an exam - it actually knits the whole of the journey together and makes it real and quite exciting. I can see my writing style has upped a notch in writing the plan because it really starts to become real and it also starts to make sense and become compelling.

Eventful Day

And it is 1:30 on Sunday morning and I'm sat at my PC wondering where time went and why I'm sat here. It's the usual story really - I tend to be both a lark and an owl when it comes to work and earlier today I thought I might as well do some work rather than sit around doing nothing. I then did some reading and now I can't get to sleep and as usual no one actually says goodnight in this house and I'd lost track of time.

It's been that sort of day - I sent my mum some flowers to cheer her up and I'll speak to her again tomorrow. Dad's lost a fair bit of weight and we are hoping that it is worry and whatever WAS wrong with him which may now not be wrong with him as they couldn't find anything. It's a bit strange if you ask me. I was disturbed by his attitude not to have anything done to him if is was diagnosed - "who wants to live for ever". I'm not certain that is exactly my thoughts on the matter but I'm not him of course. I think that it is the wrong attitude myself and that you should at least see what they say first before making that sort of statement - perhaps it's the denial bit we all go through. In fact the more I think of it the more plausible that is, that the Kubler Ross Grief cycle is kicking in.

I suppose we have to sit back and wait to hear what is going on - it is all most unusual and the great news is nothing there so is it something else, did they dislodge the offending lump or what? I guess we will know in a week or two.

Saturday, August 06, 2011

Give you the Willies moment

You remember when you were a kid and went into the haunted house and your heart was thumping as if it would come out of your chest because you never were sure if there was something around the next door.

Well today I had that experience. My friend called up and couldn't raise his mum. So I went around to the house - the car was there and I couldn't see much through the back windows. I then knocked on one of the neighbours house just to check things out. She wasn't but we learnt that the car clutch wasn't working so hence it was parked a little strangely. They have a master key safe and after I'd done some more checks I got the keys and went in disabling the alarm system (My mate is a Policeman and thank goodness for mobile phones).

After getting in I was able to do a sweep of the house and so that was good - but every time I looked in a room I was dreading what I might see :-) Luckily it looks as if she went out and perhaps someone came and got her :-) Anyway - all is OK.

Friday, August 05, 2011

Well - that went better than expected I think

So Dad got taken down to theatre at around 1 (on the proper day!) and returned around 3 - totally forgot to take the normal precautions (once again) staggered around like a drunk thing. HELLO!!! General Anaesthetic Dad!!!!!! My kid brother was apoplectic about him being like a little kid and not remembering the experiences of last week post operative!!!

So - having got that far the surgeon / consultant comes out and say - well we couldn't find anything there - no lump, no tumour - nothing. Well - what could have happened? Apparently they could have dislodged something when they put the stent in last week so whatever they did -there is nothing there now! He decided that he ought to take biopsies of the Pancreas as he was there and so that's what he did. However he felt that there was nothing sinister there at all.

So I spoke to mum who, not surprisingly, has hardly any voice left, and said how pleased she must be - I think you can tell a lot as we are so close - I told her to go and just sit down with a cup of tea and take it easy - I can only half imagine what it has done to her but I could hear it in her voice. So I rang my Aunt on her behalf and that was OK and I'm much happier myself in perhaps getting away from what I strongly believed was my dad's diagnosis (you learn a lot about all cancers if you are interested when you have it BTW). I'm frankly amazed that they found nothing. He's lost weight this past few weeks and I was hoping that it was more to do with anxiety than disease. I do hope that from this point onwards that stops.

So it may not be Pancreatic Cancer - which was what I feared - but perhaps something else. We now have a week or so wait to see what it is. If it was just a minor blockage that they have fixed then that is great...

I'm relieved for dad and my mum and thankful to my kid brother for running them around.

Now it is wait and see.



Thursday, August 04, 2011

AS they say in the UK

Should have gone to Specsavers!! got a note from my kid brother to say that they battled through the rain and got to the Hospital only to find that mum had read the wrong date/day and it is actually planned for tomorrow.

I'm not phoning the house - I imagine it is in uproar at the moment - I also doubt that me texting "Should have gone to Specsavers!" added anything to the embarrassment of the situation. If it were me I do think I'd have been seething but then again, it it was ME I'd have checked time, place, and all the details....

So now it's tomorrow - thanks goodness my brother can sort this all out as he is local.

Thursday and thoughts turn to Dad's Procedure

Well I know how he feels and can but sympathise with him. It's thrashing down with rain and so will be a thoroughly unpleasant day. He's going to Addenbrookes in Cambridge for this inside out scan and to have needle biopsies taken of this tumour (or whatever it is).

At least he is pretty cheerful and in a lot better condition than he was last week. I can only imagine how he must feel. Oh well nothing I can do sitting here worrying about it - I can't change the course of things so will just have to see what the results of the test are.

Wednesday, August 03, 2011

And thoughts turn to my dad

Who tomorrow will have to have his second endoscopy in 7 days. I feel for him but can't "take the hit for him". My mum often said to me, if she could take the medicine for me she would. I'm hoping that they find something that isn't what I think it might be. I guess 80 years of good health and never being in a Hospital is pretty good going really but I do feel for him as these places terrify him more than they used to terrify me. I think I said this in my earlier blogs some 4 years ago that I'd rather he never have to know what I'd been through knowing his dread of hospitals. However, the cards are dealt and he has to face up to what hand he has. It isn't nice and an endoscope isn't the greatest of things but last week they managed to do it without too much trouble apart from him not knowing what a general anaesthetic is capable of doing - he looked like Pinocchio without the strings to hold him up apparently! This time he knows what is going on and he has recovered suitably enough to bring his mind back to him (he was worried he was suffering from dementia some months back) and so I hope he realises this. My brother will be there with him tomorrow so I hope that it all goes well.

As usual - there's me doing a guilt trip as I'm not there to assist but as I said before - I don't recollect them ever coming down here and running me in and out of hospital or even visiting me at my death bed or at home!!! But that's OK I'll beat myself up about it - it must be something in my nature?

I think a lot about that because I'm off the opinion that parents are a back stop for when things go wrong - if your kid gets into some sort of trouble etc. I say this as both girls have their boyfriends staying here. I know because the toilet seat is up - that's a girl joke - they'll understand. As I have lived with a house full of women for 21 years - I KNOW MY PLACE and therefore, the toilet seat is always left down so when the boyfriends are here I sort of work it out from the angle of the toilet seat :-)

However, I digress. When I was my oldest daughter's age I had left home, I was working and earning pretty decent money, I was just about to embark on my career and I had a nice flat but I always knew, if I needed it, I had the bolt hole of my parents' place. I needed it once in between having to vacate my flat (which is no more than 2 minutes walk from where I live now) and buying my first property. My parents have always had my best interests at heart, keen that I didn't make the same mistakes (or as I prefer - learning opportunities) as they did. Whilst I may regret not going to University - it would have meant following a different path and not having the life that I have now which despite my constant whinging is in fact pretty damn good when compared with many who don't have the opportunities that I have had.

So back on track - all I was really trying to get to was my position with respect to A & L. They've got their whole lives ahead of them and University will provide them with adequate experiences for life. They can do what they want to do - and not what I may think is best for them and they can live the life they choose to live and I have no desire whatsoever to interfere or to get involved unless they want me to and ask me. I can give opinion and deliver experience and observation but I am a firm believer in allowing you to find out for yourself. I do however try and provide sufficient encyclopaedic knowledge where I can to allow them to come to (the right) a conclusion themselves....

I hope I'm doing the right thing, they are both a credit to us and so in that respect I cannot find anything that worries me about their current choices of course at University, their choice of boyfriends or their hard work in terms of their education. They both have jobs and they both pay their own way albeit we continue to provide a home etc whilst they are studying. If they go on holiday (as they both are) or do other activities they spend their own money doing it (I'm not saying that contributions cannot be forthcoming though).

Wait, wait wait wait wait

Can you tell I'm waiting :-) Someone is due to pick up some things we are getting rid of on Freecycle. Its now 30 minutes past when they said they'd be here. I want to go upstairs and do my exercises and I can't until they collect this as once I'm plugged in and doing my thing - I rarely hear anyone and the vibration plate is - of course - a little noisy when it is on and I have my music over the top of that :-)

I did a 5 minute stint earlier on today and tried a medium fast set of stretches - goodness it does work you over - goodness knows what it will be like at full power - it's powerful enough at 33%

My dad appears to be feeling a lot better today and is getting "his marbles" back - he can think clearly and now realises that some of the recent stuff he's been feeling is all wrapped up with whatever he has. He is in tomorrow and whilst I feel so bad for him - he's got to go through it so they can scan him and also take the needle biopsies. We will hopefully know what it is within two weeks. I have to say I find myself stopping myself short of diagnosing from what I know. I have my fears for what it is and it's no use second guessing.

The man has just turned up and taken the items - he was ever so grateful and they'll go to a good home. What a good idea Freecycle is = we have managed to give away many of the girl's discarded items and other people can make use of them. Saves them going into the skip!

Tuesday, August 02, 2011

First Session with Vibration Plate

I can see why you need to start slowly on this. I was impressed with it - more so because I tried to hold a couple of squats for 30 seconds and found myself tightening up quickly. I tried a few other of the recommended warm up positions and did - I guess - around 15 minutes of exercises. It isn't easy today as we have high humidity and 30 C temperatures but I finished off on that and did 5 minutes cool down on the cross trainer.

I can see how this will build up over time - I certainly can feel my legs and arms have worked out and my middle. I'm quietly optimistic that with proper regular use I can start to get some real benefit from it.

It is so hot again tonight - I ended up sitting downstairs for 3 odd hours last night and might end up doing the same tonight too the way things are going.

Horrible - Let's Be Honest

Yes it is. Reading this ARTICLE about Danny Baker and his ongoing fight with Mouth and Throat Cancer. He said that it had been "Horrible" and I have to agree with him about that. I think perhaps it's fair to say that I hardly knew I had Cancer - however the tests, the treatment and the operations probably put pay to that :-)

Sheesh - the treatments were pretty bad but - and here's the but - I am sure other people have had far worse than I have. I feel for my dad, at 80, going through these endoscopes and all the waiting and hanging around and whatever treatment he will have to have (we don't know what it is yet though).

When I read Danny's words I thought - yes that's right - it is horrible but you have to put up with it and you have to roll with the punches and do everything you can to get well. I guess that after a while you get quite complacent about it all - I'm often surprised with the way people tell me how they are amazed about how "happy" I've been all this time and how they admire me having been through what I've been through. I don't think so at all. I'm happy to show people that there is light at the end of the tunnel - here I am 5 years on and I'm so much better now.

I wonder if it is fair to say to someone how touch it is going to be? Would you still continue and think positively and go fight the good fight or would you say "no that's not for me"?

Glad Danny is back with us - he's a jolly chap and nice to hear him.

Kid with a new toy

Well almost. The Vibration Plate has arrived this morning - the delivery man looked puffed out - I said that as it was a workout machine it had done its job :-) He smiled - then puffed a lot :-)

Well 42kg plus packaging which I hailed up the stairs much to daughter's amusement. It took about 25 minutes to assemble - it would have been 20 but I switched the uprights and had to redo them :-)

First impressions are good - it's built like a brick sh*t house and is really sturdy. I've wound it up and down the speeds - it will make a fair noise at half speed and above - it just has to thinking about what it actually does and the frequency of the plate oscillations.

I tried it out and can confirm that it does appear to work - my legs certainly noticed it. I will do a major run through later. I'm looking forward to doing some exercise - which is a bit unusual but what I can see with this is that it allows me to do quite a lot of exercise quickly and efficiently - it will certainly help to warm up and cool down too.

HERE is a video to show you how it works. Whilst exercise still sucks - I'm hoping that I'll be able to vary the routines and make exercise a bit more interesting. I also like the MP3 function on this equipment - I normally wear my MP3 player but here you plug it in and it has speakers - what will they think of next?

Monday, August 01, 2011

Health - Diet & Exercise

Tomorrow I hope to get back into exercise and to start to bring myself back to a higher level of fitness than I am now. I'm healthy I think but I really want to drop the pounds now and to get myself back into shape. I've messed around and tried this and that and not gotten back into the habit.

The thing is that having a break of about 5 weeks now really has made me notice how unfit I really am and I just need to get myself back into a routine. I'm working too hard and actually a few breaks to clear my mind may just be what I need. I should be working on a business plan and yet it looks like an academic work. That will change tomorrow.

Diet is actually reasonably on course apart from the weekend with too much barbecue food and beer :-)

Let's see how I get on.

Sunday, July 31, 2011

Strange Day

A & L's boyfriends are around now and so we see a lot of them. Barbecue No 2 of the weekend but at least this time they didn't set up the Chimenea to billow smoke and ask out everywhere like they did yesterday!

F1 was good, then the Golf, the Swimming, the Athletics and the Cricket one after the other meant it was a good old day for sport. The girls have bought me some tickets to Brands Hatch to see some motor sport and I've chosen a weekend that suits me so now to see if everyone else can make it? I remember seeing my one and only F1 Grand Prix there years ago and before we had kids my mate was a Marshall so we got to see races and get a paddock pass through him and his girlfriend.

I'm trying to sort myself out for holidays and all that but mindful that I may need to go see my parents so I'll probably hold on for a while to see what is going on in the next few weeks in terms of diagnosis, prognosis etc.

It's never easy of course and Mrs. F. who has now changed jobs can get time off out of the school holidays which is great for us but we may have to consider doing late bookings if the news is not as good as everyone wants.

Dad's health

Seems to be better - losing his Jaundice and getting back to normal but has lost about a stone which is worrying even though he could "afford to lose that" and more - given what he has I'm a little more concerned about things. Mind you, no use second guessing these things and we will know soon enough what it is and what we can or can't do about it.

I guess all of this is taking my eye off of my situation and the reasons behind this blog which is about bladder cancer. Maybe I need to reconsider what goes in here - however, I'll keep it going for a while longer as I'm sure there's mileage to be had in it.

Saturday, July 30, 2011

What a week

I don't feel like it has been a week - so much has happened and yet time has shot by. It's half-way through Saturday and I'm feeling a bit bored - I want to come back in here and do some work but I know that isn't going to do me any good - I need to take some breaks from this.

I have to admit to being somewhat nonplussed by Mrs. F. who is now questioning where to put my new exercise machine. I guess it is going next to my orbital trainer as far as I'm concerned and it could go in my office - it would mean losing the drawing board and all the accumulated cr@p that has arrived on it these past few years but it could be done. However, I was asking as I thought perhaps I could set it up in the garage for the benefit of everyone and as it is on wheels I suppose it could go somewhere downstairs but I'd be less thrilled with that. I think I'll just put it where I was going to put it and say "sod you" to everyone else :-)


Friday, July 29, 2011

The Deed is Done

My Vibration Plate Exerciser is ordered and as luck would have it - the distributor is 10 minutes away from me. I was going to buy another one but as they couldn't furnish me with their terms and conditions I decided to do some further investigation and then found another one that is more powerful so I thought that might be worth having a go at as it has another level of programs, more speeds and looks a lot more sturdy.

Hopefully next week I can get going on that.

Thursday, July 28, 2011

Exercise - or rather the lack of it

Well - I'm going to have to change all of that later this week and into next week. I took a count of calories earlier this week and was amazed how much I eat and so in the past couple of days I've dropped the amount I eat significantly. Coupled with that I realised that my odd attempts to get back on the exercise habit have been abysmal and of course then I hurt my leg and my back and so I've only half heartedly messed around with the cross trainer.

Today I was reviewing some notes I'd made some time ago about getting a vibrating plate massage / trainer and spent some time reviewing models etc. I'd love to have the price of a small car and invest in a power plate (who wouldn't) but that would seem a bit churlish of me and so I've discussed a plan with Mrs. F. and I think - subject to discussion tomorrow - I will invest in a Vibration Plate. These machines set off vibrations - allegedly this technology was originally designed to treat bone and lean muscle mass loss in cosmonauts who had spent considerable time in a weightless environment in space, in addition to enhancing power and strength and accelerating recovery in Russian Olympic athletes.

I don't believe that you can just step on one of these and the weight drops off of you but the idea that you attempt to adjust lots of times (according to the frequency of the plate) your body and muscles it is meant to assist in toning up and I'm thinking that if I use this to warm up and cool down on then I can get onto the cross trainer in a better condition than I do now. For what it's worth - it may be a useful thing and I can do a number of short sessions a day on it as well apparently. That would be good to haul me off of the keyboard and to give myself maybe a 5 or 10 minute mini session three or four times a day. Worth a go and anything to get me back into the grove again. I find that I am working long hours and working into the evening and weekends again and I just need to reclaim some of that time back and do some exercise. It sucks, it's horrible, I don't like it but I must get my shape back and get myself fitter again.

Better

Everyone seems to be a bit better this morning - apparently no one gave Dad any advice about having the anaesthetic. So I've sent on some of my stuff about that. How can they do that?! Grrrr.

Anyway - he's better this morning - under instructions from us all to take it easy for the next few days or else :-) I think he's got the message - I've sort of dug into my experiences and told them what happened to me and so I think that might help.

Anyway - first round over and more to come. All seems to be OK for the moment and just need to wait and hear back about the next trip in a few weeks time I suppose.

Wednesday, July 27, 2011

Mmmmm

So Dad's home - no biopsy but a plastic stent (lasts about 3 months) not a stainless steel one. He managed to frighten the bejeebers out of everyone trying to get up to go to the toilet and staggering like a drunk around the ward as he was loaded up with General Anaesthetic! I suppose if you don't know, or no one told you, well you don't know. Then he wouldn't get into a wheelchair and frankly I'd have kept him in overnight but well they like to boot you out these days so he's at home and not listening to anyone about the General Anaesthetic but I'm guessing he'll go to bed and will sleep through and hopefully feel a bit better and not try and be a bloody superhero in the morning.

I've been there and done that, got the tee shirt and felt an arse doing it! So plastic stent - I guess because there are more MRI scans to go next week or the week after when he has to have an inside out type of scan. I imagine high magnetic field and metal don't exactly work together in harmony if my electrical engineering training is to be relied on.... Quite how my dad and my brother who are both also trained electricians didn't get that connection I don't know. Mind you I could be barking mad and have got that wrong - what do I know?

My mum sounded wiped out when I spoke to her so I'll ring tomorrow morning and see how she is coping. my brother and sister-in-law were both around today and are 5 minutes away. I thanked T for being there for them. There you go, I feel guilty and yet I didn't move away from them and - as I complained a week or two back - no one ever came down to see me when I was ill (not that there's a wrong or right about it - it's just a fact that's all and I'm not overly precious about it). I'm in two minds whether I'm needed or not at the moment. I could go up there and spend a few days but I'm wondering whether I'll be needed at the time of diagnosis to help to put things in perspective.

Dad's annoyed that he has to have more done to him but I suppose that's only natural - I was annoyed I had to go in last time but I realised the benefits of checking out the mark on my bladder whether or not it was made by them, was a scar or it may just have been a recurrence. I suppose he hasn't come to terms with all of this yet and I doubt I would have done either it's only been a few weeks and so rationalising your situation is pretty difficult and coming to terms with being that ill for the first time in your life isn't going to be easy either.

Dad's happy enough laughing and joking but I'm sure that it's defence mechanism clipping in. Underneath I can only imagine how this is churning away for him. Not a lot I can do apart from holding myself up as some sort of example and yet it took me a long time to deal with it all.

Let's see how everyone is in the morning...

Down to Theatre

Well Dad went down to theatre around 12:15 and so I should hear something soon. So this is what it feels like to have a close relative in hospital? I can't say I've ever experienced it as the receiver - I've always been the giver of such grief to my folks!

I have to say I've been feeling quite strange all day - my body is tense so it is a manifestation of stress mainly in my chest and shoulders and upper arms.

Spoke to my kid brother - bless him - he's doing all the running about on this and of course had his own problems with his mother-in-law dying yesterday.

Oh well - let's see what happens later. Fingers and everything else crossed :-)

Distracted and not a little anxious this morning

I had a terrible night's sleep - no major dreams or worries as far as I recall. With dad going in for his procedure today I do feel quite distracted and a little anxious - not that I can do anything for him of course.

Let's hope they are kind and helpful for him and get it over and done with as soon and as painlessly as possible so he can go home and relax. Of course he will have to wait for the results of the biopsy which will probably be just as traumatic.

Tuesday, July 26, 2011

Stated Far More Eloquently Than I Ever Could

This article in the Guardian

Having cancer is an education, and this is what I have learned - "Illness introduced me to a beautiful network of dependence – and a struggle for autonomy I can't win on my own" by Mike Marqusee

I'd like to be able to write like this but I'm not a journalist :-)

Thinking about dad tonight

I know pretty much what he is going through and he reckoned the last 4 days have been like 4 weeks - yes I recognise that too. Not a lot I can do to help really other than the supportive comments and the empathy.

It's pretty worrying I have to say all the waiting and thinking and Dad's got a razor of a mind, can knock out the Times or Telegraph Crossword in less than 10 minutes, can answer most of the questions on University Challenge etc., etc. So he has a pretty good idea what tomorrow is going to be like and I imagine is forming an opinion of what he has. Me too in a way although there are plenty of good signs here as he isn't hurting, off his food or losing weight. It's all too early to judge and it's all too early to say. I just hope that they get it over and done with for him tomorrow. He will be having an Endoscope which needs to get around to here to take a biopsy and to see if they can correct the blockage causing his Jaundice.

I feel for him and for the trauma and the anxiety he will be going through - I'm bad but under control after having seen more tubes and stuff stuck in me in the past 5 years than I care to remember - I am sure it will be very traumatic for him and for mum.

Just when you thought you'd had your fill of bad news

I got a call from my Mum saying that my brother's mother in law had died today. She had been suffering from metastasised cancer and last year called a halt to treatment - she had had enough of it - and I can fully understand how that would be. We all knew that this was likely and a week ago she stopped eating, went into hospital yesterday and died this morning. Poor old T, my brother, he's dealing with Mum and Dad and now this. The amazing thing is that the funeral could be tomorrow, they live in France - apparently that's normal! The father-in-law himself (I believe) a cancer survivor, will bring the ashes back to the UK. T and his wife can't drop everything and be over there and Dad is in hospital tomorrow morning and T is taking him.

I'm left here not being able to help out on this. Spoke to mum and this news isn't exactly helping matters of course. Dad also has to have a scan that looks outwards rather than one that is scanned inwards. This is pretty new I believe and let's hope that all these things will sort him out one way or the other. If nothing else tomorrow let's hope they open things up and get rid of the jaundice.

I kind of feel a little helpless being all these miles away but I remind myself that I've lived in this area almost all of my life and it was my parents and and brother who moved away from here. I suppose I ought to get my guilt trip over and done with quickly. If my parents had been living here and my brother elsewhere I would have been doing the driving and all that.

Monday, July 25, 2011

So 5 years + 1 day - how's that feel?

You know what - it feels just great and whilst I seem to always be bleating on about it - life's pretty good for me at the moment. It isn't great for other people but I suppose when I wasn't doing so well they were doing OK.

I feel for my parents at the moment, what they are going through and I hope that we will know for certain later on this week or next what is going on and what the future will hold. I'm not sure that me worrying about it or anything else is going to change for what will be will be in these things and I just hope that it doesn't involve too much discomfort for my dad.

Somehow I've resolved with myself just to pull back from it at the moment as I can't do anything and I can't change anything and I also need to not get myself all wound up either.

I decided today to monitor my intake of food as I know that FOCC is pretty fattening stuff - I thought that I was on quite a good diet but in reality with all the odds and ends I eat during the day I tipped 2000 calories for the day. Tomorrow I intend to reduce that by a good couple of hundred if possible although I may be out to lunch :-( which will skew that number.

Anyway - at least I can see where the numbers are and what I need to achieve in the next few weeks in terms of lowering my input and raising my output (exercise) to start to loose some more weight. It looks as if all the work I did do has recently just ground to a halt so a bit more attention to detail is required.

Itty Bitty Internet

It's been a bad start to the day - the internet has been appalling - it wasn't great last night either. They've acknowledged that and are trying to fix it and I've been trying to work in between times.

Funny old day so far - I don't feel very hungry today and so didn't have any breakfast today but will have FOCC at lunchtime. I'm not sure what it is but I just don't fancy eating anything this morning at all.

I had a strange nights sleep and got up a little later than I normally do and it's just all a bit strange this morning as if something has happened but I don't know what it is - if that makes sense?

I'm just going to work my way through and see how it goes.

Sunday, July 24, 2011

If looks could kill

I suggested that I enjoyed the time we spend together to Mrs. F. today - funny really as I did say it in a slightly sarcastic way. We were both out Friday she was out today and I hardly saw her at all on Saturday. This morning all hell broke loose with some garment needing repair before work as it was Ls last day it had to be sorted and so I guess I've seen Mrs. F. about 10 times this weekend and spoken to her about 3 times. I thought it was funny - Mrs. F. looked pretty much underwhelmed and if looks could kill :-)

So it's now late and I am going to turn in. I've come up with some great stuff for the business plan and had a weekend of sport to enjoy. Not great news about my dad but we will have to deal with that after Wednesday I suppose?

I've been wondering quite what to do about all this and suddenly, I'm backing away from wanting to actually "do" anything. What could I actually do? How "helpful" could I possibly be? I know a number of people who have cancer and they're not like me, they don't think or act like me and they get on with things differently - who am I to tell them what to do? I need to play it very much by ear and see what the diagnosis and prognosis is for dad and that won't be known for a week yet.

Alomst Missed it - FIVE YEARS TODAY

Five years ago today - around about 3 pm was when I had the first TURBT and had the tumour removed from my bladder. It was a Monday and I had spent the weekend in a state of heightened anxiety knowing that they were going to operate. Other than that I knew very little of my condition - I took a peek at some online stuff but didn't like the look of it and then realised that most of the people who wrote these things were in a far worse state than I was. A lot were dying or thought they were and it was not a great place to be.

Luckily - I'm not one of them and I survived that episode.

I have no particular plans to do anything - it was only that I wrote today's date on a piece of paper that I remembered.

To anyone tuning in at the beginning of their journey with bladder cancer - things do get better and time and experience change your perception.

Spoke to my Dad

This morning and it was one of those very rare times that I've heard him actually feel sorry for himself or say that he wasn't particularly well. He sounded weak and he sounded frail. He's sleeping a lot at the moment and is due in on Wednesday for his endoscope which we hope will sort out his jaundice if nothing else and take a biopsy. Now he's not hurting or in pain, not shaking or anything else and so in a way that's pretty good news - but we will have to wait and see.

He has some more scopes and things to go through and he's had a number of scans - he's had the dye in the veins one so I imagine he is feeling pretty awful - as I did when I had that. For a guy who hates the doctor and hospitals he's managing OK. He needs to get over the YUK factor and realise that everything happens at their own speed.

I said yesterday that I can't go with him on this - I can't live his pain for him because it hurts me just thinking about it. I feel like I've just had some of this stuff done to me, I feel the back of my hand hurting and knots in my stomach just thinking about it in passing and even now writing this. I really don't need to be giving myself this level of grief and thinking about that dye in the veins thing really gave me a turn - I hadn't realised he had had that. Then again - they didn't know about all the times I had my stuff - some but not all.

Anyway - Wednesday is the big day and with some luck we will know more towards the end of the week.

So here's Some Good News

I've been following a blog called the Assertive Cancer Patient for a couple of years on and off but in recent times have tried to follow it more often. Today there was some great news. How about after 10 years of having metastatic cancer - fighting all sorts of battles you wouldn't believe and having huge highs and lows, Jeanne is in remission HERE is the news.

There's something worth celebrating...


PS: I forgot to say - that last year she was given a year to live and then refused to do so - she has been on a clinical trial which appears to have assisted. Surely a lesson for us all not to give in lightly and to persevere even in the hardest of times.

Saturday, July 23, 2011

Holding back

On calling too often at the moment and will have 'normal' phone call with my Mum tomorrow morning. Will see what they've been up to and see what I can or cannot do at this time. I think that keeping things like they normally are is probably better than calling every day etc.

It's a bit strange dealing with someone in my family being ill - the last major illness before mine was my nephew and niece who both got Diabetes but hers was pretty serious as she almost died. That's got to be about 15 years ago now I suppose. Anyway, what I mean is my immediate family because I'm the sick one really. 11 Operations when I was a kid, rushed in sometime ago with possible heart attack (which proved not to be), a couple of A&Es when I got my nose broken in a cricket match (not by the ball but when the idiot let go of the bat!), once when I fell down some stairs and once when I got my lip split. And of course the 30 odd times I've been in and out in the past 5 years. So dealing with someone else being ill should be easy for me :-)

I doubt it will be. I'm 110 miles away and at least a 2 1/2 hour journey from them which makes for an interesting problem about going up to see them and when etc. So whatever happens in the next however long it is going to be isn't going to be particularly easy to sort out logistics wise - I just need to wait and see.

I also realise that I know a lot about my particular subject matter and I'm also not certain that I will actually be of any "help" at this time, time when they need to work out for themselves what they want to do and also time to get their thinking right about it too. I've got to tread a careful path between their needs and mine. No one got involved in my illness and so I need to make sure that I don't get involved in theirs. That's sounds a bit awful but all I mean is that as well intentioned as I may feel my help may be, it's not my place to do that uninvited and unwanted. I also have to be very careful about my own health in getting that involved.

On a happier note L arrived home after being away for a week and she had a good time away. She is growing up really fast - it's most strange that suddenly she isn't a school girl any more and she will soon go to University, she just appears to have grown from one to the other in a few weeks.

Friday, July 22, 2011

Impressed

With the level of professional results the three artists put on tonight and the evening shot past. Thanks to Flocky Bicep for turning up and supporting the evening. I think it was a great success and it's great to see young artists displaying challenging work. I was most impressed to see some of As larger photographic work and also some of her original life work in charcoal - I'd never seen these before.

It's a shame that we don't value art as much as we should. We came back home and ended up having a curry which went down very well. We also have a few bags worth of food and drink to use up over the weekend :-)

The Exhibition

I've just dropped A off with a boot (trunk) full of food for the private viewing. I've sponsored the food and drink although they haven't told me how much it is yet :-) I'm looking forward to wandering down there in a couple of hours and seeing what they have done - I haven't seen her work in the new frames or how they've laid it out and so that will be interesting.

At least she will have some intern work in her portfolio and this exhibition. She has another exhibition in the central library later on this year too so that all adds to her experience. You can see some of her work here and the gallery information is here. You may glance some of her painted furniture work on this site.

It looks a hard life being an artist but that's what the intern-ship is all about - she can reflect on this experience. We hope to get her some work experience with one of the major newspapers (not the News of the World obviously) later in the summer so she can experience a week of being a journeyman photographer for the newspapers.

I'm really looking forward to seeing how they've worked out how they are going to present their work and run the exhibition.

Your Thought Process

I remember going through the thoughts - wild as they were between "I'm going to die" and "hang on - they haven't even staged it yet!" It was a horrible time I recall and in a way I just had a couple of days to think about things. I was diagnosed on the Friday and I was in the operating theatre on the Monday! Now that's fast. I had, of course, a relatively high grade cancer and the tumour was of moderate size (whatever that may be). So I can understand what Dad and my Mum are going through.

I can actually feel a heightened level of anxiety in my body - I'm feeling for them - I'm going through the process - reliving my own experiences. I can't make decisions for them and in a way, I'm a bit loathe to get involved unless asked. Dad's got to work through the ups and downs and decide what to do. I mean the crazy thing is we don't actually know that it IS cancer. The signs are reasonably good - very small tumour, could be a cyst but they need to do the investigative work and his first reaction was no. Then again, he's never had surgery etc in his whole life so the shock of all of this must be far worse and at 80 years old he isn't thinking clearly about it. He has the weekend to think things over and they have the phone call on Monday.

I've said to them that until you actually get the results, you'll not know where you stand. If it isn't then there'll be some sort of action to take. if it is, then they'll have something to say about it and a way forward. It isn't great - of course it isn't but inaction is not an acceptable strategy. I'm sure he will come around to a decision based on some logic over the weekend. It is all very raw to him I expect and I doubt his head is "in a good place" at the moment.

Late

Or early as it is really Friday morning. I'm sort of sitting around in a state of light shock I suppose. Poor old dad is probably having a pretty torrid time and will do of course as he comes to terms with what he's been presented with this week. I see a lot of me in him but I'm not entirely like him but in some of the stubborn areas and needing a certain amount of order about things I'm exactly like him and getting more so each time I see him.

I'm not going to second guess what is going on and will wait it out until I hear what the results may be. I'll just have to deal with it the way I normally do I suppose - I've always been the rock steady non emotional one in the family and I suppose I've some experience in these things.

I felt that maybe I should drive up and see Dad but it's A's opening night of her first exhibition tomorrow and I really want to be there. A lot of her mates who've known this is going on have decided to go elsewhere for the weekend and I want to make sure she gets my full support. I'm not sure what I can actually do going to my parent's place this weekend and perhaps it may be better suited a little later on when we know what is happening and when I can do some good.

I was only whinging last week or the week before about how no one ever came and saw me when I was ill. In fact not once in 5 years has anyone bothered but I'll arrange to see them when they need me up there.

Thursday, July 21, 2011

Irony, it's ironic isn't it?

5 years ago this very day I was diagnosed with Cancer and today my dad goes home after them having discovered a tumour on his Pancreas. It's very small, you can hardly see it on the scan and so he is home now. He's obviously not feeling good about stuff at the moment and neither is my mum really but they'll hopefully be able to come to terms with this in the next day or two. I'm a good example of what they can do these days but dad sounded a bit defeatist but then I remember being very much like that until good old Mrs. F. told me to "Pull myself together!" :-)

They have a pow wow on Monday and he goes back in Wednesday (even though he says he isn't) for them to do an endescopy and to unblock things so he can get rid of the Jaundice (probably a stent). They also want a scan of his chest as well. I'm leaving him to rest and hope to speak to him over the weekend.

I hope he gets a bit of rest and has some time to think things over. I don't like tone I heard tonight but he's only just been told the news so I imagine it's like I was - hit by a truck!

Dignosed 5 years ago today

I knew by this time of day 5 years ago that I had Cancer and it was and wasn't a shock all at the same time. I knew that I'd need an operation and fast and I remember the stinging following the flexible cystoscopy which I realise now was due to the blood in my urine more than anything else and I guess that I'd never been scoped before. These days I'm an old hand at it having had in excess of 37 of these things shoved up my urethra.

So another milestone reached and in a way it's quite a bizarre coincidence that my father may be diagnosed today after his scan. I hope he hasn't to deal with the sort of shock I did those 5 years ago.

He has had a further scan or XRay this morning and so we hope to hear something today about what is wrong with him.

Something Else that Afffects Your Bladder

I never really got drugs - alcohol and cigarettes and cigars - yes but I never ever liked or even fancied a go at anything else.

Here is a sobering story - I hope you can catch the video here.

"A review into the horse tranquillizer ketamine by the Independent Scientific Committee on Drugs is to say that recreational use of the drug appears to be a growing problem.

Although it is not calling for ketamine to be reclassified, the committee is suggesting that the drug is wrongly classified as being less harmful than ecstasy and cannabis.

Ketamine is now the fourth most popular recreational drug in the UK and in extreme cases, use of it can lead to severe bladder damage.

The lad in the story/video had his bladder removed at 18 years old and replaced by a bag for around a year. The worse the symptoms got, the more he took the drug.

Goodness knows what problems will come along after that - if it hit your bladder it's bound to have an affect on kidneys and elsewhere.

Phew - yuk, ohhh, turned me over just listening to it. The stuff some people shove into themselves is just bizarre.

Christopher Francis is currently serving time in Ford Open Prison. Here he explains how his use of ketamine led to his bladder having to be removed."

Wednesday, July 20, 2011

All about Dad at the moment

The scan was inconclusive (it that's a real word) and apart from a possibly enlarged gall bladder - they cannot see anything. It looks as if the want to do another scan tomorrow and check the back of that area, no endoscope (for now) which I imagine will please him :-)

Doing well as are my mum and my brother and sister-in-law have stepped up to the plate too which is good. Spoke to mum and she is sort of OK about it and even Dad seems resigned to it now - he is a "little confused" but then he is 80 and has never been in a hospital before (as far as we know) and so it's all a little new and a little bit uncomfortable for him. I know I hate it and he is far more sensitive to this stuff than I am.

I'm a bit more relaxed about things now having had a very bad night on Monday I've managed to sort things out. Tonight my Nephew came along and took me out for a beer which was really nice. I haven't seen him for ages - he's been jetting between here, New York and Tampa for months but looks as if things have settled and he is back here for a while now.

A good chat with him and my business partner about dad has also helped me sort myself out. I feel a bit sorry that I may have burdened them but then again, they've both done that to me in the past and a year ago you may recollect I was pouring said nephew out of a bar in London and into a cab after a night on the town that I'd really like to forget.

Oh well - all is well and it's time for bed - dad is OK and tomorrow we may find out what's wrong with him. I pray it isn't what I worry that it is and that it is something a lot simpler to sort out. Let's hope so.

Good Spirits

Well - dad's in good spirits - laughing and joking with nurses and mum so that's good. I just spoke to her and she is all OK at the moment - or sounds it and they'll go off and see him. I've done the hospital check list for them and all is OK there. He awaits his scan later today.

He's not in pain and seems to be and feel fine which is good, not been losing weight or appetite. Mum says in 57 years she's known him this is the first time she's seen him give blood or been in a hospital. I'd say that's a result as I said to my kid brother - having been in 10 times in 5 years and perhaps more than 20 times in my life, I'd say he was overdue for a trip in.

Also found out that he's been looking a "bit yellow" for more than a week - typical bloke - don't go and speak to the Doc until he looks like a human banana!

I'm sort of feeling stressed for him as I know what he is like - hopefully though, as long as they aren't pulling him about too much he'll be OK - I doubt he will like the blood draws and he wasn't amused that he'd probably be in for 3 days (at least).

Well - let's see how he gets on and what they find - no good second guessing them.

Good Sleep

Unfortunately - my brother was trying to get me at midnight but I wasn't answering emails or text messages. Dad was taken in overnight to hospital on the Doctor's orders after they got the blood tests back and he had to wait until 11 pm to get a bed and sit around in A&E none of which I imagine would have helped his state of mind - he hates hospitals and doctors more than I do and if you felt reading my blog that I have high anxiety sometimes, spare a thought for him as he really does have the most awful time and gets very stressed out - bless him.

So the thing that kept me up on Monday night has happened and he is in hospital and I just know how much he hates it. He wants to go home but, frankly, he needs to have these tests run and they need to find out what it is. I have my own theory but I'll keep that to myself.

I might as well be a million miles away for all the help I can give - I suppose I'd better prepare myself to be able to drop into the car at a moment's notice and get up there. Luckily my brother lives locally and his wife is predisposed to running the folks about as mum no longer drives and the hospital is a fair old way away from them.

Will have to see what challenges are coming his way later on today or tomorrow I guess. I just know how much he will be stressed our by all of this and so I'm really beginning to feel for him.

Tuesday, July 19, 2011

See how tonight is

I feel dog tired right now and after writing this I'm going to see if I can get to bed early and catch up on all the sleep I deprived myself of yesterday.

I can't do anything about what is going to happen and neither can I second guess it either! To bed :-)

Bloods Done

No problems - they took a whole armful by the sounds of it - 5 phials worth and results on Friday - he feels fine so that's good I suppose. Obviously not knowing what's wrong is a problem but he will find out on Friday and I imagine they'll scan him soon after that. It depends what the X-Rays and Blood tests show I guess.

I feel a bit better myself hearing that he's OK and actually managed to have a blood test. No use worrying I tell myself and we won't know until Friday and neither will he so - no use pre-empting things. I hope not to be worrying about it tonight and get some sleep and no doubt I'll be tired from being awake half of last night.

Mind you - it is my Dad I'm talking about - and I've only got one....

Horrible Night's Sleep

I was worried about my dad and his blood test today - my kid brother reckons it's the first time he's ever had his blood taken but I somehow doubt that very much - I think I remember him having it done about 9 or 10 years ago. However Jaundice in old age isn't a great sign and of course all it did for me was remind me of the terrible time I had and just brought back my memories.

I don't think I'd ever want anyone to go through what I did least of all my folks. I'm young enough to have gone through a lot of it but at 80 I'm not sure I'd be quite so resilient.

So first of all I couldn't get to sleep and then as I was dropping off I was having visions of hospital beds, drips, end of life scenes, funeral - it was awful. Sometimes I wish I could turn my head off - it launches into huge leaps of fantasy and into places I don't want it to go. I tried to think of other things and all it did was bring back the terror (I use that word on reflection) of some of the early days I had when I was ill and facing the unknown and potentially the thought that goes through every cancer diagnosis (I guess) - I'm going to die. I'm going to die horribly and all the baggage that goes with that sort of mentality. Luckily Mrs. F. told me to "get a grip" early on and I did. So I was haunted by all that and have had a couple of hours sleep. I feel reasonably OK actually - I thought I'd feel worse. I can't do anything about it and it will be what it will be.

My poor old dad though hates hospitals and doctors more than I do and I can just imagine his stress levels going through the roof. I suppose I'll just have to wait and hear what is happening and I have my scheduled call with my mum tomorrow so no doubt she'll update me some more.

Monday, July 18, 2011

Not Good

Had an email from kid brother. Apparently Dad isn't well and looks a bit jaundiced. Has been for X-Ray today, Bloods tomorrow (that will please him NOT - he hates all of that). Then I believe he will have to go for a scan.

I'll find out a bit more tomorrow or Wednesday I guess. I have to say that I felt dread as soon as I saw that. I guess I'm always on edge about these things knowing what I know. Of course it can be a number of things. Let's hope that it isn't what I'm thinking it might be.

Weekend Off Blogging

And good job too. Not much to say other than the dreams of the last few days have been amazing - I can't remember any of them except crashing my car which looked great in full technicolour complete with Mrs. F. in full stereo surround sound saying "I told you so" :-)

I'm still into my FOCC diet but I've changed it slightly. I now use 4 Tablespoons of Cottage Cheese to 2 of Flax Seed Oil and 1.5 of ground Flax Seeds. I then add a probiotic yoghurt into it to give it some fruity sweetness and then pour that over crushed weet-a-bix or over Cheerios. I toned it down as it is quite filling and quite fattening and I wanted to give myself a regular shot of this without sticking the pounds on. I've lost half a stone in the past 3 weeks or so which is encouraging and I'm beginning to be able to stick to a diet without interruptions like a few weeks ago when I vistied my local curry house 3 times in one week and the pub 3 times too! Doh! I also decided against using the soft cheese quark as it was quite a tart flavour. Whilst the cottage cheese does have salt in it, it is about the only thing that I eat that does and the falling off a cliff that my blood pressure measurements kind of tell me that salt, which I gave up years ago, isn't having the blood pressure issues I felt it might do. Long may that continue.

Work is getting a real pace on now - a few difficult days this week will see us on the home stretch - we have some serious figure work to resolve and some of the calculations aren't making sense to us. Once they are done the cork is out of the bottle because we've done most of the work.

Friday, July 15, 2011

What a Week it has been

I've worked pretty hard and I'm pleased with this week's work. Had a funny old evening on Tuesday and a bit of a wobble what with the chap with terminal bladder cancer all because he didn't go when he first got the symptoms. Then the anger when it came out in conversation that none of my immediate family had actually ventured down to see me in the 5 years I've been ill. I've made the pilgrimage to them when I can.

I'm sort of over that now but realised that there's a number of "demons" that I need to exorcise now that the 5 years are here. Not like "getting my own back" that isn't what I mean - it's more a case of getting angry about them and then moving on. I'm not planning to dwell on anything too long either as it's happened and it's in the past. What I need to do is get the monkey off my back and move on - I don't actually think I need to understand it or why it happened.

Looking forward, I'm pretty much happy that we have gone as far as we can with the business for now and that it needs to be tidied up and thrown out to see if anyone else believes what we do. This is not going to be easy - great idea that it is, it requires a sack load of cash to achieve it. If we go ahead it will be another huge change in my life but one that I will relish. The trouble would be how much time and commitment it will take to build the business but, then again, whilst I'm doing that I can't dwell on other stuff :-)

Productive Week

I have just finished a series of documents - the last one is close to 400 pages (yes 400). It surprised me as I've been building it for the past 4 years and it relates to all the sources of information that I've used to build the business and so it represents the provenance of how the business has been built this way.

It's 3:20 pm and my business partner has been lucky enough to go to the Open Golf this afternoon which I'm sure he'll love - I remember it being just amazing to watch the best golfers in the world thumping their way around Sandwich. I used to work there as well once upon a time - Sandwich not Royal St. George's :-) Pfizer had their huge place there until recently when they closed it with the loss of 3,500 jobs :-(

I think as he has gone there and I've finished 3 huge documents this week that I can take the afternoon off and go and watch the remainder of the day's golf.

Wednesday, July 13, 2011

Gosh - I was tired this evening

Have been thrashing away at a document for 3 (yes three) days and finally finished it. It was very detailed and needed a lot of concentration to ensure I'd got it all properly listed. Phew :-) I decided to tackle the most difficult jobs first and then work towards the easier ones - that way I'll get the boring and tiresome stuff out the way first and accelerate towards the finish post on the more enjoyable bits.

All that hard work made me feel pretty tired I can tell you. So I'd better get off to bed and be up ready to get on to the next area in the morning.

Sad News

My friend last night was telling me that his friend has been diagnosed with metastatic Bladder Cancer. He had blood in his urine and ignored it and continued to do so for some time. That's sad, really sad as I imagine if he had seen a Doctor straight away then it may have been a different story.

This has finally fixed in my mind something that I've known about for a long time. I'm extremely lucky to be here today and there is no doubt about that. I'd left it a few weeks but I wasn't absolutely sure what I had.

If you have blood in your urine or it is a strange colour - go to the doctor straight away because you are a long time dead! This poor guy has been given 6 months. I imagine there's a fair amount of "what if?" going on. I can't imagine what he is going through with this - it doesn't bear me thinking about but it does scream at me that early detection is the way forward.

A bit angry last night

I was a bit angry last night - unusual for me. I intend to get over that in the coming days and move on. It's been gnawing away at me for a while and I wonder what it would take before I could get my immediate family to come and see me. Probably I'd have to be on my death bed - and I'm not kidding either.

So I think I'll be a little bit seething for a while - I haven't "addressed it" until now preferring to think of it as an idiosyncrasy that my immediate family have - it's like allowing them their eccentricities and smiling about it but in reality, that's not it. I'll not be able to change them they are far too entrenched to change and in reality I am a million miles away from them now. It's sad but it's not one of those family feuds - we speak regularly a couple of times a week at least.

So there you go - I'll just have to move on and pull another monkey off of my shoulder.

Tuesday, July 12, 2011

Feeling a little bit bitter

Now forgive me for this, especially those of you who know me but, I was out tonight with my school chums. It's a lovely evening out and it is a strange evening as it dips back into our youth - when we were 10 or 11 years old and moves with some speed between then and now. My three friends have all lost their fathers and one has a mother who is not very well at all. We are all 54 (ish) years old.

We grew up together and I had a great dream about us all a few nights ago cycling and making dams and being crazy kids during our summer holidays - around the corner from here - in Sparrow's Wood. All summer we were out of the house, on our bikes, at the Lido, just out all the time - the sun always shone and we always got into and out of scrapes and just had the most wonderful adventures. There were no creepy people, no paedophiles, no drug lords and all that sort of shit. We just went around catching frogs, damming rivers (well streams really), riding bikes at break neck speed, leaping around the playground swings and slides and getting a great tan! I look back and think what a great time we had, no mobile phones, PCs, iPods, MP3 players, Sony Play-stations blah-de-blah......

I was so happy tonight - my friends and I drank my health - we remembered my friend's dad died at the time I was ill... Sad enough that I couldn't attend but all is forgiven especially as they now know how ill I actually was. 5 years...

But things got a little sadder because I recollect that on my birthday (and my friend and I shared as you may recall - our 50th in 2007) no one from my immediate family came. My Aunts and Uncles did and my cousins but not my parents and not my brother and his family. I wondered about this - I know my Mum would cut off her arm or leg to come but she was bound not to come along. I find it now with my daughter's birthdays. None of my immediate family have come to A's 21st or L's 18th but my wider family have and for that I am very grateful. My mother is truly mortified by this - I know that as I speak to her. My kid brother has always been a self centred person who has taken much but given back little.

My family, such as it is, is spread over a large geography and I don't expect anyone not local to be able to turn up - I couldn't get over to the US or NZ without lots of planning but you'd have thought, given 6 months notice your local blood could have? I mean 2 hours drive FFS!!!

I suppose that I must acknowledge that I am different to most of my family in that I would put myself out and go (even if it isn't my 'scene' to be there and make the 'best of it'). I could see the hurt in my friend's eyes tonight when one of them asked me why my parents and my brother weren't there at my 50th considering the shit year I'd had recovering from Cancer?

I write this as it arrived in conversation tonight - until I got home it hadn't really struck home what they said but you'd have to ask yourself why your parents didn't make the effort? As I said before - my Mum's not happy about it at all and I can hear it and I don't make a fuss about it. The thing is - and it does nag - what does it say about what my folks think about me that since I was diagnosed - no one has ever come down to see me at my home and my locality. I've always had to drive up to see them?

I'm living with it - well I've had to live with it. But only now 5 years on is it coming home to me that no one even came to see me when I was in Hospital or Recovering or did they put themselves out to do so. I had friends fly over to the UK to see me. Now you may see why I feel a little bitter about this. I mean I could have turned up my toes and died - I wonder if they'd have even come down to my funeral if I had?

Bitter? You bet, my friends and brethren from the Lodges I'm in have been top class as have my extended family but my kith and kin - perhaps through the horrible shock and trauma I have delivered at their door, perhaps not so. I can't be that pissed off as they are my family and I love them dearly but - sometimes you have to wonder....

As for my own little family unit - I am surprised that they have put up with me. I really am strengthened by A and L who have their mother's pragmatism and - I like to think - my sense of humour. We've had some good holidays since I was diagnosed and the girls really work hard and are rewarded in results from School and University. They have a good work ethic and are both socially responsible - giving to their community as youth leaders, I cannot want for a better family unit. I just feel that when I said I'd lost friends along the way that I'd also lost some of my family too. I don't blame them nor will it be a wall driven between us - that isn't fair either - I just find it hurtful that I defend my family's non-show all the time.

Sometimes I feel that getting Bladder Cancer made me but just f**ked up the rest of my life. I lost and made friends. I got great insights and lost other vectors on life. I became a better and a worse person all at the same time dependent upon how you knew me. I became humble and passive where before I may have been aggressive and assertive. If you knew me as one of those I probably became the other. This was my survival mode - I needed to be the way I was to survive and beat this pernicious disease that was coming to kill me. It was as if a nasty dream was being realised in real time, some scroat with a gun coming to kill me. How was I to react? Lay over and die? you don't know me then if you think I'd do that - I'd fight and I spoke like I was fighting and came out of my corner all aggressive - against my disease - not against my friends and family! Those who haven't had cancer don't get that. If you wish to live you fight you scramble, you claw, scratch and bite - live is worth hanging onto and sometimes - sod your friends and family because it's all about YOU - you need to survive you need to live - it's all about you and it's all about survival.

Well I'm going around in circles and not answering my own questions and statements - I'm so confused as I don't "get it". I don't understand why my immediate family are so distant - maybe they thought I'd die - maybe that would be OK for them. My poor old Mum who I speak to all the time is taking so much sh1t it isn't true probably would come see me at the drop of a hat but she is bound to my father and the local family. Honour :-)

It cuts me to the bone and yet I have so many good friends who spoil me and always wish me well - I just wish that my family would do something - I feel that they'd praise me to the rafters when I was dead. They just have no idea how to deal with me when I'm alive.

This is one of my rambling on blogs - I apologies to you for that. It's what it is like though - I remember watching the film Philadelphia with Tom Hanks - the one where he had Aids - it was tremendously powerful and portrayed the bigotry that a Gay Man suffered way back then. It is somewhat similar in tha cancer world - there's me - little miracle - still alive - no one understands that - as survivors - it is far more likely you'll meet people like me now - survivors and - wow - you can even talk to us too.

A joke from years ago:

A chap was driving along when he got a flat tyre. Stopping outside the mental institute he proceeds to take off the wheel nuts - putting them in the hub cap so as not to lose them. He takes off the flat tyre and brings the new one from the boot. He knocks the hub cap and the nuts roll down a drain and are lost. The driver is full of woe and holding his head wondering what to do.

An inmate suggests that the driver takes one nut off the remaining three wheels and drives to the local garage - obtains 4 more nuts and adds one to each wheel and he can be on his way. The driver is amazed and asks "how come you can think of that when my mind was a blank and work out that sort of logic when you are incarcerated here?"

The inmate looks at the driver, looks to the sky and says "look here my good man. We are mentally unstable not stupid!"

May I say I know just how he feels. I really love my kids - I'd be mortified if anything happens to them and I'd be there if anything happened. In the 5 years that I've been ill - I have had to be there for my folks - they've never got off their arses and come and seen me. It's all arse about face - for God's sake I was the one who was ill...

By The Way (BTW) it's great having Cancer because you can be really aggressively angry and everyone let's you :-) Let's go for it then shall we?

5 years I've been ill. I've been unable to drive my car, I've had 10% of my working life recovering from shit! I've had pipes shoved up my penis I've had all sorts of stuff happen that you would hate and not once have my parents or my sibling got off their bums and driven the 100 or 120 miles south to see me. NOT ONCE in 5 years. Angry? of course I'm bloody angry.

If I was your child/sibling would you have come and seen me once in all that time? Just once. They've never ever come and seen me. I suppose I should be beside myself but, as they are my "flesh and blood" and that I share the same genetic sh1t as they do I actually understand them - I don't get off my arse and do stuff sometimes - being a lazy git =- however, if my brother had of had this I'd have been up there offering to do driving and whatever his family needed. That is where we differ so much.

Bitter? Yes and No. I am and I'm not - I lived with these guys all of my formative years so I know what they are like. I look back and I'm just amazed that the only person who took any of this seriously is me!

Nuff said!

Monday, July 11, 2011

Seve

I missed the tribute to Severiano "Seve" Ballesteros Sota and so watched it on the BBC iPlayer this evening. He was a wonderful golfer as I'm sure you are aware and his fight with Brain Cancer played out in a programme not so long ago.

He was just a few months older than me. That brought me up short. Just a few months older. Somehow I never see myself as being that old - I mean 54 is no age to die is it?

The affect such things have on me isn't one of sadness or luck but it does make me consider how fortunate I am. His words were something along the lines of "don't feel sorry for me - I have had a wonderful life and had so much - many people are worse off than I am." That's the measure of the man and it was sad to see him in his latter days. However, you can't take away the enjoyment he gave to millions of fans around the world.

Sunday, July 10, 2011

Sunday

Up late - spoken to the folks - decided that FOCC can wait until lunchtime and had some bacon, eggs and mushrooms as a treat and very nice too - forbidden stuff but tastes just great :-)

On the FOCC side I have no taken to adding my pro-biotic yoghurt into the FOCC mixture to dilute it before putting the whole mixture over some cereal. This makes it a little sweeter and adds a light fruit flavour to the mixture and that really makes a big improvement over just releasing the thickness with milk.

Today is a sports fest - the delayed Scottish Open is under way (I think) it will be a full on day as they have to complete Friday's second rounds - they've had localised flooding, landslips and all sorts to contend with. It is Davis Cup Tennis, Tour de France and Silverstone Grand Prix and if that wasn't enough there is Super Bikes on too plus GP2 and Porsche Super Cup. I feel a sit on my arse day coming up :-)

On the good news front A has sold one of her photographs (she's already sold some of her stunning painted chairs). Finally the photo of Brighton Pier has sold - I think it was a £50 one and there had always been a lot of interest in it. I'm sure Brighton Pier has many photos taken of it but she captured the complexity and beauty of the construction it looks as if it is a black and white shot when in reality, when you look closer it is a colour one. That's why photographers are different to most of us they have an eye for showing us something we didn't see when we looked at an object. Her exhibition work is packed up ready to go - it is interesting as she has spent quite a bit of money on the frames which are double sided glass so that you can see the work behind the photograph (these are the photos that have needlework on them). It is all encouraging stuff for her as an artist - I'm really pleased for her - she works so hard that she deserves to be rewarded and perhaps she can make a few more sales... She'll be able to keep her poor old ageing dad in his dotage :-)

Sometimes you just can't make it up

So L wants to sell her iPod and we put it on eBay and get a reasonable price for it and send it off. Punter drops us a line saying it doesn't work. We write back suggesting that it may need rebooting and that you don't push hard on the controls they need a light touch and also that you have to be a bit careful that you are pushing in the right area.

We get a half hearted apology back saying that he's bought it for his 5 year old who can't operate it and so wants a refund - which we arranged today and got the goods back. How on earth can a 5 year old operate something that is lightly touch sensitive and surely to goodness they aren't going to have the patience required or the good sense to look after it properly! Good grief. I hated doing eBay trading as so many people just didn't play by the rules or did things like this. We won't sell it again now as we can't be arsed frankly. Who wants to deal with idiots like that?

It is very good that I don't say what I think to these people :-)

Saturday, July 09, 2011

Back Ache

Completely gone and normal service is resumed. A good day yesterday and lots of progress on the business front. Now to just buckle down and sort the business plan out.

As usual though I'm sat at my computer and really shouldn't be. I also realise that I should also be doing some other non business work too but have left it sitting in a pile by my desk - oooppps.

The fun of it all :-) Anyway a good day - Silverstone Grand Prix today and tomorrow so will look forward to that and try not to be computer bound all weekend.