Almost a seminal day

Almost but not quite. We can't quite take the jump into the new business today. By the end of the week maybe and by the end of the week after almost certainly.

A good meeting but it has left me in limbo land as such as I'd like to tell my people to start looking for my replacement knowing that I am off to do my project.

At least we concluded that our venture has a future and that it needs to be worked on now. That said, it is by no means certain that we will get it to market, get funded or anything else! Happy Days :-)

The only constant in this life is change!

Gradually

You get your life back you know. When I thought about it this morning, I realised that I'm recording stuff that is pretty much what I'd stick in a diary and wondered how relevant it is to Bladder Cancer and do you know what? The relevance is that 3 years ago I was obsessed daily with it and to be truthful I do think about having or having had cancer every day of my life but gradually the old me has returned and things do get back to some sense of normality.

When I say normal, as normal as you are going to get because cancer changes your life anyway, it doesn't appear to have changed my underlying psychological profile but it has changed my attitude to life, the way I look at things and the way I do - or do not - care for people these days. I beginning to reclaim my life again and take back those things that my cancer took from me. The one thing I missed the most though was my brain - it still isn't all back here like it used to be but I am getting back to my sharpest again and that bodes well for me but not for my current customer/empoyer.

Decision Day

Or perhaps the background to a decision day. It is at least a chance to discuss and explore what the possibilities are in terms of moving on. Both my colleague and I are convinced that we should pursue our idea and take it to a conclusion. At the moment, if we don't it will whither on the vine and we will never know if it is possible to achieve. The bigger team has fallen away after we got this in front of one of the larger multi nationals and got exciting results, one-by-one they have failed to deliver anything of value or just fallen away.

At times like this, it is important to make a decision to move on or kill the idea. I'd like to give it a full time effort for 6 months and see where we have arrived at. At that time, if nowhere then I'd have to rethink. It is one of those hard decisions as it requires moving out of a comfort zone and to put some faith into my own abilities to get something done. I have no doubt that I can achieve this or at least take things to their logical conclusion - that may be that we decide after 6 months to not continue. At least we will know.

Today will sure be interesting.

Good Bye Piano

So I now only have one Piano. It isn't in tune and is never likely to be as it is a 1900 to 1910 original made by my GGG Uncle at his East London factory. The other piano which we have had since the girls were taking music lessons has been sold - rather cheaply I hasten to add to a dealer and it has left the house today. I kind of miss it as it actually was in tune and could be played and was a musical instrument and not an heirloom like the other one is.

It is just another one of those things that I find we are now getting rid of from the house. It is most probably a good thing.

Big day tomorrow as I meet up with my colleague to decide what me might do in terms of setting up our business venture. We need to step up to the plate or decide not to do it. Perhaps we may procrastinate for a little while longer but it mustn't be too long.

It will soon be April and he will be away - I will be in Hospital and somehow we need to arrange our current business affairs and get ready for this new thing or make arrangements for it. For me - I need to make the decision as soon as possible so that I can arrange with work to get a replacement and to then cover off the other things I am doing.

I heard this and it will be with me in April

I heard this music some time ago - Very nice.  The video is interesting too.

A game of "what time is it?"

Flocky and I were due to meet earlier in the day but eventually it was late afternoon before we finally touched base.  after sorting out a load of bits and pieces we retired to the pub for a beer and a packet of Peanuts or in my case, some nice Pork Scratchings (I must stop eating those!!)

After a couple of beers I disappeared off to the toilet and on my way back glanced at my watch.   Noting the time I asked young Flocky what time he thought it was and he concurred with me (before I had seen my watch) that it was no later than 8:30 but probably more like 8 pm.  Mmmmm.  Well it was more like 10 pm and we still had a pint of beer to consume.  Hence I arrived home at 10:45 without having had tea or supper and am now recounting this strange story.

Tomorrow is our Lodge meeting and so I am looking forward to that and the meal afterwards.  It is nice to meet some of our Lodge members and catch up with what they have been up to.  Unfortunately one of our members, now gting on for 93 is not so well.  We hope that he will soon be back to his normal self but the news isn't great.  He seconded me into the Lodge and so I have strong ties to him.  We will find out a bit more tomorrow from his daughter, herself in her 70s.

Friday - at home

I hope this will be a little relaxing day off and one that I can sit back and do a bit of reflective thinking.   Suddenly, now the boss knows the score some of the weight on my shoulder has come off and I hadn't realised that I was beating myself up about it quite so much.

I did four days at work this week - not without some bitching - but I managed it and perhaps next week I will get a better increase in productivity and sanity.  At least I have broken the back of the main stuff for this year already.

L got her results yesterday and had a mixed bag from a straight A to a fail.  She isn't phased by it although one result was much lower than she expected.  She knows now what to do about it.  That's good and she is focussed on becoming a teacher and she has the tenacity to do it.  She has just stuck to a diet that has seen her lose a lot of weight in a controlled way, a year before she went without eating chocolate for a year.  I think I know where she gets that stubbornness from :-)

I've just come off the phone from talking with my colleague who is working with me on this other project and we will meet on Monday to decide what to do - that may finally make us take the decision to get going or park our project and move on.  

And Now the Boss knows and growing up

This morning I noticed a large Charity sack by the front door and so I peeked inside (as you do) and there were lots and lots of cuddly toys.  Stuff from Disneyland and Beanie toys we had bought when the kids were young and it was obviously going on to a good place and will be sold to make someone's life a little better.  I'm all for that - I work in a charity - it's what I do.

However, it was a bit more profound than that.  I stared into the bag and there were the memories of my little girls staring back at me.  Happy times, magic times, we did enouy ourselves then and they had these "things" that meant a lot then but mean nothing now.  Somehow they meant a lot this morning and I got one of my "Bambi moments"  - hell this cancer nonsense really screws up your hormones.  I was really moved - not upset that they were getting rid of these childish things as they were going to a good home and were for a good cause and I'm proud that both girls do things like this and give of their time and give freely of these things that probably just clutter up their rooms.  To me, of course, these things were hard earned things.  I worked to buy them and in reality I don't want to sound sore about it but they probably mean a lot to me because they are associated with happy times, growing up, fun, play and all the good stuff about having kids.  It also drags me back to those pre-cancer days and it also reminds me that my children are grown up now.  No Longer children at all.  Young Ladies.  A is 20 in a few weeks time and L will be 17 in August.  It isn't the cost or anything to do with that - to me it is the loss of the item that may bring back a memory for me.   The kids adored these things and now they are just discarded - I'm not sure I know what more to say on the subject - it just made me feel bad and realise that things move on.

I was just left with a hole this morning that is all, it felt like I'd had something ripped away from me but it wasn't the toys themselves just what memories that they surfaced.

The boss called me in today and we had a chat.  I think that someone must have told him that I wasn't best pleased with the way things have been and whilst he acknowledged that we also agreed that one of two things was about to happen.  They are keen to get me on full time working.  I had to explain the 2 factors of the operation and the possibility that my other job will burst into life but I also had to reassure him that I would not just walk away.  I owe them far more than that.

Cards are now played and I feel happier about that.  I prefer to play a relatively straight bat in these cases and this little chat did that.  More later next week.

Finally I met with my Nephew and an old friend J at a lively bar in London.  I have to say that after a number of rather delicious pints of Tangle Foot, I wandered home and Mrs. F (bless her) came and gave me a lift home and some tea....  I needed that :-)

It has been a funny old day with the disturbing bit followed by the relief of "confession" to my boss about what I think may happen.  The trouble about that is - who knows what the future will bring?

Turmoil sets in

I enjoyed work today -well most of it, the the boss p1ssed me off tonight.  A typo on a letter that has gone out some months ago has been discovered and wants me to phone everyone up and tell them or write a letter acknowledging said cock up.   Frankly it shouldn't have happened but it did and it isn't that important except to them - I think my email back almost saying "no one died did they?" may have been a bit of an overreaction but in a two page letter which only needed to be three paragraphs anyway, something was bound to go wrong.   They need to stop writing by committee.

So that set me into the opposite of the good day I had actually had.  It is mixed emotions time as I really want to do less time there and concentrate on putting to bed one way or the other, for good or bad, this other business idea my colleagues and I are working on.  It needs closure and if I gae it 6 months and got nowhere I can at least say I tried.  I would then have the problem of what to do thereafter but that problem (if it is one) can wait until then.  Being positive, it could actually give me something to hang my hat on and to concentrate on and to use the other 99% of my talent not used where it is at the moment.

I at least managed 4 days work this week at the office - almost a record I reckon.

Walking home tonight

I got to remembering coming home on the last train, getting up and catching the first train out some 4 hours later and working my ar*e off for lots of years, working 12 or 15 hours a day, every day for years and years and years. 

Where did it get me?  You know that I believed I actually missed that life style.  I was young, my children were tiny, I worked hours and hours and I didn't do badly really.  There was money for an extension to the house and I did all those "good things" you are meant to do as the bread winner and what exactly have I got out of that "deal"?

Sure - I have great children - hardly children - young adults - working - at school and university - doing what THEY want to do and knowing that they can do that without let or hindrance or limitation.  There's a house, cars in the drive, clothes on everyone's backs, food in the cupboards and everything else and somehow - I'm not satisfied with this lot.   Am I a failure?  No.  What exactly is the problem?

I wondered tonight as I walked back retracing and remembering those steps was it all worth it?  Could I have got here without all that strain and stress, the long hours etc?  Yet, I think I actually enjoyed it - the buzz of making money and being in control of part of my own destiny.  The fast and furious world of the London financial world during the big bang and after.  I threw myself at my job and I loved it.  I enjoyed the power and the privilege, controlling and dealing in millions and doing something worthwhile and yet - you've never heard of me or know what I've done.  

The struggle these days is that I long for the energy and buzz I had then but do you know what?  I look back now and wonder whether I was actually that much better off.  Did I have a better time, or better work environment and a better life (we know the answer is probably not).  Life has taken on a different meaning these past few years and I just don't appreciate that slowing down and "jsut doing a job" may actually be what is best for me at the moment.

Mind you I have never been "normal" and maybe that is also a factor.

Strange what runs through your mind when you walk home late...

Some office clearing done

I managed to get a fair bit done over the weekend and that has made a start for some of the stuff I needed to do. The rest of the stuff is still outstanding and I realised that I am beginning to get behind on everything because of the trouble I am having balancing my work, social and my other work jobs.

I've just lost a bit of discipline with work because of all the rushing around I have had to do but perhaps I can catch up this week. I just need to sit down tomorrow morning and plan that out.

The stuff Ii have to do for my social life is also getting behind as I should have done some accounts and paperwork but haven't and I also need to work out about the "other" job too.

I am still trying to work out what to do for the best and what I really want to do isn't the easy road - and yet I believe that I should do it. Taking a decision that may well lead to a little hardship and something that will put me out isn't easy. I hope that I will be able to rationalise it down the next few weeks as at the moment I really am procrastinating.

I have about 5 weeks until the procedure and so I am thinking along the lines of making that a bearing on my decision as well. I may not know the outcome until a month later although they often say what the visual result is when I come to. In a way, I am less confident about this one than the one before. Not that I feel worse or anything like it but I am acting a bit stranger these days - perhaps that's just me getting older and getting back to my old self. Maybe I ought to set out what I used to be like before Bladder Cancer at some stage so I can review the major changes that have happened.

For the moment though, it was nice day today, we went walking in the spring sun through the woods and fields near here and it was a pleasant break from being stuck in the office. It was good to see the snowdrops and crocus flowers poking their heads out and let's hope spring is finally here.

Something to think about

Have a look HERE at a post made on a social networking site ecademy. I sometimes feel like this myself that actually whilst I survived etc etc there is still this problem of never quite getting back what you had before.

See what you think - it is a bit stark I grant you but makes me look at my situation in a much better light.

Weekend Wonders

The weekend starts tomorrow really but today was good news day for Steve in the US who is again all clear after 21 months and has 3 more BCG treatments and no more pushing and poking around with until September.  It is great news and the wonders of medical science are that this killer of a disease can be treated and have good rates of success is a testament to all the wonderful people who have researched this and of course all those patients who have gone before us.

It still amazes me that someone should come up with the thought that flooding your bladder with BCG would invoke an immune reaction that would help get rid of the cancer cells and strip those away allowing you to grow a new lining of normal cells.  Amazing really when you think about it.

So that has started my weekend off well.  The sun is out and it looks to be the beginnings of spring with crocus flowers emerging after the last few months of snow and rain and grey days it finally looks to be a pleasant again.  That lightens my mood too.

I've said before that I don't think I actually have Depression as some would describe it but I certainly feel "blue" a fair bit and down, tearful and sometimes even lacking self confidence.  I am certain it goes with the territory of having had cancer and finding that I am still concious of my recovery which is ongoing - it isn't over yet by any means.

The wonders of the weekend are the joy of hearing Steve's news, the end of a particularly difficult working week for me and that this week I DID make a difference to people's lives and may have two or three people now aware of the charity and it's services as well as all the major charities.

Mixed Day

If I'd have got up and gone to the Station I would have found no trains as there is a fire further up the line and I imagine the City must look like 1/2 day closing as hardly anyone can get in from the South East of the capital.  Anyway, I'm not one of them.  

I am out later giving a talk to a Lodge which will be great.  It is reasonably local to me - just 9 miles away.   It is amazing as it will take me a lot of time to get there as I have to drive at School going home time and crosses a series of major roads.  The Sat Nav reckons 24 minutes - I reckon I can double that.

I'm feeling pretty neutral today but the sun is out which makes a change - the last few months just seem to have been grey all the time.  Everything gets a lift when we get a nice Spring day like today.

   

Stuttering start to the morning

Nearly went back to bed I was so tired.  Managed to get to work, falling asleep only twice at my desk and many more times on the train on the way home :-)

Tomorrow is big committee day - last time I got out of my pram and threw my toys around this time I envisage putting the committee onto the defensive and setting them things to do.

I feel a bit low still but I have turned out stacks of work in the past few weeks and it should culminate in some kudos tomorrow - although that doesn't pay the bills of course!!

I am then off on Wednesday and Friday with a few other bits to do in between.  Ii have a mountain of paperwork to get through but hopefully by this weekend I can get that done ready to hand over some of my job to my successor.  I live in hope.

New Week New Problems

My friend has called to say his company are about to make him redundant and in a way that has freed his mind a bit and allowed him to consider his options.  He and I are involved in this other venture and I am now seriously considering quitting or coming away from full time properly the current job.  I am finding it difficult to sort out quite what I should do as I can see an argument for both side, can see that I have been lucky to work with some lovely people and all that but, fundamentally there is a problem with doing what amounts to your hobby in a full time capacity.

My appointment is now set for the 12th April and my pre-assessment is the 6th.  It looks to be an early appointment so who knows I may get out the same day - it hasn't happened recently but I live in hope.

Energy levels are quite low after the excitement of the weekend and two meetings one after the other.   The trouble is, as always that I put a lot of effort in and the great news is things went well but afterwards it is all a bit of an anti climax.  I'm just feeling tired and tomorrow I need to head into work which I don't fancy at all.  Tuesday is committee which looks like I'll end up controlling and then Wednesday I am out at a Lodge doing a talk in the evening.  Thursday is a nice half day followed by a Lunch event.  Friday I have decided to stay at home to recuperate.

It is strange - I just feel lazy and don't want to do anything at the moment.

On a Brighter Note

My other friend who has Bladder Cancer has been given the all clear.  Thank goodness for that - we thought it was bye bye bladder last time I spoke to him.  In fact he is just on check ups.  I wonder if that was because of the immense trouble he had as he had to go back to theatre he was bleeding so badly last time.  Anyway - good news for him.  That has cheered me up a bit considering the bad news about my friend's dad yesterday.

What happens is that every time you hear this it brings you back to your own situation (of course it does) and I start to consider how lucky I really am and in a way it cheers me up and depresses me all at the same time.  I'm really glad that I am where I am and I feel like I do but also there is the realisation that many people don't have that good fortune and their lot isn't so good.

I decided to get back onto the Cross Trainer today and surprised myself with a 15 minute workout that went quite well.  I am surprisingly fit but need to do things regularly to be of benefit.  I just need to get my diet under control a bit better.  The inevitable lunches and dinners I go to throw this out every week.   I need to make sure that I eat properly though and so can't starve myself or do anything too serious as it may affect my health in other ways.

Still - I am in better temper than I have been for a while and whilst Ii still cant say I am enjoying my job, at least it isn't getting me angry like the past few weeks.

I didn't quit today

I was back to running the show today and so was busy and involved and then some other things came up and I was back in and interested.  I imagine it will only be short lived.  I am off tomorrow and Friday and again doing three or so days a week helps me to stay there and not to chuck it all in.

Got a shock as the chap who suggested I set up this blog let a few of us know that his dad has tumours in his brain and lungs and has been diagnosed with cancer.  It sort of knocks me off balance a little when I hear these things.  at least, I think, I can offer some assistance somehow.  He starts radiotherapy very soon and I'll see him in a few weeks to have a chat.

I can at least give the human side of the patient so that no one makes the mistakes I've seen when they talk to me documented earlier in this blog.

So - what for me?  feeling a bit worn down really and awaiting the date for the next procedure/operation.  they said they would get back to me on Monday and didn't.  I'd like to know so that I can ensure that I don't have any appointments at that time.

I am still working out whether or not to stay at the job - it really doesn't do anything for me although I am one of the characters in the organisation - I don't carry any responsibility or much clout and end up clerking a lot.  I'll need to make a decision soon though.

Well the deliberations continue

I see that the pragmatic view is to leave the current job.  If I give notice now then they can get someone in 5 weeks I would have thought and I can assist on the odd occasion going back in on a day rate if they need me.  That is the pragmatic view.  I'm thinking that if I do that I can start in April and get tucked into the other project.  Of course, that doesn't pay at all and so there is a need to balance out the risk/reward equation.  

Lots of "ifs" there but that is the choice I need to make.  I remember the disappointment of the last thing I got involved with but with this one I am closer to the source and in the driving seat so it will be my own reputation that is on the line so to speak.  Having taken close to a year out doing this before, I am being cautious about going out there again.   However, I haven't exactly made up my mind today but I am thinking clearly now about what it means.  I have to seriously consider that I may need to fund myself for 6 months doing this.  I was hoping that we may have funding in June or July but if I set it that it is September then that gives me something to aim at.

I suppose watch this space will be the watchword. 

Sunday

The sun is out after a miserable start to the day and I'm sitting here working my way through my options for work and my other venture.  It seems more important today that I put some effort in to the stuff I have been working on ready to go and get some finance for taking it forward.  I also realise that I have some responsibility for the job too.

A long hard look at that really leads me to conclude that they need a clerk to do the work and me to supervise and come up with the creative side.  I'm certainly not happy to sit there and be given work to do and to change like some oik.  If they want to employ someone with their brains sucked out with a straw then that is what they should do.

I have no idea how this is going to end up.  I'd like to tell them to stick their job tomorrow but some of it is good.  I am out in a week or two to  a meeting and that is good meeting other people and telling them about the charity etc., that's a nice thing to do as is creating some of the more useful documents they now have.   

I have all day to ponder what to do.

Recovered

How utterly strange that was last night.  It kind of concerns me how ill I felt all of a sudden but some friends popped around today for a meeting and said that it was very hot in there and perhaps that may be it.  

I was a bit annoyed that they saw it though - up until now I have been able to keep it to myself.

Anyway - moving on - the meeting was good and I can move on from there.  It hasn't helped the argument to stay or not at work.  I still need to consider what to do about that.

Great evening shame about the funny turn

It was a lovely evening but at the end I had one of my strange funny turns and felt ill, claustrophobic and all that boiling hot, nauseas bit.  I stood outside and was OK in a few minutes but just felt awful for that short time.

They are my friends and were worried about me which is nice.  I don't like it as it shows some of the damage that my cancer has done to me.  This is all about self esteem, self confidence and belief in myself and that actor quality that has always covered my tracks for me, failing at the last hurdle.

Whether I wanted to show this side or not, it happened and I felt really ill for a short period of time. Nice to see everyone being concerned but I didn't want their evening to end that way let alone mine.    

Curry that great cure all

I am really, really looking forward to a night out with about 16 of us.  Flocky Bicep has organised it and we are starting off with a mini pub crawl - luckily enough all in the boundaries of my village so nice and easy to manage that the off to the restaurant which is a whole 5 minutes away at the most.

I've been feeling quite stressed out recently and I am looking forward to having just a good laugh and chat with the bunch of us.

Tomorrow I have some of the team coming in on our business venture and with a bit of luck I should be able to get some sanity into my thinking giving me a way forward.  I hope so - I could do with some clarity of thought and to dump all this stressy baggage I am carrying around with me.

You may tell that Im not a happy bunny

Everything just seems to be getting on my nerves at the moment.  The job, trying to get things done when everyone (it seems) is trying to stop me - it sounds like paranoia doesn't it :-) ?

It just drives me to distraction and I wonder if I will be able to hold on much longer.  I'd rather give it up and take a chance on this other job of mine if the truth be told.   There is no money in it - or not at the moment but perhaps I'd be able to concentrate and actually get something achieved.

I know there is work for me to do where I am, I'm just really struggling now with the mediocrity of it all and trying to swim against the tide.  Someone told me to take the money and live with it but it isn't me.  I can't go native and be as bad as half these people.  The good ones are good but the others really are "jobs worths" and I just know it is all going to end in tears.

So I am heading off to bed and hope to get another good night's sleep and a good day's work tomorrow.

Micro management

If anything pisses me off more it is micro bloody management.  If you can't trust me to do something say so and I'll give it to you.  But otherwise stop interfering with what I am doing and stop stopping me by stopping me (if you get what I mean).   Every-time I get somewhere I have to stop, stop my designers and get a proof run up for something that isn't ready only to be told afterwards that it isn't ready to be reviewed just exactly what I told them at the time.

Now, I am in my belligerent best, as everyone gets copied in to the "so shall I stop work until you've reviewed it or are you going to tell me that something is missing as if I didn't notice it? " 

No wonder deadlines get missed.  All that is going to happen now is that I have to stop work as I just waste time carrying on and it actually screws things up as "Changes will happen" not because they are necessary but because they can be made and the quality will suffer again.

Damn it, it annoys the hell out of me and no ones sees it - or rather they do but they actually can't help themselves they have to mess around with things.

This is the exact time when I am at my worst as I'm thinking - "well you can stick you job!" and the trouble is I'm getting really close to saying it too.

A better day

A slightly better turn of fortune today - a good meeting and I was impressed at how things went and was pleased that we had made some major progress.  The girls are still giving me grief about me "not being me" and "not my normal old self" but at least this afternoon was a bit better and I was back to cracking some jokes and lightening the mood that no doubt I have created.

It is difficult to be the person who is always cheerful and has a good word for all.

I'm working at home tomorrow and Friday.  I will do a bit of each sort of work some of the charities and some of my own.  Curry night on Friday and I am really looking forward to that.  About 14 of us and all going to my local curry house which does serve up good food so that will be fun.

Saturday will be working here all day and perhaps I will take Sunday off.  The next few weeks are critical I think to get on top of both jobs and see if I stay or go at the Charity.  I have a job there until 2017 if I pursue it and the thing is, whilst I'd love to do it I hate the journey, I despise travelling on trains that are too hot and airless, crowded and dirty and full of obnoxious people too half of the time.  

I have picked up a number of things to do that I didn't want to do and so my list of things to do just got longer and longer.

Caught up with a guy I know who is having his biopsies next week and wished him well for those. Mine must be due in 6 to 8 weeks time now.  Yuk.  Mind you they could be the last.

It must be me

I just listened to a load of old rubbish that my friend spouted out on the way home.  The difference - I was sober and driving and he had a few too many glasses of wine.  It was lucky he knocked one of them over earlier too really.

It could be me or it could be him but suddenly everything is somehow us younger guys not showing respect or doing something he wouldn't do and so on.  The terrible irony of the situation is this guy is in deep financial do do and stares into the abyss regularly.  He cannot budget or use logic to stop himself and somehow this road of righteousness is something that he wishes his disciples to follow.  

I can't believe I have grown so far apart from him so quickly and yet in the early stages of my cancer he was one of those who played the dark humour card with me.  He didn't he admits now realise quite how ill I was (mind you neither did I then).  We had desperate times in our friendship when he introduced me to the business venture that I thought would allow me to be close to retirement by now and that collapsed.   It was more a case of me seeing the problem late and not getting him out in time.  They owe him a lot of money too and he will never get it back.  They owe me a load of time - I suppose I could monetise it but - that is 2 or more years ago now.

Quite why he has gone off on to some one man crusade is beyond me.  I am not sure that I would take things quite so seriously and he jumps to massively wrong conclusions only to be pulled back to the reality some time later.  Yes - a strange thing indeed and the trouble is he made himself a target for a number of people this evening and that will just add to his woes later.

How interesting as I wrote this an apologetic email has arrived.  Back to repair mode for me and him again.  

Life gets bloody complicated sometimes - surely it doesn't need to be like this.

Middle age rage or something worse

I'm OK today - I allowed myself a sleep in of sorts and got to work and managed to move things on quite well.  I am off to a meeting a little later and hope that it will result in me being a bit calmer and chilled out than I have been although I have to drive through this incessant rain to get there at least I am not doing anything and that will be a result.

Back to work tomorrow and with any luck I can sort out the documents I need to do and set enough items in motion that I can take the next few days off to work on the other project.  

It is probably the pressure I am putting on myself and the fact that it always appears to be me left sorting things out.  Trying to off load responsibility to others is a hard thing to do especially when no one is coming forward to take them off your hands.   I am definitely not my old fun filled self at the moment and I hope that I snap out of it soon.  It seems strange to me that I should be filled with so much pent up aggression given what I've gone through.  I should be laid back and not have any worries but for some reason that isn't happening.

Got to get through this next phase

Today's meeting was alright but I managed to control it reasonably well and bless, my boss was ill and so I managed to wrestle back my work from him and so get on with that. If I give this a good poke in the morning (from home) I can probably get this all done.

I've got one of my friends playing all injured and upset with me at the moment and I'm just playing hard ball back at him. I really get pissed off with his self centred back biting and he can go sling his hook for a while or suffer me being an awkward cuss and by hell can I be a cantankerous sort when I put my mind to it. even I don't like me when I'm like that.

So this month of anger continues and work colleagues were bleating about me, not being well "me" really. I have to apologise I'm fighting inner demons and loads of stuff at the moment and that is just the problem that I have to bite back and restrained as to lash out isn't really the answer and I'd happily chuck the job in the way I feel now and no one wins from me doing that. I have to stick at it and I just need to work out where I am going and what I am doing.

Any better now?

Not really, had a conversation with a buddy in Prague.  He is coming back to the UK - maybe, mind you he must have been there for a decade it seems.  Had the usual chat about work, my BC and all that.

My sense of humour is a little better but I could easily walk into work tomorrow and just chuck it all in.  I doubt that I will though.   There are a series of meetings coming up this week and I am out Tuesday night too.  Friday sees a night out with our impromptu curry club.  That is back here locally as we have a good curry house and two pubs in the village so we have a 2 pub crawl followed by curry - something to look forward to.  I should have been going to Surrey for a meeting but a local curry will be better I think.

The thought of trying to get on with my work this week fills me with dread as I can't imagine anyone will have actually done anything in my absence.  It will be what it will be I suppose. 

So I'm not in the best of humour still and I'm finding it hard to put the time in to do the two jobs I have at once.  I haven't sorted out all of this yet.  It would be easier if I could guarantee a job after June/July when this should shake itself down.  The trouble is of course that I like the job that isn't paying anything yet because of the challenge and I hate the paid job because it is routine.

Still angry

But not as bad as yesterday.  Still want to go and break something or break something on someone :-)

I'm really surprised about this.  I'm not angry on the outside at all.  I am seething on the the inside though.  How strange is that?  Anyway, I had a coffee with Flocky yesterday and afterwards a quick beer on the way home and we discussed many things and some of the anger abated.   

Calm down - easy to say - hard to do - is the order of the day but I just seem to see red when I talk to people in the office at the moment.  I think they have worn away all my defences and I just want to smack them in the face and beat some sense into them....

I will plan to be in the office on as few occasions as I can again next week and work out what to do.  Mrs. F. seems quite supportive of me if I just chuck it all in.  Not sure that is exactly what I want to do although it would fix my problem it would leave others in worse problems and I don't do that to anyone.   A weekend to think it through.  At least my Lodge accounts were audited and agreed this morning so that is good.

Familiar Pattern Emerging

Maybe I cannot commit to working for someone longer than 18 months (perhaps I am self fulfilling my prophecy). I am SO ANGRY at the moment. I'm upset with the people at work who can't let go and have to keep poking their noses in. When I let them take over they hand it back to me in a worse condition than I gave it to them. Then there are all the stupid crass like things that people do and say and that just rattles me too. I know I should rise above it but this goes back to "no one died" statements.

People are so vacuous and full of sh1t sometimes and so goddamn petty.

I am however quite concerned that I am getting really angry at silly things and I actually find myself taking time away from work because they will make me explode if they carry this nonsense on any longer. Prime examples of sending me off doing work that it is blindingly obvious will not be acted upon and only paying lip service to the need to change and move the business forward. I find it quite amusing that I am the only person who calls the organisation autocratic. I wrote an article, that needs changing, they have the original file, how come they can't change it themselves. No they send an e-mail with the change required so that I can change it and send an email back to them attaching the file?

It's me isn't it - I'm wrong? Honestly though it just makes my blood boil that everything relies on one person to approve it, you get things to happen and they jeopardize it by taking it to committee - just like I knew they would and that they said they wouldn't.

Arggh :-)

So there you go, I'm pretty much p1ssed off with the whole world at the moment. everyone can go to hell for a while and somewhere I need to rearrange everything to get myself back to normal being able to deal with all the numpties around me. At present I am spiralling down into the depths of a black depression and the vortex is speeding up so that getting out is proving more difficult than normal. I can't say exactly what it is that set this off but I just find that everything at the moment is too difficult to deal with...

I think that I need work to realise that I am just about to go into switch off mode - my own protective mode - soon. That means, I just stop doing anything, come home and ignore everything for a while. It concerns me because I recognise these symptoms because of my particular personality type in quickly dismissing those who don't pull their weight or for whom I lose respect. If you lose my respect you really had better watch out as it takes a lot to rebuild it with me, it can be done.

This has all sharpened up since I got ill though.

What was this blog about?

Oh yes - Bladder Cancer.  I reckon I need to get back on track with this so it may go quiet for a short while whilst I do that.

Currently I am having a bad (tempered) week and feel like shouting at all the flaming idiots I appear to have been blessed with so maybe a day or two off to calm down and I can get my head back on track and this blog back to the point.  Mind you, I think a lot of this is all about recovering from cancer and I must be a lot better as all I want to do is leave this job and go and do something that might use more than the  0.0000001% of my brain that is currently occupied at work.

Distrubed Nights and Stange Days

I had a bit of a strop on today at work.  I should know better than to realise that everyone wants to get involved in my little project and the boss had to have loads of paperwork off me that I hadn't even prepared yet.  I just can't see what the purpose of asking me to do something and then taking it off me has to do with being productive. 

So my retaliation is to take the rest of the week off after tomorrow lunchtime.  If they want to get involved then they may as well get fully involved in it.  So I was pretty much seething today.  The girls made a telling statement today, they suggested that I "wasn't going to be around long and was withdrawing myself from the organisation (and them)".  That is pretty much it I think.  I really am struggling to keep engaged in the work as everyone pokes their bloody noses into what I do.

As for disturbed nights - I suppose hearing about my colleague's problems with his daughter being attacked at Uni disturbed my sleep and I imagine thinking about work didn't help either.  I woke loads of times during the night and that has affected me a lot to day as well.  I am off to bed early to see if I can catch up.

Other than that, I am hoping to sort out my priorities in the next week or two.  I didn't want to have the job go sour on me but I'm not making the difference any-more, that has already happened.  Perhaps someone else needs to do that.

Burns night

Well almost all day and all night!  2 am I got in and we started drinking about 1:30 pm.  We had  a great day and obviously a brilliant evening too.  The Scots lads were down but not in force as the recession has seriously affected business there.  As I left one of them stole my tie - I doubt he can wear it outside of Kent though :-)

I was a bit slow this morning for sure.  I've been struggling with some accounts and I started to transfer them to a new set of accounting sheets but found that the transfer threw out all my figures.  I have had to keep the old ones for now but will use the new ones this financial year.  Typical thing though, they asked me to use them but none of the calculations on the sheets work.

Another full on week this week coming and trying to sort out time with my team is proving to be a distinct nightmare.

I was asked how I was by lots of people I haven't seen for a while.  Nice to hear "Your'e looking really well" etc.  Long may that continue.

I have just ordered the DVD of this film Tony a London Serial Killer Why?  Well it is my 6th cousin once removed in the starring role and another cousin directed it.  My brother's name is Tony so the family secret is out.  It looks to be an interesting film if not quite my thing.

All day stuffing envelopes

Only this lot and one more to go and I'll have done my 6 years of being Secretary of the Lodge and Flocky can take over.  It's OK but this one is particularly heavy as it has individual subscription requests that need to go in the right envelope.  It used to be worse as everyone used to be sent stuff by post but about half now get emailed versions which takes me about 15 minutes to prepare and send.  If only I could get everyone to agree it would be brilliant.

I only realised quite recently that I took on the job shortly before I got ill.   I'm quite impressed with myself now realising that I carried on throughout although, on more than one occasion had to miss visiting some other Lodges due to treatments or hospital visits.  

I need to get them all out tomorrow or by the latest Sunday.  In addition I have been asked to sort out the accounts by next weekend.  That was OK until I realised that the spreadsheets they gave me aren't linked which means a bit more time and effort to sort out.  I wouldn't mind but my originals were fine ( I thought) now they have to be messed about to get them into someone else's style.

I'm out tomorrow to a Burns Night preceded by a Lodge Night.  The lads come down from Scotland bringing a rather tasty Haggis with them.  The trouble is that it is a boozy night and I can get back late.  Additionally we leave at lunch time tomorrow and I guess we will get back around 2 in the morning!!  Mind you it is a good evening.

An evening with ... Colin Blunstone

How bizarre an evening was that?  The lads called off the drinks evening and I was expecting a quiet night in when one of my mates phoned me up and suggested we see if we could get into a gig that was happening locally.

We got there and lo and behold it was Colin Blunstone (Zombies, Argent, Alan Parsons Project etc) and his new band and it was just brilliant - up close and personal.  A small intimate set perhaps 70 to 100 of us at most.  I really enjoyed it too.  At the end he played one of my all time favourites which I am not allowed to have at my funeral even though I want it.  I know - morbid but I thought like that a long time ago.

I listened to this leading up to my first operation and it still moves me and tonight I didn't get all sentimental at all, just enjoyed it for what it is - one of the great songs from one of the most productive periods in modern music history.  Not to mention the other hits they did.  However - this one is so haunting and just summed up lots of how I felt 3 and a half years ago.  

I can be a silly bugger sometimes :-)

Flocky and the toast that nearly choked me

You should not laugh at the afflicted - let's get that straight right here and now.  I therefore apologise unreservedly for doing so on this occasion.  No offence was meant by it at all.

We were at a Lodge meeting enjoying the meal and there are a series of toasts that go on after the meal.  One, to the Provincial Grand Master, is a particularly special one.  The Worshipful Master of our Lodge has a few problems pronouncing long and seemingly complicated words and can never say my name properly and also has a lisp on the letter "R" which come out as a "W".

So the PGM is called Roger.  He gets everyone to stand up and drink a toast to "Woger" and from behind me I hear in a stage whisper from young Flocky Bicep "Two Woger!"

If, like me, you enjoyed Monty Python's Life of Brian, you can probably imagine the problem I was confronted with.  I already had wine in my mouth when I heard the Word "Woger" and I was struggling to make sure that I didn't spray red wine over the chap opposite me.  I looked left and my neighbour gave me a sheepish grin and I lost complete control.  Tears streamed down my face, I was gagging trying not to burst out laughing and had to stuff a napkin in my mouth to stop myself yelling out loud and going into complete hysterics.  I almost had to go out of the room it was so funny.  The trouble is with a fit of the giggles that anything that follows sets you up so the next announcement was to the "wisitors".  The harder I tried not to laugh the worse it got.

I was in such a mess I can't tell you but I don't think I have laughed so much for years.  It really hurt my ribs and every time I looked at my mates it just got worse.

So thanks Flocky for that - I haven't laughed so much for years and years.  

Carry your baggage

We went out yesterday to meet an old friend and had a great meal too.  Flocky and I got stuck in to some good nose bag and then the talk turned to experiences and the like.  All three of us have had "our troubles" and our experiences are useful knowledge for other people. 

It opened up the little portal into my mind once again last night and I'm just really pleased to be where I am but still get the survivor's syndrome - "why me?" 

I cannot get motivated today.  I need to get on and do some work but I just don't seem to get tucked in and do it.  It looks as if I will need Friday off to catch up with all the stuff I've got to do.

SO even now, 3 1/2 years or more after this all began I still find that I'm affected.  My mind and body aren't as fit and ready as I want them to be and my "will" which probably got me through this episode just seems to be taking a vacation at the moment.  Maybe the problems I give myself these days just aren't as challenging as fighting cancer.  That probably nails what I have been trying to say above...

Oh well here goes nothing

Work tomorrow and then a Lodge meeting preceded by a few glasses of wine.  Tuesday off to London to pick up the Treasurer's data from the outgoing treasurer.  Talking of which my last two years accounts need to be transferred to a new standard accounting style.  I think I can do that and then get them checked.  In the interim I am trying to schedule my time for the next 5 months!!!  

5 months to try and sort out a go to market strategy for our venture and fit that in around what can only be described as a crazy schedule of work, Lodge and new venture things.  I am out again for most of this week and it doesn't get any less hectic for about three weeks.  It looks to calm down for a few weeks and then goes silly again.  I really didn't realise that I had taken on so much this year.  

I have to tell the boss tomorrow what sort of schedule I think I am going to be on for the next month or so.   Not sure if they are going to buy it yet.  However, let's see.

Well - what going forward looks like

I thought I would be really wound up and ready to take on the world after agreeing last week that I was going to head up and get our project moving.  In fact I found myself a little nonplussed to tell the truth.  It struck me as strange but then perhaps I was somewhat surprised that they let me do this and was still a little in shock too.

My colleague came over today and we discussed some of the areas around what we need to do and discussed going forward.  I think that I will get a good handle on what I have to do to achieve this over the next few weeks.  I need to work out how to carve up my time to be effective at this and at my other work.  That I think I can condense and do in fits and starts as I can really crunch out the work there if I need to as I know the ropes etc.

I will get some sleep early tonight so I can run a full day's effort at this tomorrow.  I think I now need this challenge as without it I would just go native at work and I don't fancy doing that.  I'm back to my old ways agian of being bored in 18 months of my job.  How people can do the same job all their working lives is beyond me.  You don't learn anything or get challenged so what good is it? Probably it just pays the wages and I don't get that either.  I'm a bit strange like that...

It was good to see my mate today and I enjoyed his company.  We give each other a lift and that is important.  We have both lived through some interesting times and both have the same saying or "Well nobody died"!  Generally no one realises this and it just amazes me how many stupid arguments and petty bitching goes on.

Don't I ever stop bitching

I know, it seems to be a habit these days though.   I was staggered to find out that my counterpart was on a big figure more than I thought he would be.  In fact I am amazed considering what he brings to the role.  However, he is a nice guy etc.  I did think to myself that for the past 18 months or more I have been selling myself a little cheap - bu hadn't realised quite how cheap.

I'm not overly worried as I now have the opportunity to go and renegotiate I think.  I have so much work to do this next 5 months that I won't be able to fit it all in.  Saturday will be a defining moment I think.  I will work out what sort of timetable I will need to adopt to do two jobs at once.    Before BC it was easy to work on many projects at one time and to spread myself thinly but get results.  I worry that I may not be as good as that these days.  Time to try it out and see what I can manage.

A big day tomorrow - meeting a Portuguese Journalist about the family history, back home and then out for the big committee meeting to choose the next master of the Lodge.  It will be my last meeting as Secretary and I will be SO pleased to give it up in one way and yet will miss it dearly in another.  I've held the job right through my Bladder Cancer Journey and I'm quite pleased that I did.  The only down side was that I missed a number of visits however I am lucky that I eventually got to go to three Grand Stewards meetings during my time.  Not many can say that.

Better get off to bed I need my strength....

Leaving me cold

Another change that you may or may not have picked up from the blogs is that whilst I still have my Mr. Angry moments and also tell people how I feel quite directly these days, another behaviour has raised itself which I thought was strange.

I had a pretty serious meeting yesterday and tackled some heavy issues and normally when I fix things and get things sorted out I get a real buzz from doing it.  I am all enthusiastic and this time I just felt flat.  I actually feel that it is a defence mechanism of some kind.  It was peculiar earlier on just feeling that flat about something I should have been raving on about.

Mixed Emotions

Not like the sort where you see your Mother-in-Law drive over a cliff - in your new car....

More like the brain ache of working out how to do two jobs at once and get enough momentum into each to make sure you do a good job for them.  Additionally found out how much my peer makes a year and found that a hard pill to take.  It surprised me how much the job paid.  Good for him of course and it make my job all the easier now to negotiate a decent fee.

So today I am sat at home trying to figure out how best to tackle the two jobs at once syndrome.  Luckily my friend is around on Saturday and we can sit down and work that out.  It is a nightmare as I have lacked the discipline to sit down and get on with work for quite some time since I have been ill.  I can do it in short bursts but now need to apply myself to a number of months worth of this sort of thing.  It is a long burn and I have committed to 5 months of my time to make this happen (or not).  Today I am feeling somewhat down about that.  Tomorrow may well be different I expect.

I'm glad to be getting on with something but at the same time I am having just a few issues with the amount of time I need to put in.  It will be hard work - I just hope that I will enjoy it.  At the moment - I don't think I am but it will all change again in the morning.

Funny old mood

I can't say that I am in anything other than a funny old mood at the moment.  Work really sucks at the moment and I'm having trouble working out why I really need to be there at all.  People are still great but in reality - I just can't see myself lasting out there for much longer.  Maybe I don't need to.  

Tomorrow is a defining meeting in the other world of IT that I inhabit.  If I can get agreement on that, I can head off and do some serious work on getting our service to market.  We have all tried best endeavours but now it needs one or two of us to "step up to the plate" and do something rather than us being a talking shop and just spending our spare time (yea right - what spare time)  trying to do this and do our day jobs too.

If I get the go ahead tomorrow it will mean that I can devote some serious time to this project and that we can see if we can get investment to go forward.

Thinking back to Bertie now that he is dead you know he only really got to enjoy his life in the country in the two or three years before his death.  That is something that I hope doesn't happen to me.  I could do with a bit more than three years....

There's only so much you can take

It was boring and hot at the office and I finally gave in and left about 3:30, got to the station caught a fast train and was home within an hour of leaving.

I am sat here now staring at a load of figures and it still isn't making any sense to me.  I shall have to have anther clean break day and sit down and look at them afresh.

Out tonight, tomorrow night. Wednesday and Friday night too for my sins!  Another full on week and January just seems to have zipped past.

I have an importnat meeting tomorrow which will concentrate on my other business venture and I am hoping that I will be given Carte Blanche to run the next tranche of work.  It has taken everyone a year to realise that they aren't really up for it and so tomorrow we should agree that I take on most of the work and run with it to see if it is viable.  If we don't do this we run the very real risk of never having given the opportunity the chance to be born it deserves.  So if anyone has a quarter of a million (GBP) investment for the initial feasibility work, drop me a line - we need to talk :-) 

Bye Bye Bertie

Or Robert as I knew him. Worked together up until I was made redundant 3 years ago now. I had heard that there was something up last year but was saddened to see that he died around Christmas time. A Brain tumour apparently. How awful - he was a really clever guy and knew so much about the product and how to train and install it. It really is a sad loss, he was such a nice guy with it.

This probably accounts for the serious amount of brain activity I was going through last night, I was awake every half and hour or so and my mind was racing and dreams were coming in and out like trains at Clapham Junction!

At work now - and twiddling thumbs. Not a great deal has happened today and isn't likely to unless I go wake up a few people. I hate it when work goes flat like this. I get a good head of steam up and then nothing for a few days then full on and so on.

Family History

It was great to meet up with family again and then we all realised that it had been 2 and 3 years respectively since some of us met and it felt like it was only yesterday.  How amazing.  It was 9 years ago that I set up the family meet up in the first place.

We aren't a close family for some historical reason the paths split perhaps three geneations back and whilst I am now in touch with all my 2nd cousins, many of my third and some out as far as 6th cousins we still aren't anxious to meet up more than every now and then - perhaps a family trait?

Whatever, it was great to meet and catch up with all tht has happened and the family history was good, some nice lectures and I bought myself a bargain book which was originally £30 and I got it for under £10.  It is all about the reconstruction of the Cty of London after the Great Fire.  

I enjoyed getting to the place early, parking up and wandering into town to have a cooked breakfast and a cup of tea.  So much was on my plate that I lasted all day on it :-)  It was nice to have a mug of Café tea again - I don't often drink tea but I enjoyed that.

Some progress

I managed to make some progress today crashing through my paperwork.   The office is partly clear but really I should have done a bit more.  Unfortunately, I must have been on the phone for the best part of 2 hours with various phone calls and problems others have caused that  have to sort out for them.

I'm beginning to crystallise a plan of action to work part time and to get more involved in my other business.  It does need some fine balancing work to be done but I am certain I can do that given a little more time to work on it.

Tomorrow I am off to my family History Fair.  I hope to bump into my cousins and catch up on all that has happened in the past two years since I saw them.

Error - Hamster Makes Miraculous Recovery

I just found out that the Hamster made a miraculous recovery and so was taken back to its usual place in the bedroom this morning.  It was looking quite ill and was laying around gasping its last (or so we thought).  Even last night it didn't appear to be doing well when I saw it.

So a bit of a surprise there as it looked like the way all the rest went.....

Getting Started

Having a bit of trouble getting going this morning.  I want to get my office tidy and get my paperwork up to date.  Already had an interruption from the builder who is giving an estimate for our roof ridge tiles which have now become a pressing problem since the snow came and mucked them up.  We instructed a builder three months ago who just continually fails to turn up!  He's toast now and so we have looked to get a new guy involved.

Every time I sit down I find that something else needs doing.  I shall just have to get a coffee and start again and see if I can actually achieve anything this time.

It looks as if the Hamster died during the night.  The cage is nowhere to be seen this morning and I await the outcome of L's deliberations whether she will have another one.  She has had quite a few of them now and perhaps she may decide enough is enough.

A Flocky Treat and a sad evening

After the excesses of the night before Flocky called and we were going to go to the pub and run through some paperwork but the Curry House was open and we dived in there.  We were the only guests and we had some really excellent food.  I had a dish which came out sizzling using Pomfret Fish.  They said it was a local fish but looking it up it is a native of Indian, Pacific and Atlantic Oceans.  It was excellent though and the first time I have had any.  It will not be the last.

It is a sad evening as the Hamster is on his last legs and didn't look too good.  I feel very sad to see the little fellow gasping his last breath but we all have to go I suppose.  Stupid I know but something clicks inside and I really don't like death at all.  I mean, we all have to go and whilst I want that to be a long way off, it is on my mind and the I'm not sure what triggers the thought processes here.  You see I'm a little torn up by my daughter's pet dying and I think it because I am upset for her in case she is upset but she deals very matter of factly about these things.  I heard a friend died just after Christmas and I didn't know until after his funeral and yet whilst I was sad to hear that, I wasn't emotional about it.  He was a lot older, he had a full life, he retired a very long time ago and enjoyed his retirement and I met him 5 or 6 times a year and enjoyed his company.  It was a shame I didn't go to his funeral but I'm not beating myself up about that either.

I find my emotions are and what switches them on and off difficult to work out.  There are certain triggers in films and it is normally tragedy (kids killed or tortured, parents dying or that sort of thing - human or not).  Then again there are the little choking moments like seeing the Hamster gasping its last that make me feel uneasy.  Sometimes, it doesn't affect me at all.  The strangest thing about the last three and a half years or so is this emotional mixer.  I feel that someone has taken out my insides and stirred them all around and put me back together in the wrong order.

I'm at home again tomorrow and I am looking forward to actually making the family history weekend on Saturday up in London.  Not sure if I will drive or go by train this time.  Driving is quite nice and I can get there and then go and find a place for breakfast.  I didn't make last year and so haven't seen some of the family for 2 years!

A couple of days off

Regrouping required.  What is important?  Interesting turn of events this evening and quite privileged to be able to sit with some serious senior people in the overall scheme of things.

So - need to sort out a plan of attack.  This includes what to do with my business interests, the work at the Charity and further my interests.  In this respect do I go down the Livery Company route or perhaps pursue the possibility to further my ties into Masonry?  

So late home it is silly and the meal was late as the security was crazy (HRH Duke of Kent was in attendance) and tied right down.  I was seated with some amazing people and so just enjoyed the whole event but it was a late evening and really I could have got a Hotel as we caught the 11:36 out of Charing Cross and I got home about 00:40 eventually!!!

Anyway, how often do you get to days like this?  Not often in the overall scheme of things...

The trouble with heading off to work early is

That I put on the wrong pair of shoes in the dark and boy oh boy, am I paying for it now?  You cannot believe the cut I have across the back of my ankle/Achilles.  Typical, Ii staggered to the station on the way home and caught a bus back to near here and have a nice bloody mess there.  I can't believe I did that - my other shoes were well worn in too.  

Oh well - these things happen but not sure if I can walk far tomorrow - I'll see how I am in the morning and what shoes don't rub.  I certainly want to be fit for Wednesday.

I was out with a friend tonight and he drives me to distraction sometimes.  He has little money and yet he wants to spend a bucket load of cash he doesn't have doing something that - if I didn't have the money - I would drop.  He said that he has known me for years and that I am "good" with money.  He is right, I only bought what I could afford when I could afford it and I now don't have a mortgage (although I could have done without catching BC and getting paid off for that to do it).  I have no debt and if anything sometimes I wonder whether that was the right thing to do - especially when I thought I wouldn't be around long enough to spend any of it :-)

No he will spend it even if he hasn't got it on something that is in my opinion nice to do but it isn't essential to life!!!  I really don't get it but then he lives for the moment and the day and I imagine the bill will arrive one day and he will have to work out what to do about it.

If he is that desperate he can have my place I suppose but I hope he has gone away and thought about what I have said.  i doubt it but it would be nice if he did.  I cannot actually stop him doing this stuff - I'd like to but he wouldn't have it.

All I seem to have done this week

Is eat. I've been out lots of times and enjoyed food and drink and that isn't going to change this week as I am looking forward to attend the Grand Stewards' Lodge 275th Anniversary celebrations. It should be something very special indeed and who knows - I might even be around for their 300th?

After that I must knuckle down to some serious weight loss. I also need to catch up with a load of paperwork and so ought to talk to the boss about doing some part time work in the next few weeks. I have accounts to complete and other things to do which I just haven't completed.

I'm feeling well but as I was reminded, it isn't long now until I need to have my procedure in Hospital so about 8 or 10 weeks at the most. I was explaining that the decision isn't difficult to take as if I had been offered the course I have travelled this past 3 coming up to 4 years this July at time of diagnosis, I think I would have chosen this. I've had a remarkable journey to get here and I'm amazed that it is so long. We met with some old friends to day and G reminded me that we worked together close to 20 years ago. I was amazed I have to say it never seems that long ago.

Too busy to blog?

Afraid so.  Where did we leave this?  Oh yes, Wednesday evening and it is now Sunday morning.  Not a lot to report apart from being out every day since then and off out again in an hour to another do.  January has been a crazy month and I've been out almost every day.   I managed to work only half days down the week and so far, I haven't had the problems with the trains I thought I might do.  It must be related to the snow and to the experience I had all those years ago getting trapped on that train.

So I'm feeling a lot better at the moment.  I felt quite rotten about not getting into work but then I note that many people had the most horrible journeys and hardly did any work as they arrived at work to be told to go home early.  What is the point?

I did find out that if you do have an existing phobia then a major illness can make it worse in some cases.  

Not a lot more to say at the moment.  Because I am feeling so much better I'm in good spirits and whilst work is still pretty boring, I did get to do some strategy work that was really interesting.

Nice night out

A very dear friend and his wife invited us out for a drink and a curry tonight and we shared the same cruise ship with diametrically opposed destinations last year.  They hit the Caribbean and we did the Baltics - what a contrast but it was nice to catch up on what we all thought.

we trudged through the new layers of slush and ice to the pub and then to the curry house.

It was very nice but he is a naughty boy as he paid for the meal and I wasn't expecting that...

It was also interesting that we had a quick chat about the manifestation about my claustrophobia.  I read today that a long illness especially something traumatic or serious can intensify the whole thing.  It looks as if it can be treated through hypnotherapy or NLP or some other reprogramming of the brain.  What I was interested to see was that I don't have all the symptoms just some of them.  I wonder why that is?

I hope the trains are running in the morning - I could do with getting into work and getting some work done and attending my meeting at 12 too.

Not in at work

The snow came overnight and is still falling and I took one look and decided that discretion should be my watchword and not to put myself in a position to get stressed out.

I can review this later in the day as I really want to be in London on Thursday and Friday as I have meetings.  The amazing thing is that everyone is caught out again they didn't predict the weather over the weekend and they suggested a dusting.   We got a bit more than that and the car isn't coming off the drive!

Mind you things could be worse - let's consider the poor population in Haiti coming to terms with an Earthquake.  

What the hell is wrong with me

It can be frustrating that I just don't seem to be coming to terms with who I am, what I want to do, the way I am now and all that good stuff.

I just cannot make up my mind what I want to do for the best.  I got to work today and caught up with 4 or 5 day's worth of work in as many hours.  I cannot say that I enjoy the journey - it has become a chore and a experience that isn't pleasant and is almost frightening.  I am so glad that Ii didn't go in last wek as I heard tales tonight about some of the journeys and it made me feel queasy just listening to them.  SURELY there has to be something else I can do from now on that doesn't put me in situations I don't like, doesn't make me do things that are mediocre when I can deliver such value from my experience to others? 

Travelling in cattle trucks to and from work to do stuff that I can do as well at home just seems churlish to  me.  

I'm back where I was some years ago at some sort of crossroads and once again, I just don't know what to do with myself for the best and for my long term mental and physical health.  At present I could happily kick my job into touch.

I don't feel like going in to work tomorrow at all.  I will take a view when I see what the weather is like in the morning.   Life is opening up to be a cul de sac at the moment and I really want it to be so much better than that.

At least I found out tonight that the journey up to town was as bad as I had anticipated and I am glad I made the decision not to go now.  I think I would have ended up at an asylum if I'd have gotten on one of the over crowded trains they described to me.  

Sweaty Palms or what

What a funny old day.  I got to the station fine through the snow and my train was there and wasn't corwded.  I was still the only one sitting in shirt sleeves though.  The reaminder of passengers were togged up against the Arctic chill and yet how on earth could they get any benefit after bing in a hot train for 20 minutes or more?

I got to work and it was quite hot.  I was able to grab time outside as we have a door to the garden area.  However, I was hot everyone else was cold.  I went for lunch and came back even hotter than before!  Crazy.  So I decided to come home and I am just cooling off a bit.  I will have to change my clothes though as I am so hot and so sweaty.  I guess that was just me burning up worrying about getting into and out of work.  The rest of this week will also be half days as I have a number of other things to do.  I don't mind as at least I can avoid rush hour trains and try and get back to some semblance of normality.

I'm out again tonight - in fact out every night this week and both days over the weekend too.  Bang goes any chance of a diet.

I see that Mike and HK in Toronto are having various things done to them this week and let's hope that it works out for them.  HK had a torrid time with BCG and could do with some good news.

I'm just happy to have gotten home without a panic atack or anything else other than a high temperature which is gradually coming down now.   I will repeat the journey tomorrow and see how I get on.

Slowly Slowly Back to Work

I am still feeling extremely apprehensive about getting back to work and have told the boss that I am going to do this gradually this week and so half days.  I start tomorrow.  I will be taking early or later trains and just see how I get on.

The sheer feelings of panic and stress are clear in my mind and it is interesting to note that some of this may be hormonal and adrenal which kind of makes sense in a way as I reckon that my whole body has been whipped to bits these past three years or so and it just needs to try and regain its equilibrium.   Your hormone balance takes a hell of a whack and adrenaline gets used up and not fully replaced.

I wasn't surprised to read some of the stuff about Claustrophobia especially the suffocating feeling you get with it.  The Panic attacks and the feeling that you are going to die provokes a run away from it need and the trouble is you are normally trapped and cannot do that - hence that feeling of being trapped just gets worse.  Unless you've had a panic attack you really cannot understand the terrifying nature of it nor of the havoc it wreaks on you.  Chest constrictions, heat and hot flushes and sweating, nausea, double vision - yuk it is pretty awful.

I know my mother has this and it seems to be a bit of a family trait.  Anyone who hasn't had it probably cannot understand it but I imagine it is how drowning or suffocating or being caught in a fire or trapped in wreckage - like in a building after an earthquake must feel.   

I need to consider what to do about these attacks though as whilst I had some of these before I cannot remember them being as intensely upsetting as they have been this past year.  This time last year because I was trapped in my own head with both ears infected and me being deaf for about a month I was in a bit of a mess.   I was able to control it as I was at home and could look out of a window or go outside.  On a train and an more so underground trains I just have nowhere to go.  I thought I might get like this in St. Petersburg at the Hermitage where they did suggest the crowds were bad but I was more aware of watching out for pickpockets than being in a crowded place and I was with a guide and as I normally am, I was prepared and could actually move around and determine courses of action to mitigate any unforeseen circumstance.

I'm actually quite worried about this now as I worry about if I ever have a cold like I did last year will I just end up dying of suffocation or just stress myself out completely.

People that know me realise that I'm just not like this normally.  I exude confidence and self belief and here I am quaking in my boots worried about getting on a train and going to work and worried about how I'll get home.  In fact, it is the loss of control or normality that has added to the uncertainty and doubt that feeds the phobia.  I must ask my friend if he can undo any of this for me.   

I'm actually frightened and I can only think of a few times in my life when I have actually been this scared of anything.  Cancer itself and all the early stuff was frightening.  Seeing a guy running amok with an Axe years ago was pretty frightening.  Being deaf and ill.  Having a policeman pull a gun on me was sobering.  Seeing a guy get glassed on a train and subsequently going to court was scary.  Being on the edge of the riots in London and missing at least 5 or 6 major bombings were also scary.  realising that only a few weeks after I stopped commuting that I may have been on a train that was involved in a major accident and when I thought I was in the middle of an earthquake in Italy too could be deemed scary.  Those sorts of frightening experiences shook me up for a long time.   This current anxiety isn't as extreme in terms of the immediacy of it.  This is more a pent up fear and I have no idea how I will get on tomorrow with travelling in.  I fully intend to get up early and just see how I do.  If I can't hack it - I can get off the train and come home.  

I'm not looking forward to this one bit but I have to do it I guess.  It seems a strange notion that some of the things I fear are pretty much not possible (running out of air on the train for example) but that is what it feels like and in a panic attack that really starts your breathing problems!

New Week

Well - I've had a bit of time off this week to reflect on things and I have decided not to go into work tomorrow but just see how the trains are holding up.

It is difficult to tell people who don't or haven't suffered from claustrophobia exactly what it is like and it really has got more acute these past few years and even since the illness last year.   To try an put it into some sort of perspective it feels to me like someone has stuffed a huge weight on my chest so that I can't breathe and the harder I try to calm down the more frantic I get to try and breathe.  At the same time, I can feel my head beginning to buzz and feel as if it is under pressure as if before going in to  a feint.  Then comes the rising panic of wanting to be out of wherever I happen to be at the time.  Everything is hot and airless and that makes it even worse.

I really need to get some control of this.  I rarely have it at home but can do when I have a heavy cold and when that cold renders me deaf as I am trapped inside my own body.  I can easily sort that out by going to a window or standing outside.  

It sounds like I'm a right wimp having this sort of thing, the tinnitus and everything else - in fact the past few years have seen my body breakdown really but I'm not decrepit or particularly ill in that way.

I'm going to check tomorrow to see if the trains are running properly and then set out a series of actions to ease myself back to work.  I have to say that I really don't fancy the idea at all at the moment and perhaps I will need to just go part time or sort something out.  I really am having difficulty with the travelling side of it.  It is as if my body is telling me something about work, travel or some other message that I'm not getting yet.

I need to sort it out soon though as I don't want to continue this situation into the foreseeable future and I need to be able to travel without the fears of being cramped or trapped on a train or any other situation  arise that I cannot handle.  

I really am surprised at how bad I feel about this - I even get it in cars as well these days.  I can only imagine it is past experiences, bladder cancer  and recent events that have made it worse.

Trapped inside

The weather is pretty terrible and I hope that it starts to clear soon.  I really could do with getting into work next week especially on Tuesday and Thursday when I have meetings.

The trains are still running an emergency timetable, setting low expectations and then failing to meet them.  I still find that the prospect of cramped, slow, airless, overly heated trains fills me with dread and I will certainly not travel until I feel less threatened and intimidated by the journey.  If it continues into next week I might well look to getting up to town and staying at a Hotel or something similar.  

Anyhow, this long spell of snow and ice has at least allowed me to sit here and catch up with my own work.

Not going in today

The big freeze continues and I dropped a note to the boss today explaining a bit more about why I'm not coming in whilst the transport is so bad.

I've had to admit something that I don't admit to many.  I hadn't realised or owned up to the fact of quite how bad my claustrophobia has become and it is as if a weight has been lifted that I have now made him aware of the situation.

I control and manage this, as you probably know, through routine and other techniques but uncertainty over whether trains run or not and the overcrowding this could cause are just too much for me to cope with as I need control and order to manage the panic attacks that can be caused by over crowded, hot and airless trains etc.

I am stuck at home and will be until they sort the transport out to my satisfaction.  I cannot believe though how bad this has become.

You Just Never Know

The snow came along and in fact it looks less than the lot before Christmas but there are warnings of a band moving through later.  I decided not to go and try my hand at the revised train timetable and so didn't get ferried up to London on a cattle truck or have to suffer worrying about whether or not I'd get home.

It is amazing when the advice is to stay away, severe disruption to travel and all this and employers expect people to make it in to work.  As I am both employer and employee I let myself off.  I don't suppose my work are too impressed but it isn't as if I am a member of the emergency services or had anything worth getting freezing cold for and also, knowing my disposition to hot and crowded trains and overcrowded carriages, worth me getting all stressed out for either.

Yet you know employers will be making people drag themselves into work in trying circumstances that could see them taking hours to get in just to go home again when they could work from home like I am today.

An interesting piece on the BBC web site today about surviving cancer HERE.  It is one of the major things that I have noticed about my treatment.  Not just the tiredness but the weight problems, the lethargy and the terrible bone weariness I sometimes encounter.  On many occasions I have blogged about the state of my mind and what having cancer has done to that including the memory problems and the inability to find the right word to explain myself during conversation and when writing.  Then there are the moods and the emotional roller coaster and things like my claustrophobia and panic attacks.  I've done a bit about these myself with hypnotherapy and controlled breathing and other mitigating actions.  The trouble is that as this article states, they treat the illness but not the whole person.  There really should be some sort of holistic approach that could be taken but Doctors are doctors of medicine and they repair and put that right.  You can't expect them to do the fluffy bit as well I suppose but someone really needs to as it is as much a part of Cancer as the physical symptoms are. 

Travel Nightmare

Without a flake of snow they managed to lose all signals in the local area and so I came home early and had to make a series of tactical rail journeys.  I wasn't going to get caught on the one train they had going out that three or four times the number of passengers that would normally be carried were meant to get on.

Mission accomplished and I managed to take the Underground and another two trains and got home safely before the snow - which has just started - prepares to dump up to a foot on us.  The train company were going to go onto emergency timetabling tomorrow come what may and frankly I can do without living like a sardine, it just starts my claustrophobia off again and I get pretty panicky these days in situations like that.  I can keep it under control in normal circumstances but not when they pack us into really hot overcrowded trains.

It beggars belief that they want us to try and make it into work tomorrow.  It is in fact crazy as why spend two or three hours each way when I could get up and start work in my office here and deliver perhaps three hours or more work on top of my working day.  I despair that these old fashioned views still exist.  They still have a lot to learn.  I'd rather not get paid and get on with something else if they don't like it.

I'm just waiting for A to get back in she is walking back from the local pub so shouldn't be too long.  The weather has turned though and so I'll just wait up and make sure she is safely in before I turn in myself.

They say this is going to be the worst snow for 30 years.  If so - I remember that week well as we were stuck in our old house and couldn't get into work for a week!  

I hate commuting

It was OK this morning as the new Train timetable has an earlier train with longer carriages and so I get plenty of room.  They are still stupidly over heated even though it is minus 4 or 5 you don't need to boil passengers like they do.  Me?  I have to take off my coats and scarf etc. to sit down and yet others doggedly sit there with full hat, scarf, gloves and all on and honestly the carriage has to be 25 or more degrees C.  It is crazy.  Tonight I decided to get an earlier train and feel that I may now do that more often as it goes about 20 minutes earlier than the one I normally catch and is a little less crowded.  I still have these claustrophobic reactions and tonight needed to open the window on the train for 10 minutes or so before we moved off.  Again just so hot I could hardly breathe.

I notice that since my treatments I am a lot hotter than other people, I am always warm and need to be in cool rooms and transport.  If I have to sit in the furnace like conditions of some of these trains I get problems breathing which takes me a lot of effort to control.  

I have arrived home to find that a friend's wife has died over the weekend.  She had been ill for many years and had not been in great health.  I often hear the words "it was a relief" and maybe that is true for her and her husband but even so, it must still be a shock to the system and I've been asked not to call and so I wont.  I do not deal with death particularly well at the best of times and post BC find it acutely upsetting when experiencing it at funerals or similar situations.  I could handle it quite well before all of this and can gaze on my own demise stoically but show me anyone else suffering or losing a loved one and I find that I am not able to cope with it.  Let me talk to a cancer victim and discuss the symptoms, treatment, potential outcomes etc and I'm fine with that too.

Back to Work

No doubt the alarm will come as a bit of a shock in the morning and that the cold walk to the station will start the return back to work off in a not too pleasant way.  We are in quite a cold snap at the moment but we are not as bad as Scotland which appears to be in the -15 Degree area and that's Centigrade none of your woolly Fahrenheit nonsense.

I've spent the day plotting out what the year looks like in terms of appointments and meetings and so far it looks to be pretty much panning out to be suitably busy.  I have my wall planner set up and also a brought forward file to put all my paperwork in this time!  It makes for easier remembering where I have put things.

2010 is one of those years, I feel, where things are going to happen either planned or by serendipity.   Curiously, though, I don't have the usual plan worked out on what I am going to do and how I am going to get there.  

The adventure starts tomorrow - let's see where it leads me.

Welcome to the first day of the rest of your life

It is strange that as you travel on your journey post Cancer that the threat exists for as long as you live and is always with you in some way or the other.  I was reading Steve Kelley's Blog and especially this really interesting piece mapping out the journey ahead.  It occurred to me being a Project Manager that the successful outcome of the journey would be to die naturally without Cancer having reoccurred.

You'll have to excuse the morbid way I just wrote that but actually that would be a result I think.   I don't think I am any more susceptible to another Cancer but I am perhaps more likely to get Bladder Cancer again.  I'm not planning on that but it is a possibility that grows more remote the more clears I get.

Going back to Steve's posting - the mapped out journey has no end date and as a Project Manager you always like to see something concrete delivered.  A Programme is slightly different as it can continue to move and grow and doesn't always have an end point defined at the beginning.  

Until I can get my head around not having a definitive end point I think that I am going to continue to struggle with coming to terms with Bladder Cancer.  I've reflected many times on the fact that if you break a bone or have an  illness, in general terms there comes a point in time when you were back to the way you were before.   That doesn't happen in cases of serious illness because it messes with your head as well as your body and I can't see a point where I'd be "back to normal".   I'm still amazed at how some people react when they meet me and find out I had Cancer, they almost do a double take and they just utter the strangest things.  I wonder if I would be one of those people if I hadn't have experienced this first hand?

Because there isn't going to be a sign off and a point where the Doctors say "go away" or  "you're all done now", because I am going to be having blood tests and check up every year and perhaps, like Steve's plan, a Flexible Cystoscopy for every year of my natural life, this will just stretch on to my last days.   I think that the UK might be different though in terms of moving the inspections to longer distances so they go out to 18 months, 24 months, 36 months etc.  I'll find out all about that in April and May of this year I hope.

I hadn't really managed to grasp this point until I looked at Steve's chart and considered that this is no one off project it is a full on programme (program) which has multiple facets, multiple outcomes, hundreds of possible paths and priorities and Bladder Cancer is one of the major work streams pulling every other part of the programme along with it.  It is no single entity, not one thing to deal with, it affects everything I do and almost every decision I make.  It is a single reference point and commands the highest priority in decision making and actually, in that way alone it is also the commonest excuse for not doing something and procrastination.

Dealing with the "depression" that this brings is the most important thing for me this year.  I use the D word and yet whilst I am certain it is that - it isn't anything like the Black Dog Depressions I used to get a few years ago and which thankfully don't affect me any more.   This is the feeling that I am on the scrap heap job wise and all those years of experience and lets not beat about the bush, money that used to go with those jobs may well have gone now.  It was poignant when my kid brother told me he had to take a pay cut to stay in his job last year.  His pay cut was more than I brought in for the whole year.  That felt like a wet fish slap around the face.   Money isn't everything and I probably don't need to do that sort of work any more anyway and I don't really need the money I suppose.  However, that needs to be resolved this year.  The current job could be done in a few days a week not full time and I really want to get involved in my other business venture where I can.  

So one side of the problem - I'm not using my brain enough, my skills aren't being used and I'm well enough now (I think) to move on to something a bit more challenging but where that is I don't know.  Many think I should hold onto this job.  I'm good at it and I have the ability to make it my own, perhaps make a bigger role and I know that I am guaranteed work to 2017 - so what is the problem?  Many would say that you should accept and carry on - "go native".  That would never work I can't just 9 to 5 and not make a difference especially in an organisation that works like it is still in the 1960s.  

On the other hand - things aren't so bad with my health and coming out of the rough bit of the BCG treatments and being clear for quite a while should give me confidence to move on.  In fact I am happy to move on but I find that I will probably be plotting a solo course on this.  What I want to do and what everyone else wants to do are quite different and no one wishes to share that with me.  So another side of the problem is that try as I might to move things on, if I am not getting the support to do them, then this too will add to the dilemma.  

Some time ago I mentioned that the difficult part of the whole thing was that you can't change people's reactions to your Cancer.  They have to deal with it themselves and when I was at my most cynical a few weeks ago I dared suggest that perhaps they expected me to die rather than live and haven't worked out how to live with a ghost yet :-)  

So whilst everyone has been most supportive and stuck with me throughout this pretty torrid time,  they may not be the most appropriate people to go ahead with and move forward.   

It now depends how you value your friends and family and how whether you are prepared to burn bridges.   I would hate to do that and having lost a few friends because of Bladder Cancer (I'm still in touch but they couldn't deal with it and went into quiet mode), I'm not sure dumping those that helped me through the hard times is a good strategy and yet, it may be necessary for my own well-being and peace of mind in the long run. 

This may not be the first day of the rest of my life but I think that I have finally put a few more pieces in place to help me decide what to do next.   To continue in a way that sees me dissatisfied with life, the universe and everything is not the way forward.  I can take away the assumption that there is an end point to BC and remove that from my calculations.  I can take away the possibility of recurrence and just have to deal with it if it happens.  I have to tackle and weigh the options on whether to shrug off the hands that hold me back and go and do what I want to do rather than try and gain a quorum or gain levels of acceptance or grudging agreement.   I'm very good at keeping the peace, promoting the Status Quo and being the good guy, always bending to fit in but perhaps it is time now to change that and do something about it.

To vacillate or not to vacillate - that is the question......... or is it?

Life can be so complicated can't it :-)

New Year Resolutions

Easily broken in my experience. Mine are still to try and keep healthy and get better each day and to get out of the rut I'm in. The only thing stopping me is myself I reckon.

I really can't be arsed with work or much else at the moment - only in as much as I have other things to do and through wasting my time these past days just haven't gotten around to doing any of them. Even my wall chart is out of date, no calendars have been changed or anything so tomorrow (well later today) I ought to do that.

I'm not happy with myself these days, I must tackle all the things I should be doing without hiding behind the fallout from my condition. It is time to try and wrestle back some control now and see where that gets me.

Happy New Year

Well here we are 2010. Another year and another one that I'm happy to be alive in.

I took myself off to the Hospital today to get a blood test for my GP so they can continue to prescribe me all my heart pills. It was a good move, I got up late and wandered down there gone 11 and there were 5 of us in the queue which meant about a 10 minute wait and I was done and on my way home. Suitably rewarded with some left over bacon from Christmas I decided I might as well finish off all the fatty, calorie heavy stuff now as I won't be touching that again for a long while.

I'm now going to concentrate on losing weight and getting back into shape again as well as trying to get back some of my lost get up and go which has got up and went.

A look back at the last 10 years tonight on TV gave plenty of food for thought and yet no one mentioned my little milestones - perhaps best left behind and move on. It's a bit like having had a very bad cold for 3 years! Not :-)

Let us hope that this next decade brings us a little peace in this world and some massive improvements in Cancer detection, prevention, treatment and cure.