I got a call from someone I have known for some time who didn't know that I had Bladder Cancer, but knew there was something wrong and that I had had treatment.
The call went along the lines that they were diagnosed in 2001, had the operation and have had the BCG treatment and are in fact in part 2 of 3 of their treatment at the moment. They are on their 6 month maintenance regime and everything is going well. The odd bad reaction to the treatment but other than that everything is fine.
I cannot tell you quite how upbeat that has made me feel, there is someone out there who has the same thing as I do, is a few years in advance of me, looks well and is recovering and I can speak to them. Wow, I hope that the tests in March are good.
Good news stories are hard to come by as you always tend to hear either the miracles or you hear the awful stories. Generally the 5 year mortality on BC is 70/80% or better and so I am hoping that I have responded to the treatment.
It really is good to have someone to talk to who has gone through all of this. Some people may look strangely and say "What, you have to carry that on for all those years?" The answer is easy really, the alternatives to not having treatment and the speed at which this could get you if left unchecked and untreated are not worth thinking about; 3 or 6 treatments of BCG a year may sound unpleasant but I'd rather have those than just let the Cancer loose in my body.
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