Sunday, June 03, 2007

Knowing what to expect

I actually find that OK now. After I had the hypnotherapy I have a different attitude to this. I know that it isn't going to be pleasant but at the same time, look how different it is to the last time. This is going to help me get rid of this and there is no letting up on what is to be done.

The last time I had CIS - which is Grade III - serious stuff indeed. It is a very aggressive form of cancer! So given that - and the BCG wiped that out, then this lot of treatment is going to reinforce that. Some may question why you need it but this lot of treatment is working on stripping the bladder lining and growing a new one, this time without the malignant cells and without any other malignancy or premalignancy in there.

I'm fitter both physically and mentally than I was 5/6 months ago and so I am hoping to be able to cope better with this. Last time I didn't drive for 6 weeks. I'm not looking forward to the blood and gore bits (who is) but that means that the BCG is doing its job.

Getting back to a work routine

Is going to be difficult as I start whilst having the treatment so I am going to have to work around that and to be able to produce the right sorts of results.

My induction training starts on Wednesday but first we are off to a Partner Presentation at the Millennium Stadium in Wales (nice). Then off to Shrewsbury and then onto Warrington to do the induction training.

I'm going to have to play Tuesdays by ear as they'd like me to be at the Reading Office. I'm not sure that I'll really be able to do that as the morning after is when you either get up and feel OK or you lie in a heap. I've a feeling that this time I'll get the next level of side effects. They say that the effects are cumulative - I expect that the first one will be OK and it will be the 2nd one again that flattens me. We shall see, it starts tomorrow. As usual the work I was expected to do last week hasn't arrived and somehow I will need to fit that in as well. I'm not too worried about that, I can sort that out and I can invoice for it so it will keep money turning over in the business until the money flows from the work I am doing now.

So this coming week it isn't going to be too much like work but the week after, once I have had my induction training I'll need to get back to the disciplines of getting up at a certain time and structuring my working day. It should be a bit of a laugh at least.

Saturday, June 02, 2007

That was a good day out

I dropped the family off at the coast and went and did a couple of hours work then picked them up again and then we went to one of these large designer outlets and spent some hard earned on some clothes for the cruise. We needed some jackets that convert from being fleece lined and waterproof to just waterproof. They are nice I have to say, warm as you like. That should keep off the sea breezes and enable us to get on to the glaciers and be ready for wind, sun, wet, cold etc.

A very nice day and next time - perhaps they'll remember to take some sun cream! It was also nice to take the Jag out for a decent run! Poor old car hasn't had a long run since January went I went to get my redundancy notice!

Sun is shining

A nice day out there - we are off to the coast and I'm off to see the new boss. We might as well combine the two as he lives near the sea.

Over the last few days I've noticed that it has been a turning point in my outlook and the whole family. Everyone seems to be just that little bit happier. Great - long may that continue.

Friday, June 01, 2007

By Heck

I've lost some weight! You only notice when you get to do things like put a suit, shirt and tie on.

I am in a notch on my formal belt and that is comfortable - my trousers are almost too big now. Shirt - no problem doing the collar up this time - I could even get my finger between the collar and my skin - and my waistcoat was loose and my jacket feels big as well. Now I only wore these a month ago and they were tight as you like then so I reckon that I've lost at least 1/2" round my neck and an 1" or more perhaps around my waist. The Doc said he thought I looked a lot fitter and had lost some weight. A quick glance at my chart shows that I've lost about 2.5 Kg in the month which is about 5 1/2 Lb.

Excellent. I am pleased about that - you don't notice when you wear casual clothes as they are baggy anyway, stick on a suit and tie and suddenly you are pulling your belt in and all sorts.

I appear to have lost the flabby areas around my waist, around my neck and just below my arms. Well that was an unexpected surprise - I am pleased.

Another meeting this afternoon

I am going to our Provincial Meeting for the Royal Arch or Chapter this afternoon. I'm getting promoted and so will be part of the meeting but I won't be actually doing anything like carrying a sword or anything like that so I can relax and enjoy myself.

Tomorrow I have to drive down to the coast to meet the new boss so I'll be taking it easy tonight.

Melancholy

The strangest feelings overnight and this morning. I'm not downright sad and I'm not unhappy either. I just feel slightly sad, as if I am leaving somewhere and knowing that perhaps I won't be back there again. It really is quite peculiar.

Perhaps it is apprehension for the job and what I'll have to do? Maybe it is because I've now drawn a line under all that has gone before? Perhaps revealing who I am on the blog? It is bound to be something deep in my subconscious and it was as if a switch had been clicked it was that sudden. Maybe the next step in medication and realising that I'm on these pills for life. Perhaps it is the utter relief that all of the worries are now in the past, the cancer's gone, the insurance is settled and I'm employed again?

I've heard of the "wave of relief" perhaps this is what it is. The bad times are gone and in a strange way you kind of miss them being there. The realisation that the things that were constantly on your mind no longer need to be there. The acceptance that these things played on your mind far more than you thought they did. The pressure and stress you heap on yourself are also there and the person you portray to the outside world is no longer false - you can stop being the actor and be really cheerful now.

Well that is deep and meaningful enough for a Friday I think.

Profile Information

I've published my profile "about me" information now. You can see that off to the right hand side of the blog.

I decided that I wouldn't do that originally in case something prejudiced the goings on with the insurance and of course the employment situation. As you may realise, there was a lot of doubt about that and if somehow things hadn't worked out then perhaps I'd have needed to work on that without the blog being part of the complication. I also felt that I didn't want everyone to know until I had told them myself. With the job front there may have been cause for some sort of tribunal and again I didn't want anything messing that up either.

So now - you know who I am and thanks to everyone who assisted me keeping it that way.

Thursday, May 31, 2007

A bit disappointed really

It is soon to be my 50th Birthday and we are having a bash or a party. My relatives are coming but not my parents (they don't like that sort of thing - it is a bit far and we will do something else) but my brother and his family (I only have 1 brother) isn't making the journey down. OK they will be down a week or two before and bring my parents for a nice meal.

I do feel a bit disappointed though that some of my cousins are coming from a lot further to the party and my kid brother isn't.

The excitement is building

This new venture is beginning to get more and more interesting. I'm actually going to go and see the head man on Saturday and drive down to meet him. There is work that I need to do on the Project Management side that no one else ought to be doing as we get ready for launch.

How exciting is this? Well I think it has the potential of Google or Skype or PayPal perhaps. This is the only working system I have seen that doesn't cost the earth and that businesses can subscribe to without breaking the bank. I can't say more for the moment until after next week but the market is global - the trouble is controlling the growth rather than anything else. Get the growth right and it is years ahead of anything else out in the market.

Bit of a dilemma

I need to get some travel insurance and then thought well I ought to mention that I have bladder cancer and - well - actually I don't have it at the moment and I'm under treatment so that it doesn't come back. But it could do, so where does that leave me? It is all a bit strange isn't it. Also, even if I should get the symptoms again whilst we are away - there is little that anyone can do and it isn't something that you get sudden relapses or anything else strange happen to you. As I said before - you wouldn't even know unless I told you.

So I shall have some fun asking the insurance companies what (if any) changes they need to make to my policy.

Some will, I have no doubt whack their fees up and I'm sure that the more notable ones will hardly need to bother.

Watch this space.

Preventative Medicine

The meeting with the Doc went well. We were both pleased about the results of the biopsies and also the Blood Pressure readings and the weight loss.

He is a bit concerned over the damage to my Kidneys (not much not significant) and also that some of the readings are getting towards the wrong end of where they should be etc. Most stuff is normal and also pre-diabetic stuff is backed away from those figures. There may still be a glucose intolerance but for the moment the figures do not show that.

Upshot is that there are more tablets - great - I hate any medicines - long story I will share with you one day. Anyway, I have to have these Statins for cholesterol and the like - even though my readings are good and within guidelines he would like to get them to really good.

My Blood Pressure tablets stay as they are and so that is under control - I am glad about that.

He wants me to have aspirin but is writing to my Consultant to make sure that it will not affect what she is doing - he doesn't want something with the potential side effects of aspirin (bleeding) to mess up the work done so far.

Oh and a blood test in a month and then give him a call. At least it isn't a fasting blood test this time. Doesn't matter I still don't like them. Nor did I like the "keep monitoring your reaction" over the next few months.

The biggest upset of the lot? I can no longer have Grapefruit juice or the Grapefuit fruit. That is one of my favourite things. Edited - I said fruit and I meant Grapefruit oops - one missing word and it means something entirely different!

The post arrived

And the cheques were there today. I joked with the wife saying that - that's the sort of money you'd expect if I'd have died. Mmm, she wasn't overly impressed with that sort of humour. Perhaps I should be Darth Vader - I mean I've always been on the Dark Side?

Right - I must away loads to do, little time to achieve it in and let's hope the Doctor is gentle with me today. I certainly don't want to be doing with anymore blood tests and all that malarkey for a while at least.

Back to see the Doc today

Hopefully it will be for a chat and where do we go next. Problems are that I am out tomorrow and next week treatment starts, job starts and so on. I need to chat to him about things like frequency of BP readings and on lifestyle changes made and continuing those on.

I am hoping I just get a "go away" for 3 months :-) We will see I have to go later this morning.

Wednesday, May 30, 2007

Change - Life's only constant

I find myself today breaking free of the routine of the last 10 months and having to restyle my life around work, keeping fit, home and hobbies. My exercise routine needs to be changed to be at a different time of day rather than anything else.

I could indulge myself with 30 or 40 minutes of exercising, then relax and then go and have a shower and easily I'd have eaten up 2 hours of my day. Leisurely breakfasts and not really having to rush and tear about, eating meals at set times, watching the same shows at the same time each day - routine.

I've got to get out of that routine and change. I take my blood pressure every morning and evening and I won't be able to do that so I think I ought to change that to weekly now. I'm seeing the Doctor later this week and I hope that he will agree. I have 6 weeks or more BP readings and everything looks reasonably steady although I think he wants my BP to be a little lower still. The upcoming treatment will mean that we may have to hold fire on that.

Again, the treatment will necessitate a certain amount of routine. The Mondays are always a series of routines and rituals.

It is going to be interesting moving away from the comfort of routine to the organised chaos that is to come in this job. Like many things - humans aren't great at changing especially where that change takes you out of your comfort zone and somewhere a little beyond.

Vacation / Holiday

Well I went and booked it this morning.

A family holiday and an unusual one. Off on a cruise to see the Faroe Islands, Iceland and Norway. I have always fancied Norway and when the girls thought that Iceland would be cool (I had to get that one in somewhere) we found this cruise that takes in both.

I've never been on a cruise before but it looks to be really interesting. We leave after my party and we arrive back before the next party - most of my friends are either 50 or 60 this year!

I am looking forward to getting away so much.

Insurance clarity

I ought to make it clear about the Insurance. It is something I took out myself against getting a critical illness and not something attached to the NHS or anything like that. It was a conscious decision to cover the family should anything happen to me. The facts are these days, as I suppose I have just proved, that you are more likely to survive a critical illness than in the past and that an ordinary life insurance wouldn't do anyone any good if I survived.

So the way we set this up was to have individual Critical Illness covers (husband and wife) and also life insurances first death paid out the other. This covers all that stuff. We haven't had medical insurance since I worked as an employee back in the early 90s. I was just about to get Medical Insurance when I was diagnosed - how ironic is that :-) However, I probably wouldn't have got seen or operated on so quick anyway.

So - Having said all that - it means that the house can be paid off and that I can go and do this new riskier venture (if I don't do it now and take a risk - then what I've learnt about myself in the past 9 months would be betrayed) and more than that - it is going to help get family life stable again. By that I mean, the knock you take as an individual is bigger than you think. Your confidence and your self belief are rock bottom, you don't feel good about yourself or your body, you know there is something wrong with you, you can't see it and it can kill you. Disturbing. Now imagine what it does to your family - whether they can take in the enormity of it or not?

The family gets whacked sideways as well and whilst money isn't the answer it will enable me to do a few things like have a really good family holiday - it may be one of the last together as the oldest is 17 now anyway. It means that I don't need to worry that I lost my job and I don't need to worry about paying the bills if I did lose my job. It means that we can have a party (my 50th coming soon) and not to worry about the little add-ons that will make it memorable. It's a security blanket because it isn't over yet but from now on, no one needs to worry about the expense of being ill, getting treated and wondering where the next penny is going to come from.

When I said it was a weight off my mind - perhaps you can see that it steadies the ship, it removes uncertainty and it allows us to remove pressures of the mortgage - once that is gone, the house is ours. It means that I don't need that mundane "steady" job I can go for the excitement and risk of this new one. If that falls apart, I can say I gave it my best shot and then return to what I am doing now and it would allow me to setup a business that I would want to run not the one I run at the moment if that happened as well if I wanted.

University beckons for the oldest - that is no longer a worry financially.

Anyway - you get the picture - it isn't Rockefeller money nor is it enough that I don't have to work and it certainly wouldn't work as a Pension but it just eases everything.

Whilst I never really wanted the thing to have paid out at all - I am glad that we went down the route of taking it out.

Getting away from the subject of the blog

Will happen. I just realised this as I was on another forum specifically about Bladder Cancer - The Bladder Cancer Web Cafe which is a great site - there is a link on the right hand side of this blog.

I've arrived at that part of the journey now where, I'm beginning to get my life back and I'm beginning to see that I can control how much I should be concentrating on each aspect. Sure, the weight of the disease was lifted - what - two weeks ago today and then the insurance finally stated that I did meet the requirements and we were never certain we would. You see CIS (Carcinoma in Situ) is written out in the policy - even though it is pretty nasty in bladder cancer terms as it happens. What was in was that there was a malignant tumour. So that is a weight off my shoulders and then, almost at the same time, I've got the job. The job really was reliant on the insurance money though as I do need to finance my entry into the business.

So three things all happening together and I can make plans, work around treatments and know that I can finally begin to get my life back.

That is why, for the first time in 10 months that I can actually start to think about other things and fill this blog with the ordinary things that are happening which should instill to anyone who has just been diagnosed that things do improve and that you do come out of the dark places and back into the light and that you can hope for better days than you have now.

Hope - if you have just been diagnosed - things do get better - it is time and how you and your head deal with it.

Tuesday, May 29, 2007

Don't you hate it when

Your browser crashes just after you filled in page 4 of 5 of the details you need to book your holiday? What a pain. Not only does it crash but it loses all the other sites you are connected to. Thanks Microsoft IE7 no wonder i normally use Opera Browser.

It is a flaming nuisance as I have now spent another 20 minutes getting through all the pages and re-entering the data again.

Technology can sometimes drive you mad.

A half reasonable result today

We managed to clear out huge tracks of the office rubbish and my desk certainly looks more organised. There is still a way to go as there are 5 or 6 projects that are awaiting something being done on each. These are in neat piles now. I am being far more ruthless than I ever thought I would be. My engineering magazines (had them for more than ten years) my PC magazines (at least 10 years as well) have all been dumped. All the old instruction books and old software also need to go - no one wants them anymore and they will not run on today's machines anyway.

All my old Open University notes, files, tutorials, assignments and also my Maths Foundation stuff are also in the recycling bin. You just keep so much stuff that is of no use to anyone anymore. I did find tow or three sheets that I did keep but they are relevant to something I am doing now. The rest has gone to three large sacks for recycling.

Finally I also cleared out my Computer Case. I keep spares - Operating Systems, Modems, Network cards etc. I've thrown away stuff that will never get used again and boxed up some stuff that I may need. But again, I've been ruthless with that - I mean - who uses a modem anymore and 3 1/2" disks - what are they??

I've seen the holiday I want to go on and the family have given "outline consent" so I think I'll go for that tomorrow. If it is available (and the first one wasn't) we can go just after my 50th Birthday party and go on a cruise. Anyway, more when I know about that. I've often fancied trying one out and this looks just the tonic and takes in a bit for everyone. At least that is the plan.

The job starts next week and I'm getting myself frantically up to speed on that. I'm certain that I can bring some really good values to the business and that I can help in a number of positive ways. To that end I have got some added responsibility already which I picked up details of today.