Monday, May 12, 2008

Strange sensation day

Well bits of my anatomy are coming back to life and I remember this now from last time. It isn't painful it is just the strangest tingling sensation as if you have pins and needles inside your body. It is as if all the bruises are coming out and all the pipes settling themselves back into their original position before the solid tube was shoved in them :-(

I have been sat down at my desk for an hour and I can really feel it now. How utterly bizarre.

Anyway, I decided not to try and go to work even part of the day tomorrow. I've just seen the time too and I should have rung in but I will do that tomorrow. It is a friend's fathers funeral tomorrow - if I can get someone to drive then I'll go, I'm not to drive until the earliest this coming weekend.

Retrospective

It seems hardly possible that this is my 5th operation in 22 months! It hardly seems possible that in that short space of time I could have gone through all of this. It really is a strange journey and it is something that rules my days and governs my life and actions although I am pleased to say not in the way I thought it might have done.

Along the way, the additional health scares - real and imaginary and the lifestyle changes I have consciously made, together with the job from hell have all added to an interesting and action packed time.

Looking back the very best that could have been an outcome for me was to be where I am now - on maintenance, no recurrence and still having a bladder and being able to use it. The worst was death and in between there were other various options In a way thank goodness it was Bladder Cancer which is very treatable.

I look back and realise quite how traumatic a time I've actually had these past 22 months. I've tried to say it as it is, both mentally and physically, in this blog. The dark and nasty black dog days are very few and far between now and emotionally I am under much better check now. I like the fact that I have managed to see the funny side and to remain overall positive about the outlook and the treatment and the eventual outcome. Would I cope with a set back? Probably although to have come this far along the line to be set back would be a big disappointment.

I couldn't have foreseen the eventual outcome on the work front would be where I am now but the change in direction, the job satisfaction and the less stressful nature of that work have allowed me to refocus and reassess what I was doing, perhaps how I was damaging myself and now, I can have one less worry in life. I really fancied having a bundle of money to retire with in a few years to allow me to go off and do my own thing but that isn't to be and whilst it would be nice - I actually think I'd prefer my mental and physical health to be intact.

What else? People. People are great, I have friends who keep in touch via my e-mail, phone call, SMS and it was lovely to get notes dropped over. Some people have disappeared - not many - but they are coming back now. I understand that - I'm probably as guilty of that as anyone.

I was surprised that I didn't get to do lots of things I thought that I'd want to do. Life carried on in many ways and whilst we pushed the boat out with a Cruise last year, I haven't gone and done or reacted to this in a way that perhaps is portrayed as the way you should? I haven't planned to climb Mount Everest, run a marathon or travel around. I'd love to go to the Monaco Grand Prix but there is still time to do that. I haven' felt inclined to do any of these things and if anything I actually hold myself back from them rather than doing them.

I've appeared to have lost or just not got back to my old well organised self. Tings are getting slowly back to normal but I am nowhere near as organised as I used to be and it takes me ages to get things done and I spend ages doing not a lot at all really.

I've noticed that I am far more tolerant and far more empathetic these days, I enjoy my family more than I did before, I probably appreciate acts of kindness and notice them where I may no have before. My compassionate side is markedly more in evidence now, I was never an emotional sort excepting that I was often passionate about things I believed in. So even now I can get quite distressed when reading some of the cases I have to write about at the Charity. I have a very low tolerance level for trite, shallow and vacuous things. Soap Operas, Quiz Shows, Talent Shows and fly on the wall stuff, most journalism (well asking the bleeding obvious) drives me to distraction and I cannot believe that today's world is full of people who I don't know who are called celebrities who are asked to comment on lots of things they know nothing about and who people appear to take as gospel. It is a funny old world. Meanwhile in Burma all sorts of tragedies are about to unfold but we want to know what some football star who earns millions of pounds a year thinks about the state of Jeans as a fashions statement? Mind you - it could be me. I don't mind sport and entertainment but don't feed it to me as news or some sort of informed opinion.

So perhaps all this has brought out the extremes in me - maybe I am far more emotional, more opinionated, certainly more outgoing than I used to be (although I do have my long quiet moments too).

Whatever, I am glad to be here after 22 months and to be able to put down my thoughts and to be able to be going in the direction I am. So far, each set of tests has moved things on in the right direction and I still think that I am not taking it seriously. But then the chap in the bed opposite me had a Kidney removed and that looked serious to me. I thought to myself that I had got off lightly. To have Cancer is very frightening and to have to go through the operations, the tests, the treatments and so on isn't what you'd like. Normal people, shudder when they hear what is done to me and I think it is normal to have those things done. I thought these things were horrible but when needs must and you have to have it done, it becomes a matter of routine. The mind has wonderful ways of making this acceptable to you. I get told that I am "keeping up the fight" and other such cliches and I don't think I am. Of course it is life threatening and nasty but you mustn't look at it that way. The down side of this is that you forget that occasionally you DO need to take things easy and that you do need to recover and so on. Invariably, as I convince myself that I am alright I do forget these things and so need to remember going forward that your health is everything and that it is better to take an extra day off here and there than to try and return too early to work etc.

So, a bit longer than I thought it would be. I'm pleased to be here and I can convince myself that for the next 14 months or so, I should be continuing to make progress. I initially thought that I may be going to the Hospital for the rest of my life. Perhaps I'll need some odd scopes but at least the treatment could be over and done with within 14 months - that would be brilliant. If there is a relapse then we go back on the roller coaster again. I've made plenty of changes to the way I live and so I hope that doesn't happen but I need to keep in mind that whilst it is disease that can be treated easily it does have a recurrence rate that is high. The odds state though that if it hasn't recurred withing a certain period then things do have a bright outcome.

The twinges of recovery

I had quite forgotten this bit of the recovery process. The back of my hand where the cannula was put in is now a lovely purple and yellow colour as the bruise works its way out. I also have what can only be called mild tingling as my urethra recovers from its trauma and right across my waistline I can feel a dull ache. No doubt also the results of bruising and being stirred around last week. In fact it isn't that long ago is it? I forget it was only 5 days ago.

I'm guessing that this is due to sitting at my desk and so I will be getting up and walking around a bit more as I am obviously not ready to spend long hours at a desk today.

Sunday, May 11, 2008

Lucky Guy

I should remind myself as often as possible that I sure am very lucky. Caught early on, I feel that I am well on the road to recovery with this - I cannot imagine that anyone who knows that they have got to continue to have the treatment that I do and knowingly will have to have at least another 2 operations would see it quite like that. You have to be there :-)

I think I should perhaps allow myself a retrospective later this week so that I can take a look back over the past 22 months.

It seems strange to think back to that time and getting my dream job and then this. It somehow seems longer in some ways and shorter in others. I've come a long way since those days, I shall spend some time considering how I am now to how I probably thought I should be. How surviving makes you feel and some of the joys and disappointments too.

Nice Day Again

It is a lovely day again today, the sun is out - it is pleasantly warm and just the right sort of weather to recuperate in :-)

I'm again feeling OK, still twinging around the groin area and it still isn't an easy task going to the loo but it is a lot better than the first day and getting better each day. The first day just after the operation is always a bit of a nightmare as you pass blood and bits and the bits and the blood tend to make you sting and the first one is like passing razor blades!

It isn't that bad. I'm certainly hesitant and also try and let gravity do its bit as poor old Mr. Bladder has six cuts and scabs on it and I don't need to be opening those up like I managed to do last time.

So - other than that - I am looking forward to phoning in tomorrow to the office and seeing what work I can get on with. I might even plan to go into the office for half a day on Tuesday - I'll check with the powers that be tomorrow.

Saturday, May 10, 2008

Today

I am trying to get by without the pain killers and anti-inflammatory pills today. So far it seems alright although I can feel things a bit more.

The main headline news is that I feel fine albeit that I can now feel the soreness around my middle and groin area where they pulled me about - perhaps some bruising coming out, the sore throat and coughing associated with the general anaesthetic is easing and apart from that I am doing OK.

A bit annoyed that I cannot get over to see some of my cousins later today who are over in Essex. With the best will in the world, if the traffic is held up anywhere along the way I am going to be struggling to hold on.

Had a nice call from a friend of mine which cheered me up not that I am down at all.

Friday, May 09, 2008

Taking it easy

I am doing exactly that this time. I actually feel very well indeed, perhaps the cocktail of drugs they whacked into me but I do feel quite well. I am drugging myself up with Ibuprofen and Paracetamol (reminds me I must have a few more) as I have some stinging and soreness. Guys, if you know what it is like to slide onto the crossbar of your bike and hit the handlebar stem as well with your groin, you;ll get an idea of the sort of pain I had to start with. I am now just dealing with the twinges and stinging afterwards but it isn't as bad as the last time and my legs don't hurt as bad as they did last time either.

I watched all 3 Pirates of the Caribbean yesterday - well probably not - I maybe slept through half of each one. Today I am going to try and spend some time watching spider-man - no doubt with the same result. Not to worry, as long as I am remaining still I will making sure the wounds heal up. Six biopsies taken apparently. The bleeding stopped yesterday and my liquid intake was probably close to 8 pints - unfortunately of water :-)

Anyway, I do feel well which is great.

Thursday, May 08, 2008

OK

Was dealt with quickly so had a bed but didn't get Operated on until late in the afternoon so stayed overnight.

Home early (after breakfast) am OK, sore - of course - but OK. Still very hot so lots of liquid need to be drunk.

Visually all looks OK. Will know in two weeks they said.

Wednesday, May 07, 2008

Final Preparations

Just had a sit out in the garden - it is very nice today 24 Degrees C about 75F so a very pleasant day for early May. It looks set fair for the next few days as well which is great. In fact it seems every time I go in it is warm - it was a heatwave the first and second times and I got a heat rash - let's hope that doesn't happen this time as that is a nuisance and takes quite a while to get rid of.

I'll be getting there in about an hour I suppose and I do hope that I don't have the wait I did last time and the straight to theatre routine. Oh well, we will see.
Bag is packed, house is locked up and I think I have covered off all the things I need to do before going. I have to say that I am pleased with the Hypnotherapy session I had to get me calm before these things. Ever since I had that done, whilst I still have some anxiety, it is nowhere near as bad as how I used to suffer.

Oh well, I had better sign off now, go and double, double check my bag (I remembered my comb this time) and get ready to go.

Hope you are enjoying your holiday

Mmm. So someone will get a shock when I tell them then :-) I thought most people knew that I was going in - maybe the other people in the office will tell them. I'm sure they will feel silly enough when I re-appear next week doing my John Wayne walk impersonation.

Well it cheered me up reading that this morning. Some more people who also think that I am off somewhere enjoying myself will find out the difference tonight at the Lodge meeting when they'll let them know.

I've done quite a bit of sorting out for that and so it will be interesting to see if they all get seated properly at the meal - I did the table plan and that they get the food they asked for. Just a shame I cannot be there as I ordered Steam and Mushroom pudding (there's something you don't get every day!). Of course I won't be having any of that - I'll be getting whatever is around tonight.

Right, enough of this frivolity - I need to go and get ready.

Well here we are again

I have had a light breakfast and from now on can only drink water which is good and means at least I will not get dehydrated as happened a couple of times before.

I am taking myself in this time as it hardly seems the right thing to do to let C come in with me and sit for hours whilst I go into being Mr. Quiet - I can do that on my own easily enough. She will come along after work and see where they have taken me.

My music is loaded and I am keeping myself busy doing a few jobs this morning. I will distract myself long enough for everyone to leave, then go and have a shower and then pack my bag and get ready to leave at about 11. I am due in at 11:30.

I'm not as worried as earlier times but it still isn't something that I enjoy doing. Lets hope that they have a bed ready for me this time rather than going straight to theatre. Going straight to theatre really is quite traumatic.

Tuesday, May 06, 2008

Slight Nerves but OK otherwise

I'm a little bit fluttery but otherwise OK i am just going off to bed and hope for a good night's sleep. I have to be up early to have breakfast and then I can potter about, pack my case and do other stuff before going.

Strange as it may seem it is again going to be a hot day tomorrow - I do choose them - I just hope I don't get the rash I got last time I was there.

Bed calls - I need to get some rest

A day to go

I'm not as wound up as I normally get and it could be because these operations and treatments are becoming a routine thing. I know what to expect and there aren't any hidden "nasties" out there. It is just one of those things you have to do.

I can - I suppose now count these down like I can with the maintenance. If the results of this are OK then I will have 6 more BCGs, an Operation and if that is OK, a further 6 BCGs and a final Operation. Viewed that way it isn't too bad.

Of course, once I know what the outcome of this batch is and the likely start of any maintenance, then I can do some planning. It is likely that treatments would start in June and September and the next Operation just before Christmas.

The rest of the day is all about planning and making sure I have completed all of my tasks of which there are quite a few still.

That Time of Year

Nothing quite like a walk in a Bluebell Wood in early May.






Monday, May 05, 2008

The run for the post

Surprisingly the work I needed to get done, really didn't quite get done and through no real fault here I think. A few miss-communications along the way appear to have occurred which means that tomorrow I will need to catch up with about 30 minutes worth of work on my part.

I need to get my MP3 player loaded with the tunes I want to play and get myself ready to go in. This time I am taking myself in on my own. As log as I can keep a level head, I think I can do this. If they keep me in, getting home may be fun. I cannot walk really but there is a bus from the car park almost to home so I might try that. I hope that they will let me out on the same day if at all possible they did the first time but not last. I don't like staying there for the overnight bit but there you go, needs must.

Surprising what you now take to be normal. I'm still not looking forward to that cannula though - who does?

Final batch of work to be done today

I have managed to get through quite a bit of work and I am now on the final run in to get this lot pulled together before Wednesday.

At least tomorrow I am working from home which will be a blessing. I also found out that I can access my e-mail from home which is great. I need to make a note to myself to remind me to do that on my return - set it up that is.

Well - must away and get on as this blog writing is taking me away from my other work!

Back to earth

Sending out notices to a number of the Lodge members about one of our member's funeral arrangements. A stroke victim and you have to feel for the family as it isn't the first time this sort of thing has happened.

I shall see how fit I am to go to that. I know I'm not allowed to drive for a week or more afterwards.

I've just written the e-mail and now the letters so that everyone will know. Sad thing to have to do but there you go. We all have to go sometime.

I still love this music

I had this and Carole King, CSN&Y in my MP3 player when I went into Hospital. I don't have too much Joni Mitchell or Linda Ronstadt but I have plenty of spin off stuff of the era.

Do you enjoy the lyrics? Here are some from tonight's show courtesy of JT. Actually this one is about a suicide but such a lovely song never the less. Music still means a lot to me. If you are as old as me you may recollect that despite what my Dad used to tell me, you can actually hear the lyrics and the songs stand the test of time, it is so good to hear them now. The surprising thing is that most of the people who sang them actually survived their years doing some serious damage to their heads with drink and drugs.

Just yesterday morning they let me know you were gone
Susanne the plans they made put an end to you
I walked out this morning and I wrote down this song
I just can't remember who to send it to

I've seen fire and I've seen rain
I've seen sunny days that I thought would never end
I've seen lonely times when I could not find a friend
But I always thought that I'd see you again

Won't you look down upon me,
Jesus You've got to help me make a stand
You've just got to see me through another day
My body's aching and my time is at hand
And I won't make it any other way Oh,

I've seen fire and I've seen rain
I've seen sunny days that I thought would never end
I've seen lonely times when I could not find a friend
But I always thought that I'd see you again

Been walking my mind to an easy time my back turned towards the sun
Lord knows when the cold wind blows it'll turn your head around
Well, there's hours of time on the telephone line to talk about things to come
Sweet dreams and flying machines in pieces on the ground Oh,

I've seen fire and I've seen rain
I've seen sunny days that I thought would never end
I've seen lonely times when I could not find a friend
But I always thought that I'd see you, baby, one more time again, now

Thought I'd see you one more time again
There's just a few things coming my way this time around, now
Thought I'd see you, thought
I'd see you fire and rain, now

A Late Evening

It is a James Taylor evening on BBC Four channel. It is really interesting as I came in on the end of this. I thought James Taylor, Carole King and the Eagles were great, Jackson Brown and then CSNY - Crosby, Stills, Nash and Young and so at this early hour in the morning I am sitting up watching a great documentary all about the West Coast and now it is James Taylor's Sweet Baby James and all that. It takes me back to just leaving school and getting interested in music and spending late nights around at people's houses and flats listening to music, getting drunk and smoking American cigarettes!!

I think that perhaps I should have cut back on the smokes! But then we all smoked in the 70s.

I used to think that "You've got a friend" and "in my mind I'm going to Carolina" are just fantastic tracks.

Whilst it is late, the evening is just so fascinating that I am somehow drawn to keep watching. Sometime I wonder why I bought myself a state of the art DVD recorder which I could kick in to record all of this. I'm just like a moth drawn to a candle...

Sunday, May 04, 2008

Something you can't buy

A very good friend of mine told me something along the lines of "You cannot buy stature". It then dawned on me that the reason I was OK about the past things - tribunal going against me and so on is that, there isn't a snowball's chance in hell that these guys will ever succeed.

Rationale?:

  • They have shown themselves to be untrustworthy to everyone who has met them
  • They haven't kept a promise in what must be a year now
  • They say one thing and do another
  • They speak big and act petty
  • They have little or no respect for themselves let alone their investors
  • They think that they are ahead in the game but their competitors actually have customers

I could go on but the more I think about it the worse it gets as they have no credibility left and they need to explain to new investors why so many old investors fell by the wayside. Then they need to explain why it took them another year to put right the software after they launched it and then they will have to explain the trail of company names for the past 3 years. Also that if it is such a great idea why is everyone else heading for the hills.

I can content myself with the conversation I had last week with a couple of my partners who I introduced who have reversed away at high speed leaving only those who invested years ago to stay and watch on with morbid interest. At this point the Vulture's aren't circulating but they are perched watching. There is the sort of morbid curiosity building as at a car crash or disaster scene, it is horrible but at the same time you are drawn to look at it. Well some people are.

So - you can't buy stature and you can't buy most of the things I'd like to think I stand for. Today's society seems to be all about selfishness. The one thing you learn if you have to rely on people is that they are the ones to treat properly. Annoy them and you lose just about everything. Lose your reputation as a fair person, a decent and honest person and you may as well go and retire as you cannot re-build it. These guys have bitten the hands that feed them so many times and this time tried to sever the whole arm. They mistakenly think that is how to take them to the top of the food chain but Hyenas still have to pay homage to the Lions (my thanks to Eric Cantona for the inspiration).

My guess is that the reputation damage these guys have suffered and will continue to suffer will make it almost impossible for them to continue in the future. Those who think it is a good idea and have been with them for years are sitting back and waiting for it to happen - if it does fine, if it doesn't - fine, they have businesses to run as well and it doesn't make a lot of difference one way or the other.

As for me, I am writing it all off, putting it down to experience and walking away. I'd like to get out there and assist in their downfall but they already have major problems and a rotten core which will eventually tear the business apart. Anyway, life is too short and there are others who can take up the fight now. They have real money and real contracts in place so they can resolve what they want to do and do it. Most probably sat back to see what would happen in my case before committing to move.